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- KDeL replied to KDeL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12diagnostic testing variance
oh wow that's so interesting! if I do re-scope, I will try to eat gluten more as well. when I do its super light. so maybe trying to keep that consistent for a while then the scope. plus i want to still do the genetic testing to rule it out. that would be so easy if that is negative then I for sure don't have it. -
- trents replied to KDeL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12diagnostic testing variance
Keep us posted about the scoping results. Make sure before the scoping you ask them to take several samples from both the duodenum and the duodenum bulb. Damage can be patchy and is sometimes missed if insufficient sampling is done during the biopsying. -
- KDeL replied to KDeL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
diagnostic testing variance
so all this info has been really helpful... thank you! I recently tested again and was IGA negative for celiac, but further testing says I am positive for one of the variants that is associated with celiac. (HLA DQ8) also says value 1 and 3 for HLA DQA1, but idk what that means. Anyway, now they are suggesting repeat scope. sometimes gluten makes... -
- CJF posted a topic in Gluten-Free Foods, Products, Shopping & Medications0Gluten free flours
I was diagnosed with Celiac disease over 8 years ago. I've managed the gluten-free diet without a lot of problems. My most recent problem is my husband has recently been diagnosed with various food allergies. Some more severe than others. One food that seems to cause the most reaction is potatoes. I love to bake and his potato allergy has thrown... -
- englishbunny replied to englishbunny's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Help understanding test results after negative biopsy
They did a lot of stool samples so I know they ruled out parasites and bacterial infections. It sounds like the next step is trying to find a doctor I trust for a second opinion and to try and figure out if it’s celiac or NCGS. Thanks again so much. Honestly it’s been so hard to find any support until I found this forum 🙏🏻
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oh wow that's so interesting! if I do re-scope, I will try to eat gluten more as well. when I do its super light. so maybe trying to keep that consistent for a while then the scope. plus i want to still do the genetic testing to rule it out. that would be so easy if that is negative then I for sure don't have it.
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Keep us posted about the scoping results. Make sure before the scoping you ask them to take several samples from both the duodenum and the duodenum bulb. Damage can be patchy and is sometimes missed if insufficient sampling is done during the biopsying.
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so all this info has been really helpful... thank you! I recently tested again and was IGA negative for celiac, but further testing says I am positive for one of the variants that is associated with celiac. (HLA DQ8) also says value 1 and 3 for HLA DQA1, but idk what that means. Anyway, now they are suggesting repeat scope. sometimes gluten makes me super sick and sometimes I can handle it fine. last night I had bagel and woke up with stomach ache... so Idk. the mystery continues... just dont' want to be eating and damaging my insides for years without knowing it. -K
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I was diagnosed with Celiac disease over 8 years ago. I've managed the gluten-free diet without a lot of problems. My most recent problem is my husband has recently been diagnosed with various food allergies. Some more severe than others. One food that seems to cause the most reaction is potatoes. I love to bake and his potato allergy has thrown a monkey wrench in most of the gluten free flours on the market. I have used oat flour in a few things that already have oats in them but I don't like the texture of things that don't use oats. Almond flour is too gritty for my taste. Is there anyone out there that has a brand they like that doesn't contain potato starch? Both Bob's Red Mill and King Arthur...
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By englishbunny · Posted
They did a lot of stool samples so I know they ruled out parasites and bacterial infections. It sounds like the next step is trying to find a doctor I trust for a second opinion and to try and figure out if it’s celiac or NCGS. Thanks again so much. Honestly it’s been so hard to find any support until I found this forum 🙏🏻
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