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Specific Carbohydrate Diet?


PreOptMegs

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danikali Enthusiast
I have questions:

Is there anywhere on-line where there is a list of safe/legal probiotic brands to use?

Does anyone know what the special instructions are for cooking the dried legal beans?

Open Original Shared Link

That is the website where you can buy the probiotics offline. That's where I got mine. They are about the same price as buying them in the store.

Anyway, Christine, you are lucky that you can tolerate all of those things. I can't have bananas, it seems like I have a problem with any kind of fruit. My main problem is bloating and heartburn at night. Anytime I eat the smallest amount of something that my body doesn't like, I blow up like a balloon and stay that way for a while. It's soooooooooooooooo f'in annoying. (Sorry, but it really is). I'm sick of feeling like I'm not in my own body when I look in the mirror. It's very depressing.

I just feel like I'm never going to be able to tolerate anything besides meat and veggies. I'm getting really depressed again. Is there anyone out there who had problems with foods for a while and can eat them now like a normal person? (SCD legal of course). I'm just really frustrated, really hungry, and really craving my beloved almond butter with rasins.


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cornbread Explorer
Open Original Shared Link

Anytime I eat the smallest amount of something that my body doesn't like, I blow up like a balloon and stay that way for a while. It's soooooooooooooooo f'in annoying. (Sorry, but it really is). I'm sick of feeling like I'm not in my own body when I look in the mirror. It's very depressing.

Dani, I know exactly how you feel. I hate being bloated. I'm a size 2. Looks so ridiculous to wear my regular size clothes but have this pot belly sticking out!

corinne Apprentice

I've been adding just one food every 3 or 4 days. I react to a lot (well it seems most foods) so I've had to go really slow. So far it's just canned fruit, squash, beets, carrots, meat and eggs. All very well cooked. I got impatient at first, but felt sick so decided I needed to go slow.

Guest greengirl
Anyway, Christine, you are lucky that you can tolerate all of those things. I can't have bananas, it seems like I have a problem with any kind of fruit. My main problem is bloating and heartburn at night. Anytime I eat the smallest amount of something that my body doesn't like, I blow up like a balloon and stay that way for a while. It's soooooooooooooooo f'in annoying. (Sorry, but it really is). I'm sick of feeling like I'm not in my own body when I look in the mirror. It's very depressing.

Dani,

I'm sorry you're having such a hard time! I don't know if I am tolerating all the foods either since I have this burning in my intestines, but I don't know what to cut out.

You've only been on the diet for 5 weeks, which probably seems like forever, but in the whole scheme of things it's still early on and perfectly understandable that fruits would cause a problem. Sometimes I'll cook strawberries with honey for a smoothie instead of just adding them raw. I'm trying to stay away from most fruits at this point unless they're cooked.

I'm starting to realize, though, that there isn't one answer that works for everyone. Everyone's body seems to have its own unique way of responding to foods. I, too, keep searching for answers, and, yes, it does get depressing not knowing whether we're on the right track. I think it's just going to take time. Going slow is probably the best bet.

Have you tried some medication for the heartburn? I take protonix once a day and it helps a lot with acid reflux.

Christine

PreOptMegs Explorer

Honestly, here is how I added things in. Yes, I started out very strict on the diet, but since it is fresh fruit season, I have to have some fruit. Basically, I eat the fruit even if I think it is going to cause problems, just to get the craving out. If I get gas later, then I know I wasn't ready for it. Basically, I take out one day on a weekend to eat and try out the foods I want. For the rest of the week, I stick to meats, eggs, cheese, yogurt, and cooked veggies. After about a month of this, I have healed so much that even the fresh fruit doesn't bother me. For me there just comes a time when I have to have my raisins, no matter if my body was ready or not. I can eat them now, but in the beginning I just had to suffer through the gas.

