Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where Do I Start


whitey

Recommended Posts

whitey Rookie

Just had the confirmation letter from the hospital telling me i got coeliacs, right where do i start what can i eat,what can i drink, been looking around shops not a lot of choice, I've starved myself for three days not knowing what i can eat, bought some bread from tescos, yukkkkk taste foul is this what everythings going to taste like, im now waiting to see a dietitian, so i thought id join a forum for some help from the people who know,

if this is in the wrong place i apologise im sure someone wil tell me what to do later

looking forward too talking to you and geting your help advise and tips to make food taste nicer.

thank you

steven.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Looking for answers Contributor

Hi,

Although it seems overwhelming (and sometimes scary), it will get better with time. You will see that this diet isn't really that restricting (maybe a little tricky is all). I recommend that you carefully read through this following article: https://www.celiac.com/celiac-disease/the-gluten-free-diet-101-a-beginners-guide-to-going-gluten-free-r1640/.

This is a great place for support so come frequently with your questions, concerns and frustrations. They're welcome here.

Also, as far as the gluten-free bread goes, most don't taste that great. I quit eating grains altogether, but I'm sure others on here can provide tips on good alternatives.

Monklady123 Collaborator

I'm very new also, as you can see by my post count. But I can recommend one thing right off the bat.... go back and read this board! I started on page 100 just for fun and am working my way back toward page one. I'm taking notes on all the good tips, brands, and recipe ideas that I see. For example, try Udi's bread. And there is a gluten-free beer. And Bob's Red Mill chocolate cake mix is good. As is Namasta's spice cake. lol.. (you can see where my mind is -- bread, beer, and desert, lol) B)

As for what you can eat, really it's just about everything (as long as you don't have other food issues... so far I don't). Last night for dinner I made chicken (used chicken thighs), Trader Joe's simmer sauce, rice, and edamame, and a salad. All things I would have made before. The only changes I made were using oil and vinegar for my dressing, and no croutons. Sat out on the deck with my husband later with a lovely gin and tonic (VERY hot here) and some corn chips.

So it is possible. The things I know will be a problem will be restaurants, and church potlucks. Well the potluck will be easier because at least I can bring something that I can eat. But I think as much as possible "plain is best"... i.e., plain meat, potatoes, veggies, fruit, yogurt if you can do dairy. -- At some point I know I'm going to miss pizza, but I'm still new enough to this that I'm enjoying feeling better more than I'm missing pizza.

Also, go browse through the store when you're in a good frame of mind. I was pleasantly surprised to see what was gluten-free in my regular grocery store. I know I'll find more things at Whole Foods but I'll also find higher prices so I plan to stay away from there as much as possible. (except for the Udi's bread which I want to try soon.)

I hope that helps a little bit.

kareng Grand Master

Lots of stuff is naturally gluten-free. Meat, veggies, fruit, rice. Some of the sauces you might put on them or cook them with are not. Some broths even have wheat in them. The main thing is to read labels. The bread tastes better if you toast it.

nikki-uk Enthusiast

Just had the confirmation letter from the hospital telling me i got coeliacs, right where do i start what can i eat,what can i drink, been looking around shops not a lot of choice, I've starved myself for three days not knowing what i can eat, bought some bread from tescos, yukkkkk taste foul is this what everythings going to taste like, im now waiting to see a dietitian, so i thought id join a forum for some help from the people who know,

if this is in the wrong place i apologise im sure someone wil tell me what to do later

looking forward too talking to you and geting your help advise and tips to make food taste nicer.

thank you

steven.

Hi Steven! - glad you found us, you're in the right place :D

I'm in the UK and both my husband and son have coeliac disease.

Getting used to the diet does seem tricky at first - but I can assure you it does get easier in time.

I distinctly remember the first food shopping adventure after my hubby's dx - it took HOURS!! :rolleyes: .... but take heart, reading labels will become second nature.

It did seem that my husband ate jacket potato with cheese every day for 2 weeks 'til we got a handle on the gluten-free diet :lol:

I think the mistake we made (and most do) is to try and continue to eat the same type of foods - but replacing them with gluten-free versions.

This (In my opinion) will fail every time. Your taste buds are used to light springy gluten bread. gluten-free bread just ain't gonna cut it (YET)

Here's the great thing ...eventually you will forget what gluten bread tastes like.Your tastebuds change and you will come to actually like some of the replacement foods!

..But for now try to keep it simple.

Go back to salads with ham, eggs,cheese.

Potatoes (mash,jacket,new)

Sausages (Tesco stock a gluten-free one 'Jimmy's farm chipolatas')

Meats with potato and veg.

Once you get a little more confident you will tend to get a tad more adventurous in the kitchen.

