Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Glutened Vent

Leper Messiah

Recommended Posts

Leper Messiah Apprentice
Leper Messiah
Posted

Grr, I've been trying to follow this by the letter but once a week, every week for the past 3 weeks, I get glutened. Today was the day I got glutened again. Every week I try to find the culprit but beginning to think it might be CC - before I blamed Peperami and then Orangina (which I'm not so sure about) but this time for sure I didn't eat anything knowingly with gluten in it yet I'm absolutely shot with tiredness and GI symptoms.

The irony in all of this is that I can actually tell when I'm glutened - before I was tired 24/7 with no respite and I know it's selfish but it's still very frustrating knowing that for the next 3-5 days I'll feel like poo even whilst I'm eating gluten-free.

Anyone else have a day when they are sure they didn't eat anything gluteny yet are equally sure they were glutened?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ciavyn Contributor
ciavyn
Posted

Two things that come to mind: 1. It could just be that your system is still healing. Sometimes you feel like you got glutened, and you really didn't. Your system is just still out of whack.

2. could you have another intolerance or issue that you are reacting to?

I do know the feeling. We had Mother's Day out on Sunday morning. MIL's choice, certainly not mine. I ordered eggs (after ensuring there was nothing weird on them) and bacon. The bacon had little crumbs on it, but I didn't process that until after I ate it. I have a feeling, that was what got me. :(

nyctexangal Rookie
nyctexangal
Posted

I has similar experiences. Finally found out that it was all food intolerances, egg yolks, soy, dairy, and oils. I kept a detailed food journal to nail them down. Hope you find what's hurting you, I know how hard it is.

RoseTapper Newbie
RoseTapper
Posted

Okay, it's time to check the shampoo, conditioner, and lipstick. Remember, you can easily ingest small amounts of shampoo, etc., and a lot of that stuff has gluten in it. Wheat is a biggie in shampoos. There are a number of great gluten-free shampoos and conditioners out there. AS for lipstick, I own gluten-free ones, but I don't bother to wear the stuff.

rdunbar Explorer
rdunbar
Posted

Does orangina contain corn syrup? If so then ... Bingo!! Corn is harvested with the same equipment and stored in the same silos as wheat and they don't clean it out. It is always contaminated. I am always amazed when people here can get away with processed corn. I started doing way better when I stopped eating corn chips and tortillas even though it made me sad

eva-girl Newbie
eva-girl
Posted

toothpaste.

kkaysmiles Newbie
kkaysmiles
Posted

Ah that would probably explain why the corn chips I have that are supposed to be gluten-free seem to bother me!!!! Thanks :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


K8ling Enthusiast
K8ling
Posted

Does orangina contain corn syrup? If so then ... Bingo!! Corn is harvested with the same equipment and stored in the same silos as wheat and they don't clean it out. It is always contaminated. I am always amazed when people here can get away with processed corn. I started doing way better when I stopped eating corn chips and tortillas even though it made me sad

I can drink Corona and eat Garden of Eaten' cornchips. I also use corn tortillas in my enchiladas without issue. Is it possible that my sensitivity isn't that high?

psawyer Proficient
psawyer
Posted

Corn is harvested with the same equipment and stored in the same silos as wheat and they don't clean it out. It is always contaminated.

Would you please cite your source for this information. I have been gluten-free for almost ten years, and this is the first I have heard of it. Oats, yes, oats share harvesters and silos, and are usually contaminated. But the allegation that it is also true of corn is news to me. I eat "processed" corn all the time and have not had a problem. Your source, please.

ETA: You may have a sensitivity to corn as well as gluten. A number of celiacs do, but I am not one of them.

tictax707 Apprentice
tictax707
Posted

Would you please cite your source for this information. I have been gluten-free for almost ten years, and this is the first I have heard of it. Oats, yes, oats share harvesters and silos, and are usually contaminated. But the allegation that it is also true of corn is news to me. I eat "processed" corn all the time and have not had a problem. Your source, please.

ETA: You may have a sensitivity to corn as well as gluten. A number of celiacs do, but I am not one of them.

Yes, please. I would also like to know the source of the alleged gluten contamination in corn as this is the very very first I have ever heard of such a thing. (Been gluten-free almost 10 years too!)

