Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed Away From Home

Rebecca Madrid

By Rebecca Madrid
in Meet Up Room

Recommended Posts

Rebecca Madrid Newbie
Rebecca Madrid
Posted

Okay, so I'm new to celiac and new to the forum. I just have a question for the other teen celiacs out there. I have been recently diagnosed after about two years of symptoms, and doctors telling me I'm just "tired" or "depressed". I am currently living in Newfoundland for University (although home is Ontario), and I'm finding myself very isolated... No pitching in on late night "Rez Special" pizza, or Wing Night at Don Cherry's, or drinking cheap-as-water pints of Black Horse at the favourite Karaoke bar. I'm finding it doesn't help the exhaustion or depression either, to constantly have to explain to the people your around what's wrong. I also can't seem to get through a meal at meal hall without someone making a comment, joke, or dirty look, at my "funny looking" bread or cereal. Just looking for someone whose been there, a reassurance I'm not as alone as I feel.

You guys must have been in a similar place at some time, how do you get through constantly feeling different??

Rebecca

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


exsandohs163 Rookie
exsandohs163
Posted

It's hard but I just keep in mind that I feel so much better now. My friend's go out for pizza and I just sit there with a drink...they always ask "Can't you just eat one slice? It can't be THAT bad!" They just don't understand what it is like :rolleyes: . lol I am used to it now though. I get through the day by knowing what I am doing is th best thing for me.

flagbabyds Collaborator
flagbabyds
Posted

It takes a while to get used to everything, I was diagnosed when I was merely 20 months old and sometimes I still get frustrated with what people say and how they act around the gluten-free lifestyle. I find that when I bring my own food (or drink) places it makes it easier, even if the food is different you're still at least eating or drinking something just like everyone else. I learned from an early age just to ignore the comments about people saying how funny my food is, it's hard at first, but once you learn to just brush it off it's not that big of a deal anymore. By now my friends at college are SO used to what i'm eating every day that it doesn't even matter to them and they never comment on it.

I went through a stage in middle school whenever anyone made fun of my food I would just snap and yell at them, which didn't turn out to be very good but they did always stop making fun of my food after a while.

It's a learning process and a HUGE life adjustment. But just remember that you are feeling a lot better, and it's not worth it just to fit in to eat gluten when it screws up your body so much.

If you want to talk about gluten-free stuff shoot me an e-mail mstone@ups.edu.

--Molly

  • 2 months later...
Rebecca Madrid Newbie
Rebecca Madrid
Posted
  • Author

It takes a while to get used to everything, I was diagnosed when I was merely 20 months old and sometimes I still get frustrated with what people say and how they act around the gluten-free lifestyle. I find that when I bring my own food (or drink) places it makes it easier, even if the food is different you're still at least eating or drinking something just like everyone else. I learned from an early age just to ignore the comments about people saying how funny my food is, it's hard at first, but once you learn to just brush it off it's not that big of a deal anymore. By now my friends at college are SO used to what i'm eating every day that it doesn't even matter to them and they never comment on it.

I went through a stage in middle school whenever anyone made fun of my food I would just snap and yell at them, which didn't turn out to be very good but they did always stop making fun of my food after a while.

It's a learning process and a HUGE life adjustment. But just remember that you are feeling a lot better, and it's not worth it just to fit in to eat gluten when it screws up your body so much.

If you want to talk about gluten-free stuff shoot me an e-mail mstone@ups.edu.

--Molly

Thanks Molly, my biggest issue has been not being cross-contaminated at dining hall, I did have a question about skin reactions that you might be able to help me with. I seem to break out it a hive like thing if i ingest gluten, but my skin doesn't seem to react when i touch it, I work at Tim Horton's so that was a major concern. Do you have any explanation for the difference, or a site i could visit??

Thanks so much,

Rebecca

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,991
    • Most Online (within 30 mins)
      7,748
    Kirandeep
    Newest Member
    Kirandeep
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      I am a male and had developed osteopenia by age 50 which is when I finally got dx with celiac disease. I am sure I had it for at least 13 years before that because it was then I developed idiopathic elevated liver enzymes. I now have a little scoliosis and pronounced kyphosis (upper spine curvature).  All of your symptoms scream of celiac disease, even if the testing you have had done does not. You may be an atypical celiac, meaning the disease is not manifesting itself in your gut but is attacking other body systems. There is such a thing as sero negative celiac disease. But you still have not given me a satisfactory answer to my question of why do you need a differential dx between celiac disease and NCGS when either one would call for complete abstinence from gluten, which you have already been practicing except for short periods when you were undergoing a gluten challenge. Why do you want to put a toxic substance into your body for weeks when, even if it did produce a positive test result for celiac disease, neither you or your doctors would do anything different? Regardless of what doctors are recommending to you, it is your body it is affecting not theirs and they don't seem to have given you any good justification for starting another gluten challenge. Where you live, are doctors kings or something?
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Sorry to put it clearly, at 15, infertility started (tried to word it nicely) meaning menstruation stopped. Which is in correlation to celiac I mean. Thank you. 
×
×
  • Create New...