Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Dreaded Diarrhea/bowels Topic


BamBam

Recommended Posts

BamBam Community Regular

We read a lot about this topic, but I guess what I am wondering is how do you work and live a normal life when diarrhea/bowels are always on the mind. Having to know where the bathroom is all the time or do I travel or don't I travel... I had diarrhea for years - accidents and you name it. I am now gluten free and am feeling better, but just can't seem to get that anxiety/panic out of my brain. I've been gluten free for about nine months, will this just get better over time. I just need some reassurance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

I know what you are talking about and had nighmares about it in my early gluten-free days :o But now I lead a busy life running around to various dog trials, shows and I even teach large quilting classes. Now I will admit having some anxious days and weeks convincing myself to do that one :lol:

What I do is ... before the event, make doubly sure that there is no chance of contamination and eat simply. Fresh only. Then pack immodium!! It doesn't matter that I don't need it .. it's a way to calm my crazy bathroom anxiety. I know it's there and that's what matters. I still of course need to know where the bathroom is at each school, hall, or show grounds that I teach or trial at, but it works for me, and I'm not hiding in my house anymore.

Hope this helps a bit ... time is what is going to help more :rolleyes:

judy05 Apprentice

That's what I was going to say. I never go anywhere without carrying my Immodium, Pepto for upset stomach, NuLev tabs for spasms, and various snacks and fluids in case I am "stranded" somewhere( hardly likely :rolleyes:) but this is my way of containing my anxiety.

cmom Contributor

I know EXACTLY what you are talking about. I have had the accidents which has caused the anxiety. My husband (as understanding as he is) gets aggravated with me because when we get ready to go anywhere, I often go back to the bathroom 4 or 5 times to "make sure" I can make it to my destination. If I am going to be away from home, I take the Imodium whether I have the "D" at the moment or not. It helps me function as a normal human being. I also check out the restroom location first thing wherever I go and don't go places if access is not readily available. However, the longer I go without an accident, the more confident I become. It's a vicious cycle and one that is not easy to overcome. Know that we're with you on this one! :)

luvs2eat Collaborator

Yea, Immodium is my friend too.

BamBam Community Regular

Viola

Can you give me some suggestions on safe food - I know gluten free, but what are some safe items that you eat before travel.

Guest Viola

I stick pretty much with a gluten free cereal for breakfast with a piece of fruit. A gluten-free soup and cheese for lunch and a plain meat with potato and vegie for supper the day before, then just gluten-free cereal the morning of the event and carry in a cooler, cut up cheese, fresh strawberries, and or banana, cellery sticks and carrot sticks. I use cheese a lot (swiss is low in lactose) although I don't have trouble with dairy anymore. But it's a super protein if you can handle it. The day before and the day of the event, I don't snack on anything that doesn't have gluten free written right on it! Unless it is fresh fruit or veggie. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,984
    • Most Online (within 30 mins)
      7,748

    henrygreen
    Newest Member
    henrygreen
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
    • WildFlower1
      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
      I am a male and had developed osteopenia by age 50 which is when I finally got dx with celiac disease. I am sure I had it for at least 13 years before that because it was then I developed idiopathic elevated liver enzymes. I now have a little scoliosis and pronounced kyphosis (upper spine curvature).  All of your symptoms scream of celiac disease, even if the testing you have had done does not. You may be an atypical celiac, meaning the disease is not manifesting itself in your gut but is attacking other body systems. There is such a thing as sero negative celiac disease. But you still have not given me a satisfactory answer to my question of why do you need a differential dx between celiac disease and NCGS when either one would call for complete abstinence from gluten, which you have already been practicing except for short periods when you were undergoing a gluten challenge. Why do you want to put a toxic substance into your body for weeks when, even if it did produce a positive test result for celiac disease, neither you or your doctors would do anything different? Regardless of what doctors are recommending to you, it is your body it is affecting not theirs and they don't seem to have given you any good justification for starting another gluten challenge. Where you live, are doctors kings or something?
    • WildFlower1
      Sorry to put it clearly, at 15, infertility started (tried to word it nicely) meaning menstruation stopped. Which is in correlation to celiac I mean. Thank you. 
×
×
  • Create New...