Thank you!

tictax707 Apprentice
tictax707
Posted

I can drink Corona and eat Garden of Eaten' cornchips. I also use corn tortillas in my enchiladas without issue. Is it possible that my sensitivity isn't that high?

You drink Corona??? BARLEY???

:o

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,167
    • Most Online (within 30 mins)
      7,748
    Krys
    Newest Member
    Krys
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.5k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cococo
      Receommendations for kids multivitamins

      By cococo · Posted

      My kids take Whole Earth & Sea Kid’s Multivitamin as per our naturopath’s recommendation. They’re chewable but can be crushed and added to juice or food. No gums or citric acid. GMO free and gluten free too.
    • Murilo P
      DR1-DQ5 neurological symptoms

      By Murilo P · Posted

      It has been a while and I would like to post an update. The hallucinations are completely gone. Thanks to one bottle of B1 as benfotiamine and one of B3 as niacin, both taken together. I will buy more. The other symptoms are still being treated. Now I can already affirm that the symptoms are part of Borderline Personality Disorder. Yet I do have hopes that we will achieve the remission of BPD symptoms over the next couple of years. I think her issues come from this chain of events: Nutritional deficiencies at birth, due to being twin and having low birth weight. Low levels of Omega-3 during pregnancy and first years resulting in weak HPA axis development (predisposition for BPD). Consumption of gluten before age of 2 leading to predisposition for gluten sensitivity as adult Excessive consumption of gluten and sugar as an adult, leading to dysregulation of microbiome. Two severe gut infections due to lack of healthy bacteria, followed by hospitalization and use of antibiotics Poor diet after using antibiotics, worsening even more the gut health and leading to anorexia nervosa. Worsening of gluten sensitivity, then resulting in bouts of anxiety and depression, especially if added with sugar. Different forms of therapy haven't shown effectiveness yet, but I think it's because the issues must be treated with nutrients first, so we are taking that more seriously now and focusing on nutrients that are especially easy to digest and absorb. She still has intense gluten sensitivity, but I have hopes that this can go away after the body is completely re-nourished with the missing nutrients and then gets a few years to recover. Notes: The hallucinations begun after we tried Ayahuasca low dosage. I guess it was the result of a bad combination: "DR1 genes + B1 deficiency + Ayahuasca". I'd guess that would not have happened if it wasn't for the vitamin deficiencies. She has been fully in non-gluten diet, except for accidents that happen sometimes due to her food compulsion. I have been giving more importance to Omega-3, which is very effective in emotional regulation for BPD. Recently bought special products from Omnilife which use special "micelles" to promote quick absorption close to 100% rate. - "Micelles are tiny, spherical particles formed when amphiphilic molecules, like those in soap, aggregate in a liquid, typically water." Currently buying special whey protein which is hydrolyzed (easy to digest). I think we have underestimated the importance of proteins, which is not usually refereed as part of mental health treatment. She is pregnant again, but doing well. 🙂 Thanks for all of the help!
    • Jsingh
      Receommendations for kids multivitamins

      By Jsingh · Posted

      Hi, My six year old has been complaining of tingling in the legs off late. This used to be pretty common thing with her pre-diagnosis and a couple of weeks after the diagnosis as well. And now it is back again. I am not sure if it's a glutening symptom, or she could be deficient in something. I got her Pure Encapsulations' multivitamin capsule, which she is ok taking, but she began reacting to cellulose in the capsule. I don't know if I can just break the capsule and she could drink it in a smoothie. I haven't tried that yet, so do not know whether it'll be palatable to her.  If any of you know of a CGF multivitamin that do not contain any gums and are preferably free of citric acid, I'd greatly appreciate. Thank you.   
    • Dora77
      Energy drink can has stains - potential gluten?

      By Dora77 · Posted

      It wasnt really eye catching, but they were small stains which looked like dried out liquid. I dont know if it was normal or shouldve been just completely clean. But if someone didnt pay attention, it wouldnt be noticeable.
    • RMJ
      Energy drink can has stains - potential gluten?

      By RMJ · Posted

      If there were stains or particles on a drink can in an area that would either contact the drink or my lips, I would wash that can whether or not I had celiac disease.
×
×
  • Create New...