Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Ending My 3 Week Wheat Run


Brien

Recommended Posts

Brien Rookie

I went to see a new endocronologist in Februaruy. I told him that my holistic doctor said I had a wheat allergy in December 09. The endo wanted me to reintroduce wheat and such for 3 weeks and then get the bloodwork done to see if I truly had Celiac's or not. Now I believe that I don't have Celiac's as most of my symptoms aren't what most Celiac's have. I get very jumpy, anxious and my mind will lock into a particular thought or two and won't let go, no matter how stupid the thought may be. Two weeks ago I had a terrible weekend and then it abated, then this last week I had gluten products 3 days in a row and felt fine ( i truly believed for a short time that maybe my body was adjusting to the positive) . Then Sunday it started again, not bad, yesterday was not good and today it's still there. I know it will pass, it has in the past. It is just tough to get through days when you mind wants to circle the drain all day. I'm just thankful that I did my bloodwork yesterday and I can go back to what has made me feel better. Anyone else have anything in the park like this?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AKcollegestudent Apprentice

I went to see a new endocronologist in Februaruy. I told him that my holistic doctor said I had a wheat allergy in December 09. The endo wanted me to reintroduce wheat and such for 3 weeks and then get the bloodwork done to see if I truly had Celiac's or not. Now I believe that I don't have Celiac's as most of my symptoms aren't what most Celiac's have. I get very jumpy, anxious and my mind will lock into a particular thought or two and won't let go, no matter how stupid the thought may be. Two weeks ago I had a terrible weekend and then it abated, then this last week I had gluten products 3 days in a row and felt fine ( i truly believed for a short time that maybe my body was adjusting to the positive) . Then Sunday it started again, not bad, yesterday was not good and today it's still there. I know it will pass, it has in the past. It is just tough to get through days when you mind wants to circle the drain all day. I'm just thankful that I did my bloodwork yesterday and I can go back to what has made me feel better. Anyone else have anything in the park like this?

I've always been hyperactive and obsessive: give me something and I'd focus to a ridiculous extent, but if something else caught my eye, I'd end up obsessing over it instead. I'm calmer since I went off of gluten (and soy and casein). I'm saner. A lot saner. My attitude's gone from roaring jerk, short temper, to b%$@#y, but respectful. I focus on things that make sense now, instead of trying to figure out what's strange about one section of an obscure treatise.

I have a lot of different symptoms, but those are the ones that sound like yours.

Also, if your endo wants you to go on and do further testing, you're still going to have to be on gluten.

Link to comment
Share on other sites
sandsurfgirl Collaborator

Sorry to tell you but those are celiac symptoms. They may also be something else, but celiac causes that stuf too. There are people with celiac who dont' get GI symptoms, however the diet is a pain the butt and if it were me in your shoes I would want to know for sure since you don't have the GI stuff to go along with it.

Link to comment
Share on other sites
Brien Rookie

Thanks for the replies - I guess I'll find out Tuesday(3/30) whether it's an allergy or Celiac's. Wednesday morning here...., things are getting better but still not a 100% - better than Monday so far, that's for sure.

Link to comment
Share on other sites
ravenwoodglass Mentor

If you were feeling better gluten free please don't let a negative blood test convince you to drop the diet. The blood tests may very well be a false negative. If you feel better on the diet go back to it. Also when a gluten challenge is done it is often advise to add it back in for 2 to 3 months. 3 weeks is often not long enough for the antibodies to build up enough. Make sure you get your hands on the actual lab results, even one point into positive is positive but often if a person is only a few points into the positive level doctors will say it is negative.

Link to comment
Share on other sites
Brien Rookie

There is no way that I am going to revisit the wheat thing for at least 6 months (unless of course its a positive celiac). My holistic dr. said that he wanted me off for 6 months before trying to introduce again to see how things wouls react (because he thinks its an allergy). I was off wheat for 2.5 months (coffee/tea 2 weeks) before I really started to feel a 100%. It had been almost a year prior to that since I had last felt what I consider 100%. Now I'm 4 days off and it's getting better after 3 weeks back on wheat. It may take a little while longer but I don't care as long as I can see myself getting back to normal - i can wait a little longer.

As for staying on the wheat free diet - zero issue. I didn't ahve any issues with it the first couple months, I'll embrace it, love it and move forward with as long as I have to for the future. Plus, I've lost 12 pounds in 3 months - not bad. My 36 waist pants are now loose.

