Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Is Soy Next?


bridgetm

Recommended Posts

bridgetm Enthusiast

I'm about 6 weeks in to the gluten-free diet and I finally recovered from last weekend's Target-brand acetaminophen mishap, but now I feel like I'm having a separate attack. Last night I started getting that cramping abdominal pain and a rib/back ache again and it's always worst right after I eat. Looking back at my food diary, I realize my intake of soy has increased dramatically with the discovery of gluten-free foods such as Bakery on Main trail mix bars, EnviroKidz cereal bars, Butterfingers, Kind fruit and nut bars and Boost protein shakes. And then, of course, there's the peanut butter made with an undeclared amount of soybean oil. So I'm thinking soy may be the next to go.

I can brainstorm, Google and make pro-con lists, but nothing can help me as much as the past experience I find on this board so I defer to the experts: Is cutting out soy (and soybean oil and soy lecithin and all the other hidden sources I had no idea existed) a logical conclusion?

Bridget


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skigirlchar Newbie

soy elimination was a HUGE benefit for me

yes, it's a LOT of work, but the physical symptomatic relief i felt made it worth it!

good luck!

nyctexangal Rookie

I'm a newbie as well...and my last symptoms have only started to get better after cutting out soy, legumes, and beans. Bummer- but hey- feeling amazing will be worth it. That's what I keep telling myself. =) I think we'll, hopefully, be able to add it back in a year or so from now...

mushroom Proficient

Soy came after gluten for me too, I think because so many gluten free processed foods contain soy.

seashele2 Newbie

Bridget,

After my celiac diagnosis 6 years ago, and my body was finally absorbing foods for the first time in years, I began reacting to foods I never had before. And with allergic reactions, not intolerance reactions. Now in addition to gluten, I am dairy, soy, MSG and beef-free.

At first I could tolerate small amounts of things like soy lecithan, but now - nothing. As far as peanut butter, so far I have found that Skippy Natural has only caused me a problem once or twice and I eat LOTS of peanut butter. I also buy a local brand of peanut butter with success. The problem with a lot of peanut butter is soy contamination before grinding, even without added spy oil.

A food diary is the way to track reactions and if you are seeing a pattern with soy and no other common ingredients, it's time to give it up and see if you improve.

Good luck!

Michelle

Western Washington State

bridgetm Enthusiast

Thank you everyone! It does sound difficult, but I'm kind of excited. Here's a problem though: everything I have in my pantry right now that doesn't list soy as an ingredient is processed in a factory alongside soy products... Should I worry about that right now? When I get home I can stay away from packaged foods and have plenty to eat but until I get home next week, I have to depend on some of these processed foods. Otherwise I'll be eating nothing but fruit, veggies and eggs from the cafeteria and rice, pasta and Lara bars from my room.

mushroom Proficient

Thank you everyone! It does sound difficult, but I'm kind of excited. Here's a problem though: everything I have in my pantry right now that doesn't list soy as an ingredient is processed in a factory alongside soy products... Should I worry about that right now? When I get home I can stay away from packaged foods and have plenty to eat but until I get home next week, I have to depend on some of these processed foods. Otherwise I'll be eating nothing but fruit, veggies and eggs from the cafeteria and rice, pasta and Lara bars from my room.

It would be a good start just to eliminate soy from the ingredients list; you can worry about the "processed on lines..." when you get home, I would think. Some are more sensitive than others to foods that are processed on shared lines - you will have to find out for yourself where you stand on this issue.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skigirlchar Newbie

Thank you everyone! It does sound difficult, but I'm kind of excited. Here's a problem though: everything I have in my pantry right now that doesn't list soy as an ingredient is processed in a factory alongside soy products... Should I worry about that right now? When I get home I can stay away from packaged foods and have plenty to eat but until I get home next week, I have to depend on some of these processed foods. Otherwise I'll be eating nothing but fruit, veggies and eggs from the cafeteria and rice, pasta and Lara bars from my room.

do to financial constraints i couldn't totally do a kitchen overhaul so i slowly eliminated my "bad" foods by either giving things away to friends who would go shopping w/ me and would buy me gluten-free/CF/SF products in trade, or eating much smaller quantities to fade the "bad foods" from my diet.

now, i am in the middle of moving and am trying to not buy anymore food and am trying "live on what's" left - so i feel your pain!

my job also has me in the car & other people's home a lot so that makes it hard too because the families are always offering to feed me!

