Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cc In Factories

Canadian Girl

Recommended Posts

Canadian Girl Apprentice
Canadian Girl
Posted

Hey everyone, been away for a while but I'm back! I have a question, I read in a past post that we can eat items that are manufactured in a factory that says "produced in a factory that also produces wheat...etc.." as long as it doesn't bother us.. However, I don't understand something. Even if it doesn't bother us or give us symptoms.. it could still be damaging our intestines couldn't it?? I find that if I do eat gluten I'll bloat up instantly but nothing serious happens, which i find surprising as both my blood test and endoscopy came back positive. So just wanna know if we can eat things that have this disclosure on them?? thx! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

If you are instantly bloating you are reacting. I would avoid the foods that do that to you.

jackay Enthusiast
jackay
Posted

If you are instantly bloating you are reacting. I would avoid the foods that do that to you.

If you normally get symptoms from cc and don't when you eat products that are manufactured in a factory that produces wheat, than you should be O.K. If you never had symptoms from ingesting gluten, than you could possibly be damaging your intesttines.

Since you bloat up from gluten, you will know if these products are bad for you.

  • 2 weeks later...
Lynayah Enthusiast
Lynayah
Posted

Hey everyone, been away for a while but I'm back! I have a question, I read in a past post that we can eat items that are manufactured in a factory that says "produced in a factory that also produces wheat...etc.." as long as it doesn't bother us.. However, I don't understand something. Even if it doesn't bother us or give us symptoms.. it could still be damaging our intestines couldn't it?? I find that if I do eat gluten I'll bloat up instantly but nothing serious happens, which i find surprising as both my blood test and endoscopy came back positive. So just wanna know if we can eat things that have this disclosure on them?? thx! :)

You raise a valid point.

I often worry about "silent celiacs" -- those who do not show symptoms of having celiac disease. I worry that when they eat such foods, their upper villi may become damaged, but because they do not show any symptoms, they do not know it.

Worse yet, if they do not have a doctor who regularly checks bloods levels, run additional biopsy, etc., they may NEVER know it -- there are a lot of folks here who are self diagnosed or who have doctors who aren't really up on things.

In other words, these foods may be quietly killing them.

A few months ago, I traveled on a business meeting. Food was served buffet style. I met someone there who had celiac disease -- a man in his, I would guess, late 20's or early 30's -- someone who should have a long life ahead of him.

He was one of those people who do not exhibit symptoms.

So, when it came time to eat, he just went up to a hotel staff member-- not a chef, not a manager (not that the chef and manager at the hotel were knowledgable enough -- for me, they definitly weren't -- I had to eat fresh, unpeeled fruit only, because the hotel WAS HORRIBLE at understanding gluten-free) and he asked, "What has wheat in it?"

Then, he'd eat whatever they said didn't have wheat in it.

AUGH!!!!!!

But, because he didn't have to run to the bathroom and change his pants . . . and because he didn't double over in pain from eating what was almost certainly cc'd food, he thought he was okay.

Oh my gosh, my heart breaks for people such as him. I want to cry just thinking about it.

Reba32 Rookie
Reba32
Posted

There are some labeled Gluten Free foods that also say "produced in a factory that uses wheat..." etc...products that are advertised on this site even and maybe even sold in the Gluten Free Mall.

Personally, I figure if they're labeled Gluten free, with the allergy warning, then the company *may* have them in the same factory, but maybe they produce them on different days after a good clean up, or they're in different parts of the factory. Most of these products that I've tried I have had no reaction to.

However, in products that have the allergy warning that the items are produced on shared equipment I stay away from, because I usually have an immediate reaction.

rtrheli Newbie
rtrheli
Posted

If it says anything about being produced in a factory that produces wheat, I would stay away from that product. You can't count on others to keep things safe. They don't know or understand.

tarnalberry Community Regular
tarnalberry
Posted

If anyone brings a sandwich into your house, if your family ever brings a hamburger bun in - even in a room that's not the kitchen, then you have shared facilities. There are strict rules about cleaning. Is it possible to get contamination from shared facilities? Yes. ANYTHING is possible.

Realize, however, that virtually EVERYTHING passes through a shared facility at some point - whether it's on a farm, in a truck, in a processing plant, or in a grocery store. (Heck, grocery stores are one HUGE shared facility.) There is a balance that you have to find for yourself.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Girl Apprentice
Canadian Girl
Posted
  • Author

can ppl who are silent sufferers actually die from eating gluten and having no reaction? would the intestine eventually shut itself down??

mopsiecat Rookie
mopsiecat
Posted

I had been eating buckwheat that I thought was safe and for several years I felt good. Then I started getting celiac symptoms and for a long time could not find the gluten source. I got so sick I went to the doc to rule out something more serious. Finally I emailed the Winnipeg company that packaged the buckwheat and they answered that they used the same equipment for wheat and barley but cleaned the machinery after. But how well were they cleaned I wonder? Sure enough when I stopped using that buckwheat my symtoms disappeared. A good lesson for me; I'm much more careful now.

tarnalberry Community Regular
tarnalberry
Posted

can ppl who are silent sufferers actually die from eating gluten and having no reaction? would the intestine eventually shut itself down??

Well, the primary cause of death wouldn't be "eating gluten", and it's not an issue of the intestines shutting down. Rather, the autoimmune reaction causes other problems that can cause death. Anemia and osteoporosis (or just frequent infections due to vitamin D deficiency) are certainly not good for the body, other auto-immune diseases are not either, and intestinal cancer and lymphoma can directly lead to death. This isn't a "kills you quickly" disease.

Experiencing symptoms or not is absolutely zero evidence for what's going on "behind the scenes".

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lil-oly
      - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye.
    2. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thanks so much!
    3. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      I have osteopenia and have cracked three vertebrae. Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins. Blood tests don't reveal the amount of vitamins stored inside cells. The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four...
    4. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician? Have you been checked for nutritional deficiencies? Osteoporosis? Thyroid? Anemia? Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the...
    5. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      @JudyLou, I have dermatitis herpetiformis, too! And...big drum roll... Niacin improves dermatitis herpetiformis! Niacin is very important to skin health and intestinal health. You're correct. dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,156
    • Most Online (within 30 mins)
      7,748
    mike101020
    Newest Member
    mike101020
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lil-oly
      Gluten tester

      By lil-oly · Posted

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thanks so much! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.