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Frustrating Diagnosis

Linkz

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Linkz Newbie
Linkz
Posted

I have most of the classical symptoms such as abdominal pain(worse 20 mins after meals) brain fog after breakfast, skin rash, etc. The genetic test indicates that I am extremely highly predisposed to celiac. Yet my doctors cannot find a sensitive and specific test that will confirm celiac. Based on what I have read, I can bet anyone $1,000 that I have celiac. Please recommend the most specific and sensitive blood test for celiac. This just too frustrating!!!

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vbecton Explorer
vbecton
Posted

May I ask which genetic testing you used? I am anxious to get that done as all my other medical workups continuously come back celiac negative, but after following a gluten free diet for over 1 month I'm a new person!

WheatChef Apprentice
WheatChef
Posted

Technically there is no real blood test for celiac. Doctors will use the IgA-tTG (tissue TransGlutaminase) test to prescreen you for a biopsy of the small intestine. Observable damage to the microvilli of the small intestine is the official diagnostic method of Celiac disease.

Keep in mind, celiac disease is a lot less common than gluten intolerance which is basically the starting point of celiac disease. Additionally most of those genetic tests don't actually test for celiac disease they look for gluten intolerance genes.

Out of curiosity, which genes did you have?

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