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Babies And Toddlers


gftoddler

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gftoddler Newbie

Hi everyone, this is my first post. So after months and months or trying to figure out what is wrong with my 20 month old, my natural-path finally gave the suggestion that we might be dealing with celiac disease. I got a rec from my pediatrician and got the celiac blood screen test 2 weeks ago; the test takes 30 days to come back (were in Canada). So on the suggestion from my natural-path we started a gluten-free diet right away, because he seemed to be going down hill fast. Now my worries are if the blood screen comes back negative as it often does with children under 3 and the gut biopsy what be viable either because he has been off gluten for longer than 30 days. What should we do? I have seem a difference in just these weeks we have had him of gluten but without a TRUE diagonsis I don't think our family will take it seriously? Any words of wisdom would be wonderful.

ps his symptoms were:

No weight gain in 1 year

yellowing decaying teeth

distended belly

fine thin hair

loose stool

very tired

asthma since age 4 months

chronic ear infections

anemia

Thanks in advance!

Monique


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Tatum Rookie

Wow, this could have been my post!! Everything you describe is happening to my 16 month old. I know what you mean about the 30 day wait for bloodwork through a naturopath. Anyhow, sorry I'm not much help... just thought I'd mention I'm in the same boat so you're not alone!

Good luck & I hope you find some answers. My daughter's celiac test came back negative but that isn't going to stop me from trying gluten free.

tarnalberry Community Regular

what to do if you go gluten free now, the blood tests come back negative, and the doc wants a biopsy? well, by then, you'll know if the gluten free diet makes any difference - if it does, say no to the biopsy and keep him gluten free. for some docs the dietary change is enough to diagnose, for others it isn't. but no doctor's approval is needed to maintain a gluten free diet!

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    • trents
    • Skg414228
      Correct. I’m doing both in the same go though. Thanks for clarifying before I confused someone. I’m doing a colonoscopy for something else and then they added the endoscopy after the test. 
    • trents
      It is a biopsy but it's not a colonoscopy, it's an endoscopy.
    • Skg414228
      Well I’m going on the gluten farewell tour so they are about to find out lol. I keep saying biopsy but yeah it’s a scope and stuff. I’m a dummy but luckily my doctor is not. 
    • trents
      The biopsy for celiac disease is done of the small bowel lining and in conjunction with an "upper GI" scoping called an endoscopy. A colonoscopy scopes the lower end of the intestines and can't reach up high enough to get to the small bowel. The endoscopy goes through the mouth, through the stomach and into the duodenum, which is at the upper end of the intestinal track. So, while they are scoping the duodenum, they take biopsies of the mucosal lining of that area to send off for microscopic analysis by a lab. If the damage to the mucosa is substantial, the doc doing the scoping can often see it during the scoping.
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