Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Other Strange Symptoms


flowerpower12

Recommended Posts

flowerpower12 Rookie

I've been reading about symptoms from various places online and have also found I have even MORE symptoms than I thought before..just wondering if anyone else has had these maybe?

1. Dry skin

2. Mouth sores(I have only had one,it lasted about two days and my tongue swelled up)

3.Padding on feet?(I have noticed on the heel of my right foot when I press on it it's very tingly, is this a symptom?)

4. Although I do not really want to eat, I've noticed that I get random cravings for no reason..

5. My stomach also makes very strange noises anytime I eat or drink.

These are just some symptoms I'm not sure about, I've had many others that are much more common than these but I'm wondering if these may also add to that list?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I had 2 and 4. Both are definitely symptoms. My mouth sores ended as soon as I went gluten-free. The random cravings are because your body is not getting the nutrients it needs. In fact, some malnourished people, including those with celiac, eat dirt or soft rocks because of those cravings for certain minerals. I did when I was a kid but I had no idea why.

richard

flowerpower12 Rookie

Also is left side pain a symptom?

or even kidney/liver area soreness?

newgfcali Rookie

...and I had 1, 3 and 5. There. That's the whole list.

Number 3 sounds like peripheral neuropathy, which is nerve damage. It can manifest as a numbness, tingling or even electric shock-like shooting pains. It typically attacks feet and hands, thus the "peripheral" name.

I think we probably all had number 5. The "grumblies" I call them. I used to dread being in a meeting after lunch (a whole wheat bread sandwich, of course) and my tummy would be playing a very loud tune for all to hear. Now after being gluten free for months, it's as quiet as a mouse. Quite a relief.

flowerpower12 Rookie

Yes it's quite embarrassing when your stomach decides to have its "grumblies"...

Number 3 isn't so much a numbness or pain, it just feels strange to me..

David in Seattle Explorer

Yes it's quite embarrassing when your stomach decides to have its "grumblies"...

Number 3 isn't so much a numbness or pain, it just feels strange to me..

I'm in a similar situation, recent onset (little over a year) trying to figure out if it's celiac, IBD, etc. I have #3 to an extent. The bottom of my right big toe feels as if there's a layer of padding permanently attached to it when I walk, compared to the sensations of the other digits. Just slightly numb. Oddly, it's only like this in response to pressure, if you touch it in other ways, it feels normal/like the other toes.

flowerpower12 Rookie

This sounds gross but are bloody noses a symptom?

I read that earlier..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



newgfcali Rookie

Number 3 isn't so much a numbness or pain, it just feels strange to me..

Some people experience PN differently and describe it as feeling like you have a sock on your foot when you don't. You can feel your foot, but it's kinda "removed", not a direct sensation. Hard to describe -- does that make sense?

flowerpower12 Rookie

Some people experience PN differently and describe it as feeling like you have a sock on your foot when you don't. You can feel your foot, but it's kinda "removed", not a direct sensation. Hard to describe -- does that make sense?

Yes. Thank you that sort of helps me.

:)

txplowgirl Enthusiast

Hi Moemoe,

I had the belly rumbles also and bloody noses when I was a kid. I could be sound asleep and wake up with my nose bleeding, reading a book, watching tv. Didn't matter what I was doing my nose would bleed. Sometimes upwards of 3 to 4 times a day, then it might skip a few days. Always was anemic, no matter how much iron they would give me. It made me sick, no matter how much iron or in what form. After 6 months of being gluten free I am no longer anemic after 38 years.

Also had the mouth sores as well as open sores on the top of my head for about 22 years, that would not go away no matter what kind of meds or medical shampoos the dr's gave me. 6 weeks after going gluten free they were gone and they stay gone unless I seriously gluten myself.

Do what testing you need to do, but if they come back negative, which they do about half the time, go gluten free anyway and I bet you will see a world of differnce.

Good luck to you.

Vicky

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Travel Celiac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Test says no, but body says Yes?

    2. - Scott Adams replied to DMCeliac's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Canned tomato sauce, ricotta?

    3. - PlanetJanet replied to Travel Celiac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Test says no, but body says Yes?