danikali Enthusiast

Okay, so at least I'm not alone on this. That's good news. Yesterday and today, all I've had is carrots and meat, no juice even. I'm making the yogurt (it's at home cooking right now), so I will try that either tomorrow or Friday. But I guess it makes me feel a lot better to know that even if I have the foods that are 'legal' but still bother me, it doesn't stop the healing. For example, preptomegs, you said that once a week you try things like fruit, even if you know they bother you, but eventually, you can tolerate the fruit, even though once a week you give into your cravings. That's very good news. I try not to take any meds for my pain, so last night I took baking soda instead of real med. It doesn't work as well, but I think it helps a little. And yeah, my worst problem is the bloating, and some back pain and heartburn. I would say mostly the bloating though because there are times where I am just really bloated but don't have any pain anywhere. For example, if I have too much nut butter, which is my downfall, I'll have a huge stomach but it doesn't necessarily hurt me. Who knows. But I am wondering how this goat yogurt is going to taste without adding fruit to it......anyone eat it like that? It looked good this morning when I checked on it. I'm excited to see how it turns out.

dlp252 Apprentice
But I am wondering how this goat yogurt is going to taste without adding fruit to it......anyone eat it like that? It looked good this morning when I checked on it. I'm excited to see how it turns out.

Think of it as something like sour cream. I used to buy the store bought goat yogurt, and I thought it was a little more tart than a normal unsweetened yogurt--I almost always added some type of sweetener, but I didn't think it was too bad plain either.


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danikali Enthusiast
Think of it as something like sour cream. I used to buy the store bought goat yogurt, and I thought it was a little more tart than a normal unsweetened yogurt--I almost always added some type of sweetener, but I didn't think it was too bad plain either.

Okay, thanks. So I can eat it without adding anything to it and it is still edible...? I hope I can tolerate it, considering I have the whole casein problem. But Donna, you do too, right? And it doesn't bother you? I bought a yogurt machine and just got it on Monday, so I finally get to make it. Everyone keeps talking about the advantages of it, so I thought I better try it if it can help speed up to process of the healing. And it will also be great to add something sweet and different besides having mostly meat and veggies. Right now I can't really tolerate fructose, and I can only have small amounts of almond butter at a time. But I guess that's how nut butter should be eaten! hahah, I just get carried away because I love nut butters!

dlp252 Apprentice
Okay, thanks. So I can eat it without adding anything to it and it is still edible...? I hope I can tolerate it, considering I have the whole casein problem. But Donna, you do too, right? And it doesn't bother you? I bought a yogurt machine and just got it on Monday, so I finally get to make it. Everyone keeps talking about the advantages of it, so I thought I better try it if it can help speed up to process of the healing. And it will also be great to add something sweet and different besides having mostly meat and veggies. Right now I can't really tolerate fructose, and I can only have small amounts of almond butter at a time. But I guess that's how nut butter should be eaten! hahah, I just get carried away because I love nut butters!

Oh, I LOVE nut butters as well...I can eat a whole jar in a week by myself. I haven't had any goat yogurt since I found out I was intolerant to casein...I keep thinking I want to try it, but I'm afraid, lol. If I make my own (and I DID buy a yogurt maker), I was going to try it with coconut milk and a non-dairy yogurt starter. I think if I knew for certain eating it wouldn't damage my intestines I'd eat it in a minute and just live with any discomfort, lol.

Rachel--24 Collaborator
Oh, I LOVE nut butters as well...I can eat a whole jar in a week by myself.

I can eat a whole jar in one hour by myself. :blink:

I think there is something just WRONG with my eating habits. No wonder I got myself sick. <_<

Dani,

I used to make the yogurt out of goats milk...it tasted good to me and I ate it plain. I dont know if I'm the best judge though because I seriously eat almost anything and like it...except sushi. I tried it once and spit it out into my napkin. Gross.

dlp252 Apprentice
I can eat a whole jar in one hour by myself. :blink:

I was originally going to say something close to that because I seriously CAN eat that much in a day, lol.

danikali Enthusiast

I agree with both of you. I have been known to eat a whole jar of nut butter in a day too. When I love something (and I love most foods), I can just keep on going, and going and going......That probably is why our digestive systems are so messed up.

