Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did gluten-free Diet Get Rid Of Restless Leg Syndrome For Anyone?


farmwife67

Recommended Posts

farmwife67 Explorer

Just wondering if anyone has been cured of Restless Leg Syndrome after going gluten-free? I think mine may be gone??? (I hate to say that) I'm a month gluten-free, I'm sure hoping that is the case.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gary'sgirl Explorer

Yes. That is one of the few symptoms that has gone away for me since I started the gluten free diet. I hope that you really are done with Restless Leg Syndrome. It is quite frustrating to put up with.

tarnalberry Community Regular

If it's being caused by an iron deficiency that was itself caused by malabsorption due to celiac - sure, it could totally do that.

I developed RLS well after going gluten (and dairy) free.

Wolicki Enthusiast

Yes, thank God after about 4 months gluten free :P

Pac Apprentice

yes, and it went away quite soon, probably like a week after going gluten-free.

farmwife67 Explorer

This is good news, I keep thinking this is too good to be true. I'm hoping it doesn't come back. It is neurological so it would make sense that it could improve. I am also taking B12 in hopes that will help too.

nyctexangal Rookie

Mine is gone as long as I stay on all my vitamins, the B-12 helps the most. 7 weeks gluten free...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Korwyn Explorer

Just wondering if anyone has been cured of Restless Leg Syndrome after going gluten-free? I think mine may be gone??? (I hate to say that) I'm a month gluten-free, I'm sure hoping that is the case.

My RLS improved, but didn't go completely away until I cut out all refined grains, starches, and sugars.

  • 1 month later...
Coolclimates Collaborator

i've been on the gluten-free diet for 3 weeks now and my restless legs haven't gotten much better, hard to tell if there's much improvement at all. I have increased my Nuerontin to 600 mg per night and am taking 1.5 pills of Mirapex and 1 Clonazapan each night, so that's been helping. I'm hoping that this diet will help with the restless legs as well.

  • 3 weeks later...
Coolclimates Collaborator

I feel like my restless legs have improved a bit, but can't figure out if it's that I'm taking sleeping pills or what. I also notice that RL is a very cyclical thing for me. The worst few nights that I have RL are right before my period.

Anyone else experience this?

conniebky Collaborator

we call it "jimmy legs" and I had that about one week out of every month.

The week I stopped gluten I had it TERRIBLY! for about three nights but then it quit altogether.

Coolclimates Collaborator

there seem to be less nights I have RL syndrome, although I notice if I do a a lot of spinning (I spin yarn, esp. at night) I'm more apt to get the RL. Mine don't bother me until early in the morning. I'm no a pretty high dose of Mirapex and Gabiprintin (Neurontin) and also take 1 Clonazapam per evening. Sorry about the bad spelling.

TrillumHunter Enthusiast

Nope, and my serum is well above the recommended level to treat it. When I had a sleep study, I moved my legs 30 times an hour on average. The only thing that quiets them is if I spend the day up and down stairs or a ladder. I would like it to stop, but I have balance issues already, so no neurotin for me.

  • 7 months later...
MsCurious Enthusiast

If it's being caused by an iron deficiency that was itself caused by malabsorption due to celiac - sure, it could totally do that.

I developed RLS well after going gluten (and dairy) free.

Cypressmyst Explorer

Yes. My Restless Legs stopped sometime in the first month, my husbands stopped at about the three month mark so it is different for everyone.

I am continually amazed by how much better life is off of this poison. :D

Cheers!

  • 1 month later...
Lucydesi Rookie

I have been diagnosed with RLS. Unfortunately it has not gone away. Maybe improved a little. Is there a connection between Celiac and RLS. Never thought of it before.

  • 2 weeks later...
GlutenFreeJess Newbie

Wow, I never really thought about it - but YES! My RLS virtually disappeared after going gluten free.

  • 3 weeks later...
Guest Selhi

Please get your Vitamin D, Calcium, ALP levels as Celiac patients are known to be deficient in Vit D and have Osteoporosis. Get these investigations or touch base with your family physician.

They can also cause restless Legs and cramps, I have suffered from these and now on regular Vit D supplements and Calcium.

Loey Rising Star

Just wondering if anyone has been cured of Restless Leg Syndrome after going gluten-free? I think mine may be gone??? (I hate to say that) I'm a month gluten-free, I'm sure hoping that is the case.

Not for me. I take a medication called Ropinerole at night and a lower dose in the morning.

Loey

  • 7 years later...
Colby - Sydney Newbie
On 4/9/2010 at 11:17 AM, farmwife67 said:

Just wondering if anyone has been cured of Restless Leg Syndrome after going gluten-free? I think mine may be gone??? (I hate to say that) I'm a month gluten-free, I'm sure hoping that is the case.

Hi Farmwife, 

 pretty sure mine is caused by gluten. I went to an expensive restaurant in Sydney recently where I live and all I had was one lobster and one chicken dish. No carbs, sugar or alcohol. My legs hurt for the first time in months. The lobster sauce was so tasty I drank it. My friend said it probably had gluten. All I had eaten that day was an omelette so i could narrow it down. I get it when I eat pizza from the bread I think. very irritating. I use to get it so bad for 3 months I was going to kill myself. Hope you find success. I never seem to get it from coffee but I do from alcohol and sugar I think. 

  • 4 weeks later...
Goofer Rookie

Mine has not improved at all, but not got worse which is good.

