Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Does It Take For Villi To Regrow?


hicupingandburping

Recommended Posts

hicupingandburping Newbie

IF you spend 3 months eating non gluten stuff and your villi grows back? What if you ate some gluten stuff, does it take those 3 months again to come back????


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



emaegf Newbie

It may take longer than 3 months for your system to heal depends on how long your Celiac has been active. Your need to maintain a gluten free diet for at least 6 months to 1 year to give your system time to heal. Even after healing your villi may not be back to 100%. Even after maintaining a gluten free diet anytime you eat gluten you will do dammage to your villi that may not heal again so it's not worth the risk.

Lollie Enthusiast

I agree. It took at least a year for my villi to "reactivate" after becoming gluten-free. If I accidently eat something with gluten, I have problems for at least 2 weeks after the incident. It is better to avoid the gluten!

Peace41 Rookie

This is a useful post thanku for writing it.

For me I found out that it can take two years. I am not expecting short term healing because of also my trigger event experience I am going through and this has revealed the process

of healing for me, is going to be a very slow journey that is going to need a lot of patience. But in the end, healing is a possibility that I really didn't have before. Had Gerds and Ibs and other things for over twenty years.

Even if ur villi does come back, u need to maintain and live the diet anyway. My focus is now on, this is a new way of living and a new thing for me, that I must do for the rest of my life, so I can live with that. Because the alternative was worse that brought no true relief or healing. for me it has become a blessing.

Peace41

lovegrov Collaborator

Of course this in one of those things with no pat answer. It all depends on the person, the amount of damage, what and how much you ate, and so on.

richard

  • 8 years later...
Lifelong Celiac Newbie

Agreed, it depends on the person and length of undiagnosis. I've had Celiac's for approximately 26 years but was only diagnosed 7 years ago (I'm 40 years old). I just went for my three year gastrointestinal imaging series and not only have none of my villi regrown, the duodeum is actually turning a grayish black color. I have followed the strictest of gluten free diets and living for the past seven years but due to misdiagnosing in my teenage and early adult years resulting in my continuing of digesting and applying gluten foods and products I have no chance of my villi ever regrowing. I am now diagnosed with Ulcerative Colitis and am awaiting most recent biopsies to see what else is going on as I am unable to tolerate or digest even gluten free foods. Best advice, diagnose as early as possible and follow strictest gluten free diets and lifestyle to best manage and live pain free. 

Goofer Rookie

I have been recently diagnosed to well 2 months ago, and my Specialist told me my Villi may never heal 100% or it may heal within 1 year or 5 years.
Everyone is different. but from someone who has recently had to adopt a gluten free diet get used to it and get creative with your food, its the only way. I have adopted a Paleo diet for now it has seemed to help me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
Melvin80 Newbie
On 7/7/2018 at 12:01 PM, Lifelong Celiac said:

Agreed, it depends on the person and length of undiagnosis. I've had Celiac's for approximately 26 years but was only diagnosed 7 years ago (I'm 40 years old). I just went for my three year gastrointestinal imaging series and not only have none of my villi regrown, the duodeum is actually turning a grayish black color. I have followed the strictest of gluten free diets and living for the past seven years but due to misdiagnosing in my teenage and early adult years resulting in my continuing of digesting and applying gluten foods and products I have no chance of my villi ever regrowing. I am now diagnosed with Ulcerative Colitis and am awaiting most recent biopsies to see what else is going on as I am unable to tolerate or digest even gluten free foods. Best advice, diagnose as early as possible and follow strictest gluten free diets and lifestyle to best manage and live pain free. 

May I ask what happens when you do eat a gluten free food item?

Fenrir Community Regular
12 minutes ago, Melvin80 said:

May I ask what happens when you do eat a gluten free food item?

Do you mean an item with gluten in it?

  • 2 months later...
Juca Contributor

3 years on gluten-free diet: I feel great but still flat villi and zero iron absorption.

  • 1 month later...
DJFL77I Experienced

The villi (cells lining the small intestine) are not permanently damaged in celiac disease. In fact, the cells in the intestinal wall regenerate every 72 hours as long as they are not being exposed to gluten. ... For others, it may take years for the villi to fully recover.

  • 2 weeks later...
Larzipan Rookie

I've heard from my doctor that it can take a few years to regrow the villi. I highly recommend going to a naturopath because they can point you in the right direction to what probiotics and GI tract supplements can help that process happen a little faster than just being on a gluten free diet. I think it helps to have some digestive aids and vitamin supplements to help your villi grow back and for your immune system to steadily get stronger. I am super sensitive to gluten but I have realized since taking probiotics and supplements while eating gluten free that if I get "glutened" it only lasts for around 24 hours instead of days or weeks like it used to. 

