Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Soy Next?

bridgetm

Recommended Posts

bridgetm Enthusiast
bridgetm
Posted

I'm about 6 weeks in to the gluten-free diet and I finally recovered from last weekend's Target-brand acetaminophen mishap, but now I feel like I'm having a separate attack. Last night I started getting that cramping abdominal pain and a rib/back ache again and it's always worst right after I eat. Looking back at my food diary, I realize my intake of soy has increased dramatically with the discovery of gluten-free foods such as Bakery on Main trail mix bars, EnviroKidz cereal bars, Butterfingers, Kind fruit and nut bars and Boost protein shakes. And then, of course, there's the peanut butter made with an undeclared amount of soybean oil. So I'm thinking soy may be the next to go.

I can brainstorm, Google and make pro-con lists, but nothing can help me as much as the past experience I find on this board so I defer to the experts: Is cutting out soy (and soybean oil and soy lecithin and all the other hidden sources I had no idea existed) a logical conclusion?

Bridget

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


skigirlchar Newbie
skigirlchar
Posted

soy elimination was a HUGE benefit for me

yes, it's a LOT of work, but the physical symptomatic relief i felt made it worth it!

good luck!

nyctexangal Rookie
nyctexangal
Posted

I'm a newbie as well...and my last symptoms have only started to get better after cutting out soy, legumes, and beans. Bummer- but hey- feeling amazing will be worth it. That's what I keep telling myself. =) I think we'll, hopefully, be able to add it back in a year or so from now...

mushroom Proficient
mushroom
Posted

Soy came after gluten for me too, I think because so many gluten free processed foods contain soy.

seashele2 Newbie
seashele2
Posted

Bridget,

After my celiac diagnosis 6 years ago, and my body was finally absorbing foods for the first time in years, I began reacting to foods I never had before. And with allergic reactions, not intolerance reactions. Now in addition to gluten, I am dairy, soy, MSG and beef-free.

At first I could tolerate small amounts of things like soy lecithan, but now - nothing. As far as peanut butter, so far I have found that Skippy Natural has only caused me a problem once or twice and I eat LOTS of peanut butter. I also buy a local brand of peanut butter with success. The problem with a lot of peanut butter is soy contamination before grinding, even without added spy oil.

A food diary is the way to track reactions and if you are seeing a pattern with soy and no other common ingredients, it's time to give it up and see if you improve.

Good luck!

Michelle

Western Washington State

bridgetm Enthusiast
bridgetm
Posted
  • Author

Thank you everyone! It does sound difficult, but I'm kind of excited. Here's a problem though: everything I have in my pantry right now that doesn't list soy as an ingredient is processed in a factory alongside soy products... Should I worry about that right now? When I get home I can stay away from packaged foods and have plenty to eat but until I get home next week, I have to depend on some of these processed foods. Otherwise I'll be eating nothing but fruit, veggies and eggs from the cafeteria and rice, pasta and Lara bars from my room.

mushroom Proficient
mushroom
Posted

Thank you everyone! It does sound difficult, but I'm kind of excited. Here's a problem though: everything I have in my pantry right now that doesn't list soy as an ingredient is processed in a factory alongside soy products... Should I worry about that right now? When I get home I can stay away from packaged foods and have plenty to eat but until I get home next week, I have to depend on some of these processed foods. Otherwise I'll be eating nothing but fruit, veggies and eggs from the cafeteria and rice, pasta and Lara bars from my room.

It would be a good start just to eliminate soy from the ingredients list; you can worry about the "processed on lines..." when you get home, I would think. Some are more sensitive than others to foods that are processed on shared lines - you will have to find out for yourself where you stand on this issue.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


skigirlchar Newbie
skigirlchar
Posted

Thank you everyone! It does sound difficult, but I'm kind of excited. Here's a problem though: everything I have in my pantry right now that doesn't list soy as an ingredient is processed in a factory alongside soy products... Should I worry about that right now? When I get home I can stay away from packaged foods and have plenty to eat but until I get home next week, I have to depend on some of these processed foods. Otherwise I'll be eating nothing but fruit, veggies and eggs from the cafeteria and rice, pasta and Lara bars from my room.

do to financial constraints i couldn't totally do a kitchen overhaul so i slowly eliminated my "bad" foods by either giving things away to friends who would go shopping w/ me and would buy me gluten-free/CF/SF products in trade, or eating much smaller quantities to fade the "bad foods" from my diet.

now, i am in the middle of moving and am trying to not buy anymore food and am trying "live on what's" left - so i feel your pain!

my job also has me in the car & other people's home a lot so that makes it hard too because the families are always offering to feed me!

you have 2 choices - "eat the foods that may make you feel miserable" for one last week or live on a very limited diet for a week.

both have positives and negatives. if you are in school and going to be taking finals, i would suggest the limited diet to keep your mind and body clear. if you are just "cleaning house" like i am and can deal w/ the side effects, then enjoy your "bad" foods for one more week.

good luck either way

char

bridgetm Enthusiast
bridgetm
Posted
  • Author

Char-

I think I'll stick with the basic diet at least through tomorrow. Stomach pain/rumbling is never pleasant, but with a packed test schedule from 8 through 5 on Monday that could get even more ugly :blink: . After that, I will probably end up eating some of the things in my 'unsafe' cabinet... Might as well get my money's worth (I spent $5 on a box of Glutino chocolate cereal bars before deciding to cut soy; unless they taste disgusting I'll force them down :P ). I am hoping that recovery from whatever damage this next week will do will be faster with all the good, simple food I can look forward to at home.

Good luck with your move! I decided to live out of one small drawer this week so that I could get as much packed away as possible. I was hoping getting it done would help me avoid playing that packing-tetris game in my head when I should be studying... Obviously, I am still finding ways to procrastinate B)

Again, thank you to all for the advice! :D

bridgetm Enthusiast
bridgetm
Posted
  • Author

UPDATE: It's only been a few days since I cut out soy and I feel SO MUCH BETTER! :D

I felt pretty good after going gluten-free, but this is beyond that. I had four final exams yesterday and I was able to focus well on each one and wasn't very stressed or tired. I have the day off today and I'm actually looking forward to taking the time to study for tomorrow's tests. I can't wait to be able to cut out all this processed food when I get home on Friday :P

skigirlchar Newbie
skigirlchar
Posted

YEA!! i'm so glad you are feeling better!

lol i love how you put it - "playing that packing-tetris game in my head " because that is what i am doing right now!

between boxing things up, trying to purge, and trying to figure out what goes w/ me and what i need to sell or donate, that's stress enough!

Good luck on your last final!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      @catnapt, Wheat germ has very little gluten in it. Gluten is the carbohydrate storage protein, what the flour is made from, the fluffy part. Just like with beans, there's the baby plant that will germinate ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein. Wheat germ is the baby plant inside a kernel of wheat...
    2. knitty kitty
      - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3. Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C. Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine. Weight...
    3. Florence Lillian
      - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free. I have a cupboard full of supplements that did not agree...
    4. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

      highly unlikely NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean...
    5. cristiana
      - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep. One of my relatives is an insomniac and I am sure that is part of the problem. Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read,...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748
    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By knitty kitty · Posted

      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Florence Lillian · Posted

      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      results from 13 day gluten challenge - does this mean I can't have celiac?

      By catnapt · Posted

      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Insomnia help

      By cristiana · Posted

      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.