Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To All This


Lilymato1sonwithCD

Recommended Posts

Lilymato1sonwithCD Newbie

The day he was born I breastfed him he seemed very gassy in pain and very wet stools at each feed not knowing at the time the pasta bread and all the foods I ate was hurting him then on November 2, 2009 we chose o feed him after many years of feeding him pasta bread pizza or anything he wanted we cut back. On november 20th we had his blood tested for celiac disease the test came back and I say it what the ped said " borderline celiac disease" so we went back to the old foods he loved and on 11/30 to 12/3/2009 he was tested for all food and product care even eniromental allergens. it can back for all meat and shell fish wheat all dairy (inclueding eggs) green beans soy rice carrots but not corn or any others by the patch test or under the skin he is allergic to dogs cats and dust mites he is allergic to all kinds of non-organic care products and cleaners we use around the home.

I need more then just papers to tell me what to use or feed him he hates the new foods what can I do please someone help me! :blink:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Grace'smom Explorer

The day he was born I breastfed him he seemed very gassy in pain and very wet stools at each feed not knowing at the time the pasta bread and all the foods I ate was hurting him then on November 2, 2009 we chose o feed him after many years of feeding him pasta bread pizza or anything he wanted we cut back. On november 20th we had his blood tested for celiac disease the test came back and I say it what the ped said " borderline celiac disease" so we went back to the old foods he loved and on 11/30 to 12/3/2009 he was tested for all food and product care even eniromental allergens. it can back for all meat and shell fish wheat all dairy (inclueding eggs) green beans soy rice carrots but not corn or any others by the patch test or under the skin he is allergic to dogs cats and dust mites he is allergic to all kinds of non-organic care products and cleaners we use around the home.

I need more then just papers to tell me what to use or feed him he hates the new foods what can I do please someone help me! :blink:

Lili, I feel your pain. That is a huge diagnosis to contend with. I think many of the moms on this page are only dealing w/celiac; or perhaps celiac and nut/dairy/egg allergies. I would suggest calling your area Children's hospital and making an appointment ASAP with a nutritionist. I did this myself this past week and it changed my life. You'll need a lot of guidance. Best of luck to you. I'll say a prayer for you! Emily

nmorris087 Newbie

Hi! I joined this forum for my own dietary issues BUT wanted to say that I have a son who has severe GI issues--well he did, he is in "remission" now...he has Eosinophilic gastroenteritis (www.apfed.org) and was on special formula ONLY for years and then gradually added things back in, but we lived many many years on a handful of foods. I recommend you see a GOOD allergist. GI, and nutritionist at a children's hospital. If you'd like, we can talk on list or off about the challenges of having a child who is allergic to almost everything! I have been there and it can be very challenging...mentally and physically :)

Nancy

Lili, I feel your pain. That is a huge diagnosis to contend with. I think many of the moms on this page are only dealing w/celiac; or perhaps celiac and nut/dairy/egg allergies. I would suggest calling your area Children's hospital and making an appointment ASAP with a nutritionist. I did this myself this past week and it changed my life. You'll need a lot of guidance. Best of luck to you. I'll say a prayer for you! Emily

  • 2 weeks later...
T.H. Community Regular

I've seen a website that might be of some use! Open Original Shared Link You make a free account, and then can put in every allergy your son has, and it will let you search for recipes that exclude all the allergens. It's not a big site - I think it's only been around a year or two - so there are not hordes of recipes, I'll be honest. But the people there are also sufferers from numerous allergies, usually, so they might have some good advice and suggestions, at the very least.

The day he was born I breastfed him he seemed very gassy in pain and very wet stools at each feed not knowing at the time the pasta bread and all the foods I ate was hurting him then on November 2, 2009 we chose o feed him after many years of feeding him pasta bread pizza or anything he wanted we cut back. On november 20th we had his blood tested for celiac disease the test came back and I say it what the ped said " borderline celiac disease" so we went back to the old foods he loved and on 11/30 to 12/3/2009 he was tested for all food and product care even eniromental allergens. it can back for all meat and shell fish wheat all dairy (inclueding eggs) green beans soy rice carrots but not corn or any others by the patch test or under the skin he is allergic to dogs cats and dust mites he is allergic to all kinds of non-organic care products and cleaners we use around the home.

I need more then just papers to tell me what to use or feed him he hates the new foods what can I do please someone help me! :blink:

Kelly&Mom Rookie

Hi Lily,

It can be so challenging feeding these kids, huh!? My daughter and I were diagnosed with celiac disease around the same time. I have an easier time accepting my food limitations. She's definitely pickier when gluten-free foods don't taste "the same." She wasn't feeling that much better so we went back to the gastro doctor and he says she also has IBS so here we go again, cutting out so many good foods or limiting them :( This is when she finally voiced "It's just not fair....." where she has never really complained before. We're working through it. Got new cookbooks, experimenting, shopping and finding out what she likes. Hang in there!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,145
    • Most Online (within 30 mins)
      7,748

    twils
    Newest Member
    twils
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bebee
      Thank you for your input!  I would really like to know if I have celiac disease because you need make sure you are not getting any cross contamination due to cancer concerns.  I guess I need to start with a knowledgeable Gastroenterologist. Thank you again!
    • trents
    • Skg414228
      Correct. I’m doing both in the same go though. Thanks for clarifying before I confused someone. I’m doing a colonoscopy for something else and then they added the endoscopy after the test. 
    • trents
      It is a biopsy but it's not a colonoscopy, it's an endoscopy.
    • Skg414228
      Well I’m going on the gluten farewell tour so they are about to find out lol. I keep saying biopsy but yeah it’s a scope and stuff. I’m a dummy but luckily my doctor is not. 
×
×
  • Create New...