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Getting Tested, Am I Doing This Right?

MrCoffee

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MrCoffee Newbie
MrCoffee
Posted

I am having an endoscopy w/biopsy done on the 20th of may to test for celiac. However, I have been gluten-free since mid/late december, or maybe before... I can't remember. I mentioned this to the GI doctor, and he said that this wouldn't be an issue. I've been told that for a proper diagnosis of celiac disease, you must not be on a gluten free diet for a certain period of time. So, what gives here? Is my GI doctor a nut or have things changed? He seemed pretty knowledgeable to me about other things, and he claims to have quite a few celiac patients.

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ravenwoodglass Mentor
ravenwoodglass
Posted

He doesn't know what he is doing. Hopefully you are back on gluten and have been for a while. If not if you want any chance of an accurate diagnosis you need to be back on the full gluten diet for 3 months. Even then there is a chance of a false negative. How did you feel gluten free?

Korwyn Explorer
Korwyn
Posted

I'm sorry, but raven is right. For a endoscopic biopsy for celiac disease to be effective you have to be on a gluten containing diet. And if you have been off gluten for a while it needs to be an extensive, intensive diet. Your GI is flat out wrong. You need to change doctors.

MrCoffee Newbie
MrCoffee
Posted
  • Author

I'll have to call up the doctor's office and question them about it again. I'll post the response. Thanks for the responses.

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  • Posts

    • trents
      Does High DGP IGA Typically Mean Celiac?

      By trents · Posted

      Gotcha!
    • Skg414228
      Does High DGP IGA Typically Mean Celiac?

      By Skg414228 · Posted

      Correct. I’m doing both in the same go though. Thanks for clarifying before I confused someone. I’m doing a colonoscopy for something else and then they added the endoscopy after the test. 
    • trents
      Does High DGP IGA Typically Mean Celiac?

      By trents · Posted

      It is a biopsy but it's not a colonoscopy, it's an endoscopy.
    • Skg414228
      Does High DGP IGA Typically Mean Celiac?

      By Skg414228 · Posted

      Well I’m going on the gluten farewell tour so they are about to find out lol. I keep saying biopsy but yeah it’s a scope and stuff. I’m a dummy but luckily my doctor is not. 
    • trents
      Does High DGP IGA Typically Mean Celiac?

      By trents · Posted

      The biopsy for celiac disease is done of the small bowel lining and in conjunction with an "upper GI" scoping called an endoscopy. A colonoscopy scopes the lower end of the intestines and can't reach up high enough to get to the small bowel. The endoscopy goes through the mouth, through the stomach and into the duodenum, which is at the upper end of the intestinal track. So, while they are scoping the duodenum, they take biopsies of the mucosal lining of that area to send off for microscopic analysis by a lab. If the damage to the mucosa is substantial, the doc doing the scoping can often see it during the scoping.
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