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Are You Glutened Symptoms Always The Same?

Coleslawcat

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Coleslawcat Contributor
Coleslawcat
Posted

I seem to have 2 completely different reactions to getting glutened. Sometimes I will get very foul gas and diarrhea. The gas is pretty uncontrollable, but mostly this reaction is more embarassing than uncomfortable. But it seems that sometimes I will get a very different reaction. Tonight I was feeling great all day, even completed a 3 mile run in record time and still felt great afterward. I went out for pizza with my family to a chain that offers gluten-free pizza where we have eaten before. Before I got home I started feeling queasy and the headache set in. I know I am in for a night of horrible nausea and possibly some vomitting. These were my initial symptoms that led to my celiac diagnosis so I assume this is also a gluten reaction. Could the gas and diarrhea not be gluten related? They seem to be such classic celiac symptoms, but maybe they aren't for me. The gas is very different than normal gas for me and it only happens rarely which is why I assumed it was related to gluten, but I know the other symptoms are gluten related. I'm confused.

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kare101 Newbie
kare101
Posted
  On 3/12/2010 at 6:03 AM, Coleslawcat said:

I seem to have 2 completely different reactions to getting glutened. Sometimes I will get very foul gas and diarrhea. The gas is pretty uncontrollable, but mostly this reaction is more embarassing than uncomfortable. But it seems that sometimes I will get a very different reaction. Tonight I was feeling great all day, even completed a 3 mile run in record time and still felt great afterward. I went out for pizza with my family to a chain that offers gluten-free pizza where we have eaten before. Before I got home I started feeling queasy and the headache set in. I know I am in for a night of horrible nausea and possibly some vomitting. These were my initial symptoms that led to my celiac diagnosis so I assume this is also a gluten reaction. Could the gas and diarrhea not be gluten related? They seem to be such classic celiac symptoms, but maybe they aren't for me. The gas is very different than normal gas for me and it only happens rarely which is why I assumed it was related to gluten, but I know the other symptoms are gluten related. I'm confused.

I'm not sure, but speaking from personal experience...I often get everything at the same time. So, I wouldn't be surprised if they're all related to "getting glutened".(like that:)) I'm feeling it all today. Guess I ate something with gluten yesterday. Only thing I'm not sure was gluten free was some chocolate. Do you or anybody else know much about gluten in chocolate? I'm very new to this. Hope you feel better!

Lollie Enthusiast
Lollie
Posted

For me i get similar reactions, but they aren't from gluten... If i start to feel sick with the headache, then I know it's gluten. I get the horrible gas when I consume bean flours or sorghum flour. I don't know why. Apparently the damage done to my intestines make those flours harder to breakdown. I have found that phazyme seems to work for me on controlling the gas. Hope this helps!

Coleslawcat Contributor
Coleslawcat
Posted
  • Author
  On 3/12/2010 at 12:27 PM, Lollie said:

For me i get similar reactions, but they aren't from gluten... If i start to feel sick with the headache, then I know it's gluten. I get the horrible gas when I consume bean flours or sorghum flour. I don't know why. Apparently the damage done to my intestines make those flours harder to breakdown. I have found that phazyme seems to work for me on controlling the gas. Hope this helps!

This is very interesting since it's so similar to my experience. I suppose if this is true for me too than the good news is that I rarely have gotten gluten since going gluten-free. Honestly, the gassiness isn't that big a deal to deal with, I was just worried I was getting gluten and causing damage. Hmm, now to try and figure out what it is that sets off that.

jackay Enthusiast
jackay
Posted

I know gluten is what causes my diarrhea. Other foods cause headaches, gas and muscle pain. I usually don't get gas when I get diarrhea.

StacyA Enthusiast
StacyA
Posted

My glutened symptoms are GI symptoms. But when I have MSG I get a headache and sometimes nausea.

Glutin-Free Man Rookie
Glutin-Free Man
Posted

I'm still fairly new to this -- I've only had symptoms at all for about two years now, so it seems to me that they're constantly changing.

I'm also Casein intolerant, and I can mostly tell the difference between accidentally ingesting milk or wheat, but the symptoms to that have also been changing over time.

My original symptoms were more neurological than GI - I'd get kind of dizzy, slightly nauseous, and have chest pain. Those were pretty scary symptoms. Then I started to get the gas & bloating. I still get those symptoms occasionally. I also get tired and irritable. I used to get horrible heartburn for weeks at a time. Prilosec & it's newer variants only made it worse.

Now I tend to get stomach pain, which feels like another ulcer (I had one when I originally self-diagnosed), but which according to my latest tests is not.

I sometimes get diarrhea too, but not always.

If I read through a listing of possible symptoms of Gluten Intolerance (and there's a lot of them!) I can claim to have had all except the flattened cilia that Celiac is named after. Oh - and vomiting. For whatever reason, gluten has never made me vomit.

Ain't this all just a barrel of monkeys?

David

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Lynayah Enthusiast
Lynayah
Posted

I wonder if any of it has to do with just how much gluten you've eaten? The higher the level of gluten, the stronger the symptoms, perhaps?

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    • trents
      Should I get a second opinion?

      By trents · Posted

      I would ask the GI doc about the elevated IGA score of 401. That one is what we commonly refer to as "total IGA" and also known as "Immunoglobulin A (IgA)". It could be nothing but it can also indicate some other health issues, some of them serious in nature. I would google potential causes for that if I were you. Also, if there is a chance the GI doc will want to do more testing for celiac disease, either antibody testing or an endoscopy with biopsy, you should not cut back on gluten consumption until all celiac disease testing is done. Otherwise, you will invalidate the testing.
    • shell504
      Should I get a second opinion?

      By shell504 · Posted

      Hello. I apologize. I didn't know there wasn't a standard.  The standard listed  for the IGA is normal range 47-310.  The others were all listed as <15.0 u/l is antibody not detected and 15> antibody is detected.  And the negative one the standard is negative.  It is a normal PCP dr. I do have a second opinion appt scheduled with a GI specialist in 2 weeks. Honestly, I haven't cut out gluten at all. I just switched to whole fibers and everything has been getting better. She wanted to do the test just to check, which I was fine with. We'll see what the GI dr says. Thank you for commenting. 
    • trents
      Mistakenly eating gluten

      By trents · Posted

      It is also possible that since eating the fries you have been glutened again during the week. I would double check the food in your cupboard and reread the ingredient lists. Food companies can and do change their formulations from time to time such that something that used to be gluten free is no more. What I am saying is, don't assume the distress you are experiencing comes from one incident of glutening. There could, coincidentally, be another one on it's heels. 
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      By trents · Posted

      Welcome to the forum, @shell504! The IGA 401mg/dl is not a test for celiac disease per se but a check to see if you are IGA deficient. People who are IGA deficient will produce celiac blood test antibody scores that are artificially low which can result in false negatives for the individual antibody tests such as the TTG IGA. You did not include reference ranges along with the test scores and since each laboratory uses custom reference range scales, we cannot comment with certainty, but from the sheer magnitude of the IGA score (401) it does not look like you are IGA deficient. And since there are no annotations indicating that the other test scores are out of range, it does not...
    • shell504
      Should I get a second opinion?

      By shell504 · Posted

      I apologize i can't figure out how to get the picture on here.  Results were: IGA 401mg/dl Deamidated Gliadin IGG. <1.0 Deamidated Gliadin IGA. <1.0 Tissue Transglutaminase IGA AB. <1.0 Endomysial IGA. Negative.  Is she just going based off of the IGA alone? And because that is elevated, it's positive? The test states: "Results do not support a diagnosis of celiac disease." 
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