Okay, well I made the goat yogurt and I tried a little bit this morning but it was SOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO BITTER! I mean, BITTER! And it wasn't really that thick. Did I do something wrong, or is it supposed to be like this? ANd I have a problem with casein too, but I keep hearing that for most people with casein problems, they can have the goats milk. And my stomach is so bloated everyday of my life, I feel like maybe this would help it? Who knows. Hopefully because I have found no cure for the bloating yet. Maybe I'll go out and get digestive enzymes today or something......anyone have any good results with those?

dlp252 Apprentice
Okay, well I made the goat yogurt and I tried a little bit this morning but it was SOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO BITTER! I mean, BITTER! And it wasn't really that thick. Did I do something wrong, or is it supposed to be like this? ANd I have a problem with casein too, but I keep hearing that for most people with casein problems, they can have the goats milk. And my stomach is so bloated everyday of my life, I feel like maybe this would help it? Who knows. Hopefully because I have found no cure for the bloating yet. Maybe I'll go out and get digestive enzymes today or something......anyone have any good results with those?

Don't know about the bitter...I found the goat milk to be way more bitter than soy milk for instance...the goat yogurt was more tart than normal unsweetened yogurt, but I don't know if I'd call it bitter. I bought Stoneybrook Farms (I think) goat yogurt and it was runnier than normal yogurt...I kind of like mine really thick, but it was okay if I added lots of stuff to it. I sometimes would strain it through cheesecloth to separate the liquid from the more solid stuff...that takes a few hours or overnight though.

I was eating both goat yogurt and greek yogurt for the few months before I sent in my Enterolab tests, so I'm not sure if the antibiodies would have been from the regular or the goat yogurt. I know my allergist (before he retired) told me he though goat milk or yogurt would be okay since over my lifetime I probably hadn't had that much of it to build up antibodies...I don't know though...I ate quite a bit of it in the last 4 years.

danikali Enthusiast
Don't know about the bitter...I found the goat milk to be way more bitter than soy milk for instance...the goat yogurt was more tart than normal unsweetened yogurt, but I don't know if I'd call it bitter. I bought Stoneybrook Farms (I think) goat yogurt and it was runnier than normal yogurt...I kind of like mine really thick, but it was okay if I added lots of stuff to it. I sometimes would strain it through cheesecloth to separate the liquid from the more solid stuff...that takes a few hours or overnight though.

I was eating both goat yogurt and greek yogurt for the few months before I sent in my Enterolab tests, so I'm not sure if the antibiodies would have been from the regular or the goat yogurt. I know my allergist (before he retired) told me he though goat milk or yogurt would be okay since over my lifetime I probably hadn't had that much of it to build up antibodies...I don't know though...I ate quite a bit of it in the last 4 years.

Yeah, I guess I would call it tart. It was verrrrry tart! For example, did you ever have those white sugar sticks that comes with the pure sugar powder in different colors? Well, you know the taste that you would get after stick a bunch of that sugar in your mouth? That's what it tastes like. I'm kind of trying to wait on adding fruit back to my diet, but I don't know how I'll be able to eat this yogurt plain. It's so sweet! You said sour cream before, and that's what I imagined I was eating when I tasted it. I could never eat sour cream straight, so I don't know how I'm going to manage this. But if it will help me system, I have to figure out SOME way!

dperk Rookie

I have been on a gluten free diet for a 18 months, and I have been on the SCD diet for a year. I wasn't able to eat all of the foods that were legal, and kept losing more foods instead of gaining them. I hardly made it past the intro diet. I couldn't tolerate raw fruit, some nuts or yogurt - and lots more. Than almonds started bother me - and that was really bad news. I know that this diet helps, but I was at a stand still - and maybe sliding backwards. So I looked into other things that might help. I found this website - Open Original Shared Link - and have been doing the liver cleanses and parasitic cleanses. I was desperate - I had to try something, anything. Well, after 4 liver cleanses, I can say that it was like the icing on the cake. I can now eat things I haven't been able to eat in a year. I'm able to eat bananas, avacado, tahini, pecans, walnuts and even goats milk yogurt and cheese. It's amazing. So any of you that are still having trouble after doing the diet, please look into the liver cleanse. It really, really worked for me. I will slowly get off the SCD diet now - if this keeps up.

