Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Other Way To Put It But That I Stink!


jackay

Recommended Posts

jackay Enthusiast

I know I've seen this addressed several times but am addressing it again since I'm getting very frustrated.. I want input from others as to what has worked for them. I feel I am at the point where I shouldn't ever go out in public. I don't know when I'm going to be hit with a stink bomb! This happens every day with whatever I eat.

I have read about using activiated charcoal but that it can interfere with absorption of nutrients and I don't want that. I am taking probiotics, which helped years ago but don't seem to help anymore. My doctor suggested I keep trying different strains. Right now I am taking Align brand. They're expensive, but have a 60 day guarantee so either they help or I will get my money back.

I drink at least 9-10 cups of water a day. I've tried digestive enzymes and haven't found a brand that works for me. I went on a candida and elimination diet. I have the candida somewhat under control and am still working on getting rid of it. I've been taking Candex for five weeks and have just added oregano oil to further help it along.

Since I started Candex, plus the candida and elimination diet, I have started sleeping and feeling so much better. The only thing that hasn't improved is the stinky gas. I have a bit of stomach discomfort at times but nothing major.

I'm looking for any and all gluten free things that have worked for others. I know I'm not getting glutened because I don't have diarrhea, which is always a giveaway.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



meatslayer Newbie

I stunk before going gluten free.... my gas stopped almost the day I went gluten free? Did you stink before going gluten free?

Korwyn Explorer

This problem for me turned out to be two things: dairy (casein) and pretty much all refined carbs. If I eat more than about 50 grams of refined carbs over a two day period I get that same thing. If I eat 40 or so in a single day I get that as well. By refined carbs I mean: sugar (sucrose, dextrose, maltose), white rice (brown rice is somewhat better), and any kind of refined flours (amaranth, arrowroot, potato, tapioca, rice, and soy flours especially - this was when I was still eating soy).

Whole grain milled Sorghum, millet, buckwheat I do better with. Coconut flour, almond flour, and flax I don't really have much of a problem with, probably due to the relatively low carb content.

Dairy is really bad.

jackay Enthusiast

This problem for me turned out to be two things: dairy (casein) and pretty much all refined carbs. If I eat more than about 50 grams of refined carbs over a two day period I get that same thing.

I have been dairy free for quite some time. Tried plain yogurt one time and plain kefir another and it didn't get any worse (or better). I've been off all sugars and yeast for months because of the candida. Also, I've been off all grains for over six weeks.

What I currently am eating is meat (except for beef), avacado, olive oil, tahini, almonds, sunflower seeds, turnips, cauliflower, broccoli, onion, garlic, asparagus, lettuce, brussel sprouts, spinach and green olives. I realize my diet is quite high in fats and proteins. I also realize most of the veggies I eat are gas producing.

I plan on adding non-gluten grains to my diet pretty soon. I miss them:(

I am just in need a medication or supplement that will cut the gas. Supposably Gas-X is gluten free but I've read on this forum that some people feel they get glutened from it.

jackay Enthusiast

I stunk before going gluten free.... my gas stopped almost the day I went gluten free? Did you stink before going gluten free?

I didn't stink before I went gluten free as long as I took a good probiotic. Now that I am gluten free, I stink. Go figure!

Wolicki Enthusiast

How is your stomach acid? I had the same problem: never stunk before gluten-free, only after :blink: Turns out I had low stomach acid and low enzymes. Now I take Betaine HCL before every meal and enzymes after. Any low acid symptoms?

jackay Enthusiast

How is your stomach acid? I had the same problem: never stunk before gluten-free, only after :blink: Turns out I had low stomach acid and low enzymes. Now I take Betaine HCL before every meal and enzymes after. Any low acid symptoms?

What are low stomach acid symptoms? That could possibly be my problem.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Wolicki Enthusiast

Open Original Shared Link

Easy test. Mix some baking soda with some water. Drink it. If you're not burping like crazy within 5 minutes, this is your problem. Good news it's an easy fix :D

jackay Enthusiast

Open Original Shared Link

Easy test. Mix some baking soda with some water. Drink it. If you're not burping like crazy within 5 minutes, this is your problem. Good news it's an easy fix :D

Yes, I got the burps. I see a lot of the Betaine HCL comes with pepsin. Would you suggest I just order the Betaine HCL or the combination?

Wolicki Enthusiast

Jackie,

For the Heidelberg test, if the baking soda makes you burp, you probably do not have low acid. But I am not sure it is 100% accurate,.

