Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Can We Cope?

Guest BellyTimber

By Guest BellyTimber
in Coping with Celiac Disease

Recommended Posts

Guest BellyTimber
Guest BellyTimber
Posted

:huh:

How can we cope if:

- our religious or political leaders get slagged off here rather than in the more appropriate forums

- we get taken apart for not acting in a way people like e.g newcomers.

I've got two ideas:

1.I filled my flat with puffed millet and buckwheat, quinoa and rice milk (I use cows & goats as well). I can have a midnight bowlful or when waiting for the breakfast to cook or when coming in dazed after work. For afters. For a starter. Meantime I collect recipes. From the recipe pages here. They might become catching. Meantime I don't kick myself. I'm a slow learner.

2.If we have a new people's section not only do we know they are new they know they are new as well. If they come in with both boots we can invite them to cool it B) , we've each got a different story to share with them if they are interested, and if they are prepared to tell us their story we will know enough about where they are coming from to know how to give their questions a straight answer.

That way we can save ourselves from being knocked off our perch and also show them a way to steady themselves up if they want to know one.

And let's keep our noses in those recipe pages! There lies sanity!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest BellyTimber
Guest BellyTimber
Posted

Correction to my 0703 a.m. post of 15th May 2005:

It's only fair to those I am describing, in case they or their acquaintances are reading, to point out my church is not full of nasty people but there has been ongoing difficult relationships in certain quarters which with the best will in the world we are unable to stop repercussing on each other, being weak people in need of each other's respect. I am resolved to give the respect I need from those around me.

I allowed myself to get knocked off my perch by the twaddle being posted by some established forum members instead of making a direct complaint to an administrator. I burn so cool I don't know what's happening to me, myself.

And clarification: I've not the slightest problem with those atheists that respect others and not with Americans either, the American people and land are my favourite that I've visited, equal with my own. (Canada is a favourite from literature.)

I will now close this but hope everyone has learned from it.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,516
    • Most Online (within 30 mins)
      7,748
    River girl
    Newest Member
    River girl
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Certified gluten free oats

      By Scott Adams · Posted

      Gluten-free oats can cause villous atrophy in people with celiac disease who are sensitive to oats (~10% of celiacs). While oats are naturally gluten-free and often safe for most individuals with celiac disease, a small percentage of people with the condition are sensitive to avenin, a protein found in oats that is structurally similar to gluten. For these individuals, consuming oats—whether labeled gluten-free or not—can trigger an immune response, leading to intestinal damage, including villous atrophy.
    • trents
      Certified gluten free oats

      By trents · Posted

      This thread is confusing. Apart from any kind of oats, whether gluten free, certified gluten free or just regular oats, you should have been consuming plenty of gluten for a period of weeks leading up to the day of the endoscopy. Consuming wheat products would have been the best choice as wheat is the grain highest in gluten. Once you begin to remove gluten from your diet, inflammation in the small bowel begins to subside and healing of the mucosal lining starts. If enough healing happens before the egd/biopsy there may be no damage to see and the procedure would have been invalid. Recently updated "gluten challenge" guidelines call for the daily consumption of at least 10 g of gluten (about the amount in 4-6 slices of wheat bread) for at least two weeks leading up to the day of the procedure.
    • badastronaut
      Still unsure.....

      By badastronaut · Posted

      Dear forum members, I’m still trying to find out whether or not I actually have gluten sensitivity or not. Recent blood test showed a slightly elevated Bilirubine and Lipase but an abdominal ultrasound showed no problems with the liver or pancreas. My zinc and folic acid where both too low. When I eat gluten I get a lot of mucus with my stool and most of the times it’s quite thin. As soon as I take gluten away from my diet my stool becomes normal. I also have been quite anxious and little bit down for quite some time now and it seems to correlate with my gluten intake. The problem is that my colonoscopy showed no damage to my gut and my blood test for celiac always come back negative. Can you be gluten sensitive without damage to your villi? (I believe that’s what is normally seen in celiac disease). Thanks for helping! I don’t seem to get anywhere with my doctor so I thought I’d give this forum another try.  
    • knitty kitty
      Can gallbladder issues cause symptoms of celiac disease?

      By knitty kitty · Posted

      Welcome to the forum, @robingfellow and @Mr-Collateral531, I also had to have my gallbladder removed in emergency surgery.  The gallbladder uses lots of thiamine vitamin b1 to function.   The gallbladder cannot secrete bile if it doesn't have sufficient thiamine.  Thiamine provides our muscles and glands energy to move and secrete needed enzymes and hormones.  The thyroid is another gland that requires lots if thiamine to function and secrete hormones.   Our brains, just thinking at a desk job, requires as much thiamine as our muscles do if running a marathon.   Migraines are linked to thiamine deficiency. Thiamine is the first of the eight B vitamins that our body needs. Thiamine can only be stored for three weeks at most.  Our thiamine stores can be depleted in as little as three days.  We need more thiamine when we have a physical injury (like recovering from surgery or fighting the flu), if we're emotionally stressed or traumatized, and if we're physically active.  Thiamine, like the other B vitamins, is water soluble and easily excreted in urine or most in diarrhea.  B vitamins are commonly poorly absorbed in Celiac Disease.  Thiamine and the other B vitamins need to be taken together because they interact with each other to make life sustaining enzymes.  Thiamine deficiency can affect individual organs.  Gallbladder dysfunction is connected to thiamine deficiency, as is hypothyroidism.    Migraines are connected to thiamine deficiency.  Gastrointestinal Beriberi (abdominal pain, vomiting, etc.) is a result of thiamine deficiency.  Tachycardia and fatigue are also symptoms of thiamine deficiency.   Thiamine and magnesium make enzymes that are essential for life.   Thiamine is needed to absorb certain minerals like iron.  Anemia and thiamine deficiency frequently occur together.  Thiamine deficiency can cause poor blood cell production (including low antibody production).   Thiamine interacts with other vitamins and minerals.  Vitamin D is not utilized by the body until turned into an active form by Thiamine. Thiamine is safe and nontoxic even in high doses.  High doses of thiamine correct deficiencies quickly which prevent further health deterioration.  A one a day type multivitamin is not sufficient to correct vitamin and mineral deficiencies that occur in the malabsorption of Celiac Disease.   The Gluten free diet is low in vitamins as they are not required to be enriched with vitamins lost in processing.  Supplementing with thiamine and the B vitamins boosts their absorption.   Helpful Reading: Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ Gastrointestinal Beriberi and Wernicke's Encephalopathy Triggered by One Session of Heavy Drinking https://pmc.ncbi.nlm.nih.gov/articles/PMC6739701/ P. S. Try a DNA test to see if you have any known genes for Celiac Disease before doing a gluten challenge.
    • Matt13
      Certified gluten free oats

      By Matt13 · Posted

      Thanks for the reply ! I am asking because tomorow i have egd and nobody told me not to eat gluten-free oats… and i was scared that it could ruin my biopsy results… 
×
×
  • Create New...