Hope this helps others out there.

Debbie

danikali Enthusiast
I have been on a gluten free diet for a 18 months, and I have been on the SCD diet for a year. I wasn't able to eat all of the foods that were legal, and kept losing more foods instead of gaining them. I hardly made it past the intro diet. I couldn't tolerate raw fruit, some nuts or yogurt - and lots more. Than almonds started bother me - and that was really bad news. I know that this diet helps, but I was at a stand still - and maybe sliding backwards. So I looked into other things that might help. I found this website - Open Original Shared Link - and have been doing the liver cleanses and parasitic cleanses. I was desperate - I had to try something, anything. Well, after 4 liver cleanses, I can say that it was like the icing on the cake. I can now eat things I haven't been able to eat in a year. I'm able to eat bananas, avacado, tahini, pecans, walnuts and even goats milk yogurt and cheese. It's amazing. So any of you that are still having trouble after doing the diet, please look into the liver cleanse. It really, really worked for me. I will slowly get off the SCD diet now - if this keeps up.

Hope this helps others out there.

Debbie

Debbie, please tell me more about this. I just went to your website and looked at it. I will def. give it a try. I had the goats yogurt on Friday and was okay at first, but later that night until now, I am sicker than anything and can't tolerate anything at all. Where did you hear about this? Could I get sick from this? Do you only do it once with four doses in the two days?? If you want to e-mail me, please do. I'm so desperate. I feel like eventually I won't be able to eat anything without getting sick and I feel so depressed right now. My e-mail is Danikali22@hotmail.com.

"Zap daily the week before and complete the parasite killing program before attempting a liver cleanse."

I would like to do this this coming Saturday, but what does this quote mean? What should I be doing this week before I do my first clense?

Thank you.

danikali Enthusiast

OKay, I just realized what this zapper was, and I can't afford that right now, for one and for two, it seems like a scam and I'm sick of being scammed. Also, I have to do this other clense program for a while first? I can't and won't pay for that stuff, did you Debbie?

Rachel--24 Collaborator

Dani,

I used to do all that stuff you read about on CureZone and I can tell you that it didnt help me one bit. I did coffee enemas and cleanses and all that stuff....it didn't work. Thats just my experience though. I'm getting better since I eliminated all corn and I've gained 10 lbs. in one week. I'm able to eat alot more stuff now. I'm recognizing that when I get "corned" I start reacting to other foods again and eating becomes "scary" because of the symptoms but once the reaction subsides things settle down and my tolerance improves again. I guess its pretty much the same as getting glutened but corn is much harder to avoid. I can drink milk now so I'm not really casein intolerant...it was just that all the milk and dairy products had corn derivatives in them. I got the one brand of corn-free milk and I get no reactions from it!! I'm a little paranoid that I'll become intolerant to casein if I drink the milk regularly so I'll probably chill out on it but at least I can make yogurt now! All the store bought kinds have corn so I'll make my own...don't know where I'll get my starter from though. <_<

Hmmm...I'll have to put some thought into that.

nikki-uk Enthusiast

Rachel,

I've been following your progress and I'm glad to see things have picked up for you and that you've put some weight on-and that you can tolerate a little dairy!!