Link to comment
Share on other sites
GFinDC Veteran

There is no way that I am going to revisit the wheat thing for at least 6 months (unless of course its a positive celiac). My holistic dr. said that he wanted me off for 6 months before trying to introduce again to see how things wouls react (because he thinks its an allergy). I was off wheat for 2.5 months (coffee/tea 2 weeks) before I really started to feel a 100%. It had been almost a year prior to that since I had last felt what I consider 100%. Now I'm 4 days off and it's getting better after 3 weeks back on wheat. It may take a little while longer but I don't care as long as I can see myself getting back to normal - i can wait a little longer.

As for staying on the wheat free diet - zero issue. I didn't have any issues with it the first couple months, I'll embrace it, love it and move forward with as long as I have to for the future. Plus, I've lost 12 pounds in 3 months - not bad. My 36 waist pants are now loose.

Hi Brien,

If it is a wheat allergy then going off wheat should help. If it is gluten intolerance or celiac than you need to eliminate rye, barley and oats also (in addition to wheat). There are articles about safe and unsafe ingredients on the main page of this site. They are geared towards eliminating gluten, so will list things that might be safe for a person with a wheat allergy. A wheat allergy and celiac are different things, but there is no reason a person can't have both celiac or gluten intolerance and a wheat allergy too

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Brien Rookie

I eliminated rye, barely, & oats all to be on the safe side. If the test comes back Celiac my path is paved; if it does not, my plan is to take 6 months or more off and then try having a few slices of pizza, have a beer and see how it goes. Not that I'm a drinker but I really do miss having a nice cold glass of Sam Adams. Budweiser makes a gluten free beer that isn't bad but I like dark beers. I've transitioned over to wine quite nicely. I certainly see the enjoyment of a nice glass of wine with dinner or at the computer at night while I write.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,763
    • Most Online (within 30 mins)
      7,748

    Jody-JS
    Newest Member
    Jody-JS
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • julie falco
    • Dhruv
      @trents I absolutely understand the perspective of getting off completely from wheat,  but sometimes situation may occur that you won't have choice to eat other than wheat,  my son travels a lot, since they travel in team, it's not easy to go out and find him a gluten free every single time! I have seen, even in NJ I m struggling to find out gluten free stuff, in this country we don't get fresh food in stores, other day i saw gluten free bread so hard that will never feel to eat it! Once in while means once in a while, when there is no absolute option. Here all goes by book, there is no enough scientific research done yet on eating gluten with celiac,  everyone has there own narrative,  only it being said don't eat wheat, but Noone has come up with the experience. And moreover my sons diagnosis is yet to define, whether he has celiac or NCGS. last time his endoscopy came negative hence doctor did not bother to tell us. I hope this time it will be the same case. We are figuring out why his billirubin is high, may be that could be the reason his igg iga test is high, will get check on all and come to the conclusion. My son and us is absolutely fine not eating gluten, but one can't guarantee that every time they will get the gluten free food other than home. I also don't trust under the table of "gluten free products" have see people still have same iga igg count even after following the diet. This is all learnings, will keep him under observation and go through the regular testing to find out how his body reacts to what.  I may sound like a fool, but medical is scam in US, hence i would consult doctors in India. 14 years ago they have announced i had a breast cancer, which was not, since then I don't trust medical system here.
    • Scott Adams
      Here are two older articles we've done on this topic which might be helpful:  
    • Rogol72
      I've been to Italy recently for a wedding and it was excellent. I made my own gluten-free sandwiches/pannini to take on the flights.  Spain is good and you can get good gluten-free breads in the supermarkets there. The UK and Ireland are very good also. Australia would be good since Coeliac Disease is fairly common there ...1 in 70 as opposed to 1 in 100 in other countries. You have to advocate for yourself in restaurants when eating out. I've read about several Coeliacs being cross contaminated from preordered gluten-free meals on airlines. Personally, I wouldn't trust a gluten-free meal on an airline especially long haul. Try the hashtag celiactravel on tiktok and instagram. Loads of Coeliacs posting about their experiences with plenty travel tips. The Atly app has a list of gluten-free friendly restaurants worldwide.
    • Pat Denman
      "Do not follow after the crowd to do what is bad." Bible. The world is full of crazy people who have little love for their neighbor. Eat what is best for you and ignore their recommendations. 
×
×
  • Create New...