you have 2 choices - "eat the foods that may make you feel miserable" for one last week or live on a very limited diet for a week.

both have positives and negatives. if you are in school and going to be taking finals, i would suggest the limited diet to keep your mind and body clear. if you are just "cleaning house" like i am and can deal w/ the side effects, then enjoy your "bad" foods for one more week.

good luck either way

char

bridgetm Enthusiast

Char-

I think I'll stick with the basic diet at least through tomorrow. Stomach pain/rumbling is never pleasant, but with a packed test schedule from 8 through 5 on Monday that could get even more ugly :blink: . After that, I will probably end up eating some of the things in my 'unsafe' cabinet... Might as well get my money's worth (I spent $5 on a box of Glutino chocolate cereal bars before deciding to cut soy; unless they taste disgusting I'll force them down :P ). I am hoping that recovery from whatever damage this next week will do will be faster with all the good, simple food I can look forward to at home.

Good luck with your move! I decided to live out of one small drawer this week so that I could get as much packed away as possible. I was hoping getting it done would help me avoid playing that packing-tetris game in my head when I should be studying... Obviously, I am still finding ways to procrastinate B)

Again, thank you to all for the advice! :D

bridgetm Enthusiast

UPDATE: It's only been a few days since I cut out soy and I feel SO MUCH BETTER! :D

I felt pretty good after going gluten-free, but this is beyond that. I had four final exams yesterday and I was able to focus well on each one and wasn't very stressed or tired. I have the day off today and I'm actually looking forward to taking the time to study for tomorrow's tests. I can't wait to be able to cut out all this processed food when I get home on Friday :P

skigirlchar Newbie

YEA!! i'm so glad you are feeling better!

lol i love how you put it - "playing that packing-tetris game in my head " because that is what i am doing right now!

between boxing things up, trying to purge, and trying to figure out what goes w/ me and what i need to sell or donate, that's stress enough!

Good luck on your last final!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,119
    • Most Online (within 30 mins)
      10,442

    coeliacmamma
    Newest Member
    coeliacmamma
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      Hello, and welcome to the forum. Getting use to gluten-free eating is a struggle, but it is worth it. Your daughter should begin to feel much better and the fatigue will fade but it can take some time. I am sure you will get lots of suggestions from forum members - we have a few from the UK. I am a bit pushed for time just now but will come back later. Russ
    • Ginarwebb
      thank you so much for this information .. if I'm reading the results correctly I believe the range was  <15.0 Antibody not detected > or = 15.0 Antibody detected
    • coeliacmamma
      My 16 year old has just been diagnosed with coeliac, she loves food and is now struggling with the diet. She has a variety of different co editions and thos one just tops the list, she is a musical theatre student at college and loves what she does but fatigue gets in way alot of the time, are there any good amd tasty meals I can k make that will help?  Thanks for reading.
    • BelleDeJour
      Thank you so much @suek54 How are you doing today? I spoke too soon yesterday. Something (I can only think gluten-free sweets or a can of soft drink) set me off yesterday. Had a bath, applied some cream, still itching so applied some steroid and was awake until 3am. It's so frustrating. Always 2 steps forward, 1 step back. I am at work now and going to play it very much on the very safe side with food for the next few days.  My derm appointment is less than a week away. I will update on here because I do feel it important to help others. 
    • Scott Adams
      I’m sorry you’re going through all of this. It sounds very stressful, especially when you feel that your symptoms are not being taken seriously. Until you are seen next week, it may help to keep the focus very practical: take clear photos of the skin sores, write down a timeline of symptoms, list all medicines, eye drops, supplements, implants/leak history, and any test results, and bring that to the dermatologist. If there is drainage, spreading redness, fever, worsening pain, eye involvement, or signs of infection, that needs prompt medical care. I would be cautious about assuming parasites or staph without testing, and also cautious with new supplements or putting vitamin C directly on sores, since irritated skin can get worse. A dermatologist can culture lesions, biopsy if needed, and refer to infectious disease if the findings point that way. On the celiac side, I understand your concern for your son, but being HLA-DQ2 positive does not by itself mean he has celiac disease; it means he has a genetic risk. If he is eating gluten now, this is actually the best time for proper celiac blood testing before he tries a gluten-free diet. His symptoms, weight, congestion, and family history are worth discussing with a gastroenterologist, but he should not be told he has celiac based only on HLA status. For your own care, try to keep pushing for objective testing and clear documentation in your records, because that is often what gets doctors to take the next step.
×
×
  • Create New...