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My Introduction


Sunny Side

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Sunny Side Newbie

I just wanted to introduce myself. My name is Theresa and I have been a member for quite a while. Although I haven't been active, I have been lurking. I was diagnosed with Celiac disease by biopsy and have been gluten free since May 2009. It has been challenging at times since I am the only one in the house on a gluten free diet. I have a husband and three children. I cook some meals completely gluten free and sometimes I cook separate meals for myself. I have my own pots and pans and plates and utensils, etc. I'm careful about crumbs and cross contamination, and I'm constantly washing my hands. Sometimes I wonder if gluten may still be sneaking it's way in to me some how since I am handling it so much. I feel well, it's just not easy being the only person in the house that's gluten free. Anyway, I just wanted to finally introduce myself. I've gotten a lot of information from this forum. I'm looking forward to getting to know you better.


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lizard00 Enthusiast

Welcome Lurker! :) It's nice to have you out of the shadows!!

jackay Enthusiast

I, too, wonder if gluten is sneaking it's way in to me. I am washing my hands a lot on shared towels. Whenever I am contacting food, eating or doing dishes, I wash my hands and use a paper towel for drying. If I need to do a few dishes, I use paper towels in the inside and a dishtowel on the outside. I use the dishwasher most of the time.

You say you feel well. Did you have symptoms before going gluten free?

I have so many food intolerances, that I don't know what is causing what symptom. I've read that it takes some people a long time to feel better. Could that be me? I question so many things each and every day. Paranoid? You bet I am!!!!!!

Sunny Side Newbie

lizard00, thank you for the welcome!

Jackay, before going gluten free I suffered from abdominal pain and distention. I'm feeling better although I still deal with the bloating. But not it's not as severe as it was. I also have heard it takes a long time to feel better, so I am hopeful. I hope you find relief soon too!

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    • K6315
      Well, that's interesting. I am lactose intolerant and have been managing that for years. I'd be interested in seeing if that changes once I feel better from not eating gluten (one thing at a time for now, though). Helpful to hear about the avenin. I will do some digging and pose that to the dietitian. Grateful for your feedback.
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      Recently my daughter ate in nandos harlow I rang in advance to speak about the celiac protocals and learned that childs portion chicken nandinos is cooked on the same grill as garlic bread even if they are celiac! Even if you clean it this is not good practise and will be making many children ill. I learnt adults butterfly chicken cooked on a grill purely for chicken.  This is fine and what we ordered however nandos need to take note of your practises for the safety of celiac children. my daughter has been ill from their nandinos chicken before and i emailed head office and they wouldnt accept responsibility 
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      I agree with @RMJ, you have multiple positive tests so celiac disease is likely.  This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.     
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      One small study found that 50% of celiacs react to the dairy protein "casein" like they do to gluten. It is also common for celiacs to be lactose (the sugar in milk) intolerant, though that often disappears in time as the villi heal. About 10% of celiacs react to the oat protein "avenin" like they do gluten.
    • K6315
      Thank you so much Trents (Scott?)! I have started working with a dietitian and did a deep research dive as soon as I got the diagnosis. I am aware of what you mentioned in the first two paragraphs, and was not aware of anything in the third, so I am grateful for that information, and will talk to the dietitian about that. I think I was most interested in the withdrawal process - it gives me hope that, although I have felt unwell recently, I just need to be patient (not a strong suit). I have printed the article you sent and will look at it more closely. Thanks again!
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