Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Some Help


Mac55

Recommended Posts

Mac55 Apprentice

I'm just coming out of a pretty bad glutening. Last night I was finally able to function moderately after a few days. I can't attribute it to one thing in particular but I know I need to finish the kitchen changes.

This is what I've done so far, checked meds, vitamins and body products, just bought new pots, pans, colander and wooden spoons (this should get me through for now), meticulous about checking ingredients, I don't eat anywhere but home, kids are gluten-free too and I just started a food diary.

I've read many posts on here about cleaning kitchens and tried without much luck to research it externally. Do I need to be concerned about my silverware? What about my crock pot? If those are able to be cleaned, what's the best way to clean them? Soap and water and a clean scrubber? How about counters, door handles, etc.? My husband isn't gluten-free but is trying to be very careful. I just get concerned that if he eats something, then touches something, it's on there. What's the best way to clean these surfaces? I did read a blog post about cleaning peanut oils off of surfaces. She had read a study on it and it was saying that dish soap and water was one of the least effective ways to clean it.

In regards to my husband, he really doesn't eat gluten in the house much. When he does I ask him to wash his hands and be careful. The other thing I hadn't thought of until last night is he'll come home from work and have a couple of beers, which obviously have gluten in them. So, he has gluten on his lips, kisses me, gluten on my lips. What's the best way to get rid of that? Will brushing his teeth, including lips get it off? He did mention last night he'd be willing to consider switching to gluten-free beer. We'll see if that happens.

One other thought, I read so much that people's reactions get stronger as time goes on. Maybe this is what happened? I was honestly knocked on my butt to the point that the past few days are just a hazy blur. Last night, when I was feeling a little better, I even took someone else's shopping cart at the store. I looked down and was shocked. My purse and all my stuff was in the other one. I was SO embarrassed. :o Any help would be appreciated! I do have an appt set up for the Celiac Center at Beth Israel in Boston in 3 weeks. Looking forward to that!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sa1937 Community Regular

I'm sorry to hear about your glutening...I'm not yet gluten free but this will definitely be a concern for me as I so want to feel better. My advantage is that I live alone and can do an entire gluten free kitchen. I've had a blast buying some new things as some of mine are pretty ancient.

Is there any way that your husband will go completely gluten free so the entire family will be? It would make it so much easier. Do you have to cook separate meals or will he eat the gluten free pasta, etc. so you don't have to worry about it. Also what about condiments - peanut butter, jelly, mustard, mayo, butter, etc? Do you have your own or isn't that an issue?

Dr. Peter Green mentions in his book, Celiac Disease, a Hidden Epidemic that he is a strong believer in soap and water - "they may be the cheapest part of the gluten free diet". I highly recommend his book. I plan to give my kitchen a good scrubbing plus clean my oven and have replaced my colander, toaster, cutting boards, strainer, wooden spoons, bought some new non-stick cookware, etc., much as you have done already. I will also go through my entire pantry and donate any items that aren't "safe".

I am not going to replace my crock pots...they are in excellent condition (ceramic/pottery inserts) and are already clean and are not damaged in any way. Same goes for my CorningWare/Pyrex. My Calphalon hard anodized aluminum will be given a good scrubbing with a ScotchBrite pad and Comet cleanser (they're not nonstick and I have no intention of getting rid of hundreds of dollars worth of perfectly good cookware). I'm not concerned about my silverware as it is already clean.

I'm also concerned about the possiblity of cross contamination and that my sensitivies will get worse as time goes on.

Wolicki Enthusiast

I think one of the biggest issues is condiments and things in jars- if a gluteny knife has ever entered your PB jar, mark it contaminated and get your own that no one else will use. Same with butter, jelly, etc.

How about your toaster? Microwave? The toaster probably has to be replaced. Anything with a hard surface should be fine with a really good scrubbing.

As for the beer drinking husband, he'll have to either not kiss you or brush his teeth, wash his face and then rinse with Listerine or some other strong mouthwash.

kareng Grand Master

I've read many posts on here about cleaning kitchens and tried without much luck to research it externally. Do I need to be concerned about my silverware? What about my crock pot? If those are able to be cleaned, what's the best way to clean them? Soap and water and a clean scrubber? How about counters, door handles, etc.? My husband isn't gluten-free but is trying to be very careful. I just get concerned that if he eats something, then touches something, it's on there. What's the best way to clean these surfaces? I did read a blog post about cleaning peanut oils off of surfaces. She had read a study on it and it was saying that dish soap and water was one of the least effective ways to clean it.

In regards to my husband, he really doesn't eat gluten in the house much. When he does I ask him to wash his hands and be careful. The other thing I hadn't thought of until last night is he'll come home from work and have a couple of beers, which obviously have gluten in them. So, he has gluten on his lips, kisses me, gluten on my lips. What's the best way to get rid of that? Will brushing his teeth, including lips get it off? He did mention last night he'd be willing to consider switching to gluten-free beer. We'll see if that happens.

My understanding is that if there are no little cracks or crevices, you can get them clean. Like glass or pyrex - you can scrub & there is no porous surface to stick in. Also, vinegar does a good job of "melting" or loosening food & flour in the crevices. Always used it to clean my mixer at the seams.

Husband - glutenous mouth means no kissy, no huggy - if you know what I mean. ;) Men are very motivated by the promise of some lovin'.