For my hubby it was a blessing in disguise - it totally changed his diet (for the better, more veg + fruit) and it also forced him back into the kitchen to make meals from scratch.

Another thing - if you were dx by biopsy you are entitled to some prescription gluten-free food from your gp (e.g gluten-free pasta,flour, bread)

Also, have you joined Open Original Shared Link?

With membership they send out a booklet with all the latest gluten-free foods by manufacturers (we referred to it as 'the bible' in the beginning as it was so useful)

All the main supermarkets have a 'free from' section (the best I think is in large Sainbury's) but we only buy a few bits from there. The bulk of our food is fresh meat, veg, fruit (although the arrival of 'genius' bread was something of a revolution in our house!, but at £2.49 :o a small loaf my coeliacs don't eat alot of it )

Another site you may want to take a peek at (especially with specific questions about UK brands) is here

Open Original Shared Link

Please don't hesitate to ask any more questions - there's a wealth of info here :D

Black Sheep Apprentice

Hi whitey, glad you made it here! It is kind of scary sometimes, not to mention overwhelming, when you first find out you have this disease, and that you can never eat anything with gluten in it again. I've been g.f. since March of this year, and I've found it's just like Looking for answers said, once you realize all the stuff out there that you can eat, you'll realize that it is indeed more tricky than restricting. At first I sort of panicked, thinking, I can not go without my bread! So I learned to bake g.f. bread that honestly, tastes so much better than the regular white or wheat breads, it's amazing. There are a couple of brands of really good g.f. bread available here in the States, but from the way you spell "celiac" I'm guessing you're not in the States? Not to worry, there are people on this board from all over, and in fact, there's a forum here just for those from outside the States--you might be able to get some good info there, re. what's available where you are at. Here's the link: https://www.celiac.com/forums/forum/38-gluten-free-international-room-outside-usa/

Believe me, once you've been off gluten for awhile, and start healing and feeling good again, you'll not want anything to do with it; and will look at the stuff as what it really is for you and all of us: Poison.

Black Sheep Apprentice

Well, what timing! :lol: Here I am hoping that someone outside the States can give you some good advice, and no sooner do I hit "Post" than there's someone to help. This is great!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



whitey Rookie

WOW what a read I've been looking for a way of getting out of kissing the wife, (joke) :lol:

its gonna be a bit of a struggle for sure my diet was rubbish in the beginning, and i do all the kooking in my house cos the wife burns every thing,waaa, I'll be looking for recipes for things im gonna miss simple things like gravy ect.

thank you for the read

GlutenFreeManna Rising Star

WOW what a read I've been looking for a way of getting out of kissing the wife, (joke) :lol:

its gonna be a bit of a struggle for sure my diet was rubbish in the beginning, and i do all the kooking in my house cos the wife burns every thing,waaa, I'll be looking for recipes for things im gonna miss simple things like gravy ect.

thank you for the read

Gravy is one of the easiest things to make gluten free. Here's a simple recipe: Open Original Shared Link Just make sure the broth that you use is gluten free and you should be fine. Cornstarch should be gluten free (or at least it is in the US) however if you can't have cornstarch there are many other substitutes to use as thickeners: potato starch, rice flour, arrowroot powder are just a few. I know it's overwhelming right now, but it just takes a little more time and planning--instead of buying the canned gravy or one of those instant packets you just make it from scratch. You will be fine once you adjust and you may even find some naturally gluten-free foods you really like that you hardly ate before.

i-geek Rookie

WOW what a read I've been looking for a way of getting out of kissing the wife, (joke) :lol:

its gonna be a bit of a struggle for sure my diet was rubbish in the beginning, and i do all the kooking in my house cos the wife burns every thing,waaa, I'll be looking for recipes for things im gonna miss simple things like gravy ect.

thank you for the read

I've found that brown rice flour thickens sauces beautifully (I used it to thicken beef stroganoff last week, which we ate on gluten-free pasta), and I used corn starch for gravies even before I went gluten-free. There are a lot of work-arounds, and you'll learn them as you go. I know this seems daunting at first. Take your time. Keep it simple until you get the hang of ingredients. You could season a steak with salt and pepper, broil it, and serve it with a baked potato and side veg, seasoned with butter and salt, maybe some herbs. All gluten-free and hey, it sounds tasty to me. After a while, you'll be feeling so much better and you'll probably realize that you're eating so much better than you ever had before. My husband and I sure are. It's so nice not to feel awful all the time that I don't miss things like gluten bread anymore. Sure I miss the convenience of being able to grab a sandwich in the caf for a quick lunch, but I have so much more energy to cook and food tastes better now, so I cook often enough to bring tasty leftovers for lunch (and my coworkers end up eying my lunches as they eat soggy sandwiches :D).

