Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergic Dermatitis Vs. Dh


BrownEyedGirl

Recommended Posts

BrownEyedGirl Apprentice

Are there similarities in appearance with Allergic Dermatitis and DH? I was diagnosed with AD this week, but I'm curious if it could be DH.

Background info: I don't have celiac, but I have allergies/intolerances to casein and wheat. I've gotten hives on-and-off for about four years now. I did extensive allergy testing, and those two things turned out to be the cause. I didn't have to completely eliminate them from my diet at that point. If I went without for a while, I could eat small amounts for quite some time before the hives would start up again. This week, I broke out with a really bad rash on my thigh. The whole area is red, inflamed and itchy, with bumps all over. Then, I started getting bumps in other places .... arms, stomach, back, legs. Some of the bumps are very small, others are large, cyst-like and look like they may be fluid-filled.

It got so bad that I ended up going to the ER, and they said I have allergic dermatitis. I'm taking a prescription allergy medicine and steroid, but it only helps me so much. When I take the steroid at night, there is improvement when I wake up, but I've noticed 10-20 minutes after eating, it'll start getting really itchy again and more bumps will pop up. This has led me to believe it's my food allergies bothering me once again, so I'm going try eating casein and gluten-free to see if that will help me any. According to the sheet they gave me about Allergic Dermatitis, it's caused by coming in contact with something external you're reacting to, so that wouldn't make sense that it flares up after eating.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blondebombshell Collaborator

Are there similarities in appearance with Allergic Dermatitis and DH? I was diagnosed with AD this week, but I'm curious if it could be DH.

Background info: I don't have celiac, but I have allergies/intolerances to casein and wheat. I've gotten hives on-and-off for about four years now. I did extensive allergy testing, and those two things turned out to be the cause. I didn't have to completely eliminate them from my diet at that point. If I went without for a while, I could eat small amounts for quite some time before the hives would start up again. This week, I broke out with a really bad rash on my thigh. The whole area is red, inflamed and itchy, with bumps all over. Then, I started getting bumps in other places .... arms, stomach, back, legs. Some of the bumps are very small, others are large, cyst-like and look like they may be fluid-filled.

It got so bad that I ended up going to the ER, and they said I have allergic dermatitis. I'm taking a prescription allergy medicine and steroid, but it only helps me so much. When I take the steroid at night, there is improvement when I wake up, but I've noticed 10-20 minutes after eating, it'll start getting really itchy again and more bumps will pop up. This has led me to believe it's my food allergies bothering me once again, so I'm going try eating casein and gluten-free to see if that will help me any. According to the sheet they gave me about Allergic Dermatitis, it's caused by coming in contact with something external you're reacting to, so that wouldn't make sense that it flares up after eating.

i think i have this, too!

i look forward to hearing others' responses. how did you become diagnosed with this? my hives are so bad at the moment, i'm literally itching out of my skin.

BrownEyedGirl Apprentice

i think i have this, too!

i look forward to hearing others' responses. how did you become diagnosed with this? my hives are so bad at the moment, i'm literally itching out of my skin.

I went to the ER, and they said it was a classic case of allergic dermatitis. I ended up going back last night. After four days, the steroids didn't work at all and it was getting worse, some of the rashes were also turning purple. The doctor said I was taking very low dose steroids for the severity of my symptoms, and gave me a prescription for the same drug, but a much higher dose. I told him about my previous food allergy problems and how it flares up after I eat. He said that since I've had problems with breaking out in hives from wheat and milk that I need to go on a gluten-free/CF diet, keep a food diary of everything I eat and my reactions, continue with the steroids, and if it doesn't clear up in the next week, he gave me a referral to a dermatologist.

weluvgators Explorer

Hey, Becky,

We have been troubleshooting hand eczema/dermatitis in our gluten sensitive child. Her hands get itchy, swollen and red. It is terrible. Her symptoms are specific to school and gluten. We were recently at the dermatologist trying to get help. We have done topical steroids off and on trying to manage it. In a strictly gluten free environment and on our gluten/dairy free diet, she does not have the symptoms. However, *very* low doses of gluten will keep her hands aggravated, especially when she is getting substantial environmental exposures at school. It has been so frustrating trying to keep her hands well. The "allergy" side of wheat/gluten can be so very, very hard to manage.

I hope that your rash clears up quickly and nicely. The itch you describe is so characteristic of my daughter's reaction, and I was hopeful that getting a skin biopsy may help us get a "celiac" diagnosis. The dermatologist responded when I asked that the rash would most likely test negative, as the DH characteristic "blistering" was not present. She also said that it is very, very difficult to get a positive biopsy and diagnosis for these wheat/gluten conditions. For my daughter, her allergic reactions will most likely keep her from consuming enough gluten to do the required "diagnostic" damage needed for a celiac diagnosis. Additionally, she is much more reactive to environmental exposures than our more "classical" celiac child.

Good luck with the diet changes - it has made a world of difference for us and our skin and allergy issues!

blondebombshell Collaborator

i just got back from the dermatologist who told me it was chronic hives. WTH! i explained my digestive issues, allergy issues, everything. i feel like there is no hope. i didn't have any gluten yesterday and had a horrid flare-up this morning. by the time i got to the doc the welts were little, red bumps and he said that's not what DH looks like. I dunno.

BrownEyedGirl Apprentice

Update:

I ended up going to the ER last night. After four days of allergy meds and steroids, it had gotten a lot worse and the itching was pretty unbearable. Some of the rashes had become purplish. The doctor I saw said that the steroids I had been given were very low doses, and he was shocked at that given the severity. He gave me a prescription for the same drug, but a much higher dose. He asked me to go into detail about my symptoms and when they occur, my previous food allergy problems. He said it's clear it's allergic dermatitis brought on by food allergies, and since I've had a history of problems with wheat and milk, that I should start there. I'm started on a gluten-free/CF diet today ... before i had a flare-up everytime I ate, but I didn't have any today. I didn't need my anti-itching medicine until about 7pm, which is really good. I've been taking it 4+ times a day. And even when the itching returned, it was more like an irritation itch, than the swelling I would encounter after eating. The rash has gone down some and the blisters aren't as red. The rashes on my thighs kind of itch right now though. That's where the purple is though, so hopefully it just means it's healing.

Anyway, I'm supposed to continue with the gluten-free/CF diet (need to clean out the pantry and go grocery shopping!), do a 5-day steroid pack, keep a food diary and see a dermatologist.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MauraBue posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      how much gluten do I need to eat before blood tests?

    3. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    4. - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

    5. - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,260
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
    • suek54
      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
    • suek54
      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.