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Cd People W/ Acid Reflux & Gastritis

rmmadden

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cdford Contributor
cdford
Posted

Anyone else out there feel like a fire-breathing dragon some days? I do not always have the actual burping and such, but sometimes just the gases coming up make my throat and mouth feel hot and like I touched them with hot pepper.

I also go through periods of time where I am sooo thirsty. I sip or drink a lot. After supper, I start to feel really yucky. Then, sometime later in the evening I will throw up everything I ate all day long. It is so frustrating. Once it is all out, I will feel better.

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blueshift Apprentice
blueshift
Posted

I noticed a lot of posts here seem to deal with treating an attack with taking something internally..What I do when I have an attack and my small bowel goes into a partial or full obstruction is to stop taking anything internally at all, including the skipping of the next meal or even going 24 hours without eating..

I get on the floor on one side and place a medicine ball to the left of my belt buckle and rotate my body toward the floor a touch to add pressure to the small colon area..It will relieve the reflux feeling faster than any medication..

I experiment with the ball on the opposite side as well to see which works the best.

My medicine ball is never far from where I sleep..Sure beats any drugs and side effects that they cause.

I have even placed ice bags along my gut to help shrink the swelling and I add pressure...Many of you might be getting partial obstruction in your small bowel that will push everything back up, leaving you to think that GERD is the problem when it might not be.

dperk Rookie
dperk
Posted

I have controled my acid reflux by watching what I eat. No more Nexium. I stay away from dairy, soy, potatoes and other heavy starch foods and sugar because of the acid reflux I get when I eat them. But I would rather do that than take meds - and they don't always help my acid reflux, anyways. I also eat more veggies and salads to make sure the ph is more balanced. It has really helped.

dperk Rookie
dperk
Posted

Blueshift - can you explain what the medicine ball is? Sounds interesting.

blueshift Apprentice
blueshift
Posted

The medicine ball is about the size of a basketaball only a little larger..It is inflated but not to the extent that a basketball is..

When I lie down I put it against the side of my body right next to my hip in contact with my body. Think of a grape being squeezed..As I turn my gut grips the ball and I climb on it partially while the ball is held still and squeezed, cradled by my arm..The pushing feeling is the same one a doctor gives you, only more so and for a longer period...I will sleep with it at times for the entire night..

A lot of times I can roll the ball back and forth across my abdomen and get results..It makes a good massage before supper at times..

When I get obstructions I will push it up against my belt buckle as I roll, using the belt buckle and ball for more leverage and pressure that can go deeper into the small bowel region..

Hope this helps..

Athletes use medicine balls quite often..especially baseball players..

  • 5 weeks later...
junevarn Rookie
junevarn
Posted

I had horrible heartburn that would extend into my whole chest!I didn't know what was going on. I also had terrible attacks with overwhelming anxiety( with vomiting and diarrhea and palpitations). :( I also have MVP.( its the mildest form, no worries).

This doctor at the alternative clinic tested me for helicobacter pylori bacteria and I had it! :o It burrows down into the stomach wall and causes little ulcers. I had to be on two kinds of antibiotics for two weeks along with ten pepto tablets daily(which acts like a third antibiotic). The heartburn went away. I just did another test for it and hopefully its gone for good. I have always had a sensitive stomach so I'm wondering how long I had it. The doctor said the gluten problem predisposed me to getting other infections.

Hope this helps,

June :D

  • 3 months later...
Guest BellyTimber
Guest BellyTimber
Posted

Clarification - in the light of a controversy in the UK at the moment about protease, I checked this site and got useful info. Thanks!!!

Looking back I was lucky to not be adversely affected by the protease. I would probably have been benefitting from the other enzymes and also the HCl+Pepsin.

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  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

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      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
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