Mac55 Apprentice

Thanks for your replies everyone! I just finished scrubbing some cabinets and drawers in the kitchen. Good advice all around on the replies. :) I had just thought about the microwave after reading a post last night. I haven't bought a new toaster yet, dumb, I know. It's not shared, at the moment, but I know there's residual gluten from the past in there. Any jars we have are gluten-free. Husband has his own butter. He eats gluten-free as long as I cook dinner. He doesn't mind it for the most part. I think he's cooked his own pasta once here. The main source of CC is from him bringing home take-out when I feel like junk and can't muster the energy to cook, pizza, subs, etc. I love the ideas of vinegar for cleaning and having him completely wash up. Just the advice I was looking for. I do recall seeing the book, Celiac Disease, a Hidden Epidemic, mentioned on a thread here. That will definitely be my next read! Thanks everyone!!!! I truly appreciate it. :)

masterjen Explorer

I have thrown out any plastic, and potentially porous utensils and containers. I've kept those that I've researched that can be sterilized/disinfected in the dishwasher, like glass and silverwear

sa1937 Community Regular

I need to go through all my misc. plasticware, too...have lots of odds and ends. Lately I've been picking up a lot of new ZipLoc containers in various sizes. I love how they stack in the freezer for soup, rice, pasta sauces, etc. The small ones are just the right size for spaghetti sauce by filling them about 3/4 full to allow room for expansion when frozen. Hopefully by getting rid of a lot of old stuff, it'll free up room in my cabinets for some of the newer and bulkier things I've been buying lately. I need to freeze things in single serving sizes for just me...nice when I don't feel like cooking.

Oh, I need to clean my microwave, too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to KDeL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      diagnostic testing variance

    2. - KDeL posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      diagnostic testing variance

    3. - Peggy M replied to louissthephin's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Does Kroger Offer Affordable Gluten-Free Options?

    4. - Scott Adams replied to Sunshine4's topic in Related Issues & Disorders
      4

      Neurologic symptoms - Muscle Twitching and Hand Tremors

    5. - trents replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Test uncertainty


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,275
    • Most Online (within 30 mins)
      7,748

    Elizabeth Brown
    Newest Member
    Elizabeth Brown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I’m so sorry you’re going through this—it sounds like you’ve been on a really challenging journey with your health. Your symptoms (stomach pains, bloating, low iron, joint pain, brain fog, etc.) do sound like they could be related to gluten sensitivity or another condition like non-celiac gluten sensitivity (NCGS). It’s interesting that your bloodwork hasn’t shown celiac markers, but the lymphocytosis in your duodenum could still point to some kind of immune response or irritation, even if it’s not classic celiac disease. The fact that your symptoms improved when you went gluten-free but returned when you reintroduced gluten (especially with the donut incident) is a pretty strong clue that gluten might be a trigger for you. It’s also worth noting that symptoms can be inconsistent, especially if your body is still healing or if there are other factors at play, like stress, cross-contamination, or other food intolerances. Do you have more info about your blood test results? Did they do a total IGA test as well? 
    • KDeL
      For years, I have dealt with various gluten related symptoms like stomach pains, bloating, IBS-C "ish" digestive issues, low iron, low Vit D, joint pains, brain fog, and more. I finally got a double scope and stomach looks clear, but I have some lymphocytosis of the duodenum. I am wondering if this sounds familiar to anyone, where I have not shown celiac red flags in bloodwork IGA tests. WIll be following up soon with GI Dr, but so far, my symptoms are intermittent. I go back and forth with gluten-free diet (especially this past year.... did two tests where the stomach pains I had went away without gluten in diet. HOWEVER, I added it back a third time and I didn't get the pains)   Anyway, I am so confused and scared to eat anything now because I recently had a few bites of a yeasty donut and I immediately got so sick. Any thoughts??
    • Peggy M
      Kroeger has quite a few Gluten free items.  Right now they are redoing my Kroeger store and are adding everything into the regular sections.  Since this was done some new ones have been added.  Publix and Ingles also have great selections. I actually shop Walmart and Food City to since prices on some items vary from store to store.
    • Scott Adams
      Sorry but I don't have specific recommendations for doctors, however, starting out with good multivitamins/minerals would make sense. You may want to get your doctor to screen you for where you different levels are now to help identify any that are low, but since you're newly diagnosed within the past year, supplementation is usually essential for most celiacs.
    • trents
      Yes, I can imagine. My celiac journey started with a rejection of a blood donation by the Red Cross when I was 37 because of elevated liver enzymes. I wasn't a drinker and my family doctor checked me for hepatitis and I was not overweight. No answers. I thought no more about it until six years later when I landed a job in a healthcare setting where I got annual CMP screenings as part of my benefits. The liver enzymes were continually elevated and creeping up every year, though they were never super high. My primary care doc had no clue. I got really worried as your liver is pretty important. I finally made an appointment with a GI doc myself and the first thing he did was test me for celiac disease. I was positive. That was in about 1996. After going on a gluten-free diet for three months the liver enzymes were back in normal range. Another lab that had gotten out of whack that has not returned to normal is albumin/total protein which are always a little on the low side. I don't know what that's about, if it's related to the liver or something else like leaky gut syndrome. But my doctors don't seem to be worried about it. One thing to realize is that celiac disease can onset at any stage of life. There is a genetic component but there is also an epigenetic component. That is, the genetic component is not deterministic. It only provides the potential. There needs also to be some health or environmental stressor to activate the latent gene potential. About 40% of the population have the genetic potential to develop celiac disease but only about 1% actually do.
×
×
  • Create New...