Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To gluten-free Lifestyle And Having Trouble: Help!


BethProverbs31

Recommended Posts

BethProverbs31 Newbie

I am new to a gluten-free lifestyle, not "officially" diagnosed yet, but MD and I suspect it might be the case because of symptoms and such. I have a 16 yr old daughter who has all kinds of bowel disturbances and since the intolerance is hereditary, think she might be as well...however she refuses to believe she is and won't let me get her tested. :(

Anyway, I have been avoiding gluten as much as is possible for about 2 1/2 weeks now. I am feeling better as far as mental clarity goes, but still feeling a little sluggish and haven't dropped any weight yet. I know it may be because I am not avoiding all gluten in products, but I am finding it very difficult to prepare gluten free meals with a husband who loves his pasta and sandwiches and a teen who balks at the idea of not being able to eat "regular" bread and pasta. I have not intentionally ingested the stuff, but am finding it confusing :unsure: reading labels on products that don't have gluten-free clearly marked on the label. I have been purchasing some gluten-free products, but with being on a strict budget, this has put a serious strain on our finances seeing that most of them are so expensive (seriously, 8 dollars for a bag of gluten-free pretzels and 5 bucks for a small box of lemon wafer cookies?! Sheesh!). And I really don't like many of the gluten-free breads/crackers/etc I have tried. Trial and error is getting rather expensive as well since the gluten-free products I don't like are getting wasted.

I am having the most difficulty figuring out what to take in my lunches for work. Sandwiches are out most times because I don't like the heavy gluten-free breads that are out there if they aren't freshly toasted. I tire of salads and fruit rather quickly when I take them so frequently. Strictly made gluten-free foods such as the pretzels I mentioned above and gluten-free frozen meals are rather expensive to be taking 4-5 days a week. I could cook and take leftovers, but a lot of days I don't have time to cook a decent meal (SIGH).

Does anyone have any ideas that will help me keep my sanity with these issues? :wacko::lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciavyn Contributor

I encourage you to look around these boards for ideas. Many of us are whole-hearted fans of Udi's bread which is even better than regular sandwich bread! And Tinkyada rice pasta and Schar pasta is excellent, and taste like regular pasta. I make them often.

Start buying naturally gluten free foods so you don't waste foods. If there is a gluten free item you really want to try, hop on here or google, and check out the reviews for that item. That should tell you quickly if it is a good option for you.

It is overwhelming in the beginning. Just give yourself some time to adjust, and for your family to adjust. It's a strain on everyone. But before long, you'll be surprised how easy this is...it is healthier, easier, and soon, you'll be throwing meals together like a pro!

Another help: get a cookbook of fast, easy recipes. I avoid the gluten free cookbooks, because it takes a lot of work to make gluten-y things gluten free. Instead, I got the biggest loser, an old fashioned Better Homes and Gardens cookbook, etc, and I started making regular dishes and subbing any ingredients that had gluten in them. it's super easy, and the meals are fast. Example: I cooked up potatoes and grilled chicken on Monday for dinner (had sandwiches for lunch Monday and tuesday). Tuesday night, I took leftover grilled chicken, cooked up some pasta, with sauce and provolone, and voila, dinner is served. Tomorrow, I'll make a crockpot meal of pork and saurkraut. That will last me two days with leftovers. I'll sub sandwiches in the in between days. if you don't like sandwiches, just take sandwich meat and cheese with you. I also eat rice chips, corn chips, regular chips. Salads here and there. Fruit. Rice crackers. Cereal (watch your labels!). Oatmeal. A frozen burrito (Glutenfreeda's). quesadilla (rice tortillas -- in freezer section). Gluten free pizza (I use frozen crusts as I don't have time to make my own). I whip up brazillian cheese bread, which is a tapioca flour based bun, or Robin Ryberg's biscuits. There are so many things you can make that will taste so yummy. Just take it easy, and ONLY add one extra trial food a week -- whether you buy it or make it. That way, you don't have a lot of pressure on you.

