Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Elimination Or Cave Man Diet


jenngolightly

Recommended Posts

jenngolightly Contributor

I'm sure someone has posted information about how to do an elimination diet somewhere on this forum. I've done a little research, but can't find helpful resources on this forum by myself.

I went to an allergist for food allergy testing, and ended up with invalid skin and blood tests (I had a negative reaction to pure histamine, so doc says all tests are invalid). The allergist suggested the elimination diet, but there are so many variations on the Internet, I was hoping to get suggestions here. If you could just post some links to previous posts, that would be great. I don't want anyone to go to the trouble of repeating the information that's already been posted.

Note - I have Celiac and am strictly gluten-free. I am looking for other intolerance/allergies that are still making me sick.

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chasbari Apprentice

Google Loren Cordain, PhD and you will find information on his take on the paleo diet. There are others as well. As for me, I just stick with fruits, non legume veggies, no nightshades (potatoes, tomatoes, eggplant and tobacco because of my RA) and meat and eggs. I know he recommends staying away from eggs but they are a cheap source of protein for me and I have responded well to them. I tried things like rice, corn and quinoa and had disastrous problems with all of them so I stick to a very basic diet that has worked well for me for the better part of a year and a half now. I stick as closely as I can to whole foods and fresh produce with my concession being frozen if I can't get fresh. Also, search here for SCD or specific carbohydrate diet and you will find discussion aplenty. Oh, I cut out dairy and soy completely. I tried goats milk yogurt and that seemed to be ok for awhile until I tried to reintroduce some hard dairy cheese (parmegian) which caused me to have a bad reaction to the GM yogurt as a result. Drat! I tell people if I can pick it, peel it, steam it or grill it chances are I can eat it.

missy'smom Collaborator

I am reading abook that I've found to be helpful. Food Allergies and Intolerances by Jonathan Brostoff M.D. and Linda Gamlin.

GF Traveling Dude Newbie

Just use your common sense and create your own diet. Tomorrow, eat only potato. Maybe do it for two days. Feel okay? Then on the third day add hamburger. After 4 days, if you feel okay, add eggs. Feel sick suddenly? Then stop eating the eggs. Continue adding foods like this. And only add none processed, no preservative, no additive foods. If you were to add in Rice Chex on Day 6 and suddenly get sick then who in the world can say for sure which ingredient made you sick? You'll just end up speculating about this or that ingredient, or whether it contained gluten. Stick to fresh fruit, fresh vegetables, meat, and potato initially. Do not drink anything else but water for two weeks. Nobody ever needed tea, sprite or coffee to survive.

Wolicki Enthusiast

I would add that nightshades are problems for many here, so be wary when eating them,

gf-soph Apprentice

Here in Australia there is a very thorough elimination diet developed by the allergy unti at the RPA (Royal prince alfred hospital). It is extrememly thorough. There is a handbook for the diet, but not sure how much online. You can search failsafe diet i think which has food listings for Australia, or RPA elimination diet.

dilettantesteph Collaborator

Are you sure that you are strictly gluten free? You could try a no grain, no processed food diet and see what happens.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenngolightly Contributor
I tell people if I can pick it, peel it, steam it or grill it chances are I can eat it.

Great motto! Do you marinate your food? How about salt and pepper?

jenngolightly Contributor

I am reading abook that I've found to be helpful. Food Allergies and Intolerances by Jonathan Brostoff M.D. and Linda Gamlin.

Thanks for the book suggestion. I'll check my library.

newgfcali Rookie

There's a very simple elimination diet that starts with lamb and pears. If you live in the US, these two items are rarely eaten, or at least more rare than say beef and apples. You start with the lamb and pears and continue eating just those two things until you feel pretty good. Then you add one thing for a week. If you're well for that week, you add another the next week, and so on. It's a tremendously slow process and requires some nutritional supervision, as you're not going to get complete nutrition from such a restrictive diet. But as long as you rigidly adhere to the diet, you should find all of your intolerances. It's very close to what GFtraveling dude describes and is mentioned in the book Missy's mom suggested.

GF Traveling Dude Newbie

There's a very simple elimination diet that starts with lamb and pears. If you live in the US, these two items are rarely eaten, or at least more rare than say beef and apples. You start with the lamb and pears and continue eating just those two things until you feel pretty good. Then you add one thing for a week. If you're well for that week, you add another the next week, and so on. It's a tremendously slow process and requires some nutritional supervision, as you're not going to get complete nutrition from such a restrictive diet. But as long as you rigidly adhere to the diet, you should find all of your intolerances. It's very close to what GFtraveling dude describes and is mentioned in the book Missy's mom suggested.

I'd like to add to this and my post that it is critical that you not cook the lamb in butter, add sauce to the lamb, or buy seasoned lamb. Everything has to be prepared perfectly plain for you to understand what you are allergic too. That means no seasoning, olive oil, butter or pan spray, etc. Also, I personally would veto high fat meats to start. I'm not sure where lamb stands, but I would pick the leanest lamb you can find; lambsteaks perhaps. The reason is that many people with stomach disorders have some kind of fat malabsorption issue, so fatty meats will screw with you.

jenngolightly Contributor

Thank you all for your suggestions. It's still overwhelming to have so many to select from. Although they all sound severe, I'm sick of being sick. I had to take 2 days off work this week because I feel so crappy. Yes, I'm positive I'm not getting glutened from anywhere. I think strawberries are bad... and nightshades... I think there are multiple foods contributing to my ongoing health issues. Luckily, when I get sick from these other foods my symptoms aren't as extreme as when I eat gluten. Still, always feeling sick is really wearing me down.

I truly appreciate this forum and everyone who responded. The knowledge you all have is appreciated very much.

Jenn

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,390
    • Most Online (within 30 mins)
      7,748

    Ozz lock
    Newest Member
    Ozz lock
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
    • englishbunny
      it did include Total Immunoglobin A which was 135, and said to be in normal range. when i did the blood test in January I would say I was on a "light' gluten diet, but def not gluten free.  I didn't have any clue about the celiac thing then.  Since then I have been eating a tonne of gluten for the purpose of the endoscopy....so I'm debating just getting my blood test redone right away to see if it has changed so I'm not waiting another month...
    • trents
      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      I'm upset & confused and really need help finding a new gastro who specializes in celiac in California.  Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies from small intestine (from an area that appeared red), and both are normal. Problem is his Physician's Assistant can't give me an answer whether I have celiac or not, or what possible reason I might have for having positive antibodies if I don't have it. She wants me to retest bloods in a month and says in the meantime to either "eat gluten or not, it's up to you, but your bloodwork won't be accurate if you don't" I asked if it could be I have early stage celiac so the damage is patchy and missed by only having two samples taken, and she said doctor would've seen damaged areas when performing endoscopy (?) and that it's a good sign if my whole intestine isn't damaged all over, so even if there is spotty damage I am fine.  This doesn't exactly seem satisfactory, and seems to be contrary to so much of the reading and research I have done. I haven't seen the doctor except at my endoscopy, and he was pretty arrogant and didn't take much time to talk. I can't see him or even talk to him for another month. I'm really confused about what I should do. I don't want to just "wait and see" if I have celiac and do real damage in the meantime. Because I know celiac is more that just 'not eating bread' and if I am going to make such a huge lifestyle adjustment I need an actual diagnosis. So in summary I want to find another doctor in CA, preferably Los Angeles but I don't care at this stage if they can do telehealth! I just need some real answers from someone who doesn't talk in riddles. So recommendations would be highly welcomed. I have Blue Shield CA insurance, loads of gastros in LA don’t take insurance at all 😣
    • trents
      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
×
×
  • Create New...