Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Soy Next?


bridgetm

Recommended Posts

bridgetm Enthusiast

I'm about 6 weeks in to the gluten-free diet and I finally recovered from last weekend's Target-brand acetaminophen mishap, but now I feel like I'm having a separate attack. Last night I started getting that cramping abdominal pain and a rib/back ache again and it's always worst right after I eat. Looking back at my food diary, I realize my intake of soy has increased dramatically with the discovery of gluten-free foods such as Bakery on Main trail mix bars, EnviroKidz cereal bars, Butterfingers, Kind fruit and nut bars and Boost protein shakes. And then, of course, there's the peanut butter made with an undeclared amount of soybean oil. So I'm thinking soy may be the next to go.

I can brainstorm, Google and make pro-con lists, but nothing can help me as much as the past experience I find on this board so I defer to the experts: Is cutting out soy (and soybean oil and soy lecithin and all the other hidden sources I had no idea existed) a logical conclusion?

Bridget


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skigirlchar Newbie

soy elimination was a HUGE benefit for me

yes, it's a LOT of work, but the physical symptomatic relief i felt made it worth it!

good luck!

nyctexangal Rookie

I'm a newbie as well...and my last symptoms have only started to get better after cutting out soy, legumes, and beans. Bummer- but hey- feeling amazing will be worth it. That's what I keep telling myself. =) I think we'll, hopefully, be able to add it back in a year or so from now...

mushroom Proficient

Soy came after gluten for me too, I think because so many gluten free processed foods contain soy.

seashele2 Newbie

Bridget,

After my celiac diagnosis 6 years ago, and my body was finally absorbing foods for the first time in years, I began reacting to foods I never had before. And with allergic reactions, not intolerance reactions. Now in addition to gluten, I am dairy, soy, MSG and beef-free.

At first I could tolerate small amounts of things like soy lecithan, but now - nothing. As far as peanut butter, so far I have found that Skippy Natural has only caused me a problem once or twice and I eat LOTS of peanut butter. I also buy a local brand of peanut butter with success. The problem with a lot of peanut butter is soy contamination before grinding, even without added spy oil.

A food diary is the way to track reactions and if you are seeing a pattern with soy and no other common ingredients, it's time to give it up and see if you improve.

Good luck!

Michelle

Western Washington State

bridgetm Enthusiast

Thank you everyone! It does sound difficult, but I'm kind of excited. Here's a problem though: everything I have in my pantry right now that doesn't list soy as an ingredient is processed in a factory alongside soy products... Should I worry about that right now? When I get home I can stay away from packaged foods and have plenty to eat but until I get home next week, I have to depend on some of these processed foods. Otherwise I'll be eating nothing but fruit, veggies and eggs from the cafeteria and rice, pasta and Lara bars from my room.

mushroom Proficient

Thank you everyone! It does sound difficult, but I'm kind of excited. Here's a problem though: everything I have in my pantry right now that doesn't list soy as an ingredient is processed in a factory alongside soy products... Should I worry about that right now? When I get home I can stay away from packaged foods and have plenty to eat but until I get home next week, I have to depend on some of these processed foods. Otherwise I'll be eating nothing but fruit, veggies and eggs from the cafeteria and rice, pasta and Lara bars from my room.

It would be a good start just to eliminate soy from the ingredients list; you can worry about the "processed on lines..." when you get home, I would think. Some are more sensitive than others to foods that are processed on shared lines - you will have to find out for yourself where you stand on this issue.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skigirlchar Newbie

Thank you everyone! It does sound difficult, but I'm kind of excited. Here's a problem though: everything I have in my pantry right now that doesn't list soy as an ingredient is processed in a factory alongside soy products... Should I worry about that right now? When I get home I can stay away from packaged foods and have plenty to eat but until I get home next week, I have to depend on some of these processed foods. Otherwise I'll be eating nothing but fruit, veggies and eggs from the cafeteria and rice, pasta and Lara bars from my room.

do to financial constraints i couldn't totally do a kitchen overhaul so i slowly eliminated my "bad" foods by either giving things away to friends who would go shopping w/ me and would buy me gluten-free/CF/SF products in trade, or eating much smaller quantities to fade the "bad foods" from my diet.

now, i am in the middle of moving and am trying to not buy anymore food and am trying "live on what's" left - so i feel your pain!

