Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Medicine For Symptoms Of Celiac?


Jenesis06

Recommended Posts

Jenesis06 Newbie

******!!!!!!Please read the entire forum post before commenting!!!!*********

I follow a strict gluten-free diet and take my disease very seriously (My severe GI symptoms don't let me do otherwise).

However, on a very romantic dinner at a fancy restaurant with my boyfriend, I spied my absolute favoritest of all desserts: Key Lime Pie.

I know the filling is gluten-free, but obviously not the crust. I promised myself that I would diligently scrape off the bottom and eat the rest.

Once the dessert got to the table, it was like a robot high-jacked my brain. I threw all caution, sensibility, and SIX MONTHS of carefully

learning how to battle and deal with my new diet right out the pretty glass windows. I ate the whole thing. I was in shock the whole time

as well as enjoying Every.Last.Crumb on that plate.

Almost as soon as I was done my stomach began grumbling and churning like a volcano about to erupt. I didn't want to have that Delicious pie ruin

the experience for me, so I set off on a mission right as we left: Head to the pharmacy and see if I can find something, ANYTHING, that can help

alleviate the symptoms for the next two days.

As I frantically searched the GI isle at CVS and my stomach began it's deathly upheaval, I found a curious little purple box called "Digestive Advantage Chron's & Colitis Therapy".

I know that Chron's is very, very similar to Celiac's so I figured, why not? If it can help me for the next 48 hours, it'll be worth it.

I took 2 that night (directions say 1 and only take 2 if symptoms don't get better) because I know how bad my symptoms get, it is horribly

painful and disgusting and I followed up with one the next morning.

After an hour, my stomach stopped gurgling and churning. After 2 hours, my horrible painful gas disappeared. After 12 hours, I still didn't

need to run to the bathroom as if my insides were exploding. and after 16-24 hours, as my need to go to the bathroom NORMALLY emerged....it was normal.

No diarrhea, no gas, no painful bloating. Nothing, Nada, ZIP.

Now before I get a flurry of angry messages and comebacks, I just want to let you know that I KNOW THIS ISN'T A CURE. I also have NOT resumed

eating non-gluten free items. I am very aware that my villi got damaged that night because of my decision. I want you to know that I am still

on my diet, stricter, if possible, than before (just got a whole new set of cookware just for me).

However, I have read many an article that states over and over and over: The only way to treat symptoms is by diet change alone. I don't know

how many people are aware that there are medicines that can make your symptoms better if there was a case of cross-contamination or if you are

just starting this diet and still struggling with identifying risk factors. I know that when I first started, the first three months were hell.

I thought I was eating gluten-free, but there were many times where my ignorance made me sick, and because of that one slip up, I had to spend 2-3 days in agony over it.

Now I have something that is able to help me when these now rare occasions happen. If I am at a friend's house, at a party, or any other social

event I make sure that I am careful, but I know the odds of getting something contaminated sky-rocket. I'm a big fan of food and with that comes

a lot of risk. However this Digestive Advantage medicine is a miracle HELPER. something to take the pain away while I recover.

This might just be me, it might not work for you, however I felt it was worth bringing out in the open and see if anybody else has had a similar

experience to mine. Have you tried anything that would help with the symptoms? what was it? did it work?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mari Contributor

As I understand your problem when you eat certain foods, probably mostly carbohydrates, the bacteria/yeasts in your stomach and small intestine immedialely begin fermenting the food and the product you took stopped this and allowed the food to be digested normally. Unless you have an allergy, the gluten reaction occurs 3 to 6 hours after eating - it is a delayed autoimmune reaction.

A good digestive system won't allow bacteria to grow in your stomach and upper small intestine - the stomach acids kill them off so this may be an indication that you dont have enough acid. Some celiacs take Betaine-HCl to correct this. If you have had a problem with Candida/yeasts in the past or have taken antibiotics the yeasts may now be living in your intestine and if you eat lots of carbohydrates as you did with the key lime pie their numbers increase very rapidly and you start belching very soon. There are both medical and alternate ways to control this problem.

ravenwoodglass Mentor

You do know that just eating the filling off the pie is not safe, right? I hope you don't think that is as it is not. Just eating the top off a pizza isn't either or the chicken but not the crust from KFC. Even though you stopped the tummy issues your body will still respond by producing antibodies that can attack other organs including your brain. While it was nice of you to tell us about something that worked for you I hope others do not use use this med so they can 'cheat' on the diet. For an accidental injestion perhaps but only for that. Just because the tummy issues resolved doesn't mean your body isn't under attack.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - DayaInTheSun replied to DayaInTheSun's topic in Coping with Celiac Disease
      5