Hope your progress (and all others) continues :)

danikali Enthusiast

Hi everyone,

Rachel, I'm so extremely happy for you. The fact that you gained 10lbs is amazing and is def. proof that your body is starting to work the way it should. I figured that cleanse wouldn't work when I read about all the other crap you have to buy with it. And I'm glad you reminded me that EVERYTHING will bother you when you eat something that doesn't agree. For example, last night I had carrots and all night last night I was sick. I'm actually taking off of work today because I just feel 100% lousy.

I just talked to someone on SCD who is like an expert, and she reminded me how extremely powerful the goat yogurt is and I should have had as little as 1/8 of a teaspoon to start off with. I had a small bowl of it, so I created whats called a herxheimer reaction, or a die off reaction in my body that was bigger than it had to be, so my symptoms were worse.

For now it's back to meat, and after that, when I add things in, it's going to be extremely extremely slow. I HAVE TO DO THIS. I NEED TO GET BETTER.

miamia Rookie

Rachel-

I ahve been following your posts on the corn issue. I can't even tell you how similar your situation sounds to mine. The candida, leaky gut, malabsorbtion inability to gain weight, etc. I have tried everything and have not gotten better - if anything worse. I ahd never seriously thought about the corn thing before but since you brought it up I have been doing a ton of research. I think i might really try to eliminate it. -I have nothing to lose at this point. I am so happy and hopeful to hear how you have improved. What have you been eating- brushing yur teeth with. God i thought soy was in everything but corn definitly takes the cake.

Any advice would be helpful and pleases please keep posting your progress.

Miamia

Dani,

I used to do all that stuff you read about on CureZone and I can tell you that it didnt help me one bit. I did coffee enemas and cleanses and all that stuff....it didn't work. Thats just my experience though. I'm getting better since I eliminated all corn and I've gained 10 lbs. in one week. I'm able to eat alot more stuff now. I'm recognizing that when I get "corned" I start reacting to other foods again and eating becomes "scary" because of the symptoms but once the reaction subsides things settle down and my tolerance improves again. I guess its pretty much the same as getting glutened but corn is much harder to avoid. I can drink milk now so I'm not really casein intolerant...it was just that all the milk and dairy products had corn derivatives in them. I got the one brand of corn-free milk and I get no reactions from it!! I'm a little paranoid that I'll become intolerant to casein if I drink the milk regularly so I'll probably chill out on it but at least I can make yogurt now! All the store bought kinds have corn so I'll make my own...don't know where I'll get my starter from though. <_<

Hmmm...I'll have to put some thought into that.

dlp252 Apprentice

Gosh Dani, I'm so sorry you are sick again!!!!

Rachel, I'm so happy you aren't sick again!!!!

dperk Rookie

I think the bottom line is :

Everyone is an individual - and we need to keep searching until we find the right combination that helps us.

For me, I tried a lot of things. It helped to go gluten free. It helped to follow the SCD diet. But I still couldn't eat many foods. There were more foods that were making me sick, and I wasn't able to gain any foods back. I was afraid that if this kept up, I wouldn't be able to eat anything without feeling sick. I was desperate - I had to try something.

I didn't buy the zapper (not sure about that one). I just did the wormwood, walnut hull tincture and cloves for two weeks, then went straight to the liver flush (cleanse). I've done 4 of them now - so I'm no expert.

I can't tell you how excited I am now that I can eat food again. Corn is not my trouble - I've been able to eat fritos again with no problems at all. I'm like a kid in a candy store - I just want to eat food............. After not eating Fritos and tahini for a year - they taste pretty good. And strawberries again, yhea......

I don't want to diminish SCD - I think it did help me to stay on it for a year. It just wasn't all I needed to do - I needed more. And cleaning out my gallbladder and liver was what my system needed, I guess.

Debbie

ON the issue of corn:

I haven't done corn in a year - no diary at all. All I could eat was fresh veggies, canned pears, applesauce, almonds and meat. No corn at all.

And I still had malabsortion, couldn't gain weight, leaky gut - plus a host of others if I tried to add anything else. It wasn't the problem for me.

