Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Allergic Dermatitis Vs. Dh


BrownEyedGirl

Recommended Posts

BrownEyedGirl Apprentice

Are there similarities in appearance with Allergic Dermatitis and DH? I was diagnosed with AD this week, but I'm curious if it could be DH.

Background info: I don't have celiac, but I have allergies/intolerances to casein and wheat. I've gotten hives on-and-off for about four years now. I did extensive allergy testing, and those two things turned out to be the cause. I didn't have to completely eliminate them from my diet at that point. If I went without for a while, I could eat small amounts for quite some time before the hives would start up again. This week, I broke out with a really bad rash on my thigh. The whole area is red, inflamed and itchy, with bumps all over. Then, I started getting bumps in other places .... arms, stomach, back, legs. Some of the bumps are very small, others are large, cyst-like and look like they may be fluid-filled.

It got so bad that I ended up going to the ER, and they said I have allergic dermatitis. I'm taking a prescription allergy medicine and steroid, but it only helps me so much. When I take the steroid at night, there is improvement when I wake up, but I've noticed 10-20 minutes after eating, it'll start getting really itchy again and more bumps will pop up. This has led me to believe it's my food allergies bothering me once again, so I'm going try eating casein and gluten-free to see if that will help me any. According to the sheet they gave me about Allergic Dermatitis, it's caused by coming in contact with something external you're reacting to, so that wouldn't make sense that it flares up after eating.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blondebombshell Collaborator

Are there similarities in appearance with Allergic Dermatitis and DH? I was diagnosed with AD this week, but I'm curious if it could be DH.

Background info: I don't have celiac, but I have allergies/intolerances to casein and wheat. I've gotten hives on-and-off for about four years now. I did extensive allergy testing, and those two things turned out to be the cause. I didn't have to completely eliminate them from my diet at that point. If I went without for a while, I could eat small amounts for quite some time before the hives would start up again. This week, I broke out with a really bad rash on my thigh. The whole area is red, inflamed and itchy, with bumps all over. Then, I started getting bumps in other places .... arms, stomach, back, legs. Some of the bumps are very small, others are large, cyst-like and look like they may be fluid-filled.

It got so bad that I ended up going to the ER, and they said I have allergic dermatitis. I'm taking a prescription allergy medicine and steroid, but it only helps me so much. When I take the steroid at night, there is improvement when I wake up, but I've noticed 10-20 minutes after eating, it'll start getting really itchy again and more bumps will pop up. This has led me to believe it's my food allergies bothering me once again, so I'm going try eating casein and gluten-free to see if that will help me any. According to the sheet they gave me about Allergic Dermatitis, it's caused by coming in contact with something external you're reacting to, so that wouldn't make sense that it flares up after eating.

i think i have this, too!

i look forward to hearing others' responses. how did you become diagnosed with this? my hives are so bad at the moment, i'm literally itching out of my skin.

BrownEyedGirl Apprentice

i think i have this, too!

i look forward to hearing others' responses. how did you become diagnosed with this? my hives are so bad at the moment, i'm literally itching out of my skin.

I went to the ER, and they said it was a classic case of allergic dermatitis. I ended up going back last night. After four days, the steroids didn't work at all and it was getting worse, some of the rashes were also turning purple. The doctor said I was taking very low dose steroids for the severity of my symptoms, and gave me a prescription for the same drug, but a much higher dose. I told him about my previous food allergy problems and how it flares up after I eat. He said that since I've had problems with breaking out in hives from wheat and milk that I need to go on a gluten-free/CF diet, keep a food diary of everything I eat and my reactions, continue with the steroids, and if it doesn't clear up in the next week, he gave me a referral to a dermatologist.

weluvgators Explorer

Hey, Becky,

We have been troubleshooting hand eczema/dermatitis in our gluten sensitive child. Her hands get itchy, swollen and red. It is terrible. Her symptoms are specific to school and gluten. We were recently at the dermatologist trying to get help. We have done topical steroids off and on trying to manage it. In a strictly gluten free environment and on our gluten/dairy free diet, she does not have the symptoms. However, *very* low doses of gluten will keep her hands aggravated, especially when she is getting substantial environmental exposures at school. It has been so frustrating trying to keep her hands well. The "allergy" side of wheat/gluten can be so very, very hard to manage.

I hope that your rash clears up quickly and nicely. The itch you describe is so characteristic of my daughter's reaction, and I was hopeful that getting a skin biopsy may help us get a "celiac" diagnosis. The dermatologist responded when I asked that the rash would most likely test negative, as the DH characteristic "blistering" was not present. She also said that it is very, very difficult to get a positive biopsy and diagnosis for these wheat/gluten conditions. For my daughter, her allergic reactions will most likely keep her from consuming enough gluten to do the required "diagnostic" damage needed for a celiac diagnosis. Additionally, she is much more reactive to environmental exposures than our more "classical" celiac child.

Good luck with the diet changes - it has made a world of difference for us and our skin and allergy issues!

blondebombshell Collaborator

i just got back from the dermatologist who told me it was chronic hives. WTH! i explained my digestive issues, allergy issues, everything. i feel like there is no hope. i didn't have any gluten yesterday and had a horrid flare-up this morning. by the time i got to the doc the welts were little, red bumps and he said that's not what DH looks like. I dunno.

BrownEyedGirl Apprentice

Update:

I ended up going to the ER last night. After four days of allergy meds and steroids, it had gotten a lot worse and the itching was pretty unbearable. Some of the rashes had become purplish. The doctor I saw said that the steroids I had been given were very low doses, and he was shocked at that given the severity. He gave me a prescription for the same drug, but a much higher dose. He asked me to go into detail about my symptoms and when they occur, my previous food allergy problems. He said it's clear it's allergic dermatitis brought on by food allergies, and since I've had a history of problems with wheat and milk, that I should start there. I'm started on a gluten-free/CF diet today ... before i had a flare-up everytime I ate, but I didn't have any today. I didn't need my anti-itching medicine until about 7pm, which is really good. I've been taking it 4+ times a day. And even when the itching returned, it was more like an irritation itch, than the swelling I would encounter after eating. The rash has gone down some and the blisters aren't as red. The rashes on my thighs kind of itch right now though. That's where the purple is though, so hopefully it just means it's healing.

Anyway, I'm supposed to continue with the gluten-free/CF diet (need to clean out the pantry and go grocery shopping!), do a 5-day steroid pack, keep a food diary and see a dermatologist.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

    5. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,154
    • Most Online (within 30 mins)
      7,748

    Kathy N
    Newest Member
    Kathy N
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
    • trents
      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test.  In addition to IGA tests there are IGG tests which are particularly useful in the case of IGA deficiency.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.