Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Diagnosed


parttimeangel32

Recommended Posts

parttimeangel32 Newbie

Hello, my name is Laurie, I was just diagnosed with celiac disease yesterday. I have been doing some research online and it is all very overwhelming to say the least. :( ....I am such a picky eater to begin with, that I dont even know where to start on becoming gluten-free. Im not comfortable ordering food online, and im not sure where else to get gluten-free foods. I have only found one health Food store within an hour from my home, so Im planning a trip there later. I guess what im wondering is, are there any normal foods that I CAN eat or will I have to buy everything from health food stores? also, im not much on cooking elaborate meals, so I will have to plan ahead, where could I find simple recipes? One other thing, should I have my childern tested? Im very concerned that my son may have the same thing, but I also dont want to put him through all the testing I went through if I dont have to.

any advice would be appreciated.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest gfinnebraska

Until you get comfortable ordering and buying gluten-free foods, you can always eat natural, unprocessed foods from the grocery store. What I tell people: eat things that are in the same form that God made them in... grilled meat, fruit, vegetables, cheese, nuts, rice, potatoes, beans, juice, etc. There are many gluten-free lists on this site, and also recommendations for cookbooks in the book section.

The best thing you can do is spend time reading different threads on here... pretty soon it will all make sense and you will be a pro at this whole gluten-free lifestyle!!

Don't be afraid to ask questions!! :)

printmaker81 Rookie

Laurie,

I was just daignosed a few days ago, too. It is a really crazy new world to figure out. I was a vegetarian before all of this, and my doctor has told me to remain off meats until my digestive track heals up. I understand being in a tight spot as far as food choices go. My doctor also told me to stay away from soy and cow dairy. too. I sort of feel like there's nothing left...at least nothing I'd want to eat. However, before I let my feelings get the best of me. There are foods out there that "regular" people eat that are gluten free. You might try looking up recipes for an italian dish called risotto. There are tons of ways this dish can be made and it's made with rice, so almost all of them are safe. It's not too hard either, though it usually takes 30-45 minutes. Also, if you get wheat-free soy sauce, there are many options with stirfries, etc.

I've found that for breakfast or a quick snack, smoothies work well. You have to make it yourself though. Places like SmoothieKing often have additives with wheat by products. If you have a blender, through in a couple bananas, some peanut butter, ice, and a little milk (I use vanilla rice milk in mine), it's healthy and pretty easy on your stomach. I have horrible nausea, and fresh smoothies are often the only thing I can tolerate.

You can't live on smoothies alone, so it's good to remember fresh veggies, fruits and meat are okay. As I am in your shoes, too being newly diagnosed, I don't have a lot of advice to offer, but try going to your local library or bookstore, there seem to be a ton of books out there. Just try to find one that is fairly recent. I just finished the Gluten-Free Bible by Jax Lowell, and it was pretty helpful. There's several recipes in it as well as tips on eating "normal" food.

Hope that helps, at least a little,

Heather

lovegrov Collaborator

As for recipes, the Internet is just loaded with them. Do a serach for gluten=free recipes or even just "simple recipes," 30-minuye meals," "crockpot meals," or something similar.

richard

tarnalberry Community Regular
I guess what im wondering is, are there any normal foods that I CAN eat or will I have to buy everything from health food stores? also, im not much on cooking elaborate meals, so I will have to plan ahead, where could I find simple recipes?

All of the whole, natural, unprocessed foods in regular grocery stores are safe. It's being reliant on prepackaged, processed stuff that makes the diet change tricky. But don't worry, cooking doesn't have to be hard!

The VAST majority of my cooking isn't done from "recipes" - they're convenient ways of passing cooking on to someone who can't be in your kitchen. And they primarily use whole, naturaly, unproccessed ingredients. Like any other skill, it's all in the practice. As richard suggested, do some google searches, and also spend a bit of time down at a bookstore browsing through their "30-minute meal" cookbooks.

