Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wondering If This Could Be A Neurologic Symptom

katg

Recommended Posts

katg Newbie
katg
Posted

My eight year old has been having episodes of fast motion feelings (everything around her moving super fast) or her hands feeling very large, puffy and even heavy. It seems to happen in the mornings mostly and only about once a week lasting about 1 to 5 minutes. We have taken her to her pediatrician who says he has heard of this before but it one of those unexplained things that we should not worry about. My daughter will start crying because she doesn't like when this happens and I'm try to do some reasearch on my own to see if maybe it has to do with her diet. Has any one had these experiences as a child? I typed in fast forward feelings and did come across a chat discussing the exact same thing my daughter has experienced but no one has a reason as to why and it appears to go away as the person has gotten older. She also complains that her stomach aches after she eats some times and often doesn't want to get involved in after school activities because she says she is tired. She also had a huge issue with cavaties this past year and had to have eight fillings. We couldn't believe it. It's like her teeth are very pitted or soft.

Kind of fell in to the idea that she might have a gluten problem as I did a cleanse type thing with the gym I attend where I was eating very cleanly for 10 days. After that I started feeling all bloated again and am wondering if I myself have an issue with wheat and I started looking into it. Now wondering if my daughter actually is having symptoms from gluten.

Any feedback would be really appreciated. Thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GF Traveling Dude Newbie
GF Traveling Dude
Posted

Neuro symptoms could be. They are very difficult for an adult to describe, let alone an 8 year old. I would describe celiac neuro symptoms as just not feeling with it; your nerves don't accurately respond to stimuli around you; would be felt most acutely in a busy setting where all your senses were activated at once. Thus, you see how everything around you would feel like it was moving too quickly if you couldn't keep up.

My eight year old has been having episodes of fast motion feelings (everything around her moving super fast) or her hands feeling very large, puffy and even heavy. It seems to happen in the mornings mostly and only about once a week lasting about 1 to 5 minutes. We have taken her to her pediatrician who says he has heard of this before but it one of those unexplained things that we should not worry about. My daughter will start crying because she doesn't like when this happens and I'm try to do some reasearch on my own to see if maybe it has to do with her diet. Has any one had these experiences as a child? I typed in fast forward feelings and did come across a chat discussing the exact same thing my daughter has experienced but no one has a reason as to why and it appears to go away as the person has gotten older. She also complains that her stomach aches after she eats some times and often doesn't want to get involved in after school activities because she says she is tired. She also had a huge issue with cavaties this past year and had to have eight fillings. We couldn't believe it. It's like her teeth are very pitted or soft.

Kind of fell in to the idea that she might have a gluten problem as I did a cleanse type thing with the gym I attend where I was eating very cleanly for 10 days. After that I started feeling all bloated again and am wondering if I myself have an issue with wheat and I started looking into it. Now wondering if my daughter actually is having symptoms from gluten.

Any feedback would be really appreciated. Thanks!

MovieMaker Newbie
MovieMaker
Posted

wow... I am blown away! I have just recently discovered every symptom I've had my whole life fits into the Celiacs Disease. Had my blood work done on Thursday, I should know by Tuesday for sure. But I don't need blood work to tell me I have this I've never been so sure of anything in my life. I am a 22 year old female and when I was about 10 or so, these " fast forward" feelings you describe terrified me when I was younger. Normally they occurred in the middle of the night, mostly when I would wake up from a nightmare. I was pace around my hallway to this really fast "rhythm" I would describe it sometimes it would take my a while to shake it and now that I'm older I have grown use to it, so I'll do my business in the middle of the night with "fast forward" movements and then go back to sleep. I share the same symptoms you daughter does. I hope that this information has helped.

