Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help!


dewc1

Recommended Posts

dewc1 Newbie

I am a 36 year old male that has been dealing with "stomach issues" since I was about 14 years old. Over the past 2-3 years, I have been getting progressively worse. I picked up a virus about 3 years ago, and have not been the same since.

My Symptoms:

bloating

flatulence

belching

diarrhea

cramping

I will not have a bowel movement for 3 or 4 days, then usually get really crampy and have diarrhea.

I have been tested for the following:

colitis

Krones Disease

lactose intollerance

gall bladder

Celiac (blood test only)

ulcers

giardia and other parasites

EGD/colonoscopy test showed irritation in both my esophagus and small intestine.

and a few benign polyps were removed.

I did test positive for fructose malabsorption/intollerance, but my score was not off the chart, it was barely above normal.

I also had allergy testing (skin prick) and they found the following as positive allergens:

whole wheat

cultivated oats

rice

fish mix

celery

oranges

buckwheat

strawberry

chocolate

Chicken and rice also showed up on the food patch test!

I do not get any typical allergic reactions when I eat these though. No hives, no anaphalactic reactions, etc.

THey have tried:

Align (probiotice)

xanax (in case nerve related)

aciphex

nexium

Bentyl (am trying now-it has only been a week on it, but I do not feel any better)

The allergist thinks I may have something called eosinophillic esophagitis because sometimes my food gets stuck and I choke.

I have lost over 30 pounds in the last 6 months (and I was not really overweight to begin with), and cannot seem to eat anything. Milk products make me sick, even though lactose and allergy tests were both negative.

Help, please.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gary'sgirl Explorer

Did you take gluten out of your diet? The blood tests often have false negatives - especially if you were not eating much at the time. If you haven't yet tried it, I would try going off of gluten for awhile and see what happens. Try a really simple diet - mostly veggies, because if you do happen to have a gluten problem your body may not digest a lot of foods even if you are not intolerant to them.

Hope you find some answers soon.

dewc1 Newbie

Did you take gluten out of your diet? The blood tests often have false negatives - especially if you were not eating much at the time. If you haven't yet tried it, I would try going off of gluten for awhile and see what happens. Try a really simple diet - mostly veggies, because if you do happen to have a gluten problem your body may not digest a lot of foods even if you are not intolerant to them.

Hope you find some answers soon.

I quit eating all of the foods listed for about 30 days, but unfortunately I was consuming wheat in some foods and was not aware of it (french fries, etc.). How long does it take before you notice improvement?

I know that the skin prick tests were positive for those foods, but I never get any hives or anything-just GI upset. If I take everything out that I am allergic or intollerant to, there is not much left.

I have also been reading about yeast overgrowth. I was on antibiotics as a child/teenager frequently (tetracycline for 2+ years straight). I am now trying to eat yogurt, but dairy usually does not settle well.

DinaB Apprentice

I am a 36 year old male that has been dealing with "stomach issues" since I was about 14 years old. Over the past 2-3 years, I have been getting progressively worse. I picked up a virus about 3 years ago, and have not been the same since.

My Symptoms:

bloating

flatulence

belching

diarrhea

cramping

I will not have a bowel movement for 3 or 4 days, then usually get really crampy and have diarrhea.

I have been tested for the following:

colitis

Krones Disease

lactose intollerance

gall bladder

Celiac (blood test only)

ulcers

giardia and other parasites

EGD/colonoscopy test showed irritation in both my esophagus and small intestine.

and a few benign polyps were removed.

I did test positive for fructose malabsorption/intollerance, but my score was not off the chart, it was barely above normal.

I also had allergy testing (skin prick) and they found the following as positive allergens:

whole wheat

cultivated oats

rice

fish mix

celery

oranges

buckwheat

strawberry

chocolate

Chicken and rice also showed up on the food patch test!

I do not get any typical allergic reactions when I eat these though. No hives, no anaphalactic reactions, etc.

THey have tried:

Align (probiotice)

xanax (in case nerve related)

aciphex

nexium

Bentyl (am trying now-it has only been a week on it, but I do not feel any better)

The allergist thinks I may have something called eosinophillic esophagitis because sometimes my food gets stuck and I choke.

I have lost over 30 pounds in the last 6 months (and I was not really overweight to begin with), and cannot seem to eat anything. Milk products make me sick, even though lactose and allergy tests were both negative.

Help, please.

DinaB Apprentice

Have you been tested for H-pylori? It is a bacteria that causes gas, bloating, acid reflux. pylori weakens the protective mucous coating of the stomach and duodenum, which allows acid to get through to the sensitive lining beneath. Both the acid and the bacteria irritate the lining and cause a sore, or ulcer.

dewc1 Newbie

Have you been tested for H-pylori? It is a bacteria that causes gas, bloating, acid reflux. pylori weakens the protective mucous coating of the stomach and duodenum, which allows acid to get through to the sensitive lining beneath. Both the acid and the bacteria irritate the lining and cause a sore, or ulcer.

Yes, I was tested for Hpylori and it was negative.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MogwaiStripe posted a topic in Dermatitis Herpetiformis
      0

      Dermatitis Herpetiformis Cleared up With EpiPen, etc.

    2. - Dr. Gunn replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    3. - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    4. - Dr. Gunn replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

    5. - Aretaeus Cappadocia commented on Scott Adams's article in Spring 2026 Issue
      1

      How Social Media Algorithms Are Fueling Gluten Anxiety: TikTok, Reddit, and Instagram Trends

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,659
    • Most Online (within 30 mins)
      7,748

    Dr. Gunn
    Newest Member
    Dr. Gunn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • MogwaiStripe
      I had to rush to the hospital last week due to anaphylactic shock from taking a dose of an antibiotic. Received EpiPen, steroids, antihistamines, zofran (all injected/IV). When I woke up the next day, ALL of the rashes I've had that started since going gluten free were cleared up. EVEN THE dermatitis herpetiformis was gone. Has anyone else experienced this or happen to know why that would happen? The meds they gave me were all meds that I've taken to try to resolve the rashes, but they never worked in pill form. I'm wondering if it the addition of the epi that helped, it if injected steroids and antihistamines were what did the job.
    • Dr. Gunn
      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
    • trents
      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
    • Dr. Gunn
      Have you had celiac genetic risk testing? A celiac genetic test is accurate with or without gluten in your diet. If you don't carry the celiac risk genes you can effectively rule out celiac disease for life. 
    • Scott Adams
      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.