Do you have the symptoms in the link? If so, then get Betaine HCL capsules. Not tablets.

Start with one with meals. Next meal take two, and so on, up to eight! If you feel burning with 2 or 3 or 4, etc. go back down to the next lower number. If your meal does not have much protein, don't take the HCL. Take it just before you start eating, or with your first bite. After your last bite, take your enzymes. I like the Pancreatin better than the plant enzymes- 2 after each meal.

HTH

Janie

jackay Enthusiast

Open Original Shared Link

Easy test. Mix some baking soda with some water. Drink it. If you're not burping like crazy within 5 minutes, this is your problem. Good news it's an easy fix :D

I took the quiz and came out at 50%, so low stomach acid could be possibility. As far as the baking soda test with water, I used a lot of baking soda. Didn't know how much to use. Guess I can give the hydrochloric acid a try and see if it helps.

I normally eat some meat with my breakfast. This morning I just had half an avacado and some almonds to see if I was less gassy. Still had some gas but was able to contain it during my exercise class, which was a miracle. It also wasn't as stinky. It appears that I am not digesting meat correctly. I'll give the digestive enzymes a try again.

HeatherY Newbie

Hi,

As I read down this exchange, I wanted to contribute that drinking 1 to 2 glasses of kefir has eliminated my gassy problem. Then I got to this last message, that mentions meat, so I'll add that not all meat is alike! I don't tolerate beef well, but buffalo works as a good substitute. I have a friend who doesn't tolerate chicken at all, so uses turkey and other game birds... Basically I would suggest going with local, high quality meats and changing them around until you narrow down which ones are giving you the gas. When I'm drinking kefir and monitoring my types of meats - voila, no gas! *insert happy face here* :D

  • 2 weeks later...
Apache Apprentice

I know this is an old post, but I wanted to add my two cents. I've noticed whenever my liver gets over worked it makes my urine smell exactly like the food that I've eaten. Maybe a liver cleanse would help.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,390
    • Most Online (within 30 mins)
      7,748

    Ozz lock
    Newest Member
    Ozz lock
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
    • englishbunny
      it did include Total Immunoglobin A which was 135, and said to be in normal range. when i did the blood test in January I would say I was on a "light' gluten diet, but def not gluten free.  I didn't have any clue about the celiac thing then.  Since then I have been eating a tonne of gluten for the purpose of the endoscopy....so I'm debating just getting my blood test redone right away to see if it has changed so I'm not waiting another month...
    • trents
      Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
    • englishbunny
      I'm upset & confused and really need help finding a new gastro who specializes in celiac in California.  Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies from small intestine (from an area that appeared red), and both are normal. Problem is his Physician's Assistant can't give me an answer whether I have celiac or not, or what possible reason I might have for having positive antibodies if I don't have it. She wants me to retest bloods in a month and says in the meantime to either "eat gluten or not, it's up to you, but your bloodwork won't be accurate if you don't" I asked if it could be I have early stage celiac so the damage is patchy and missed by only having two samples taken, and she said doctor would've seen damaged areas when performing endoscopy (?) and that it's a good sign if my whole intestine isn't damaged all over, so even if there is spotty damage I am fine.  This doesn't exactly seem satisfactory, and seems to be contrary to so much of the reading and research I have done. I haven't seen the doctor except at my endoscopy, and he was pretty arrogant and didn't take much time to talk. I can't see him or even talk to him for another month. I'm really confused about what I should do. I don't want to just "wait and see" if I have celiac and do real damage in the meantime. Because I know celiac is more that just 'not eating bread' and if I am going to make such a huge lifestyle adjustment I need an actual diagnosis. So in summary I want to find another doctor in CA, preferably Los Angeles but I don't care at this stage if they can do telehealth! I just need some real answers from someone who doesn't talk in riddles. So recommendations would be highly welcomed. I have Blue Shield CA insurance, loads of gastros in LA don’t take insurance at all 😣
    • trents
      Okay, Lori, we can agree on the term "gluten-like". My concern here is that you and other celiacs who do experience celiac reactions to other grains besides wheat, barley and rye are trying to make this normative for the whole celiac community when it isn't. And using the term "gluten" to refer to these other grain proteins is going to be confusing to new celiacs trying to figure out what grains they actually do need to avoid and which they don't. Your experience is not normative so please don't proselytize as if it were.
×
×
  • Create New...