Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Soy Next?

bridgetm

Recommended Posts

bridgetm Enthusiast
bridgetm
Posted

I'm about 6 weeks in to the gluten-free diet and I finally recovered from last weekend's Target-brand acetaminophen mishap, but now I feel like I'm having a separate attack. Last night I started getting that cramping abdominal pain and a rib/back ache again and it's always worst right after I eat. Looking back at my food diary, I realize my intake of soy has increased dramatically with the discovery of gluten-free foods such as Bakery on Main trail mix bars, EnviroKidz cereal bars, Butterfingers, Kind fruit and nut bars and Boost protein shakes. And then, of course, there's the peanut butter made with an undeclared amount of soybean oil. So I'm thinking soy may be the next to go.

I can brainstorm, Google and make pro-con lists, but nothing can help me as much as the past experience I find on this board so I defer to the experts: Is cutting out soy (and soybean oil and soy lecithin and all the other hidden sources I had no idea existed) a logical conclusion?

Bridget

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


skigirlchar Newbie
skigirlchar
Posted

soy elimination was a HUGE benefit for me

yes, it's a LOT of work, but the physical symptomatic relief i felt made it worth it!

good luck!

nyctexangal Rookie
nyctexangal
Posted

I'm a newbie as well...and my last symptoms have only started to get better after cutting out soy, legumes, and beans. Bummer- but hey- feeling amazing will be worth it. That's what I keep telling myself. =) I think we'll, hopefully, be able to add it back in a year or so from now...

mushroom Proficient
mushroom
Posted

Soy came after gluten for me too, I think because so many gluten free processed foods contain soy.

seashele2 Newbie
seashele2
Posted

Bridget,

After my celiac diagnosis 6 years ago, and my body was finally absorbing foods for the first time in years, I began reacting to foods I never had before. And with allergic reactions, not intolerance reactions. Now in addition to gluten, I am dairy, soy, MSG and beef-free.

At first I could tolerate small amounts of things like soy lecithan, but now - nothing. As far as peanut butter, so far I have found that Skippy Natural has only caused me a problem once or twice and I eat LOTS of peanut butter. I also buy a local brand of peanut butter with success. The problem with a lot of peanut butter is soy contamination before grinding, even without added spy oil.

A food diary is the way to track reactions and if you are seeing a pattern with soy and no other common ingredients, it's time to give it up and see if you improve.

Good luck!

Michelle

Western Washington State

bridgetm Enthusiast
bridgetm
Posted
  • Author

Thank you everyone! It does sound difficult, but I'm kind of excited. Here's a problem though: everything I have in my pantry right now that doesn't list soy as an ingredient is processed in a factory alongside soy products... Should I worry about that right now? When I get home I can stay away from packaged foods and have plenty to eat but until I get home next week, I have to depend on some of these processed foods. Otherwise I'll be eating nothing but fruit, veggies and eggs from the cafeteria and rice, pasta and Lara bars from my room.

mushroom Proficient
mushroom
Posted

Thank you everyone! It does sound difficult, but I'm kind of excited. Here's a problem though: everything I have in my pantry right now that doesn't list soy as an ingredient is processed in a factory alongside soy products... Should I worry about that right now? When I get home I can stay away from packaged foods and have plenty to eat but until I get home next week, I have to depend on some of these processed foods. Otherwise I'll be eating nothing but fruit, veggies and eggs from the cafeteria and rice, pasta and Lara bars from my room.

It would be a good start just to eliminate soy from the ingredients list; you can worry about the "processed on lines..." when you get home, I would think. Some are more sensitive than others to foods that are processed on shared lines - you will have to find out for yourself where you stand on this issue.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


skigirlchar Newbie
skigirlchar
Posted

Thank you everyone! It does sound difficult, but I'm kind of excited. Here's a problem though: everything I have in my pantry right now that doesn't list soy as an ingredient is processed in a factory alongside soy products... Should I worry about that right now? When I get home I can stay away from packaged foods and have plenty to eat but until I get home next week, I have to depend on some of these processed foods. Otherwise I'll be eating nothing but fruit, veggies and eggs from the cafeteria and rice, pasta and Lara bars from my room.

do to financial constraints i couldn't totally do a kitchen overhaul so i slowly eliminated my "bad" foods by either giving things away to friends who would go shopping w/ me and would buy me gluten-free/CF/SF products in trade, or eating much smaller quantities to fade the "bad foods" from my diet.

now, i am in the middle of moving and am trying to not buy anymore food and am trying "live on what's" left - so i feel your pain!

my job also has me in the car & other people's home a lot so that makes it hard too because the families are always offering to feed me!

you have 2 choices - "eat the foods that may make you feel miserable" for one last week or live on a very limited diet for a week.

both have positives and negatives. if you are in school and going to be taking finals, i would suggest the limited diet to keep your mind and body clear. if you are just "cleaning house" like i am and can deal w/ the side effects, then enjoy your "bad" foods for one more week.

good luck either way

char

bridgetm Enthusiast
bridgetm
Posted
  • Author

Char-

I think I'll stick with the basic diet at least through tomorrow. Stomach pain/rumbling is never pleasant, but with a packed test schedule from 8 through 5 on Monday that could get even more ugly :blink: . After that, I will probably end up eating some of the things in my 'unsafe' cabinet... Might as well get my money's worth (I spent $5 on a box of Glutino chocolate cereal bars before deciding to cut soy; unless they taste disgusting I'll force them down :P ). I am hoping that recovery from whatever damage this next week will do will be faster with all the good, simple food I can look forward to at home.

Good luck with your move! I decided to live out of one small drawer this week so that I could get as much packed away as possible. I was hoping getting it done would help me avoid playing that packing-tetris game in my head when I should be studying... Obviously, I am still finding ways to procrastinate B)

Again, thank you to all for the advice! :D

bridgetm Enthusiast
bridgetm
Posted
  • Author

UPDATE: It's only been a few days since I cut out soy and I feel SO MUCH BETTER! :D

I felt pretty good after going gluten-free, but this is beyond that. I had four final exams yesterday and I was able to focus well on each one and wasn't very stressed or tired. I have the day off today and I'm actually looking forward to taking the time to study for tomorrow's tests. I can't wait to be able to cut out all this processed food when I get home on Friday :P

skigirlchar Newbie
skigirlchar
Posted

YEA!! i'm so glad you are feeling better!

lol i love how you put it - "playing that packing-tetris game in my head " because that is what i am doing right now!

between boxing things up, trying to purge, and trying to figure out what goes w/ me and what i need to sell or donate, that's stress enough!

Good luck on your last final!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748
    denise.milillo
    Newest Member
    denise.milillo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.