Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Some Questions


precious831

Recommended Posts

precious831 Contributor

I don't know if this is the right place for this question, I've had the blood test and the endoscopy and both were negative but I stayed gluten-free because when I eat it, I am so sick. I have all the GI symptoms and also rashes that are very itchy and some look like blisters. I also get migraines and brain fog.

So anyway I remain gluten-free and also dairy-free. But what I am worried about is the fact I have intermittent blood in my stools. I am never constipated, never. So I don't know what's causing it and I was wondering if someone else is in the same boat and what other tests can I request the doctor to order. I don't think I have hemorrhoids, like I said not constipated ever and never ever have to strain(sorry TMI).

I notice when I get the blood sometimes they are streaks in the stools and sometimes just when I wipe and also it's not all the time that I notice it. It is also usually accompanied but some stomach ache.

Please advice, I'm getting worried. Thanks and sorry this was TMI, I don't know who to ask.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WheatChef Apprentice

Well it certainly sounds like you have a gluten intolerance, that however does not mean that it is the only thing going on in your body. You could additionally have problems in your lower intestine which would account for the bloody stools. An endoscopy only checks the small intestine and does not go into the large intestine, for that you would need a colonoscopy.

precious831 Contributor

Well it certainly sounds like you have a gluten intolerance, that however does not mean that it is the only thing going on in your body. You could additionally have problems in your lower intestine which would account for the bloody stools. An endoscopy only checks the small intestine and does not go into the large intestine, for that you would need a colonoscopy.

Oh sorry I forgot to mention, I also had colonoscopy, I had it at the same time as the EGD and the GI dr said it was negative. So I am stumped, confused and wondering why there's still blood.

Thanks

O.N. Rookie

order. I don't think I have hemorrhoids

Last year I was heaving pain/bloating and some blood on the toilet paper. I knew that the bleeding was not due to my "hard" stool. Also I was easily bruising; my legs were covered with bruises. When the colonoscopy was done I was told that I had a small hemorrhoid that was bleeding. They pronounced me "healthy".

My symptoms didn't go away as you can guess. After straggling for month trying to figure out what food was making a "healthy" person like me to feel sick, I started gluten-free diet and pain/bloating symptoms were improved almost overnight. I went to my physician to share with him my joy :) and ask for celiac tests. Also I mentioned about bruises and asked to check my PT time. As a result my celiac blood test came negative (I forgot to mention I was gluten-free for almost 2 months and my doctor told me that I DON'T need to eat gluten for the tests) but my prothrombin time was prolonged.

Make the story short - my hematologist confirmed 2 months later that I am vitamin K deficient. After taking 5 mg of K for 2 weeks my PT became normal. My bruises disappeared on the 3-d date of taking K; and also I don't have any blood in my stool (or on the paper).

RESUME: You have to go to GI ASAP. You may be vitamin K deficient. But you may also have other serious conditions such cancer!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,292
    • Most Online (within 30 mins)
      7,748

    Donato Battista
    Newest Member
    Donato Battista
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ems10
      Thanks for your reply! I’m really not too sure, the doctor just took a few tubes of blood & that’s all I know 🥹
    • Scott Adams
      Possibly, but there used to be a movement within the celiac disease community to just tell restaurants that you have a deadly wheat/gluten allergy to, hopefully anyway, ensure that your meal is actually gluten-free. I don't recommend this approach at all, and if I ran a restaurant where there was ANY risk of cross-contamination, I'm afraid that I would decline to server someone who made this claim. No restaurant owner wants anyone dying or going to the emergency room at their business.
    • Scott Adams
      You mention that you are waiting on your test results--did they do a celiac blood panel? If so, were you eating lots of gluten in the 6-8 weeks leading up to the test? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      According to their website they are gluten-free: https://www.somersby.com/en/faq/  
    • Scott Adams
      If you suspect celiac disease a blood panel for it would be the best option. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...