Rachel--24 Collaborator
ON the issue of corn:

I haven't done corn in a year - no diary at all. All I could eat was fresh veggies, canned pears, applesauce, almonds and meat. No corn at all.

And I still had malabsortion, couldn't gain weight, leaky gut - plus a host of others if I tried to add anything else. It wasn't the problem for me.

Debbie,

I was on a similar diet for several months. I was on a very strict candida diet so only ate organic meat, fish and the allowed vegetables. I ate no fruits at all and definately no corn. There was no reason for me to suspect that corn was a problem because I hadnt eaten any. However corn is in pretty much ALL supplements, medications, toothpaste, etc. My thyroid medication contains corn starch...theres really no way to avoid corn 100% unless you're trying to and being very diligent about it. All frozen and canned fruits and veggies contain corn, applesauce contains corn, iodized salt is from corn, vegetables and fruits are cleaned with a corn wash and the wax on them is derived from corn whether its organic or not. I had reactions to baby peeled organic carrots so figured I was intolerant to carrots but now I've learned those also are not safe for someone who's intolerant to corn. Heck....I thought I was intolerant to everything. I not only reacted to everything I ate but also to the chemicals in my environment...especially perfumes. My leaky gut wasnt getting better, I was still underweight and I still had malabsorption...despite doing all the cleanses, enemas, candida diet, probiotics, gluten free, etc...I tried it all.

This is all getting better just from one week corn-free (mostly). If you were taking supplements, vitamins or medications of any kind...I guarantee you were not corn-free. The majority of my problems came from supplements because my diet was so strict. I didnt eat anything from a can...it was all fresh and I peeled everything because I knew the skins bothered me....I just didnt know why at the time. Corn is most definately the hardest thing to eliminate from your diet. Gluten and dairy are easy in comparison.

danikali Enthusiast

Rachel,

those little baby carrots have corn on them? And applesauce that just says 'apples' in it? Can you give me a list of all of things, just so I can see if I too need to eliminate that? I'm so desperate and scared. I'm really scared.

what about salt that says naturally occuring iodine? what about if my supplements say 'corn free' does that mean 100%?

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      @knitty kitty  The information you've provided is invaluable!  I have a lot more homework to do before we make the official switch but you have significantly increased my hope that we can get her off Miralax (she started at 3 years old and is almost 8!).  This weekend my husband and I plan to solidify all the details for a start point, then adjust as we go along.  I realize that everyone's body is different, then there's also the fact that she's a child but just out of curiosity if you don't mind sharing and if you'd rather not, no problem at all-how long did you take Miralax before switching and when you switched, did you just completely stop the Miralax or was there a period where you did Miralax and the supplements?  I plan to research that piece this weekend but just curious what you did.  
    • BIg Nodge
      Scott, thanks so much for the thoughtful replies. My doctor did actually just re-order thyroid labs to see what is going on with my TPOs. I agree that will be interesting information.  I think I know the answer to this, but as far as the biopsy . . .. that would be quite conclusive as far as celiac goes, but a negative result would not rule out NCGS, correct? Does NCGS also cause damage to the lower intestine/leaky gut?  I appreciate the thought that I should be open-minded to other causes. I did not have dysautonomia on my radar, so I will look into that. From a quick scan at the potential symptoms it seems like almost anyone could convince themselves they have it, very broad! I can see why that is a tricky one to diagnose. I did also show low vitamin D, I'm in New England so that is somewhat common. I have a memory of low iron on some lab result as well but I can't find it, so I'll look into that. My cholesterol is high too, so working on that.  While the initial adjustment was tough, I have actually adapted fairly well to going gluten-free at home. The tough part for me is I love eating out and traveling, so that has been a challenge. I suppose if the answer ends up being NCGS then I could maintain a mostly gluten-free diet but also experiment with the occasional splurges. Snowboarding just doesn't feel right without a beer in the lodge . . ... cider is just not the same!  Thanks again.  
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