Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To gluten-free Lifestyle And Having Trouble: Help!


BethProverbs31

Recommended Posts

BethProverbs31 Newbie

I am new to a gluten-free lifestyle, not "officially" diagnosed yet, but MD and I suspect it might be the case because of symptoms and such. I have a 16 yr old daughter who has all kinds of bowel disturbances and since the intolerance is hereditary, think she might be as well...however she refuses to believe she is and won't let me get her tested. :(

Anyway, I have been avoiding gluten as much as is possible for about 2 1/2 weeks now. I am feeling better as far as mental clarity goes, but still feeling a little sluggish and haven't dropped any weight yet. I know it may be because I am not avoiding all gluten in products, but I am finding it very difficult to prepare gluten free meals with a husband who loves his pasta and sandwiches and a teen who balks at the idea of not being able to eat "regular" bread and pasta. I have not intentionally ingested the stuff, but am finding it confusing :unsure: reading labels on products that don't have gluten-free clearly marked on the label. I have been purchasing some gluten-free products, but with being on a strict budget, this has put a serious strain on our finances seeing that most of them are so expensive (seriously, 8 dollars for a bag of gluten-free pretzels and 5 bucks for a small box of lemon wafer cookies?! Sheesh!). And I really don't like many of the gluten-free breads/crackers/etc I have tried. Trial and error is getting rather expensive as well since the gluten-free products I don't like are getting wasted.

I am having the most difficulty figuring out what to take in my lunches for work. Sandwiches are out most times because I don't like the heavy gluten-free breads that are out there if they aren't freshly toasted. I tire of salads and fruit rather quickly when I take them so frequently. Strictly made gluten-free foods such as the pretzels I mentioned above and gluten-free frozen meals are rather expensive to be taking 4-5 days a week. I could cook and take leftovers, but a lot of days I don't have time to cook a decent meal (SIGH).

Does anyone have any ideas that will help me keep my sanity with these issues? :wacko::lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciavyn Contributor

I encourage you to look around these boards for ideas. Many of us are whole-hearted fans of Udi's bread which is even better than regular sandwich bread! And Tinkyada rice pasta and Schar pasta is excellent, and taste like regular pasta. I make them often.

Start buying naturally gluten free foods so you don't waste foods. If there is a gluten free item you really want to try, hop on here or google, and check out the reviews for that item. That should tell you quickly if it is a good option for you.

It is overwhelming in the beginning. Just give yourself some time to adjust, and for your family to adjust. It's a strain on everyone. But before long, you'll be surprised how easy this is...it is healthier, easier, and soon, you'll be throwing meals together like a pro!

Another help: get a cookbook of fast, easy recipes. I avoid the gluten free cookbooks, because it takes a lot of work to make gluten-y things gluten free. Instead, I got the biggest loser, an old fashioned Better Homes and Gardens cookbook, etc, and I started making regular dishes and subbing any ingredients that had gluten in them. it's super easy, and the meals are fast. Example: I cooked up potatoes and grilled chicken on Monday for dinner (had sandwiches for lunch Monday and tuesday). Tuesday night, I took leftover grilled chicken, cooked up some pasta, with sauce and provolone, and voila, dinner is served. Tomorrow, I'll make a crockpot meal of pork and saurkraut. That will last me two days with leftovers. I'll sub sandwiches in the in between days. if you don't like sandwiches, just take sandwich meat and cheese with you. I also eat rice chips, corn chips, regular chips. Salads here and there. Fruit. Rice crackers. Cereal (watch your labels!). Oatmeal. A frozen burrito (Glutenfreeda's). quesadilla (rice tortillas -- in freezer section). Gluten free pizza (I use frozen crusts as I don't have time to make my own). I whip up brazillian cheese bread, which is a tapioca flour based bun, or Robin Ryberg's biscuits. There are so many things you can make that will taste so yummy. Just take it easy, and ONLY add one extra trial food a week -- whether you buy it or make it. That way, you don't have a lot of pressure on you.

