Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Muscle Weakness


masterjen

Recommended Posts

masterjen Explorer

Hi,

I've been gluten-free for just over a month, and fortunately for me this has not meant a huge diet change, as I have never been much of an eater of bread, pasta and processed foods. However, in this past month I have been having two problematic issues:

1. frequent minutes-to-hours long episodes of muscle weakness. I've kept a log of when this occurs, and there is no consistent link to other factors (such as being hungry, having just eaten, over-exerting myself, having eaten certain foods, etc.).

2. frequent hours-long headaches that sometimes progress into full-on migraines (and prior to all this I have never even had headaches, let along migraines)

The weakness and headaches do not always occur together, but do probably 50-70% of the time.

Does anyone else have this? If so, what what kind of explanation were you given by your doctor? What helped you get better?

Thanks in advance!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LB1983 Newbie

I have had Celiacs for over two years. My diet had to change dramatically!!! I lost over 80lbs in 6 months. I have always been small..so when I got fat it was a shocker! I had celiacs my entire life but the loss of my dad triggered its bad self! I had severe atrophy for months after I went on the gluten-free diet! I could't do the smallest things like walk alot or get up n down. It got better after time and you have to push yourself...but not too hard. The headaches..well...I still have them!! I'm only 26 and I've had a rough 2 years. I have headaches...stomach pains...@ times due to the gluten-free diet. It's hard!! I was in nursing when i got so sick. The celiacs threw me into hypothyroid disease, irreg. heart beat, fibromyalgia, and non-specified lupus. It stinks....

quote name='masterjen' date='22 March 2010 - 07:43 AM' timestamp='1269272614' post='600090']

Hi,

I've been gluten-free for just over a month, and fortunately for me this has not meant a huge diet change, as I have never been much of an eater of bread, pasta and processed foods. However, in this past month I have been having two problematic issues:

1. frequent minutes-to-hours long episodes of muscle weakness. I've kept a log of when this occurs, and there is no consistent link to other factors (such as being hungry, having just eaten, over-exerting myself, having eaten certain foods, etc.).

2. frequent hours-long headaches that sometimes progress into full-on migraines (and prior to all this I have never even had headaches, let along migraines)

The weakness and headaches do not always occur together, but do probably 50-70% of the time.

Does anyone else have this? If so, what what kind of explanation were you given by your doctor? What helped you get better?

Thanks in advance!

Fozzie Newbie

I am also one month into this diet and I also experience muscle weakness and a low grade headache with brain fog. It is improving with the dieet and two 45 min walks per day. Tomorrow I am going for acupuncture hoping that it will improve my current state of health. hang in there. :rolleyes:

Reba32 Rookie

both the headaches and muscle weakness could be withdrawl type symptoms and your body healing and getting used to not being glutened on a daily basis. It could also be that you're not eating enough foods in general, and you may need to make sure you're getting enough calories to keep you going.

Take multi-vitimins. Eat whole natural foods as opposed to packaged manufactured foods. Take a magnesium supplement, make sure you're getting enough potassium (avocados, canteloupe, bananas...), and enough salt. Headaches and muscle weakness can also be caused by electrolyte/mineral imbalance. And drink water. Plain, clear, filtered water.

i-geek Rookie

both the headaches and muscle weakness could be withdrawl type symptoms and your body healing and getting used to not being glutened on a daily basis. It could also be that you're not eating enough foods in general, and you may need to make sure you're getting enough calories to keep you going.

Take multi-vitimins. Eat whole natural foods as opposed to packaged manufactured foods. Take a magnesium supplement, make sure you're getting enough potassium (avocados, canteloupe, bananas...), and enough salt. Headaches and muscle weakness can also be caused by electrolyte/mineral imbalance. And drink water. Plain, clear, filtered water.

Those were my first impressions, too: either not enough calorie intake or a nutrient deficiency. I find that if I don't eat a big enough lunch with enough fat and protein, I get headaches and sometimes I get the shakes. For me, it's usually a blood sugar crash and resolves when I increase food intake. In fact, I'd better eat a big meal tonight since I had salad and yogurt for lunch and I've got a pounding headache now (different from a gluten migraine, but still not fun).

Reba32 Rookie

yeah, if I haven't had enough to eat I get the shakes and muscle weakness. Particularly in my legs. And then I start to feel nauseous. If I don't allow myself to get hungry, I don't get these symptoms. And fasting blood sugar tests have all come up with blood glucose in the normal range. I usually have to eat every 3 hours or so.

  • 10 months later...
hanumandrea Newbie

Hello,

youve probably resolved your issue by now, but I wanted to add for the record:

I have experienced muscle weakness for the last 3-4 years if I do not eat enough protein. Just discovered my gluten intolerance a few months ago after 3 years of infertility and early onset osteoporosis. If I do not eat protein (in adequate amounts)at lunch and dinner, I get shaky and weak for 30 minutes to hours afterward. Fortunately I do not htink this is as severe as it is for some, but possibly related to malabsorption of protein. I look forward to learning more!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
Freesoul999 Newbie

Hi there :) I've been gluten free for about 2 years. Please take heed! This could save you years of heart ache! Often, when people switch from wheat.. they go to corn and rice. These are no good for you, and could very well be causing you muscle weakness, as they do me. Please go to www.marksdailyapple.com and click on 'success stories'. or google Mark Sisson. on top of that I'd be getting a fructose malabsorption breath test and an igG allergy test (210 foods test). If you need help finding info, drop me a line. Good luck!

p.s. my best friend is having amazing results with this, and when I eat like this I feel on top of the world.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,217
    • Most Online (within 30 mins)
      7,748

    Beanography
    Newest Member
    Beanography
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
    • trents
      Cristiana, that sounds like a great approach and I will be looking forward to the results. I am in the same boat as you. I don't experience overt symptoms with minor, cross contamination level exposures so I sometimes will indulge in those "processed on equipment that also processes wheat . . ." or items that don't specifically claim to be gluten free but do not list gluten containing grains in their ingredient list. But I always wonder if I am still experiencing sub acute inflammatory reactions. I haven't had any celiac antibody blood work done since my diagnosis almost 25 years ago so I don't really have any data to go by.   
    • cristiana
      I've been reflecting on this further. The lowest TTG I've ever managed was 4.5 (normal lab reading under 10).  Since then it has gone up to 10.   I am not happy with that.  I can only explain this by the fact that I am eating out more these days and that's where I'm being 'glutened', but such small amounts that I only occasionally react. I know some of it is also to do with eating products labelled 'may contain gluten' by mistake - which in the UK means it probably does! It stands to reason that as I am a coeliac any trace of gluten will cause a response in the gut.  My villi are healed and look healthy, but those lymphocytes are present because of the occasional trace amounts of gluten sneaking into my diet.   I am going to try not to eat out now until my next blood test in the autumn and read labels properly to avoid the may contain gluten products, and will then report back to see if it has helped!
    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.