Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When Friends Cook For You


SuperMolly

Recommended Posts

SuperMolly Apprentice

I'm curious to know how you all handle it when a friend cooks for you. I'm not talking about someone who is well-educated in celiac disease and how careful you need to be. I'm talking about the friend with a big heart who knows you need to be gluten free and goes to all kinds of trouble to find gluten-free recipes and products, but doesn't know anything about cross contamination.

I went to visit a dear friend this weekend. I told her I'd bring my own food, and I did. However, when I got there she was so proud to show off her beautiful gluten-free bars. I felt stuck. I decided to risk it and be a gracious guest. Sure enough, these past 2 days I've been miserable.

How do you handle these situations?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ahorsesoul Enthusiast

For this very reason I do not eat at any one's house. I am upfront that I will not be eating anything that I do not prepare when I visit and I do not even try their food. I tell them their kitchen are contaminated with gluten that will make me ill.

The last time I was at a friend's who was trying to get me to eat her wonderful food she had prepared 'all gluten free just for me', I had her tell and SHOW me exactly what she put in it. Raw potatoes, squash and onions from her garden. All fine. Then I asked her about spices. Sure enough the chicken broth seasoning had wheat as the second ingredient. I told her this is why I only eat food I prepare. Gluten is hiding in to many things for others to understand, let alone try to cook for me.

Let your friend know that you are sick. She needs to understand that you are not kidding about eating only food you've prepared. Tell her it really is your fault because you know how sentitive you are to even a trace amount of gltuen. And ask her for the recipe. People love sharing recipes.

tarnalberry Community Regular

There are approximately three other homes I feel comfortable eating in (or being cooked for in) - and they all know that I am even happier to bring my own food than to have them cook for me. They are my in-laws (but I've done lots of cooking there too, especially during the holidays), a couple that we visit fairly often for game night where they tend to provide food for the crowd, and one other couple who I worked with. Anyone else, I'm bringing food, and though I may feel bad when they show me the attempts they went to in order to provide something I could eat, I still decline. I make sure to express my very deep appreciation for the gesture, and give them an out to blame on me ("Maybe I'm paranoid, but I just don't feel comfortable taking any kind of risk.") And I try to ask them about the item so that I can try making it at home.

(If it helps the situation to point out the contamination concerns I have, I will. The reason my number of houses I'll eat at now is three is because our friends once made a fabulous smelling curry, that they checked ingredients on (or had me check) so I could eat it. When I got there, I saw there was a wooden spoon in the pot. I declined the food, and felt AWFUL! for not thinking to mention it, but they're good friends, and they respect that it's my decision what to eat, regardless of anything else.)

kareng Grand Master

My mom's friend keeps insisting that I don't need to be as careful as worrying about contaminated wooden spoons, etc. My mom just tells her "Her doctor and the doctors at the University of Chicago want her to do this." The "doctors at U of C" comes from my reading thier info on the website & that they sent me. Prestigous sounding doctors make an impression on the older set. Anyway, you could say something like that if people insist. It puts the decision on someone that's not there for them to try to convince.

Roda Rising Star

I have not had any friends cook for me. My MIL has and I have since rethought that position. We are going over this weekend and I am making/bringing all my food and told her I would take care of myself. My mom has cooked for me at my house, so no problem there and we cook together at her house after a good cleaning and me bringing some of my own ingredients. My mom and husband are the only two at this point I can trust enough. I have not had an ivite to anyone's house since diagnosed. Oh well.

StephanieGF Rookie

Yeah, basically don't do it. I know it can be hard to try not to hurt someone's feelings, but you don't want to get glutened, and you will 9 times out of 10.

In my case, everyone now knows I always bring my own food everywhere. But if I was going somewhere new, I call ahead (or have my DH if he knows them better) and explain that my son and I have severe food allergies (we leave it at that initially) and that we don't want anyone's feelings to be hurt but that we have to bring special food. We also emphasize that they should not do anything special for us and to please make whatever they were planning. If they press it, or really want to do something special, we try to explain that if someone was to simply touch a piece of bread and then my food I would get sick. Most people usually don't want the liability of preparing food for someone that sensitive. ;) Then in person (if they ask, and they always do) I will try to soft the strangeness for them by talking about Celiacs and using some of the examples of hidden gluten everywhere. So far, it has worked well, and if someone still thinks I'm a freak, no one has told me to my face. :lol:

jerseyangel Proficient

I always tell people that they don't have to worry about me, I will bring all of my own food. If necessary, I simply explain that I don't expect them to go to all the trouble of checking ingredients and avoiding cross contamination. I've never had a problem with that.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



misslexi Apprentice

Thankfully I don't eat at other people's houses very often! I can't even eat at my family's house without feeling ill after. It is really hard to tell people you can't eat what they make, or that it made you sick. I told my mom that and felt awful because she got upset. But its really hard to avoid cross contamination! It happens even when you are trying to be careful. Their kitchens are full of gluten, and it is a very sneaky thing. Just stay firm, and try and explain it as best you can. It isn't worth getting sick over, is it? Surely they would feel terrible knowing how sick you get even if they put alot of effort into it.

brigala Explorer

I will occasionally taste something a well-meaning friend gives me, but I won't take more than a bite. And even then, it has to be a friend who knows more than the average guy on the street.

I consider eating at a friend's house to be similar to eating at a restaurant, except most of my friends aren't trained like chefs are in food preparation and allergen isolation. IF the friend -really- understands, I might eat some things cooked in their kitchen... but only rarely. Just like restaurants. It's a risk every time, and one that I get less and less willing to take.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

    2. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    3. - mamaof7 posted a topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

    4. - Dizzyma replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly diagnosed mam to coeliac 11 year old

    5. - tiffanygosci posted a topic in Introduce Yourself / Share Stuff
      1

      Celiac support is hard to find

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,955
    • Most Online (within 30 mins)
      7,748

    JodyBledsoe
    Newest Member
    JodyBledsoe
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
    • mamaof7
      For reference, daughter is 18 mths old. Was having painful severe constipation with pale stool and blood also bloating (tight extended belly.) Liver and gallbladder are normal. Ultrasound was normal. Dr ordered celiac blood test. We took her off gluten after blood draw. She is sleeping better, no longer bloated and stools are still off color but not painful.    "GLIADIN (DEAMID) AB, IGA FLU Value  0.84 Reference Range: 0.00-4.99 No further celiac disease serology testing to be performed. INTERPRETIVE INFORMATION: Deamidated Gliadin Peptide (DGP) Ab, IgA A positive deamidated gliadin (DGP) IgA antibody result is associated with celiac disease but is not to be used as an initial screening test due to its low specificity and only occasional positivity in celiac disease patients who are negative for tissue transglutaminase (tTG) IgA antibody."   Anyone know what in the world this means. She isn't scheduled to see GI until late April. 
    • Dizzyma
      Hi Trent and Cristiana, thank you so much for taking the time out to reply to me.  My daughters GP requested bloods, they came back as showing a possibility of celiac disease, she advised me to continue feeding gluten as normal and wait on a hospital appointment. When we got that the doctor was quite annoyed that the gp hadn’t advised to go gluten free immediately as she explained that her numbers were so high that celiac disease was fairly evident. That doctor advised to switch to a gluten-free diet immediately which we did but she also got her bloods taken again that day as it made sense to double check considering she was maintaining a normal diet and they came back with a result of 128. The hospital doctor was so confident of celiac disease that she didn’t bother with any further testing. Cristiana, thank you for the information on the coeliac UK site however I am in the Rrpublic of Ireland so I’ll have to try to link in with supports there. I appreciate your replies I guess I’ll figure things as we go I just feel so bad for her, her skin is so sore around her mouth  and it looks bad at an age when looks are becoming important. Also her anxiety is affecting her sleep so I may have to look into some kind of therapy to help as I don’t think I am enough to help. thanks once again, it’s great to be able to reach out xx   
    • tiffanygosci
      I have been feeling so lonely in this celiac disease journey (which I've only been on for over 4 months). I have one friend who is celiac, and she has been a great help to me. I got diagnosed at the beginning of October 2025, so I got hit with all the major food holidays. I think I navigated them well, but I did make a couple mistakes along the way regarding CC. I have been Googling "celiac support groups" for the last couple days and there is nothing in the Northern Illinois area. I might reach out to my GI and dietician, who are through NW Medicine, to see if there are any groups near me. I cannot join any social media groups because I deleted my FB and IG last year and I have no desire to have them back (although I almost made a FB because I'm desperate to connect with more celiacs). I'm glad I have this forum. I am praying God will lead me to more people to relate to. In my opinion, celiac disease is like the only food- related autoimmune disease and it's so isolating. Thanks for walking alongside of me! I'm glad I know how to help my body but it's still not easy to deal with.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.