    4. - PlanetJanet replied to PlanetJanet's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Modified Food Starch

    5. - PlanetJanet replied to PlanetJanet's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Modified Food Starch


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,714
    • Most Online (within 30 mins)
      7,748

    mariah311
    Newest Member
    mariah311
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.6k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @PlanetJanet, Sorry to hear about your back pain.  I have three crushed vertebrae myself.  I found that a combination of Thiamine, Cobalamin and Pyridoxine (all water soluble B vitamins) work effectively for my back pain.  This combination really works without the side effects of prescription and over-the-counter pain meds.  I hope you will give them a try. Here are articles on these vitamins and pain relief... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ And... Role of B vitamins, thiamine, pyridoxine, and cyanocobalamin in back pain and other musculoskeletal conditions: a narrative review https://pubmed.ncbi.nlm.nih.gov/33865694/
    • Scott Adams
      Here is the info from their website. If you don't trust them, you may find products that are labelled "gluten-free," but I don't see any reason to believe there is any gluten in them. Hunt's Tomato Paste: https://www.hunts.com/tomato-sauce-paste/tomato-paste   Hunt's Tomato Sauce: https://www.hunts.com/tomato-sauce-and-paste/tomato-sauce  
    • PlanetJanet
      Hi, trents, Thanks for responding! One book I read is called, Doing Harm, by Maya Dusenbery.  She has wonderful perspective and insight, and it's all research-based.  It's about how women can't get treated.  Everyone should read this!  I wouldn't mind reading it again, even.  She believes that women are so busy taking care of families, working, etc., that we are more likely to ignore our pain and symptoms for longer.  Men have women bugging them to go to the doctor.  Women don't have anyone telling us that.  We don't have time to go.  Providers think we are over-emotional, histrionic, depressed, have low tolerance to pain...Men get prescribed opioids for the same symptoms women are prescribed anti-depressants.  My car crash in January 2020 made going to the doctor a full-time job.  I grew up with 2 rough and tumble brothers, played outside, climbed trees.  I was tough and strong, pain didn't bother me, I knew it would heal.  But do you think I could get treated for back pain--as a woman?  I am so familiar now with the brush-offs, the blank looks, the, "Take your Ibuprofen," the insinuation that I am just over-reacting, trying to get attention, or even, "Drug Seeking."  Took almost 2 years, but what was happening was Degenerative Sacroiliitis.  I couldn't walk right, my gait was off, effected my entire spine because gait was off.  I had braced myself with my legs in a front-impact, slightly head-on crash with someone who made a left turn in front of me from the opposite direction.  I finally had SI Joint Fusion surgery, both sides.  It's not a cure. I have given up on trying to get properly treated.  There is so much pain with these spine issues caused by bad gait:  scoliosis, lithesis, arthropathy, bulged disc, Tarlov cysts.  And I can't take anything because of my bad tummy. Not that I would ever hurt anyone, but I can relate to Luis Mangione who couldn't get treated for his back injury. I feel so alone.
    • PlanetJanet
      They say maltodextrin is gluten-free, even if it's made from wheat, because the gluten is processed away.  It makes no difference to my body.  I still get uncontrollable flatulence and leakage.  Happens every time, even if I refuse to believe it will happen.  Once I was taking Gas-X chewables to hang around with people I was visiting and staying with, to make sure I would feel safer and more comfortable.  WRONG.  I forgot to read the label. I didn't realize it till after I left and went home--MALTODEXTRIN.  I was miserable the whole time. The second gastroenterologist I saw made the tentative diagnosis of microscopic colitis.  Usually occurs in women over 60, I was 59, had been in a crash, (2020) was taking alot of NSAIDS, muscle relaxants.  Had constant diarrhea, gas, leaking.  Unbearable, and I didn't know it was NSAIDS.  I was scheduled for two-way endoscopy, mouth to butt, but they wanted $2,000 up front.  Finally, had a colonoscopy in 2022, 10 biopsies, didn't find a thing!  MC can go into remission, which I was, of course, desperate to do.  No more NSAIDS, tried to cut down on all the other pain killers, everything, chemicals that I knew triggered me.  So, no, they didn't find anything.  So sad that we have to make ourselves sicker and more injured to get a proper diagnosis! Microscopic colitis is being seen concurrently with gluten problems.  MC can be triggered by NSAIDS, SSRI's, all kinds of things. https://my.clevelandclinic.org/health/diseases/17227-microscopic-colitis Some links for maltodextrin health effects: https://pmc.ncbi.nlm.nih.gov/articles/PMC6409436/#:~:text=Altogether%2C these findings show that,the development of intestinal inflammation. https://www.mdedge.com/internalmedicine/article/193956/gastroenterology/maltodextrin-may-increase-colitis-risk  
    • PlanetJanet
      Titanium dioxide is that chemical in vitamins, toothpaste, and processed white foods that is the whitener for the pill coloring.  It is inflammatory for me.  I have an intestinal reaction to it, every time. https://www.webmd.com/diet/titanium-dioxide-in-food https://pmc.ncbi.nlm.nih.gov/articles/PMC11295244/#:~:text=EFSA concluded that titanium dioxide,uncertainties in recent toxicological studies.
×
×
  • Create New...