Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Do You Think This Sounds Anything Like Dh?


Emsstacey

Recommended Posts

Emsstacey Rookie

Hey everyone! Thanks in advance for any insight you can give. :-)

I have had a rash on the back of one thigh that comes back every year or two, lasts a few weeks, heals to a hyperpigmented area and then finally fades away months down the road. In the past it has been called shingles and treated with antivirals but the antivirals haven't really made a huge difference. I woke up itching yesterday and lo and behold... it's back. In the past two years, I have had some inconclusive celiac testing (high positive for deamidated gliadin peptides) and this has made me wonder if this recurring area could be dh.

It is a raised, hot, red area that started about the size of a quarter and within 24 hours has gotten a bit bigger. It started with little bumps inside the red area and today has turned to little blisters. It started out itching really bad and today it is more of a stinging sensation with the occasional itch to it.

I needed to find a new family doctor since my last one moved and was lucky enough to get into someone yesterday. He said that he thought there is a very low chance of it being shingles and that unless we biopsied it-- we wouldn't be able to know for sure what it was. He said that Herpes viruses tend to recur in the same area but don't often appear on non-mucous areas. He said that if it were him, since it heals within a couple of weeks and only comes back every year or two-- that he wouldn't really worry about it. He also said there are so many rashes who have overlapping details that it would be hard for him to pinpoint a specific one without a biopsy but he didn't seem interested in biopsying it.

After googling herpes skin rashes, it doesn't really look exactly like those and most of the dh pics I have seen are more widespread with one vesicle per red area and I have maybe 10-15 vesicles on the one red area. Otherwise, it sounds like dh with the exception of being symmetrical. I have been eating more gluten in the past few weeks in preparation for further testing to try to get a conclusive answer to whether I have celiac-- so not sure if that has anything to do with it. It also seems to come back during bad allergy times of the year.

THanks for any insight you guys can give!

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Terrified Mom Newbie

That does sound like shingles. Sadly, because of the chicken pox vaccine, shingles is becoming more and more common. What used to be a disease that affected the older generations is now hitting people in their 20's. There have even been reports of 9 year olds getting shingles. :( One of my neighbors has had it 4 or 5 times in the 8 years I've known her and I've known 4 20-somethings to come down with it. Been trying like crazy to get my toddler some pox to avoid that (massive mistake of a) shot, but so far he hasn't caught it from any of them.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,197
    • Most Online (within 30 mins)
      7,748

    Crazygeminimom1981
    Newest Member
    Crazygeminimom1981
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Lindquist
      Hi im from northern europe are blood type 0+ have celiac with code K900 on the paper from doctor, have low vitamin D and b12 and folate, zinc, manganese and high copper it say in test. The best food i have eaten for now is LCHF, i tried paleo but i was missing the dairy. And i love the cream in sauces. LCHF is good choice there is no grains in the dishes. It's completly gluten free lifestyle i say. Because i feel good to eat it.
    • WednesdayAddams13
      Hello,   I contacted the makers of Alpine Original Spiced Cider Drink Mix and they sent me this email.....   Subject: [EXTERNAL] Fw: Ref. ID:1335211 Alpine Original Spiced Cider Drink Mix.               On Friday, December 6, 2024, 1:04 PM, Consumer <baking@continentalmills.com> wrote: December 06, 2024   Dear Janie, Thank you for taking the time to contact us regarding our Alpine Original Spiced Cider Drink Mix. We appreciate your interest and are happy to provide you with additional information. This product does not contain gluten. However, it is not manufactured in a gluten free facility. If I can be of further help, please contact me at 1 (800) 457-7744, weekdays 7:00 a.m. to 4:00 p.m. (PT), or visit www.alpinecider.com and select "Contact Us." Sincerely, Kristin Kristin Consumer Relations Specialist Ref # 1335211   I hope this helps everyone.  I am currently looking for a spiced hot apple cider drink and have yet to find one that is not made in a plant that manufactures other gluten products.  It's so frustrating. 
    • trents
      @Rogol72, dermatitis herpetiformis occurs in a minority of celiac patients and if the OP hasn't developed it yet I doubt it will show up in the future. I think it unwise to use a scare tactic that probably won't materialize in the OP's experience. It has a good chance of backfiring and having the opposite effect.
    • Rogol72
      Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make life easier for him/her, and the family might begin to take his/her strict gluten-free diet more seriously. A picture says a thousand words and the shock factor of dermatitis herpetiformis blisters might have the desired effect. The OP did say ... "How do you deal with people close to you who just refuse to understand? Are there any resources anyone could recommend for families that are short and easy to read?".  @sillyyak52, It might also help mentioning to your family that Coeliac Disease is genetic and runs in families. Any one of them could develop it in the future if they have the HLA DQ 2.5 gene. Here's a Mayo Clinic study calling for screening of family members of Coeliacs ... https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-celiac-disease-screening-for-family-members/ https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/ I got glutened a few months ago because I missed the may contains statement on a tub of red pesto. It was my own fault but it happens.
    • peg
      Thank you, Scott!  This is just what I needed.  Appreciate your site very much and all of your time and energy that goes into it! Kind Regards, Peg
×
×
  • Create New...