  • 1 year later...
aceplayer Newbie

Restless leg and cramps went away for me when I went gluten free. Don't recall how long it took buy neither ever came back. My leg cramps were every night waking me from a dead sleep sometimes twice a night. It's been 4 years for me.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,052
    • Most Online (within 30 mins)
      7,748

    Kathleen JJ
    Newest Member
    Kathleen JJ
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.1k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kathleen JJ
      And yes, of course it's better to know and we will adjust.  It's just, he's 7 and in our house we can control what he gets. But he plays soccer 3 times a week and in the changing room the boys share candies. I can and will tell him not to accept them any more, but "mistakes" will be made.   I'm really burdened by the potential social impact for him. He so loves to go to a restaurant as a family - I'll guess that's finished. Going to birthday parties at another kids house? I am reading about Coeliacs and apparently the fact that something as much as TOUCHED something with wheat is enough, even if he doesn't feel the symptoms - how can we control that bar from keeping him locked up?    And the worst worry of all: how do you tell a little boy to do all of this to not have symptoms that he does not have. If he'd been having horrible diarrhea or feeling really tired, we could tell him 'see, you feel so much better now, that kind of food was just not good for your body', but now, what will our argument be? For clarity: of course we will put him on the diet, I am not saying I don't believe in the necessity of that, it is just that it will be quite a stretch to 'sell' it to him 😞
    • StaciField
      I’m 41. You have helped me achieve the goals of finding a way of getting nutrients into my body so I will see how it works for me. Thank you so much.
    • Kathleen JJ
      Thank you for your reaction. The reference values are both "<10", although I found a medical paper from Netherlands (I'm Belgian) who use the same values and there the see a positive daignosis as twice more then 200 and a positive biopsie. I didn't see how to change this in my original message, sorry...
    • cristiana
      Hi Kathleen Welcome to the forum. I am based in the UK so I am just picking this post up before our US based moderators appear.  I think they will want to know the lab values of both of the figures you have provided us with (min/max reading) as they tend to vary - could you post those for us, please? We see a lot of coeliacs who also have helicobacter pylori on this forum.  I am not sure how that would reflect in the blood results so I will leave this to be answered by my more experienced colleagues @trents or @Scott Adams. Obviously, you won't really know for sure where things stand until you have your meeting with the consultant.  I am sorry that you have to wait, but it will be worth knowing one way or another.  Apart from his recent gastric issues, it is fantastic to know that your son is otherwise a picture of health.  But it is worth bearing in mind that undiagnosed coeliac disease can cause health issues in the longer term, so far better to know now if he does turn out to have coeliac disease and adapt your son's diet accordingly, before other health issues have a chance to appear. Cristiana  
    • Kathleen JJ
      Hi all, I'm very new at this and 'this' has been quite a rollercoaster ride.   Last august my 7 year old son suddenly had these colic like pain attacks that would come a few times per day/night during 10 days. Because they were that bad and because our older daughter had her appendix taken out at 7, we ended up at ER twice to have him checked out. On both accounts blood was taken, on one account an ultrasound was made, showing swollen lymph nodes around the stomach, and the working theory was it was a violent reaction to a viral infection (even though he was not nauseous nor had diarrhea or anything like that). After 10 days it stopped as suddenly as it came on.   On October 1d my daughter started vomiting in the middle of the night, had a fever, and my son also threw up once (no fever). We kept them home from school, daughter kept on vomiting, fever stayed, son was perfectly healthy during the day, although he only ate yoghurt to be safe. The plan was to let him go to school the day after. In the night prior to his school return however, he woke up at 1, screaming with pain, begging to go to ER, which we did - the pain from august had returned.   Again bloodwork, but nothing found. It ended up only being that one pain attack, but because they were that bad, we went to the pediatrician the week after to have him checked up more thoroughly. He is a very energetic, sporty boy and he showed off his six pack with great pride to the doctor. She said he looked as an example of health, but did a more extended search because as the last blood test his liver values had been ever so slightly raised and she wanted to see how they'd do after a month.    So on November 8 we had his blood drawn again. His liver values had returned to normal, which did confirm the working theory that his pains were viral-infection triggered.   However, to everyone's (including the doctor) surprise, he also had these values: Transglutaminase IgA + >128 U/mL Gliadine IgG + 123.0 U/mL    I take it these are quite high. So last Tuesday he got his gastroscopy done, we'll have the result around the 25d we hope.  Whilst going for taking samples of the bowel, the gastro enterologist did notice some nodes in his stomach that present like a reaction to a Helicobacter pylori type infection, which would very much explain the type of pains he had.   We are still very much in shock by the Ceoliakie diagnosis (I know, it still needs to be confirmed by the biopsy, but with those numbers we kind of expect it) as he has no symptoms at all. The doctor said 'once he goes on a gluten free diet you'll see him blossom into an energetic, more happy boy' and we're like: but he is bouncing around singing and joking all day, I really can't imagine him being MORE energetic and happy - meaning, he's welcome to be that of course, but this is not a tired, withdrawn kid.   And even if the biopsy gets back negative (unlikely), what could these numbers have meant then? Could the Helicobacter pylori have an influence on this?   I have so many questions but are only eligible for a consult on December 6d so my data driven mind is going crazy having so little information or knowing so little about what everything means...   Kind regards, Kathleen  
×
×
  • Create New...