my job also has me in the car & other people's home a lot so that makes it hard too because the families are always offering to feed me!

you have 2 choices - "eat the foods that may make you feel miserable" for one last week or live on a very limited diet for a week.

both have positives and negatives. if you are in school and going to be taking finals, i would suggest the limited diet to keep your mind and body clear. if you are just "cleaning house" like i am and can deal w/ the side effects, then enjoy your "bad" foods for one more week.

good luck either way

char

bridgetm Enthusiast

Char-

I think I'll stick with the basic diet at least through tomorrow. Stomach pain/rumbling is never pleasant, but with a packed test schedule from 8 through 5 on Monday that could get even more ugly :blink: . After that, I will probably end up eating some of the things in my 'unsafe' cabinet... Might as well get my money's worth (I spent $5 on a box of Glutino chocolate cereal bars before deciding to cut soy; unless they taste disgusting I'll force them down :P ). I am hoping that recovery from whatever damage this next week will do will be faster with all the good, simple food I can look forward to at home.

Good luck with your move! I decided to live out of one small drawer this week so that I could get as much packed away as possible. I was hoping getting it done would help me avoid playing that packing-tetris game in my head when I should be studying... Obviously, I am still finding ways to procrastinate B)

Again, thank you to all for the advice! :D

bridgetm Enthusiast

UPDATE: It's only been a few days since I cut out soy and I feel SO MUCH BETTER! :D

I felt pretty good after going gluten-free, but this is beyond that. I had four final exams yesterday and I was able to focus well on each one and wasn't very stressed or tired. I have the day off today and I'm actually looking forward to taking the time to study for tomorrow's tests. I can't wait to be able to cut out all this processed food when I get home on Friday :P

skigirlchar Newbie

YEA!! i'm so glad you are feeling better!

lol i love how you put it - "playing that packing-tetris game in my head " because that is what i am doing right now!

between boxing things up, trying to purge, and trying to figure out what goes w/ me and what i need to sell or donate, that's stress enough!

Good luck on your last final!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Challenges eating gluten before biopsy

    2. - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      17

      My only proof

    4. - Xravith posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Challenges eating gluten before biopsy

    5. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      17

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,459
    • Most Online (within 30 mins)
      7,748

    Jackir
    Newest Member
    Jackir
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
    • knitty kitty
      What exactly are you taking from doterra? 
    • Xravith
      Hello, I'm back with a second post. The first time I wrote, I mentioned the possibility that my symptoms were related to gluten. I did a genetic test in which I resulted to have the predisposition, but the results of my blood test were all negative without IgA deficiency. My doctor suggested that it was necessary to do a biopsy to rule out Celiac Disease. However, he said, because of my family history and my symptoms were strongly related to gluten, it was very possible that my Celiac Disease is developing and my antibodies may become positive in the future.  I tried to continue the gluten challenge for the biopsy, around 2-3 g of gluten per day, but it was enough to make me feel worse each passing day. I started developing anemia and other mild nutritional deficiencies, and it was really affecting my daily life. I'm a student and exams are coming up, so my doctor suggests me to strictly remove gluten until I feel better so I could study without problems until I could do the gluten challenge when I come back home for holidays. Since going gluten free, I feel like a completely different person. My mind is clearer, I have no stomach pain during the day, and even my nails improved within just two weeks. It could also be Non-Celiac Gluten Sensitivity, but of course I’ll need the biopsy to know for sure. I was wondering, has anyone else had negative blood tests at first and later tested positive? And has anyone struggled with the gluten challenge because of symptoms?
    • Jmartes71
      Doterra is a life saver and yes I feel like im waiting because Im getting yes you are celiac, no your not celiac. Im so FRUSTRATED, exhausted and tired of explaining to medical why I feel this way.Im stressed because my body isn't feeling well.Yes I am and no it's not just a food allergy as downplayed with doctors Ive seen.I even went to the " celiac  specialist " Dr Fernandez-Becker who down played my ailments and stated im not and then yes I am I even had one her " care team" ask my why do you want that diagnosis. UNMMMMM. I don't want it, its been my life confirmed in 1994.Menopause intensified extra sensitivity and medical has down played my sibo, ibs, CELIAC, now im having skin and eye issues. I thought help was available but its been a complete medical disaster. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.