Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did gluten-free Diet Get Rid Of Restless Leg Syndrome For Anyone?


farmwife67

Recommended Posts

farmwife67 Explorer

Just wondering if anyone has been cured of Restless Leg Syndrome after going gluten-free? I think mine may be gone??? (I hate to say that) I'm a month gluten-free, I'm sure hoping that is the case.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gary'sgirl Explorer

Yes. That is one of the few symptoms that has gone away for me since I started the gluten free diet. I hope that you really are done with Restless Leg Syndrome. It is quite frustrating to put up with.

tarnalberry Community Regular

If it's being caused by an iron deficiency that was itself caused by malabsorption due to celiac - sure, it could totally do that.

I developed RLS well after going gluten (and dairy) free.

Wolicki Enthusiast

Yes, thank God after about 4 months gluten free :P

Pac Apprentice

yes, and it went away quite soon, probably like a week after going gluten-free.

farmwife67 Explorer

This is good news, I keep thinking this is too good to be true. I'm hoping it doesn't come back. It is neurological so it would make sense that it could improve. I am also taking B12 in hopes that will help too.

nyctexangal Rookie

Mine is gone as long as I stay on all my vitamins, the B-12 helps the most. 7 weeks gluten free...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Korwyn Explorer

Just wondering if anyone has been cured of Restless Leg Syndrome after going gluten-free? I think mine may be gone??? (I hate to say that) I'm a month gluten-free, I'm sure hoping that is the case.

My RLS improved, but didn't go completely away until I cut out all refined grains, starches, and sugars.

  • 1 month later...
Coolclimates Collaborator

i've been on the gluten-free diet for 3 weeks now and my restless legs haven't gotten much better, hard to tell if there's much improvement at all. I have increased my Nuerontin to 600 mg per night and am taking 1.5 pills of Mirapex and 1 Clonazapan each night, so that's been helping. I'm hoping that this diet will help with the restless legs as well.

  • 3 weeks later...
Coolclimates Collaborator

I feel like my restless legs have improved a bit, but can't figure out if it's that I'm taking sleeping pills or what. I also notice that RL is a very cyclical thing for me. The worst few nights that I have RL are right before my period.

Anyone else experience this?

conniebky Collaborator

we call it "jimmy legs" and I had that about one week out of every month.

The week I stopped gluten I had it TERRIBLY! for about three nights but then it quit altogether.

Coolclimates Collaborator

there seem to be less nights I have RL syndrome, although I notice if I do a a lot of spinning (I spin yarn, esp. at night) I'm more apt to get the RL. Mine don't bother me until early in the morning. I'm no a pretty high dose of Mirapex and Gabiprintin (Neurontin) and also take 1 Clonazapam per evening. Sorry about the bad spelling.

TrillumHunter Enthusiast

Nope, and my serum is well above the recommended level to treat it. When I had a sleep study, I moved my legs 30 times an hour on average. The only thing that quiets them is if I spend the day up and down stairs or a ladder. I would like it to stop, but I have balance issues already, so no neurotin for me.

  • 7 months later...
MsCurious Enthusiast

If it's being caused by an iron deficiency that was itself caused by malabsorption due to celiac - sure, it could totally do that.

I developed RLS well after going gluten (and dairy) free.

Cypressmyst Explorer

Yes. My Restless Legs stopped sometime in the first month, my husbands stopped at about the three month mark so it is different for everyone.

I am continually amazed by how much better life is off of this poison. :D

Cheers!

  • 1 month later...
Lucydesi Rookie

I have been diagnosed with RLS. Unfortunately it has not gone away. Maybe improved a little. Is there a connection between Celiac and RLS. Never thought of it before.

  • 2 weeks later...
GlutenFreeJess Newbie

Wow, I never really thought about it - but YES! My RLS virtually disappeared after going gluten free.

  • 3 weeks later...
Guest Selhi

Please get your Vitamin D, Calcium, ALP levels as Celiac patients are known to be deficient in Vit D and have Osteoporosis. Get these investigations or touch base with your family physician.

They can also cause restless Legs and cramps, I have suffered from these and now on regular Vit D supplements and Calcium.

Loey Rising Star

Just wondering if anyone has been cured of Restless Leg Syndrome after going gluten-free? I think mine may be gone??? (I hate to say that) I'm a month gluten-free, I'm sure hoping that is the case.

