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Allergic Dermatitis Vs. Dh


BrownEyedGirl

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BrownEyedGirl Apprentice

Are there similarities in appearance with Allergic Dermatitis and DH? I was diagnosed with AD this week, but I'm curious if it could be DH.

Background info: I don't have celiac, but I have allergies/intolerances to casein and wheat. I've gotten hives on-and-off for about four years now. I did extensive allergy testing, and those two things turned out to be the cause. I didn't have to completely eliminate them from my diet at that point. If I went without for a while, I could eat small amounts for quite some time before the hives would start up again. This week, I broke out with a really bad rash on my thigh. The whole area is red, inflamed and itchy, with bumps all over. Then, I started getting bumps in other places .... arms, stomach, back, legs. Some of the bumps are very small, others are large, cyst-like and look like they may be fluid-filled.

It got so bad that I ended up going to the ER, and they said I have allergic dermatitis. I'm taking a prescription allergy medicine and steroid, but it only helps me so much. When I take the steroid at night, there is improvement when I wake up, but I've noticed 10-20 minutes after eating, it'll start getting really itchy again and more bumps will pop up. This has led me to believe it's my food allergies bothering me once again, so I'm going try eating casein and gluten-free to see if that will help me any. According to the sheet they gave me about Allergic Dermatitis, it's caused by coming in contact with something external you're reacting to, so that wouldn't make sense that it flares up after eating.


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blondebombshell Collaborator

Are there similarities in appearance with Allergic Dermatitis and DH? I was diagnosed with AD this week, but I'm curious if it could be DH.

Background info: I don't have celiac, but I have allergies/intolerances to casein and wheat. I've gotten hives on-and-off for about four years now. I did extensive allergy testing, and those two things turned out to be the cause. I didn't have to completely eliminate them from my diet at that point. If I went without for a while, I could eat small amounts for quite some time before the hives would start up again. This week, I broke out with a really bad rash on my thigh. The whole area is red, inflamed and itchy, with bumps all over. Then, I started getting bumps in other places .... arms, stomach, back, legs. Some of the bumps are very small, others are large, cyst-like and look like they may be fluid-filled.

It got so bad that I ended up going to the ER, and they said I have allergic dermatitis. I'm taking a prescription allergy medicine and steroid, but it only helps me so much. When I take the steroid at night, there is improvement when I wake up, but I've noticed 10-20 minutes after eating, it'll start getting really itchy again and more bumps will pop up. This has led me to believe it's my food allergies bothering me once again, so I'm going try eating casein and gluten-free to see if that will help me any. According to the sheet they gave me about Allergic Dermatitis, it's caused by coming in contact with something external you're reacting to, so that wouldn't make sense that it flares up after eating.

i think i have this, too!

i look forward to hearing others' responses. how did you become diagnosed with this? my hives are so bad at the moment, i'm literally itching out of my skin.

BrownEyedGirl Apprentice

i think i have this, too!

i look forward to hearing others' responses. how did you become diagnosed with this? my hives are so bad at the moment, i'm literally itching out of my skin.

I went to the ER, and they said it was a classic case of allergic dermatitis. I ended up going back last night. After four days, the steroids didn't work at all and it was getting worse, some of the rashes were also turning purple. The doctor said I was taking very low dose steroids for the severity of my symptoms, and gave me a prescription for the same drug, but a much higher dose. I told him about my previous food allergy problems and how it flares up after I eat. He said that since I've had problems with breaking out in hives from wheat and milk that I need to go on a gluten-free/CF diet, keep a food diary of everything I eat and my reactions, continue with the steroids, and if it doesn't clear up in the next week, he gave me a referral to a dermatologist.

weluvgators Explorer

Hey, Becky,

We have been troubleshooting hand eczema/dermatitis in our gluten sensitive child. Her hands get itchy, swollen and red. It is terrible. Her symptoms are specific to school and gluten. We were recently at the dermatologist trying to get help. We have done topical steroids off and on trying to manage it. In a strictly gluten free environment and on our gluten/dairy free diet, she does not have the symptoms. However, *very* low doses of gluten will keep her hands aggravated, especially when she is getting substantial environmental exposures at school. It has been so frustrating trying to keep her hands well. The "allergy" side of wheat/gluten can be so very, very hard to manage.

I hope that your rash clears up quickly and nicely. The itch you describe is so characteristic of my daughter's reaction, and I was hopeful that getting a skin biopsy may help us get a "celiac" diagnosis. The dermatologist responded when I asked that the rash would most likely test negative, as the DH characteristic "blistering" was not present. She also said that it is very, very difficult to get a positive biopsy and diagnosis for these wheat/gluten conditions. For my daughter, her allergic reactions will most likely keep her from consuming enough gluten to do the required "diagnostic" damage needed for a celiac diagnosis. Additionally, she is much more reactive to environmental exposures than our more "classical" celiac child.

Good luck with the diet changes - it has made a world of difference for us and our skin and allergy issues!

blondebombshell Collaborator

i just got back from the dermatologist who told me it was chronic hives. WTH! i explained my digestive issues, allergy issues, everything. i feel like there is no hope. i didn't have any gluten yesterday and had a horrid flare-up this morning. by the time i got to the doc the welts were little, red bumps and he said that's not what DH looks like. I dunno.

BrownEyedGirl Apprentice

Update:

I ended up going to the ER last night. After four days of allergy meds and steroids, it had gotten a lot worse and the itching was pretty unbearable. Some of the rashes had become purplish. The doctor I saw said that the steroids I had been given were very low doses, and he was shocked at that given the severity. He gave me a prescription for the same drug, but a much higher dose. He asked me to go into detail about my symptoms and when they occur, my previous food allergy problems. He said it's clear it's allergic dermatitis brought on by food allergies, and since I've had a history of problems with wheat and milk, that I should start there. I'm started on a gluten-free/CF diet today ... before i had a flare-up everytime I ate, but I didn't have any today. I didn't need my anti-itching medicine until about 7pm, which is really good. I've been taking it 4+ times a day. And even when the itching returned, it was more like an irritation itch, than the swelling I would encounter after eating. The rash has gone down some and the blisters aren't as red. The rashes on my thighs kind of itch right now though. That's where the purple is though, so hopefully it just means it's healing.

Anyway, I'm supposed to continue with the gluten-free/CF diet (need to clean out the pantry and go grocery shopping!), do a 5-day steroid pack, keep a food diary and see a dermatologist.

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    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
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