Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Was She Unsensitive Or Am I Being Oversensitive....again?


kaki-clam

Recommended Posts

kaki-clam Enthusiast

So the Gatro doc is having me under go the Sitz Marker test..where I have to swallow some little radio-active disks that help them track how stuff moves through my colon....

Anyway, I made the x-ray tech check to see if the pill contained gluten or iodine. While he was out of the room, the girl who was working with him was asking me about my gluten allergy. I told her I had been diagnosed in September and had been gluten free ever since. She seemed really interested and so I went onto to tell her what a struggle it had been and how sick I had been.....BIG MISTAKE...she was like "oh really? my friends son was autistic so she stopped feeding him gluten and he was fine in like a week? I am really surprised you were even sick, I woulda thought you woulda been fine in a week."

my jaw dropped and thankfully the xray tech came in just at that moment, said the pill was fine, I took it he took the xrays and I went home.

I was hurt by what she said. I was really sick for like 6 months....I know that gluten effects everyone differently, but I felt belittled by what she said.

I am over it now..but I can't help but wonder if she was wrong to say what she did? Or was I wrong to be upset by it?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Until she talked with you, her only exposure to gluten allergies, intolerances, and celiac was the one friend with the Autistic child. She was surprised because she didn't know about the rest of the issue. Now she has heard about it and knows more than before. You shouldn't be upset. You just educated someone, even a little bit. I don't think she meant to make you feel bad, I think she was just surprised about something she didn't know.

kaki-clam Enthusiast

Until she talked with you, her only exposure to gluten allergies, intolerances, and celiac was the one friend with the Autistic child. She was surprised because she didn't know about the rest of the issue. Now she has heard about it and knows more than before. You shouldn't be upset. You just educated someone, even a little bit. I don't think she meant to make you feel bad, I think she was just surprised about something she didn't know.

Awesome way to think about it. Thank you!

Roda Rising Star

So the Gatro doc is having me under go the Sitz Marker test..where I have to swallow some little radio-active disks that help them track how stuff moves through my colon....

Anyway, I made the x-ray tech check to see if the pill contained gluten or iodine. While he was out of the room, the girl who was working with him was asking me about my gluten allergy. I told her I had been diagnosed in September and had been gluten free ever since. She seemed really interested and so I went onto to tell her what a struggle it had been and how sick I had been.....BIG MISTAKE...she was like "oh really? my friends son was autistic so she stopped feeding him gluten and he was fine in like a week? I am really surprised you were even sick, I woulda thought you woulda been fine in a week."

my jaw dropped and thankfully the xray tech came in just at that moment, said the pill was fine, I took it he took the xrays and I went home.

I was hurt by what she said. I was really sick for like 6 months....I know that gluten effects everyone differently, but I felt belittled by what she said.

I am over it now..but I can't help but wonder if she was wrong to say what she did? Or was I wrong to be upset by it?

You would be suprised to learn how little other healthcare associates really know about gluten and celiac disease. I like the other posters comment to look at it as an opportunity to educate someone. I am in the allied health profession myself and I have found it to be an opportunity to educate others, even doctors. I see alot of patients that come in for x-rays and ct scans that have symptoms that should warrent screening for celiac. Word is getting around the hospital that I have celiac and others are referring people to come talk to me about it. Oh btw the capsule you took isn't radioactive, so no worry there. It is radioopaque, meaning it will show up on the x-ray. Here is a link

Open Original Shared Link

luvs2eat Collaborator

If there's one thing I've learned here is that if you put 100 celiacs in a room, you'll have 100 different sets of symptoms. She didn't mean to be ignorant, but she only has one frame of reference.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,887
    • Most Online (within 30 mins)
      7,748

    Judy Kilpstrick
    Newest Member
    Judy Kilpstrick
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • emily 1
      Very helpful. Oh yes, I am quite fastidious about not falling off the diet. It's just that the list of things I must add to the restrictions seems to grow.   
    • Barcino
      I know this post is old but was wondering if you ever resolved this. My son is in the same situation. Villi healed but gastritis / duodenitis remain and calprotectin elevated. Now testing for crohns which I am freaking out about. 
    • trents
      I did a little research and one kind of aphthous ulcer (aka, canker sore) is the Herpetiform canker sore. It is well-known that celiac disease can cause a skin rash known as herpetiformis dermatitis. I can't help but wonder if there is a connection. Celiac disease is also listed in this article as a cause for canker sores: https://www.mayoclinic.org/diseases-conditions/canker-sore/symptoms-causes/syc-20370615 Are you observing a strict gluten free diet? You might also look into reducing iodine consumption as that is known to help with herpetiformis dermatitis. Perhaps it will help with your canker sores as well. 
    • knitty kitty
      Do you wear an M-95 mask left over from the pandemic when you handle flour? Do you eat out in restaurants? Do you take vitamins?  
    • knitty kitty
      These articles are helpful.
×
×
  • Create New...