 

Forgot to say that I've only been diagnosed for 11 months and have been gluten free since November 2019, but I've already seen pretty quick results for nutrient absorption so I assume my villi are coming back slowly but surely. I know everyone is different though... 

  • 1 year later...
Makky Apprentice
On 7/1/2020 at 10:11 AM, Larzipan said:

I've heard from my doctor that it can take a few years to regrow the villi. I highly recommend going to a naturopath because they can point you in the right direction to what probiotics and GI tract supplements can help that process happen a little faster than just being on a gluten free diet. I think it helps to have some digestive aids and vitamin supplements to help your villi grow back and for your immune system to steadily get stronger. I am super sensitive to gluten but I have realized since taking probiotics and supplements while eating gluten free that if I get "glutened" it only lasts for around 24 hours instead of days or weeks like it used to. 

 

Forgot to say that I've only been diagnosed for 11 months and have been gluten free since November 2019, but I've already seen pretty quick results for nutrient absorption so I assume my villi are coming back slowly but surely. I know everyone is different though... 

Hi Larzipan, about a year later here, I am newly diagnosed and curious to see how you are now feeling at a year and a half gluten-free? Any advice would be great, wish you well and thank you so much! 

trents Grand Master

A couple of years or more on the average, maybe, for full healing. A lot depends on how successful you are in avoiding gluten. Every time you get "glutened" it is a setback in healing. Substantial healing can happen sooner, however, and you should start feeling better within weeks of cutting out gluten.

Makky Apprentice
22 minutes ago, trents said:

A couple of years or more on the average, maybe, for full healing. A lot depends on how successful you are in avoiding gluten. Every time you get "glutened" it is a setback in healing. Substantial healing can happen sooner, however, and you should start feeling better within weeks of cutting out gluten.

Thank you Trents I really appreciate that, I am about two months gluten-free now with one accidental glutening one week ago. Feeling much better than before, but of course after much research I am seeing a lot of op-eds and such that discuss how some celiacs intestines NEVER heal back to what they once were, and that really scares me! I’m so impatient to be the person I was before all of this, which is why I have been curious about what diets and foods are best and worst to follow. I am considering doing a somewhat “Whole Foods diet” (specifically no dairy, no soy, no corn, no coffee, no alcohol, no sugar) for a few months and see how that has me feeling. Of course it’s too soon to tell yet whether I am truly healing internally yet or not, but I’d rather speed the process up than risk getting more autoimmune disorders and worse gut health. I never knew this would be so stressful, thanks again for the comment!

trents Grand Master

Actually, there was an NIH study someone posted on the forum in the past year that did show at the very finest microscopic level that villi may never be quite what they were pre celiac. But, we still seek the most complete healing possible and that's all we can do. It certainly is better than finding little or no healing. How much, how fast can not only depend on how successful one is in avoiding gluten but also on age and general health.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,128
    • Most Online (within 30 mins)
      7,748

    Richard Hooper
    Newest Member
    Richard Hooper
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Stuartpope
      Thank you for the input. We go back to the GI doctor in June- she wants to do more labs to check vitamin levels( not sure why the didn't check all at once with the iron being so low) and recheck inflammatory levels. Just trying to find him some relief in the meantime.
    • trents
      Welcome to the forum, @Stuartpope! With Marsh 3b damage to the villous lining of the small bowel, your son is likely deficient in a number of vitamin and minerals due to poor absorption, not just iron. B12 and all the other B vitamins are likely low. I would suggest looking into a high quality gluten-free B complex, D3, magnesium glycinate (the form of magnesium is important) and zinc. A children's multivitamin likely will not be potent enough. We commonly recommend this combo of vitamins and minerals to new celiacs as adults. Thing is, you would want to consult with a pediatrician about dosage because of his young age. In time, with the gluten-free diet his villi will rebound but he may need a kick start right now with some high potency supplements.
    • Stuartpope
      Hey yall!  New Celiac mama trying to help my son! My 3 year old was just diagnosed with Marsh 3b by a biopsy. We started this journey due to him being severely anemic (ferritin levels 1.2) He has had  3 iron infusions to help with the anemia. He has also been gluten free for a month. He is still having leg/ joint pain( he described a burning/ hurting) Im trying to help with his leg pain. He has trouble playing ( spending most days on the couch) He tells me 5/6X a day that his legs are hurting. Gets worse when walking or  playing. We have done OTC pain meds/ heating pad/ warm baths. What else can I do to help him be a kid.     Thanks for the help 
    • trents
      Not sure about the state of my osteopenia. I haven't had a DEXA scan done since about age 50 and I'm now 74. No fractures, though. I have significant curvature of the upper spine (kyphosis) but that was well along by the time I was diagnosed with celiac disease almost 25 years ago. So, I think it may have been arrested at least.
    • trents
      Zinc is also a very important supplement when it comes to infection resistance.
×
×
  • Create New...