      Being a burden to family/friends

    2. - Kiwifruit replied to Kiwifruit's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Years of testing - no real answers

    3. - trents replied to Gill.brittany8's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      9 Year Old test results - help interpret

    4. - Gill.brittany8 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      9 Year Old test results - help interpret

    5. - Mnofsinger replied to Mnofsinger's topic in Related Issues & Disorders
      7

      Food Tasting Salty


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,835
    • Most Online (within 30 mins)
      7,748

    Art Glassman
    Newest Member
    Art Glassman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DayaInTheSun
      Interesting you mention MCAS. I have come across mcas before but I wasn’t entirely sure if that’s what it was. When I eat certain food like dairy or soy my face gets so hot and I feel flush and my heart rate shoot’s up. And sometimes my bottom lip swells or I get hives somewhere. This started happening after I had a really bad case of Covid.  Before that I was able to eat all those things (minus gluten) I was diagnosed with celiac way before I had Covid.  Hmm, not sure really. I may look for a different allergist my current one told me to take Zyrtec and gave me an epi pen. 
    • Kiwifruit
      This is all really useful information, thank you so much to you both.    I have a history of B12 and vit D deficiency which has always just been treated and then ignored until it’s now again.
    • trents
      Welcome to the forum, @Gill.brittany8! There are two main genes that have been identified as creating potential for developing celiac disease, HLDQ2 and HLDQ8. Your daughter has one of them. So, she possesses genetic the potential to develop celiac disease. About 40% of the general population carries one or both of these genes but only about 1% of the general population develops celiac disease. It takes both the genetic potential and some kind of triggering stress factor (e.g., a viral infection or another prolonged health problem or an environmental factor) to "turn on" the gene or genes. Unfortunately, your daughter's doctor ordered a very minimal celiac antibody panel, the tTG-IGA and total IGA. Total IGA is not even a test per celiac disease per se but is a check for IGA deficiency. If the person being checked for celiac disease is IGA deficient, then the scores for individual IGA tests (such as the tTG-IGA) will be abnormally low and false negatives can often be the result. However, your daughter's total IGA score shows she is not IGA deficient. You should consider asking our physician for a more complete celiac panel including DGP-IGA, TTG_IGG and DGP-IGG. If she had been avoiding gluten that can also create false negative test results as valid antibody testing requires having been consuming generous amounts of gluten for weeks leading up to the blood draw. Do you know if the GI doc who did the upper GI took biopsies of the duodenum and the duodenum bulb to check for the damage to the small bowel lining caused by celiac disease? Having said all that, her standard blood work shows evidence of possible celiac disease because of an elevated liver enzyme (Alkaline Phosphatase) and low values for hemoglobin.
    • Gill.brittany8
      Hi everyone  After years of stomach issues being ignored by doctors, my 9 y/o daughter finally had an upper endoscopy which showed a ton of stomach inflammation. The GI doctor ordered some bloodwork and I’m attaching the results here. Part will be from the CBC and the other is celiac specific. I’m not sure what’s relevant so I’m just including extra information just in case.   The results are confusing because they say “No serological evidence of celiac disease. tTG IgA may normalize in individuals with celiac disease who maintain a gluten-free diet. Consider HLA DQ2 and DQ8 testing to rule out celiac disease.” But just a few lines down, it says DQ2 positive. Can someone help make sense of this? Thanks so much.  result images here: https://ibb.co/WFkF0fm https://ibb.co/kHvX7pC https://ibb.co/crhYp2h https://ibb.co/fGYFygQ  
    • Mnofsinger
      Those are great points and some follow up thoughts and ideas. I think you're both stating the same thing in two different ways, but I appreciate the "accuracy" of what you're getting to.   1. Are you both stating that the "too salty of a taste" could be triggered by a histamine reaction, and the flavor is coming from the electrolytes? If that is the case, wouldn't the individuals mouth always be salty during a "Glutening" situation, or are we saying that the person could get "use to the flavor" until introducing food or beverage and that could be enough to "stir the pot" and notice the salty flavor? 2. To push back on "#1": If that were true anyone with issues of histamine releasing foods/treatments would experience the same thing. Also, I did not experience a situation where most beverages were "too salty". Thoughts?
×
×
  • Create New...