BethProverbs31 Newbie

Ty for the tips, Ciavyn! I tried some brands that are absolutely yummy....including the bread mixes from Chebe (I make turkey pepperoni rolls with the focaccia mix...yummy), and my absolute, out of this world good fave Italian rolls from French Meadow Bakery (SOOOOOO darn good!). Schar white bread is good IF YOU TOAST IT, but if you don't it doesn't taste very good or hold up well as a sandwich (learned that the hard way...lol), and it costs 6 dollars a small loaf at my local grocers. French Meadow Bakery has a site you can order gluten-free products from and they are reasonably priced (bread, rolls, pizza shells, tortillas, cookies, brownies, and muffins). They ship on Tuesdays (frozen so they are thawed by the time you get them, but per the bakery you can refreeze them) if you order by Friday of the previous week. Here is the link for their gluten-free products: Open Original Shared Link

sb2178 Enthusiast

I'm a huge fan of bean based soups and dips, with either some rice or potatoes (sweet) thrown in. Currently can't because of an elimination diet, but am looking forward to eating them again... Summer tends to be dip, winter is soup. Fritatas, crustless quiches, or egg "bakes" with cheese and vegetables are good too if you can eat the cheese.

These are actually all things I ate regularly pre-gluten-free. What I miss are good, easy to find cookies that aren't $0.50 each for a little one. Baking is definitely going to be explored soon. And you could easily sub in yogurt or cottage cheese for the crackers if you like either.

ex. White beans pureed with marinated artichokes, carrot rounds, rice crackers, apple

Sweet potato and black bean soup with apple

Pinto beans cooked with smoked turkey wing piece, pureed, celery sticks, crackers or rice, fruit

Chick peas mashed with roasted red peppers, maybe garlic, generous slosh of oil; feta; cucumber; fruit

Daal, rice, fruit

Yumm... now I want a second dinner.

BethProverbs31 Newbie

I'm a huge fan of bean based soups and dips, with either some rice or potatoes (sweet) thrown in. Currently can't because of an elimination diet, but am looking forward to eating them again... Summer tends to be dip, winter is soup. Fritatas, crustless quiches, or egg "bakes" with cheese and vegetables are good too if you can eat the cheese.

These are actually all things I ate regularly pre-gluten-free. What I miss are good, easy to find cookies that aren't $0.50 each for a little one. Baking is definitely going to be explored soon. And you could easily sub in yogurt or cottage cheese for the crackers if you like either.

ex. White beans pureed with marinated artichokes, carrot rounds, rice crackers, apple

Sweet potato and black bean soup with apple

Pinto beans cooked with smoked turkey wing piece, pureed, celery sticks, crackers or rice, fruit

Chick peas mashed with roasted red peppers, maybe garlic, generous slosh of oil; feta; cucumber; fruit

Daal, rice, fruit

Yumm... now I want a second dinner.

LOL...yeah, I haven't eaten much today except for some buttered brown rice and pear flavored applesauce, so all that you listed sounds good! The beans with smoked turkey sounds like a great idea...except maybe I would use lentils or white beans, so does the chickpea mixture (I love hummus), but doesn't feta have gluten in it? My daughter thinks I am nuts...the family does, too. I don't know why folks look at a gluten allergy as something weird or unlikely.

The Glutenator Contributor

As a suggestion, I would get tested for celiac (blood work and biopsy) before going gluten free. If your doctor is suspicious, ask for the tests now. If you feel better gluten-free, it will be really hard to go back on gluten to get your diagnosis, and many people often don't. It is really worth knowing if and your daughter are celiac vs gluten sensitive. As my doctor said, if you are celiac you absolutely cannot consume gluten because of the harm it does to your intestines. However, as awful as glutenation is to someone with a gluten allergy/intolerance, they don't have the GI damage. So, to fully understand what is going on in your body it is definitely worth getting fully tested, and before going gluten-free will so much easier!

sb2178 Enthusiast

My feta does not. But it's a block, not flavored crumbled stuff which could well have other nonsense in it.