Best of Luck

katg Newbie
katg
Posted
  • Author

wow... I am blown away! I have just recently discovered every symptom I've had my whole life fits into the Celiacs Disease. Had my blood work done on Thursday, I should know by Tuesday for sure. But I don't need blood work to tell me I have this I've never been so sure of anything in my life. I am a 22 year old female and when I was about 10 or so, these " fast forward" feelings you describe terrified me when I was younger. Normally they occurred in the middle of the night, mostly when I would wake up from a nightmare. I was pace around my hallway to this really fast "rhythm" I would describe it sometimes it would take my a while to shake it and now that I'm older I have grown use to it, so I'll do my business in the middle of the night with "fast forward" movements and then go back to sleep. I share the same symptoms you daughter does. I hope that this information has helped.

Best of Luck

I can't believe this. It's so nice to hear that someone else has experienced what my daughter is. Could you please let us know how your tests turn out. Very grateful for your reply. This is really confirming that I am on the right track here. Thanks

georgie Enthusiast
georgie
Posted

These Youtube videos show what celiac can do re neuro symptoms....

Open Original Shared Link

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,131
    • Most Online (within 30 mins)
      7,748
    Itsabit
    Newest Member
    Itsabit
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.6k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Does High DGP IGA Typically Mean Celiac?

      By trents · Posted

      Keep us posted and let us know the results of the biopsy. Your case is atypical in a way in that you have this high DGP-IGA but normal TTG-IGA so knowing how it turns out will give us more data for similar situations that may be posted in the future. 
    • Skg414228
      Does High DGP IGA Typically Mean Celiac?

      By Skg414228 · Posted

      Fair enough! I very easily could have misread somewhere. Celiac is very confusing lol but I should know in a little over a month what the final verdict is. Just thought chatting with people smarter than myself would get me in the right mindset. I just thought that DGP IGA was pretty high compared to some stuff I had seen and figured someone on here would be more willing to say it is more than likely celiac instead of my doctor who is trying to be less direct. She did finally say she believes it is celiac but wanted to confirm with the biopsy. I did figure it wouldn't hurt seeing what other people said too just because not all doctors are the best. I think mine is actually pretty good from what I have seen but I don't know what I don't know lol. Sorry lot of rambling here just trying to get every thought out. Thanks again!
    • Scott Adams
      Less than 10 parts per billion issues

      By Scott Adams · Posted

      Yes, these articles may be helpful:    
    • trents
      Does High DGP IGA Typically Mean Celiac?

      By trents · Posted

      No, you don't necessarily need multiple testing methods to confirm celiac disease. There is an increasing trend for celiac diagnoses to be made on a single very high tTG-IGA test score. This started in the UK during the COVID pandemic when there was extreme stress on the healthcare system there and it is spreading to the US. A tTG-IGA score of somewhere between 5x and 10x normal is good enough by itself for some physicians to declare celiac disease. And mind you, that is the tTG-IGA, not the DGP-IGA. The tTG-IGA is the centerpiece of celiac antibody testing, the one test most commonly ordered and the one that physicians have the most confidence in. But in the US, many physicians still insist on a biopsy, even in the event of high tTG-IGA scores. Correct, the biopsy is considered "confirmation" of the blood antibody testing. But what is the need for confirmation of a testing methodology if the testing methodology is fool proof? As for the contribution of genetic testing for celiac disease, it cannot be used to diagnose celiac disease since 40% of the general population has the genetic potential to develop celiac disease while only 1% of the general population actually develops celiac disease. But it can be used to rule out celiac disease. That is, if you don't have the genes, you don't have celiac disease but you might have NCGS (Non Celiac Gluten Sensitivity).
    • Skg414228
      Does High DGP IGA Typically Mean Celiac?

      By Skg414228 · Posted

      Okay yeah that helps! To answer your last bit my understanding was that you need to have multiple tests to confirm celiac. Blood, biopsy, dna, and then I think symptoms is another one. Either way I think everything has to be confirmed with the biopsy because that is the gold standard for testing (Doctors words). You also answered another question I forgot to ask about which is does a high value push to a higher % on those scales. I truly appreciate your answers though and just like hearing what other people think. Digging into forums and google for similar stuff has been tough. So thank you again!
×
×
  • Create New...