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dewc1

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dewc1 Newbie

I am a 36 year old male that has been dealing with "stomach issues" since I was about 14 years old. Over the past 2-3 years, I have been getting progressively worse. I picked up a virus about 3 years ago, and have not been the same since.

My Symptoms:

bloating

flatulence

belching

diarrhea

cramping

I will not have a bowel movement for 3 or 4 days, then usually get really crampy and have diarrhea.

I have been tested for the following:

colitis

Krones Disease

lactose intollerance

gall bladder

Celiac (blood test only)

ulcers

giardia and other parasites

EGD/colonoscopy test showed irritation in both my esophagus and small intestine.

and a few benign polyps were removed.

I did test positive for fructose malabsorption/intollerance, but my score was not off the chart, it was barely above normal.

I also had allergy testing (skin prick) and they found the following as positive allergens:

whole wheat

cultivated oats

rice

fish mix

celery

oranges

buckwheat

strawberry

chocolate

Chicken and rice also showed up on the food patch test!

I do not get any typical allergic reactions when I eat these though. No hives, no anaphalactic reactions, etc.

THey have tried:

Align (probiotice)

xanax (in case nerve related)

aciphex

nexium

Bentyl (am trying now-it has only been a week on it, but I do not feel any better)

The allergist thinks I may have something called eosinophillic esophagitis because sometimes my food gets stuck and I choke.

I have lost over 30 pounds in the last 6 months (and I was not really overweight to begin with), and cannot seem to eat anything. Milk products make me sick, even though lactose and allergy tests were both negative.

Help, please.


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gary'sgirl Explorer

Did you take gluten out of your diet? The blood tests often have false negatives - especially if you were not eating much at the time. If you haven't yet tried it, I would try going off of gluten for awhile and see what happens. Try a really simple diet - mostly veggies, because if you do happen to have a gluten problem your body may not digest a lot of foods even if you are not intolerant to them.

Hope you find some answers soon.

dewc1 Newbie

Did you take gluten out of your diet? The blood tests often have false negatives - especially if you were not eating much at the time. If you haven't yet tried it, I would try going off of gluten for awhile and see what happens. Try a really simple diet - mostly veggies, because if you do happen to have a gluten problem your body may not digest a lot of foods even if you are not intolerant to them.

Hope you find some answers soon.

I quit eating all of the foods listed for about 30 days, but unfortunately I was consuming wheat in some foods and was not aware of it (french fries, etc.). How long does it take before you notice improvement?

I know that the skin prick tests were positive for those foods, but I never get any hives or anything-just GI upset. If I take everything out that I am allergic or intollerant to, there is not much left.

I have also been reading about yeast overgrowth. I was on antibiotics as a child/teenager frequently (tetracycline for 2+ years straight). I am now trying to eat yogurt, but dairy usually does not settle well.

DinaB Apprentice

I am a 36 year old male that has been dealing with "stomach issues" since I was about 14 years old. Over the past 2-3 years, I have been getting progressively worse. I picked up a virus about 3 years ago, and have not been the same since.

My Symptoms:

bloating

flatulence

belching

diarrhea

cramping

I will not have a bowel movement for 3 or 4 days, then usually get really crampy and have diarrhea.

I have been tested for the following:

colitis

Krones Disease

lactose intollerance

gall bladder

Celiac (blood test only)

ulcers

giardia and other parasites

EGD/colonoscopy test showed irritation in both my esophagus and small intestine.

and a few benign polyps were removed.

I did test positive for fructose malabsorption/intollerance, but my score was not off the chart, it was barely above normal.

I also had allergy testing (skin prick) and they found the following as positive allergens:

whole wheat

cultivated oats

rice

fish mix

celery

oranges

buckwheat

strawberry

chocolate

Chicken and rice also showed up on the food patch test!

I do not get any typical allergic reactions when I eat these though. No hives, no anaphalactic reactions, etc.

THey have tried:

Align (probiotice)

xanax (in case nerve related)

aciphex

nexium

Bentyl (am trying now-it has only been a week on it, but I do not feel any better)

The allergist thinks I may have something called eosinophillic esophagitis because sometimes my food gets stuck and I choke.

I have lost over 30 pounds in the last 6 months (and I was not really overweight to begin with), and cannot seem to eat anything. Milk products make me sick, even though lactose and allergy tests were both negative.

Help, please.

DinaB Apprentice

Have you been tested for H-pylori? It is a bacteria that causes gas, bloating, acid reflux. pylori weakens the protective mucous coating of the stomach and duodenum, which allows acid to get through to the sensitive lining beneath. Both the acid and the bacteria irritate the lining and cause a sore, or ulcer.

dewc1 Newbie

Have you been tested for H-pylori? It is a bacteria that causes gas, bloating, acid reflux. pylori weakens the protective mucous coating of the stomach and duodenum, which allows acid to get through to the sensitive lining beneath. Both the acid and the bacteria irritate the lining and cause a sore, or ulcer.

Yes, I was tested for Hpylori and it was negative.

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    • trents
      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
    • melthebell
      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
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