Yeah, white beans or lentils, or black beans or even some combo would work well. The original recipe pretty much said make this, use whatever beans you want. I also throw in a bit of shallot or scallion, parsley, garlic, and a small chili pepper.

I've also been eating lots of rice and applesauce, but with the occasional dose of well cooked carrots and lamb. Fun fun...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BethProverbs31 Newbie

My feta does not. But it's a block, not flavored crumbled stuff which could well have other nonsense in it.

Yeah, white beans or lentils, or black beans or even some combo would work well. The original recipe pretty much said make this, use whatever beans you want. I also throw in a bit of shallot or scallion, parsley, garlic, and a small chili pepper.

I've also been eating lots of rice and applesauce, but with the occasional dose of well cooked carrots and lamb. Fun fun...

Ok, now you made me want to go buy some lamb! I haven't eaten lamb in a while...hubby doesn't like it...but me, YUM! :) Have a grest weekend and TY for replying!

Northern Celiac Newbie

I am new to a gluten-free lifestyle, not "officially" diagnosed yet, but MD and I suspect it might be the case because of symptoms and such. I have a 16 yr old daughter who has all kinds of bowel disturbances and since the intolerance is hereditary, think she might be as well...however she refuses to believe she is and won't let me get her tested. :(

Anyway, I have been avoiding gluten as much as is possible for about 2 1/2 weeks now. I am feeling better as far as mental clarity goes, but still feeling a little sluggish and haven't dropped any weight yet. I know it may be because I am not avoiding all gluten in products, but I am finding it very difficult to prepare gluten free meals with a husband who loves his pasta and sandwiches and a teen who balks at the idea of not being able to eat "regular" bread and pasta. I have not intentionally ingested the stuff, but am finding it confusing :unsure: reading labels on products that don't have gluten-free clearly marked on the label. I have been purchasing some gluten-free products, but with being on a strict budget, this has put a serious strain on our finances seeing that most of them are so expensive (seriously, 8 dollars for a bag of gluten-free pretzels and 5 bucks for a small box of lemon wafer cookies?! Sheesh!). And I really don't like many of the gluten-free breads/crackers/etc I have tried. Trial and error is getting rather expensive as well since the gluten-free products I don't like are getting wasted.

I am having the most difficulty figuring out what to take in my lunches for work. Sandwiches are out most times because I don't like the heavy gluten-free breads that are out there if they aren't freshly toasted. I tire of salads and fruit rather quickly when I take them so frequently. Strictly made gluten-free foods such as the pretzels I mentioned above and gluten-free frozen meals are rather expensive to be taking 4-5 days a week. I could cook and take leftovers, but a lot of days I don't have time to cook a decent meal (SIGH).

Does anyone have any ideas that will help me keep my sanity with these issues? :wacko::lol:

A couple of ideas for you

1st don't tell them what you're cooking.

2nd ask your daughter if she wants to continue being sick?

3rd I learned to bake my own snack foods www.glutenfreeonashoestring.com

I suffered from insomnia during my bad time last year and started watching rachel ray"30 minute meals"

if you can find your way around a kitchen you can make these meals

Bets wishes

Mike

Northern Celiac Newbie

LOL...yeah, I haven't eaten much today except for some buttered brown rice and pear flavored applesauce, so all that you listed sounds good! The beans with smoked turkey sounds like a great idea...except maybe I would use lentils or white beans, so does the chickpea mixture (I love hummus), but doesn't feta have gluten in it? My daughter thinks I am nuts...the family does, too. I don't know why folks look at a gluten allergy as something weird or unlikely.

No fate doesn't have gluten in it. But remember to aways check. My hummus has the following

Chickpeas

Red pepers

Lots of garlic

Tahini butter(made from sesame seeds)

Lemon juice

pinch of sea salt

cilantro

and cumin

The Biggest thing I found is to keep it fresh and simple

And when in doubt leave it out

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.

    2. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      2

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,398
    • Most Online (within 30 mins)
      7,748

    Megannnnn
    Newest Member
    Megannnnn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoJo0611
      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.