Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Do People Mean By "getting Sick" When They Eat Something With Gluten?


Coolclimates

Recommended Posts

Coolclimates Collaborator

I just was diagnosed with celiac disease 3 weeks ago and have been on the diet barely 3 weeks. I keep hearing people saying that if you suddenly eat something with gluten, you will get "very sick." My question is, what do they mean by sick? Do they mean throwing up/stomach issues? Or do they mean flu like symptoms like headaches, body aches, fever? or do they mean something else? Please clarify.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Korwyn Explorer

Hi cool,

If ten people respond you will probably get 20 answers. :) That is because it is different for almost everyone though many people share similar but not identical responses. Also the response can change over time.

I now usually experience fatigue, headaches, painful joints (especially my ankles). The onset of the painful joints is new however and was never one of my original symptoms. But I can experience other symptoms occasionally as well. Some of it seems to depend on how I got glutened. That is what type of food it was. But for me the onset is usually very rapid (15 minutes to a couple hours, average probably 45 minutes).

mommida Enthusiast

If I ate straight gluten ~ Usually the big "D" in about 15 minutes, or sometimes the lovely projectile vomit.

If it is maybe a little cross contamintion ~ agonizing stomach cramps for about 3 hours, and then the big "D" spread out in about three bouts until my guts are empty.

If gluten goes in is is coming out one orafice or another until it's all gone. Sure there are aches and pains, headaches, and other stuff. Day or two after I feel more tired and notice my hair tends to fall out.

conniebky Collaborator

I get weak and my joints get painful and stiff. I get a headache and stomach cramps. I get tingling in my extremeties.

luvs2eat Collaborator

I'll have horrible lower digestive issues... cramping, BIG D w/in an hour or 2... and will feel very barfy (but I always fight that one!!). The next day I'll be wiped out... foggy and hugging the couch.

WheatChef Apprentice

Abnormal bowel movements for a few days. Terrible bloating and gas. Severe lethargy for 2-3 days. Brain fog for at least a week. Loss in muscle tone. Most likely migraines for a few days. Clogged sinuses for at least a day. Most likely some mild anxiety for a few days.

Normally these don't come on severe, just kind of gradually creep in over the next few hours after getting poisoned.

chere1020 Newbie

Abnormal bowel movements for a few days. Terrible bloating and gas. Severe lethargy for 2-3 days. Brain fog for at least a week. Loss in muscle tone. Most likely migraines for a few days. Clogged sinuses for at least a day. Most likely some mild anxiety for a few days.

Normally these don't come on severe, just kind of gradually creep in over the next few hours after getting poisoned.

It depends on what I get glutened with, one time it was wheat in a chicken broth and that took only 10 minutes before I had indigestion and acid reflux and it just got worse from there. I get really nauseous and if it is a bad case and I keep eating whatever it is that causes the problem I have the big D in a huge way. The last vacation before this one we went home a day early because I had the big D so bad I was dehydrating and so viciously sick I couldnt get out of bed. I was in a bad way that time, but it was before I knew I was gluten intolerant. Now when I get glutened I drop back to fresh only foods and it clears up within 48 hours. It is horrible and you know it when it happens.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MelissaBe123 Newbie

Depending on how much I got, it will either be horrible abdominal pains or the big D. I have never really experienced headaches or pains in my joints.

Jencat Rookie

Well I got unintentionally glutened about four days ago and it Has been a rough glutening, on and off D and cramping, bloating, nausea, brain fog and fatigue,numbness to my hands and fingers and very irritable just want it to be over.-Jen :(

Korwyn Explorer

Well I got unintentionally glutened about four days ago and it Has been a rough glutening, on and off D and cramping, bloating, nausea, brain fog and fatigue,numbness to my hands and fingers and very irritable just want it to be over.-Jen :(

:( That's the worst part (mentally) for me now. Waiting for the fog to lift and kicking myself for not being more careful. Hope you feel better soon.

conniebky Collaborator

:( That's the worst part (mentally) for me now. Waiting for the fog to lift and kicking myself for not being more careful. Hope you feel better soon.

I got glutened this morning. tingly extremitries, headache, stomach troubles, panicky feeling, vertigo and kinda of sad. Seems I get sad when it happens. It's like, "oh no here comes the enemy".....something like that.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Kwinkle's topic in Coping with Celiac Disease
      7

      I’m so confused…

    2. - knitty kitty replied to Kwinkle's topic in Coping with Celiac Disease
      7

      I’m so confused…

    3. - Scott Adams replied to Kj44's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Testing

    4. - Scott Adams commented on Scott Adams's article in Chinese & Asian
      2

      Gluten-Free Ramen: A Comforting Bowl of Japanese Tradition

    5. - trents replied to Kj44's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Testing


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,172
    • Most Online (within 30 mins)
      7,748

    Angie Helms
    Newest Member
    Angie Helms
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      For my first couple of years after discovering my celiac disease I also had to avoid cow's milk/casein and eggs, as well as other things, but could tolerate duck eggs and sheep and goat's milk products. I'm not sure if you've tried those, but it could be worth testing them out.
    • knitty kitty
      Hello, @Kwinkle, How are you doing?   Have you tried adding a Magnesium supplement?   The B Complex vitamins need magnesium to work properly, especially thiamine vitamin B 1.   Magnesium deficiency symptoms and Thiamine deficiency symptoms both include gas and bloating.  Thiamine deficiency symptoms also include loss of appetite and fatigue.   My gas and bloating resolved rather quickly when I took Benfotiamine (a form of thiamine shown to promote intestinal healing) and Magnesium Glycinate in addition to my B 50 Complex (all twice a day plus the following...).   I found Magnesium L-Threonate or Magnesium Taurate are better when taken with a form of thiamine called TTFD (Tetrahydrofurfuryl dusulfide) because all of these cross the blood brain barrier easily, which corrects the loss of appetite, fatigue and anxiety.    Like @Celiacandme said, keeping a food/mood/poo'd journal is a big help in finding problematic foods, and for making sure your diet is not carbohydrate heavy.  If you're eating a lot if processed gluten free facsimile foods, be aware they do not have vitamins and minerals added to them like their gluten containing counterparts.  For every 1000 kcal of carbohydrates, we need an extra 500 mg of thiamine to turn them into energy and not store them as fat.   Let us know how you're doing!
    • Scott Adams
      Yes, if you had symptoms when eating gluten ruling out celiac disease won't necessarily mean you'll be able to eat gluten again, although it might mean that you may be able to be less strict with your gluten-free diet. 
    • trents
      Have you considered the possibility that you might have NCGS (Non Celiac Gluten Sensitivity) rather than celiac disease? They share many of the same symptoms, the difference being that NCGS does not damage the lining of the small bowel. It is 10x more common than celiac disease. There is no test yet available for NCGS. Celiac disease must first be ruled out. In view of your genetic profile, I would give it consideration.
    • Kj44
×
×
  • Create New...