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Why Am I Gaining Weight?


RideAllWays

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RideAllWays Enthusiast

When I was first diagnosed with Celiac disease a year ago I weighed 95 pounds, which sounds low but I am only 5' tall. I was a bit underweight then but not noticeable skinny really..then I gained back to my normal 100-105 range where I feel the most comfortable. I find that I fluctuate a lot between 105-115 and when the scale hits over 115 I get really depressed...and I know I'm not "fat" but I do have a tummy and I still bloat all the time..I don't feel comfortable wearing fitted tops because I'm not used to this body...My breasts increased a cup size in the last two months, and while my pants still fit I do have more of a tummy than I ever have...

I eat pretty well, usually a bowl of cereal or some fruit in the morning, some nuts and fruit and veggies throughout the day (I don't really eat a real lunch, I just graze every few hours) and a stir-fry or something like that for dinner. Sometimes I'll have a Snickers bar for a treat. I do an abdominal workout every night but it seems to have stopped working...I take the stairs instead of the elevator, play soccer with friends, work with horses (lifting bales of hay, carrying heavy buckets, etc as well as training the horses) and I'm still gaining. My boyfriend (who I live with) says I'm crazy but I'm not even comfortable with him seeing me anymore..

I know that 115 isn't a huge amount to weigh but I'm just not used to it, please don't comment back saying that I'm being crazy or it's not a big deal, this is not what I am used to weighing or feeling/looking like and I'd like to get back to how I was.

Any ideas on how to stop this cycle?


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Lynayah Enthusiast

In addition to the answers you'll get here, you might also want to read this thread:

You're not crazy or making too big of a deal out of how you feel. You're right to care about feeling as comfortable as you can.

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    • trents
      Yes, I'd like to know also if a "total IGA" test was ever ordered. It checks for IGA deficiency. If you are IGA deficient, it will likely render the individual celiac IGA antibody tests invalid. Total IGA goes by other names as well:  Immunoglobulin A (IgA) Test Serum IgA Test IgA Serum Levels Test IgA Blood Test IgA Quantitative Test IgA Antibody Test IgA Immunodeficiency Test People who are IGA deficient should have IGG tests run as well. Check this out:    I am also wondering if your on again/off again gluten free experimentation has sabotaged your testing. For celiac disease testing to be valid, one must be eating generous amounts of gluten for weeks/months leading up to the test.
    • Scott Adams
      I’m so sorry you’re going through this—it sounds like you’ve been on a really challenging journey with your health. Your symptoms (stomach pains, bloating, low iron, joint pain, brain fog, etc.) do sound like they could be related to gluten sensitivity or another condition like non-celiac gluten sensitivity (NCGS). It’s interesting that your bloodwork hasn’t shown celiac markers, but the lymphocytosis in your duodenum could still point to some kind of immune response or irritation, even if it’s not classic celiac disease. The fact that your symptoms improved when you went gluten-free but returned when you reintroduced gluten (especially with the donut incident) is a pretty strong clue that gluten might be a trigger for you. It’s also worth noting that symptoms can be inconsistent, especially if your body is still healing or if there are other factors at play, like stress, cross-contamination, or other food intolerances. Do you have more info about your blood test results? Did they do a total IGA test as well? 
    • KDeL
      For years, I have dealt with various gluten related symptoms like stomach pains, bloating, IBS-C "ish" digestive issues, low iron, low Vit D, joint pains, brain fog, and more. I finally got a double scope and stomach looks clear, but I have some lymphocytosis of the duodenum. I am wondering if this sounds familiar to anyone, where I have not shown celiac red flags in bloodwork IGA tests. WIll be following up soon with GI Dr, but so far, my symptoms are intermittent. I go back and forth with gluten-free diet (especially this past year.... did two tests where the stomach pains I had went away without gluten in diet. HOWEVER, I added it back a third time and I didn't get the pains)   Anyway, I am so confused and scared to eat anything now because I recently had a few bites of a yeasty donut and I immediately got so sick. Any thoughts??
    • Peggy M
      Kroeger has quite a few Gluten free items.  Right now they are redoing my Kroeger store and are adding everything into the regular sections.  Since this was done some new ones have been added.  Publix and Ingles also have great selections. I actually shop Walmart and Food City to since prices on some items vary from store to store.
    • Scott Adams
      Sorry but I don't have specific recommendations for doctors, however, starting out with good multivitamins/minerals would make sense. You may want to get your doctor to screen you for where you different levels are now to help identify any that are low, but since you're newly diagnosed within the past year, supplementation is usually essential for most celiacs.
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