Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Soy Next?


bridgetm

Recommended Posts

bridgetm Enthusiast

I'm about 6 weeks in to the gluten-free diet and I finally recovered from last weekend's Target-brand acetaminophen mishap, but now I feel like I'm having a separate attack. Last night I started getting that cramping abdominal pain and a rib/back ache again and it's always worst right after I eat. Looking back at my food diary, I realize my intake of soy has increased dramatically with the discovery of gluten-free foods such as Bakery on Main trail mix bars, EnviroKidz cereal bars, Butterfingers, Kind fruit and nut bars and Boost protein shakes. And then, of course, there's the peanut butter made with an undeclared amount of soybean oil. So I'm thinking soy may be the next to go.

I can brainstorm, Google and make pro-con lists, but nothing can help me as much as the past experience I find on this board so I defer to the experts: Is cutting out soy (and soybean oil and soy lecithin and all the other hidden sources I had no idea existed) a logical conclusion?

Bridget


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skigirlchar Newbie

soy elimination was a HUGE benefit for me

yes, it's a LOT of work, but the physical symptomatic relief i felt made it worth it!

good luck!

nyctexangal Rookie

I'm a newbie as well...and my last symptoms have only started to get better after cutting out soy, legumes, and beans. Bummer- but hey- feeling amazing will be worth it. That's what I keep telling myself. =) I think we'll, hopefully, be able to add it back in a year or so from now...

mushroom Proficient

Soy came after gluten for me too, I think because so many gluten free processed foods contain soy.

seashele2 Newbie

Bridget,

After my celiac diagnosis 6 years ago, and my body was finally absorbing foods for the first time in years, I began reacting to foods I never had before. And with allergic reactions, not intolerance reactions. Now in addition to gluten, I am dairy, soy, MSG and beef-free.

At first I could tolerate small amounts of things like soy lecithan, but now - nothing. As far as peanut butter, so far I have found that Skippy Natural has only caused me a problem once or twice and I eat LOTS of peanut butter. I also buy a local brand of peanut butter with success. The problem with a lot of peanut butter is soy contamination before grinding, even without added spy oil.

A food diary is the way to track reactions and if you are seeing a pattern with soy and no other common ingredients, it's time to give it up and see if you improve.

Good luck!

Michelle

Western Washington State

bridgetm Enthusiast

Thank you everyone! It does sound difficult, but I'm kind of excited. Here's a problem though: everything I have in my pantry right now that doesn't list soy as an ingredient is processed in a factory alongside soy products... Should I worry about that right now? When I get home I can stay away from packaged foods and have plenty to eat but until I get home next week, I have to depend on some of these processed foods. Otherwise I'll be eating nothing but fruit, veggies and eggs from the cafeteria and rice, pasta and Lara bars from my room.

mushroom Proficient

Thank you everyone! It does sound difficult, but I'm kind of excited. Here's a problem though: everything I have in my pantry right now that doesn't list soy as an ingredient is processed in a factory alongside soy products... Should I worry about that right now? When I get home I can stay away from packaged foods and have plenty to eat but until I get home next week, I have to depend on some of these processed foods. Otherwise I'll be eating nothing but fruit, veggies and eggs from the cafeteria and rice, pasta and Lara bars from my room.

It would be a good start just to eliminate soy from the ingredients list; you can worry about the "processed on lines..." when you get home, I would think. Some are more sensitive than others to foods that are processed on shared lines - you will have to find out for yourself where you stand on this issue.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skigirlchar Newbie

Thank you everyone! It does sound difficult, but I'm kind of excited. Here's a problem though: everything I have in my pantry right now that doesn't list soy as an ingredient is processed in a factory alongside soy products... Should I worry about that right now? When I get home I can stay away from packaged foods and have plenty to eat but until I get home next week, I have to depend on some of these processed foods. Otherwise I'll be eating nothing but fruit, veggies and eggs from the cafeteria and rice, pasta and Lara bars from my room.

do to financial constraints i couldn't totally do a kitchen overhaul so i slowly eliminated my "bad" foods by either giving things away to friends who would go shopping w/ me and would buy me gluten-free/CF/SF products in trade, or eating much smaller quantities to fade the "bad foods" from my diet.

now, i am in the middle of moving and am trying to not buy anymore food and am trying "live on what's" left - so i feel your pain!

my job also has me in the car & other people's home a lot so that makes it hard too because the families are always offering to feed me!

you have 2 choices - "eat the foods that may make you feel miserable" for one last week or live on a very limited diet for a week.

both have positives and negatives. if you are in school and going to be taking finals, i would suggest the limited diet to keep your mind and body clear. if you are just "cleaning house" like i am and can deal w/ the side effects, then enjoy your "bad" foods for one more week.

good luck either way

char

bridgetm Enthusiast

Char-

I think I'll stick with the basic diet at least through tomorrow. Stomach pain/rumbling is never pleasant, but with a packed test schedule from 8 through 5 on Monday that could get even more ugly :blink: . After that, I will probably end up eating some of the things in my 'unsafe' cabinet... Might as well get my money's worth (I spent $5 on a box of Glutino chocolate cereal bars before deciding to cut soy; unless they taste disgusting I'll force them down :P ). I am hoping that recovery from whatever damage this next week will do will be faster with all the good, simple food I can look forward to at home.

Good luck with your move! I decided to live out of one small drawer this week so that I could get as much packed away as possible. I was hoping getting it done would help me avoid playing that packing-tetris game in my head when I should be studying... Obviously, I am still finding ways to procrastinate B)

Again, thank you to all for the advice! :D

bridgetm Enthusiast

UPDATE: It's only been a few days since I cut out soy and I feel SO MUCH BETTER! :D

I felt pretty good after going gluten-free, but this is beyond that. I had four final exams yesterday and I was able to focus well on each one and wasn't very stressed or tired. I have the day off today and I'm actually looking forward to taking the time to study for tomorrow's tests. I can't wait to be able to cut out all this processed food when I get home on Friday :P

skigirlchar Newbie

YEA!! i'm so glad you are feeling better!

lol i love how you put it - "playing that packing-tetris game in my head " because that is what i am doing right now!

between boxing things up, trying to purge, and trying to figure out what goes w/ me and what i need to sell or donate, that's stress enough!

Good luck on your last final!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    2. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,416
    • Most Online (within 30 mins)
      7,748

    Heather8280
    Newest Member
    Heather8280
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.