The most important thing to do when you don't like cooking, don't have a lot of time, or don't have a lot of experience is just to keep it simple - and familiar. There are lots of dishes that are nothing more than "chop this stuff up, throw it all together, and simmer or bake". And you can pretty much make them up off the top of your head - you don't have to stick to any rules.

(I try to encourage people to cook (from scratch) because it's healthy, easy to control contamination, and gives you a greater variety of things to cook.)

Let's take a couple examples:

Tomato sauce - you can buy it in a jar, but it's not the same as browning some ground meat (I prefer turkey, myself), adding a big can of crushed tomatoes, a can of tomato paste (I like it thick!), and italian spices. There's your basic-basic. Add some crushed garlic, and chopped onion, and you've got something with more kick. And if you go with a gluten-free jar one, by modifying it, you can get a wider range of flavors. Now, it may seem like a one meal wonder, but it's not.

- You can serve it over gluten-free pasta, but you can also serve it over cooked rice or spaghetti squash.

- You can add a bunch of chopped vegetables while it cooks (like carrots, zucchini, cauliflower), and have a complete meal right there.

- You can use whole chicken legs instead of ground meat and simmer until done to make something like chicken cacciatore.

- You can omit the italian spices and go with chili powder instead, add a can of beans, and have chili.

- You can cook rice in with it to make it really thick and stuff bell peppers with it before roasting in the oven.

Stir Fries or Satuees - possibly one of the simplest and most versatile dishes. Start with a small assortment of vegetables, and a meat (or meat substitute), and a few spices, and you can make a large assortment of dishes.

- For an asian flavor, you can add canola oil, chili flakes and ginger and/or garlic (along with gluten-free soy sauce, if you like) to a few colorful veggies and a meat. Serve by itself, over rice, etc. (My preferred vegetables here are carrots, onions, bell pepper, baby broccoli, and sugar peas.)

- For an italian flavor, you can use italian spices - particularly sage and rosemary - and olive oil to serve by itself, with gluten-free pasta, over beans, etc. (My preferred vegetables here are summer squash and bell peppers.)

- For an indian flavor, I just stick with curry powder and canola oil. (Usually I do cauliflower and potatoes.)

- For a mexican flavor, I'll use a lot of the same vegetables mentioned before, add some black beans, and spices like sage, cumin, cayanne, and chili powder.

It's really a lot of variations on the same theme, but you can get a lot of variety. (Most of those are things I'd cook in one pot. I love cooking, but I HATE cleaning. ;-) )

Wade in slowly. Use what you know. And be patient. It's a learning curve, but you'll get there.

rmmadden Contributor

Laurie,

You might want to look into going to your local library and checking out some gluten-free cookbooks (By Bette Hagman). This way you start to become comfortable with gluten-free foods and don't spend money on something you might not enjoy later. And, if you really find some recipe's you like you can copy them down or buy the book later.

Also, a lot of grocery stores are starting organic sections which contain gluten-free items as well. At my local grocery store I can get gluten-free cereal, gluten-free pasta, gluten-free cookies, gluten-free soups, rice cakes, tortilla chips, almond milk, soy milk, etc., etc.

It does seem very overwhelming at the beginning but over time you will become more comfortable with shopping and eating gluten-free.

Best of Luck!

Cleveland Bob B)

Guest nini

you've gotten some good advice, keep in mind that the simpler you keep it, the better for now. Give your injured digestive tract time to heal before you start experimenting with spicy recipes... Food in it's most basic form is not only safest, but easiest to start with. Plain meats, chicken, beef, pork, turkey, fish... broiled, baked stir fried, roasted, grilled, Fresh fruits and vegetables, and so many veggies are delicious just simply steamed or raw. Salt and Pepper i s a safe place to start with seasonings, don't go crazy trying spices til you are comfortable with which brands are gluten free, stick with olive oil or butter, and then there is rice and potatoes. Oh so many easy things you can do with rice and potatoes (for now get whole potatoes don't try instant or packaged until you know which brands are safe)

The key at first is to stay away from processed foods until you get the hang of it. Once you get the hang of it there are many companies that have great "normal" products that just happen to be gluten free.