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,263
    • Most Online (within 30 mins)
      7,748

    3rdFlowers
    Newest Member
    3rdFlowers
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Yes, I can imagine. My celiac journey started with a rejection of a blood donation by the Red Cross when I was 37 because of elevated liver enzymes. I wasn't a drinker and my family doctor checked me for hepatitis and I was not overweight. No answers. I thought no more about it until six years later when I landed a job in a healthcare setting where I got annual CMP screenings as part of my benefits. The liver enzymes were continually elevated and creeping up every year, though they were never super high. My primary care doc had no clue. I got really worried as your liver is pretty important. I finally made an appointment with a GI doc myself and the first thing he did was test me for celiac disease. I was positive. That was in about 1996. After going on a gluten-free diet for three months the liver enzymes were back in normal range. Another lab that had gotten out of whack that has not returned to normal is albumin/total protein which are always a little on the low side. I don't know what that's about, if it's related to the liver or something else like leaky gut syndrome. But my doctors don't seem to be worried about it. One thing to realize is that celiac disease can onset at any stage of life. There is a genetic component but there is also an epigenetic component. That is, the genetic component is not deterministic. It only provides the potential. There needs also to be some health or environmental stressor to activate the latent gene potential. About 40% of the population have the genetic potential to develop celiac disease but only about 1% actually do.
    • cristiana
      Hello @Heather Hill You are most welcome.  As a longstanding member and now mod of the forum, I am ashamed to say I find numbers and figures very confusing, so I rarely stray into the realms of explaining markers. (I've self-diagnosed myself with dyscalculia!)  So I will leave that to @Scott Adams or another person. However as a British person myself I quite understand that the process with the NHS can take rather a long time.  But just as you made a concerted effort to eat gluten before your blood test, I'd advise doing the same with eating gluten before a biopsy, in order to show if you are reacting to gluten.  It might be worth contacting the hospital or your GPs secretary to find out if they know what the current waiting time is. Here is a page from Coeliac UK about the current NHS recommendations. https://www.coeliac.org.uk/information-and-support/coeliac-disease/getting-diagnosed/blood-tests-and-biospy/#:~:text=If you remove or reduce,least six weeks before testing. Cristiana  
    • MI-Hoosier
      Thanks again. My mom was diagnosed over 50 years ago with celiac so grew up watching her deal with the challenges of food. I have been tested a few times prior due to this but these results have me a bit stunned. I have a liver disease that has advanced rapidly with no symptoms and an allergy that could be a contributing factor that had no symptoms. I guess I’ll call it lucky my Dr ordered a rescreen of a liver ultrasound from 5 years ago that triggered this or I would likely have tripped into cirrhosis. It’s all pretty jarring.
    • Heather Hill
      Many thanks for your responses, much appreciated.  The tests did include tTg IgA and all the other markers mentioned.  I also had sufficient total IgA so if I'm reading the Mayo clinic thing correctly, I didn't really need the anti-deaminated gliadin marker? So, if I am reading the information correctly do I conclude that as all the other markers including tTg IgA and DGP IgG and tTg IgG and EMA IgA are all negative, then the positive result for the immune response to gliadin, on it's own, is more likely to suggest some other problem in the gut rather than Coeliac disease? Until I have a view from the medics (NHS UK) then I think I will concentrate on trying to lower chronic inflammation and mend leaky gut, using L glutamine and maybe collagen powder. Thank you for your help so far.  I will get back in touch once I have a response, which sadly can take quite a long time.   Kindest Heather Hill 
    • trents
      To put this in perspective, most recent pretest "gluten challenge" guidelines for those having already been eating reduced gluten or gluten free for a significant time period is the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks leading up to the day of testing (antibody or biopsy). And I would certainly give it more than two weeks to ensure a valid test experience. Short answer: If it were me, yes, I would assume I have celiac disease and launch full bore into gluten-free eating. I think the tTG-IGA is reliable enough and your score is solid enough to make that a reasonable conclusion. Here is an article to help you get off to a good start. It's easy to achieve a reduced gluten free state but much more difficult to achieve consistency in truly gluten-free eating. Gluten is hidden in so many ways and found in so many food products where you would never expect to find it. For example, soy sauce and canned tomato soup (most canned soups, actually), pills, medications, health supplements. It can be disguised in terminology. And then there is the whole issue of cross contamination where foods that are naturally gluten free become contaminated with gluten incidentally in agricultural activities and manufacturing processes: Eating out at restaurants is a mine field for those with celiac disease because you don't know how food is handled back in the kitchen. Gluten free noodles boiled in the same water that was used for wheat noodles, eggs cooked on the same griddle that French toast was, etc.  
×
×
  • Create New...