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Diagnosed With Crohn's But Wondering About Celiac


Strineski

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Strineski Newbie

Hi everyone! Following four months of diarrhea,extreme weight loss, fatigue, night sweats, and low-grade fevers, I was finally diagnosed last week with Crohn's Disease. At first the GI considered Celiac, but he did a colonoscopy, endoscopy, and biopsies and those all came back negative for Celiac or anything else; so then he ordered a small bowel x-ray series, and the radiologist took one look at the terminal ileum in my small intestine and said I have Crohn's. The GI doctor said my most recent round of blood tests also confirmed Crohn's. I am now on Prednisone and Pentasa (only 5 days and I feel no different). However, I'm wondering...does anyone know if Celiac could cause the same visible problems in the terminal ileum as Crohn's? I did go off gluten for two weeks prior to the colonscopy/endoscopy; the doctor said that any allergy still should have shown up in the biopsy even though I'd been off wheat for quite a while. (I did start eating wheat like CRAZY four about five days before those biopsies to try to build it up in my system again). But I guess I'm hoping against hope that maybe I do have celiac and that is what's causing the symptoms and inflammation/stricturing in my ileum. In addition, when I eat offensive foods, it doesn't become diarrhea until many hours after eating--seven to twelve hours, usually. Would wheat ingestion take that long? Thanks for any help!!!


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Desiree49 Newbie

I just found out last week that I don't have Crohn's disease and instead have celiac disease. He told me that they look different, especially on the upper GI scan.

sb2178 Enthusiast

It's possible to have both, but I'm pretty sure that fever and strictures are Crohn's symptoms. Celiac, not so much. I have a couple of friends who have Crohn's and they absolutely have to avoid whole grains, so if you tended to eat whole wheat that would definitely exasperate Crohn's while refined grains less so.

You may also have some food intolerance(s) thrown in there. I'm in the process of an elimination diet, and while it is boring as heck, useful information will be obtained very easily and cheaply. If you have not a consult with a knowledge GI about diet, get a referral to an RD who deals with both food prob and Crohn's to figure out how to deal with food/nutrition issues.

Hi everyone! Following four months of diarrhea,extreme weight loss, fatigue, night sweats, and low-grade fevers, I was finally diagnosed last week with Crohn's Disease. At first the GI considered Celiac, but he did a colonoscopy, endoscopy, and biopsies and those all came back negative for Celiac or anything else; so then he ordered a small bowel x-ray series, and the radiologist took one look at the terminal ileum in my small intestine and said I have Crohn's. The GI doctor said my most recent round of blood tests also confirmed Crohn's. I am now on Prednisone and Pentasa (only 5 days and I feel no different). However, I'm wondering...does anyone know if Celiac could cause the same visible problems in the terminal ileum as Crohn's? I did go off gluten for two weeks prior to the colonscopy/endoscopy; the doctor said that any allergy still should have shown up in the biopsy even though I'd been off wheat for quite a while. (I did start eating wheat like CRAZY four about five days before those biopsies to try to build it up in my system again). But I guess I'm hoping against hope that maybe I do have celiac and that is what's causing the symptoms and inflammation/stricturing in my ileum. In addition, when I eat offensive foods, it doesn't become diarrhea until many hours after eating--seven to twelve hours, usually. Would wheat ingestion take that long? Thanks for any help!!!

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    • Bebee
      Thank you for your input!  I would really like to know if I have celiac disease because you need make sure you are not getting any cross contamination due to cancer concerns.  I guess I need to start with a knowledgeable Gastroenterologist. Thank you again!
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    • Skg414228
      Correct. I’m doing both in the same go though. Thanks for clarifying before I confused someone. I’m doing a colonoscopy for something else and then they added the endoscopy after the test. 
    • trents
      It is a biopsy but it's not a colonoscopy, it's an endoscopy.
    • Skg414228
      Well I’m going on the gluten farewell tour so they are about to find out lol. I keep saying biopsy but yeah it’s a scope and stuff. I’m a dummy but luckily my doctor is not. 
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