There are also many snack foods that are gluten free too, so you don't have to give up snacks! Frito Lay has a list of their gluten free products on their website and there are many kinds of candy and chocolate that are safe as well. It will get easier, I promise!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommida Enthusiast

The first thing to do is clean out the foods / condiments that contain gluten, or at least clearly mark them. Don't forget the cross contaminated butter, peanut butter, jelly, and so on. If you're sharing the kitchen with others learn and teach the "gob drop". If you're not sure about a product put in holding area, until you are sure it is safe.

The advice you have got all ready is great.

You are going to notice there is some debate over some things being safe. I.e. the distilled products, and so many others. Pay attention to that list, and make a food diary for yourself. Let your body make the decision. It doesn't have to have gluten in it to make you have a reaction.

Laura

Merika Contributor

If you are not much for cooking, but find yourself in need of doing so, as I think most folks with celiac do, a site that is a MUST SEE is www.savingdinner.com . I am a happy celiac subscriber to the vegetarian menu option. You get 6 dinners per week, and from that most can be converted easily to gluten-free. I have numerous dietary restrictions at the moment, and usually make about 3 of the meals and that plus one or two things we make every week get us through fine (me, dh, ds) with leftovers too.

For those who eat meat, there is also a low-carb menu, which would be even easier to convert to gluten-free, I would think.

The meals are simple, I believe there's a sample menu to try for free, and it really is nice having someone just tell you what's for dinner :) Eating gluten-free can be frustrating and depressing, especially in the beginning, and I found that the less I had to think about food, the more likely I was to eat it.

Hope that helps,

Merika

PS. I wouldn't trade eating gluten-free for anything!!

parttimeangel32 Newbie

Thank you all for your posts, you all have great advice! I realize that it will take time to get the hang of being gluten-free , I just hope I have the stregth to to make it through this. Im going to need all the help I can get, so you are sure to see more questions from me as time passes.

thanks again

laurie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Bebygirl01's topic in Related Issues & Disorders
      1

      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

    2. - Bebygirl01 posted a topic in Related Issues & Disorders
      1

      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

    3. - Scott Adams replied to Dawn Meyers's topic in Related Issues & Disorders
      21

      Vaccines

    4. - knitty kitty replied to Dawn Meyers's topic in Related Issues & Disorders
      21

      Vaccines

    5. - knitty kitty replied to Tyoung's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      8

      Increasing symptoms after going gluten free


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,008
    • Most Online (within 30 mins)
      7,748