Not for me. I take a medication called Ropinerole at night and a lower dose in the morning.

Loey

  • 7 years later...
Colby - Sydney Newbie
On 4/9/2010 at 11:17 AM, farmwife67 said:

Just wondering if anyone has been cured of Restless Leg Syndrome after going gluten-free? I think mine may be gone??? (I hate to say that) I'm a month gluten-free, I'm sure hoping that is the case.

Hi Farmwife, 

 pretty sure mine is caused by gluten. I went to an expensive restaurant in Sydney recently where I live and all I had was one lobster and one chicken dish. No carbs, sugar or alcohol. My legs hurt for the first time in months. The lobster sauce was so tasty I drank it. My friend said it probably had gluten. All I had eaten that day was an omelette so i could narrow it down. I get it when I eat pizza from the bread I think. very irritating. I use to get it so bad for 3 months I was going to kill myself. Hope you find success. I never seem to get it from coffee but I do from alcohol and sugar I think. 

  • 4 weeks later...
Goofer Rookie

Mine has not improved at all, but not got worse which is good.

  • 1 year later...
aceplayer Newbie

Restless leg and cramps went away for me when I went gluten free. Don't recall how long it took buy neither ever came back. My leg cramps were every night waking me from a dead sleep sometimes twice a night. It's been 4 years for me.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,352
    • Most Online (within 30 mins)
      7,748

    Linda L Smith
    Newest Member
    Linda L Smith
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Lynnard
      Thank you!  This is super helpful and confirms everything I have read. I was definitely eating lots of gluten before both testing and endoscopy. If the biopsies do come back negative, I'm wondering how conclusion/distinction is made between celiac and gluten intolerance is made.  Or does it matter because presumably recommendation of gluten-free diet will be the protocol??  
    • trents
      You are welcome! We frequently get similar comments. Knowledge about celiac disease in the medical community at large is, unfortunately, still significantly lacking. Sometimes docs give what are obviously bum steers or just fail to give any steering at all and leave their patients just hanging out there on a limb. GI docs seem to have better knowledge but typically fail to be helpful when it comes to things like assisting their patients in grasping how to get started on gluten free eating. The other thing that, to me at least, seems to be coming to the forefront are the "tweener" cases where someone seems to be on the cusp of developing celiac disease but kind of crossing back and forth over that line. Their testing is inconsistent and inconclusive and their symptoms may come and go. We like to think in definite categorical terms but real life isn't always that way.
    • Rogol72
      Hey @Morgan Tiernan, Sounds just like my experience. I was diagnosed with dermatitis herpetiformis over 10 years ago. It appeared suddenly as a very itchy rash which looked like Eczema. When a steroid cream didn't clear it up, my Dermatologist (who had come across it before) suspected dermatitis herpetiformis and performed a skin biopsy which came back positive for dermatitis herpetiformis. The important thing is to get a definitive diagnosis of dermatitis herpetiformis. What you've described sounds like classic dermatitis herpetiformis though. Hopefully, your Dermatologist has come across dermatitis herpetiformis before and performs the skin biopsy correctly as trents mentioned. I've had the blisters on the knees, hips, forearms/elbows or anywhere that pressure is applied to the skin ... from clothing or otherwise. They itch like nothing on earth, and yes salt from sweat or soaps/shower gels will irritate a lot. I've been on Dapsone and it is very very effective at eliminating the dermatitis herpetiformis itch, and improved my quality of life in the early stages of getting on top of dermatitis herpetiformis while I adjusted to the gluten-free diet. But it does have various side effects as trents said. It can effect the red blood cells, lowering hemoglobin and can cause anemia, and requires regular blood monitoring whilst on it. You would need to consider it carefully with your Dermatologist if you do have dermatitis herpetiformis. Here's a very informative webinar from Coeliac Canada discussing everything dermatitis herpetiformis related.  https://www.youtube.com/watch?v=PAdmsNiyfOw I've also found this recent interview with a Dermatologist about dermatitis herpetiformis to be educational.  https://www.youtube.com/watch?v=rZnLeKutgUY Keep the chin up and keep advocating for yourself for a proper diagnosis. Though it sounds like you're on top of that already. Are you in the UK or Ireland? I'm curious because your surname is Irish. 
    • Philly224
      Thanks again everyone! Twenty mins on here way more helpful than both Dr's combined 😅
    • trents
×
×
  • Create New...