BethProverbs31 Newbie

Ty for the tips, Ciavyn! I tried some brands that are absolutely yummy....including the bread mixes from Chebe (I make turkey pepperoni rolls with the focaccia mix...yummy), and my absolute, out of this world good fave Italian rolls from French Meadow Bakery (SOOOOOO darn good!). Schar white bread is good IF YOU TOAST IT, but if you don't it doesn't taste very good or hold up well as a sandwich (learned that the hard way...lol), and it costs 6 dollars a small loaf at my local grocers. French Meadow Bakery has a site you can order gluten-free products from and they are reasonably priced (bread, rolls, pizza shells, tortillas, cookies, brownies, and muffins). They ship on Tuesdays (frozen so they are thawed by the time you get them, but per the bakery you can refreeze them) if you order by Friday of the previous week. Here is the link for their gluten-free products: Open Original Shared Link

sb2178 Enthusiast

I'm a huge fan of bean based soups and dips, with either some rice or potatoes (sweet) thrown in. Currently can't because of an elimination diet, but am looking forward to eating them again... Summer tends to be dip, winter is soup. Fritatas, crustless quiches, or egg "bakes" with cheese and vegetables are good too if you can eat the cheese.

These are actually all things I ate regularly pre-gluten-free. What I miss are good, easy to find cookies that aren't $0.50 each for a little one. Baking is definitely going to be explored soon. And you could easily sub in yogurt or cottage cheese for the crackers if you like either.

ex. White beans pureed with marinated artichokes, carrot rounds, rice crackers, apple

Sweet potato and black bean soup with apple

Pinto beans cooked with smoked turkey wing piece, pureed, celery sticks, crackers or rice, fruit

Chick peas mashed with roasted red peppers, maybe garlic, generous slosh of oil; feta; cucumber; fruit

Daal, rice, fruit

Yumm... now I want a second dinner.

BethProverbs31 Newbie

I'm a huge fan of bean based soups and dips, with either some rice or potatoes (sweet) thrown in. Currently can't because of an elimination diet, but am looking forward to eating them again... Summer tends to be dip, winter is soup. Fritatas, crustless quiches, or egg "bakes" with cheese and vegetables are good too if you can eat the cheese.

These are actually all things I ate regularly pre-gluten-free. What I miss are good, easy to find cookies that aren't $0.50 each for a little one. Baking is definitely going to be explored soon. And you could easily sub in yogurt or cottage cheese for the crackers if you like either.

ex. White beans pureed with marinated artichokes, carrot rounds, rice crackers, apple

Sweet potato and black bean soup with apple

Pinto beans cooked with smoked turkey wing piece, pureed, celery sticks, crackers or rice, fruit

Chick peas mashed with roasted red peppers, maybe garlic, generous slosh of oil; feta; cucumber; fruit

Daal, rice, fruit

Yumm... now I want a second dinner.

LOL...yeah, I haven't eaten much today except for some buttered brown rice and pear flavored applesauce, so all that you listed sounds good! The beans with smoked turkey sounds like a great idea...except maybe I would use lentils or white beans, so does the chickpea mixture (I love hummus), but doesn't feta have gluten in it? My daughter thinks I am nuts...the family does, too. I don't know why folks look at a gluten allergy as something weird or unlikely.

The Glutenator Contributor

As a suggestion, I would get tested for celiac (blood work and biopsy) before going gluten free. If your doctor is suspicious, ask for the tests now. If you feel better gluten-free, it will be really hard to go back on gluten to get your diagnosis, and many people often don't. It is really worth knowing if and your daughter are celiac vs gluten sensitive. As my doctor said, if you are celiac you absolutely cannot consume gluten because of the harm it does to your intestines. However, as awful as glutenation is to someone with a gluten allergy/intolerance, they don't have the GI damage. So, to fully understand what is going on in your body it is definitely worth getting fully tested, and before going gluten-free will so much easier!

sb2178 Enthusiast

My feta does not. But it's a block, not flavored crumbled stuff which could well have other nonsense in it.