    Kateobrien1313
    Newest Member
    Kateobrien1313
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @Bebygirl01, if you want to play word games with the term, "gluten", we can do that. The proteins you list in these other cereal grains besides wheat, barley and rye are somewhat different from that found in wheat, barley and rye and, technically speaking, are not "gluten". Technically speaking, "gluten" should only be applied to a particular protein found in wheat, barley and rye. These other cereal grain proteins have their own names (avenin, secalinin, zein, etc). Unfortunately, confusion has been created in popular and pseudo scientific literature by the informal use of the term "gluten" when talking about the proteins found in these other cereal grains such that you sometimes read about "corn gluten", "oat gluten", "rice gluten", etc. But these are actually misnomers, with "gluten" having been added on as an informal appendage to the actual protein names. Having said that, the protein structures of these other cereal grains is close enough to gluten that, for some people, they can cause a celiac type reaction. But this is not true for most celiacs and those who fall into the NCGS category. Apparently, it is true for you. This whole idea that cereal grains are bad for all of us has been popularized by books such as Dangerous Grains for years but it is not a widely accepted idea in the scientific community.
    • Bebygirl01
      On my Celiac journey and discovered I was also reacting to other types of gluten. The FDA in it's finite wisdom only classifies 'wheat, barley and rye' as the gluten's to be considered when a company tests for and stamps their products as gluten free. I am curious as to how many of you are aware of the other types of glutens? And another question to those on a 'traditional' gluten free diet , who are also still sick and struggling, are you also reacting to these other types of gluten as listed below? NOTE:  The new movement if you want to call it that, is now called 'grain free' and that is the true definition of gluten free. I no longer suffer with ataxia, confusion, anxiety, depression, OCD, Insomnia, ADD, acid reflux, dermatitis herpetiformis, migraines, headaches, and weight issues all due to going 'grain free'. I hope to reach as many of you out there that are still struggling and unaware of what might be setting you off such as my most recent glutening was from a vegan supplement that contained 'magnesium sterate' and 'glucose syrup' both of which are from Zien (zane) gluten at 55%. I was covered in sores that were bleeding, I was seeing squigly lines when I was trying to drive, had acid reflux, insomnia, and nightmares all from the gluten in Corn. Here are the other types of glutens that Celiacs and Gluten Intolerant people also react to: Wheat -Alpha Gliadin Gluten- 69% Rye - Secalinin gluten-30-50% Oats-Avenin gluten -16% Barley-Hordein Gluten -46-52% Millet-Panicin Gluten-40% Corn-Zien Gluten -55% Rice-Orzenin Gluten-5% Sorghum-Kafirin gluten-52% and Teff-Penniseiten Gluten 11%.
    • Scott Adams
      I just want to mention again that IF thimerosal is used in a flu vaccine the amount of ethylmercury in a single vaccine dose would be extremely small, typically around 25 micrograms (µg) or less. For context, this is much lower than the levels of methylmercury found in some seafood. Ethylmercury is metabolized and excreted from the body much faster than methylmercury. Its half-life in the blood is about 7 days, compared to methylmercury, which can persist for months. The dose of ethylmercury in vaccines is far below the threshold known to cause toxicity so would not require chelation.
    • knitty kitty
      If you have poor reactions to vaccines, preservatives, sugar alcohols and metals, you may be deficient in Thiamine Vitamin B1.  Thiamine is needed in the immune response and production of antibodies.  Thiamine can be depleted by vaccines if you are already low to begin with due to the Malabsorption of Celiac Disease.  Thiamine can be destroyed by sulfide preservatives in vaccines, which can result in the body's poor response to vaccines.  Thiamine also chelates metals which allows those metals to be removed in the feces.  Chelation removes thiamine from the body, resulting in a state of thiamine deficiency.  Sugar alcohols need to be processed through the liver using thiamine.  Again, if you're low in thiamine as many Celiac are because of the Malabsorption of celiac disease, vaccines can be a tipping point, resulting in a thiamine deficient state. High doses of Thiamine required to correct thiamine deficiency states are safe and nontoxic.  Thiamine has no toxicity level.  Thiamine and the other B vitamins need to be taken together because they interact together to sustain health.   References: https://pubmed.ncbi.nlm.nih.gov/25542071/ https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/
    • knitty kitty
      @Pasballard, Keep in mind those gluten free processed snacks are not required to have vitamins and minerals added to them to replace vitamins lost in processing like gluten containing products.   We need the eight essential B vitamins to turn those carbs into energy to fuel our bodies and make enzymes that sustain life.  Sudden weight gain (or weight loss) can be symptomatic of Thiamine Vitamin B1 deficiency.  Thiamine is the B vitamin with the shortest storage time, and so  thiamine deficiency shows up first with vague symptoms like weight gain or loss, fatigue, not sleeping well, achy or cramping muscles, digestive issues and headaches.   Taking vitamin and mineral supplements helps boost your body's ability to absorb these nutrients which keeps our bodies healthy.  B Complex vitamins and Vitamin D (which regulates inflammation) are usually low in people with Celiac disease.  Talk to your doctor and nutritionist about supplementing.
×
×
  • Create New...