Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Elimination Or Cave Man Diet


jenngolightly

Recommended Posts

jenngolightly Contributor

I'm sure someone has posted information about how to do an elimination diet somewhere on this forum. I've done a little research, but can't find helpful resources on this forum by myself.

I went to an allergist for food allergy testing, and ended up with invalid skin and blood tests (I had a negative reaction to pure histamine, so doc says all tests are invalid). The allergist suggested the elimination diet, but there are so many variations on the Internet, I was hoping to get suggestions here. If you could just post some links to previous posts, that would be great. I don't want anyone to go to the trouble of repeating the information that's already been posted.

Note - I have Celiac and am strictly gluten-free. I am looking for other intolerance/allergies that are still making me sick.

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chasbari Apprentice

Google Loren Cordain, PhD and you will find information on his take on the paleo diet. There are others as well. As for me, I just stick with fruits, non legume veggies, no nightshades (potatoes, tomatoes, eggplant and tobacco because of my RA) and meat and eggs. I know he recommends staying away from eggs but they are a cheap source of protein for me and I have responded well to them. I tried things like rice, corn and quinoa and had disastrous problems with all of them so I stick to a very basic diet that has worked well for me for the better part of a year and a half now. I stick as closely as I can to whole foods and fresh produce with my concession being frozen if I can't get fresh. Also, search here for SCD or specific carbohydrate diet and you will find discussion aplenty. Oh, I cut out dairy and soy completely. I tried goats milk yogurt and that seemed to be ok for awhile until I tried to reintroduce some hard dairy cheese (parmegian) which caused me to have a bad reaction to the GM yogurt as a result. Drat! I tell people if I can pick it, peel it, steam it or grill it chances are I can eat it.

missy'smom Collaborator

I am reading abook that I've found to be helpful. Food Allergies and Intolerances by Jonathan Brostoff M.D. and Linda Gamlin.

GF Traveling Dude Newbie

Just use your common sense and create your own diet. Tomorrow, eat only potato. Maybe do it for two days. Feel okay? Then on the third day add hamburger. After 4 days, if you feel okay, add eggs. Feel sick suddenly? Then stop eating the eggs. Continue adding foods like this. And only add none processed, no preservative, no additive foods. If you were to add in Rice Chex on Day 6 and suddenly get sick then who in the world can say for sure which ingredient made you sick? You'll just end up speculating about this or that ingredient, or whether it contained gluten. Stick to fresh fruit, fresh vegetables, meat, and potato initially. Do not drink anything else but water for two weeks. Nobody ever needed tea, sprite or coffee to survive.

Wolicki Enthusiast

I would add that nightshades are problems for many here, so be wary when eating them,

gf-soph Apprentice

Here in Australia there is a very thorough elimination diet developed by the allergy unti at the RPA (Royal prince alfred hospital). It is extrememly thorough. There is a handbook for the diet, but not sure how much online. You can search failsafe diet i think which has food listings for Australia, or RPA elimination diet.

dilettantesteph Collaborator

Are you sure that you are strictly gluten free? You could try a no grain, no processed food diet and see what happens.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenngolightly Contributor
I tell people if I can pick it, peel it, steam it or grill it chances are I can eat it.

Great motto! Do you marinate your food? How about salt and pepper?

jenngolightly Contributor

I am reading abook that I've found to be helpful. Food Allergies and Intolerances by Jonathan Brostoff M.D. and Linda Gamlin.

Thanks for the book suggestion. I'll check my library.

newgfcali Rookie

There's a very simple elimination diet that starts with lamb and pears. If you live in the US, these two items are rarely eaten, or at least more rare than say beef and apples. You start with the lamb and pears and continue eating just those two things until you feel pretty good. Then you add one thing for a week. If you're well for that week, you add another the next week, and so on. It's a tremendously slow process and requires some nutritional supervision, as you're not going to get complete nutrition from such a restrictive diet. But as long as you rigidly adhere to the diet, you should find all of your intolerances. It's very close to what GFtraveling dude describes and is mentioned in the book Missy's mom suggested.

GF Traveling Dude Newbie

There's a very simple elimination diet that starts with lamb and pears. If you live in the US, these two items are rarely eaten, or at least more rare than say beef and apples. You start with the lamb and pears and continue eating just those two things until you feel pretty good. Then you add one thing for a week. If you're well for that week, you add another the next week, and so on. It's a tremendously slow process and requires some nutritional supervision, as you're not going to get complete nutrition from such a restrictive diet. But as long as you rigidly adhere to the diet, you should find all of your intolerances. It's very close to what GFtraveling dude describes and is mentioned in the book Missy's mom suggested.

I'd like to add to this and my post that it is critical that you not cook the lamb in butter, add sauce to the lamb, or buy seasoned lamb. Everything has to be prepared perfectly plain for you to understand what you are allergic too. That means no seasoning, olive oil, butter or pan spray, etc. Also, I personally would veto high fat meats to start. I'm not sure where lamb stands, but I would pick the leanest lamb you can find; lambsteaks perhaps. The reason is that many people with stomach disorders have some kind of fat malabsorption issue, so fatty meats will screw with you.

jenngolightly Contributor

Thank you all for your suggestions. It's still overwhelming to have so many to select from. Although they all sound severe, I'm sick of being sick. I had to take 2 days off work this week because I feel so crappy. Yes, I'm positive I'm not getting glutened from anywhere. I think strawberries are bad... and nightshades... I think there are multiple foods contributing to my ongoing health issues. Luckily, when I get sick from these other foods my symptoms aren't as extreme as when I eat gluten. Still, always feeling sick is really wearing me down.

I truly appreciate this forum and everyone who responded. The knowledge you all have is appreciated very much.

Jenn

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    2. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    3. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    4. - trents commented on Amiah's blog entry in Amiah
      1

      Help!!

    5. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,581
    • Most Online (within 30 mins)
      7,748

    MaggieSc
    Newest Member
    MaggieSc
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jane02
      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
    • Scott Adams
      I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal. A stocking/glove pattern with normal nerve density points toward a pain-processing disorder rather than active celiac-related injury. Alcohol temporarily dampening symptoms likely reflects its central nervous system depressant effects, not treatment of an underlying gluten issue—and high-dose alcohol is dangerous and not a safe or sustainable strategy. Seeing a pain specialist is absolutely the right next step, and we encourage members to work closely with neurology and pain management rather than assuming hidden gluten exposure when objective testing does not support it.
    • Scott Adams
      There is no credible scientific evidence that standard water filters contain gluten or pose a gluten exposure risk. Gluten is a food protein from wheat, barley, or rye—it is not used in activated carbon filtration in any meaningful way, and refrigerator or pitcher filters are not designed with food-based binders that would leach gluten into water. AI-generated search summaries are not authoritative sources, and they often speculate without documentation. Major manufacturers design filters for water purification, not food processing, and gluten contamination from a water filter would be extraordinarily unlikely. For people with celiac disease, properly functioning municipal, bottled, filtered, or distilled water is considered gluten-free.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.