Yeah, white beans or lentils, or black beans or even some combo would work well. The original recipe pretty much said make this, use whatever beans you want. I also throw in a bit of shallot or scallion, parsley, garlic, and a small chili pepper.

I've also been eating lots of rice and applesauce, but with the occasional dose of well cooked carrots and lamb. Fun fun...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BethProverbs31 Newbie

My feta does not. But it's a block, not flavored crumbled stuff which could well have other nonsense in it.

Yeah, white beans or lentils, or black beans or even some combo would work well. The original recipe pretty much said make this, use whatever beans you want. I also throw in a bit of shallot or scallion, parsley, garlic, and a small chili pepper.

I've also been eating lots of rice and applesauce, but with the occasional dose of well cooked carrots and lamb. Fun fun...

Ok, now you made me want to go buy some lamb! I haven't eaten lamb in a while...hubby doesn't like it...but me, YUM! :) Have a grest weekend and TY for replying!

Northern Celiac Newbie

I am new to a gluten-free lifestyle, not "officially" diagnosed yet, but MD and I suspect it might be the case because of symptoms and such. I have a 16 yr old daughter who has all kinds of bowel disturbances and since the intolerance is hereditary, think she might be as well...however she refuses to believe she is and won't let me get her tested. :(

Anyway, I have been avoiding gluten as much as is possible for about 2 1/2 weeks now. I am feeling better as far as mental clarity goes, but still feeling a little sluggish and haven't dropped any weight yet. I know it may be because I am not avoiding all gluten in products, but I am finding it very difficult to prepare gluten free meals with a husband who loves his pasta and sandwiches and a teen who balks at the idea of not being able to eat "regular" bread and pasta. I have not intentionally ingested the stuff, but am finding it confusing :unsure: reading labels on products that don't have gluten-free clearly marked on the label. I have been purchasing some gluten-free products, but with being on a strict budget, this has put a serious strain on our finances seeing that most of them are so expensive (seriously, 8 dollars for a bag of gluten-free pretzels and 5 bucks for a small box of lemon wafer cookies?! Sheesh!). And I really don't like many of the gluten-free breads/crackers/etc I have tried. Trial and error is getting rather expensive as well since the gluten-free products I don't like are getting wasted.

I am having the most difficulty figuring out what to take in my lunches for work. Sandwiches are out most times because I don't like the heavy gluten-free breads that are out there if they aren't freshly toasted. I tire of salads and fruit rather quickly when I take them so frequently. Strictly made gluten-free foods such as the pretzels I mentioned above and gluten-free frozen meals are rather expensive to be taking 4-5 days a week. I could cook and take leftovers, but a lot of days I don't have time to cook a decent meal (SIGH).

Does anyone have any ideas that will help me keep my sanity with these issues? :wacko::lol:

A couple of ideas for you

1st don't tell them what you're cooking.

2nd ask your daughter if she wants to continue being sick?

3rd I learned to bake my own snack foods www.glutenfreeonashoestring.com

I suffered from insomnia during my bad time last year and started watching rachel ray"30 minute meals"

if you can find your way around a kitchen you can make these meals

Bets wishes

Mike

Northern Celiac Newbie

LOL...yeah, I haven't eaten much today except for some buttered brown rice and pear flavored applesauce, so all that you listed sounds good! The beans with smoked turkey sounds like a great idea...except maybe I would use lentils or white beans, so does the chickpea mixture (I love hummus), but doesn't feta have gluten in it? My daughter thinks I am nuts...the family does, too. I don't know why folks look at a gluten allergy as something weird or unlikely.

No fate doesn't have gluten in it. But remember to aways check. My hummus has the following

Chickpeas

Red pepers

Lots of garlic

Tahini butter(made from sesame seeds)

Lemon juice

pinch of sea salt

cilantro

and cumin

The Biggest thing I found is to keep it fresh and simple

And when in doubt leave it out

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    2. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

    3. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    4. - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

    5. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,291
    • Most Online (within 30 mins)
      7,748

    DottieLyn
    Newest Member
    DottieLyn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.