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Anyone Know A Good Crohn'S Ibd/Colitis Forum?


David in Seattle

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David in Seattle Explorer

I've had intestinal symptoms which I've posted about on this site 1st here and 2nd here. I was hoping against hope it was Celiac, since that's at least something you can DO something about, but I went to my 3rd GI doc this past week, and he initially at least is leaning towards an Inflammatory Bowel Disease. Has me on Pentasa at the moment, too soon to tell if it does anything but give me headaches & ringing in the ears (typical salicylate, a previous doc had me taking heroic doses of Pepto Bismol with the same effects). So I'm wondering if anyone knows of any good IBD/Chron's/Colitis forums? I'm still staying off gluten, but I have to at least pursue this other, more frightening course, as well.

TIA

David


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ksymonds84 Enthusiast

this is a fantastic forum board mostly for microscopic colitis but other forms are discussed with very caring and helpful people and doctors. More than the majority are on a either a gluten free/dairy and soy free or a combo of the three diet and find it very helpful in reducing their symptoms.

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    • Skg414228
      Correct. I’m doing both in the same go though. Thanks for clarifying before I confused someone. I’m doing a colonoscopy for something else and then they added the endoscopy after the test. 
    • trents
      It is a biopsy but it's not a colonoscopy, it's an endoscopy.
    • Skg414228
      Well I’m going on the gluten farewell tour so they are about to find out lol. I keep saying biopsy but yeah it’s a scope and stuff. I’m a dummy but luckily my doctor is not. 
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    • Skg414228
      Yeah I had zero thoughts on celiac it was an ibs referral. She suspected celiac when she started questioning me and I already needed a colonoscopy which I guess is why she didn’t care that I had been fairly gluten free up to that point. Because they would have just done the biopsy when doing the colonoscopy. I don’t know we will see just figured I’d put that info on the forum in case someone finds it interesting later. I’ll update in April when I find out. 
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