Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Starting To Sink In.

Kingschild

Recommended Posts

Kingschild Newbie
Kingschild
Posted

My daughter was diagnosed with celiac disease one week ago. My doctor wants to test me also since I have so many of the symptoms.

I decided to just read up on celiac disease and lactose intolerance because that seems to be the most common things that bother us.

Today is the 1st day that I haven't had a stomach ache in a very long time. :) My daughter is showing significant improvement also. She's 11 years old.

It's so hard to change the way you think about food. But I know in time I'll get better at this.

I appreciate some comments I've read here about cross-contamination. I just used the same knife for me and dh's peanut butter and jelly sandwiches. :o Mine was on a gluten-free rice cake - his was on wheat bread. Live and learn. :)

So...any tips on making my home more safe for us would be greatly appreciated.

{{{yawn}}} It's late...I'll come back and chat with everyone tomorrow. ;)

Mysti

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


tarnalberry Community Regular
tarnalberry
Posted

Welcome to the site! It is a great resource!

BTW, if you still need to get testing YOU should NOT be gluten-free yet. You need to be consuming gluten for the tests to be accurate.

KaitiUSA Enthusiast
KaitiUSA
Posted

Welcome to the board!

If you have any questions just ask..there are so many knowledgable people on this site. You will find great information and support

paradise2004 Rookie
paradise2004
Posted

Some things that help: use separate toasters for gluten-free and non gluten-free bread. At restaurants, when ordering salads, ask for no croutons. Check shampoos and make-up for possible ingredients. Basically just be really careful. Good luck, and as time goes on it does get a lot easier.

Carriefaith Enthusiast
Carriefaith
Posted

Welcome!

So...any tips on making my home more safe for us would be greatly appreciated.

*Label things like butter, peanut butter, mayonnaise, jam, dip, ect. "gluten free".

*Be careful when using non-stick pans that have cuts on them, gluten can get trapped inside the cracks.

*Get rid of wooden cooking utensils/cutting boards that were used to handle food containing gluten.

*You would also need a new and separate deep fryer.

*Wash all surfaces before placing food on them.

Kingschild Newbie
Kingschild
Posted
  • Author

Thanks for the tips. I didn't know I needed to still be eating gluten for the test. I've been gluten-free for 3 or 4 days. I'm getting tested tomorrow...should I eat something with gluten today?

Did any of you change your whole family over to gluten-free eating to make things simpler?

celiac3270 Collaborator
celiac3270
Posted

For the blood test? Sure...can't hurt.

For endoscopy/biopsy, yes, but don't eat or drink after midnight for purposes of testing. If you're having that test done, the hospital has probably told you this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,218
    • Most Online (within 30 mins)
      7,748
    JTaylor
    Newest Member
    JTaylor
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Family education

      By Rogol72 · Posted

      @sillyyak52, If it makes you feel any better, I have a sibling who thinks the dinner table (at fine dining restaurants, and less formal pub grub settings etc.) is a personal buffet table and dips into the food of whoever is sitting beside or opposite to them just to get a taste (no plate is safe!) ... never asks for permission ... and has no consideration of gluten cross contamination even though I've explained it diplomatically with articles, pictures of dermatitis herpetiformis (which I've had for years) like @knitty kitty and I both suggest you do. I avoid that sibling at restaurants now and sit at the opposite end of the table out of arms reach! I've had similar treatment at a recent siblings 60th BBQ with family and friends (brought my own food and burger), where I was told (in a very rude manner) "tough luck, there's nowhere safe ... just cook your burger on the BBQ" which was cross contaminated ... I stood my ground and asked for a clean frying pan to cook my burger safely and separately. 
    • Deanne jones
      Can food allergies like milk and soy flatten villi?

      By Deanne jones · Posted

    • trents
      Dangerously underweight, Perfect gluten free and insomnia

      By trents · Posted

      knitty kitty makes a good point. Avocados are high in histamines. So are bananas. Both also trigger histamine production in the body when consumed so there's a double whammy with those two foods for those struggling with histamine intolerance/MCAS
    • knitty kitty
      3 years with Celiac, now I appear fine.

      By knitty kitty · Posted

      @Sharke, The updated guidelines for a gluten challenge are to eat ten grams of gluten per day for two weeks minimum.  Lesser amounts of gluten (3 grams) don't provoke an immune response strong enough that the antibodies leave the gastrointestinal tract and get into the blood where they can be measured in tTg blood tests.   Have no doubt that the antibodies made in the small intestine are doing damage there, even if you don't suffer severe symptoms, yet. Did you react to barley prior to going gluten free? Have you been checked for chronic autoimmune gastritis which is another autoimmune disease that sometimes occurs with Celiac Disease? Have you been checked for nutritional deficiencies?  Thiamine deficiency (Gastrointestinal Beriberi) can cause constipation and/or diarrhea, abdominal pain, and weight loss.   Thiamine Deficiency Disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/  
    • knitty kitty
      Family education

      By knitty kitty · Posted

      @sillyyak52, Count another one in the same boat!  My family has always been in denial.  They said my tummy aches were a ploy to miss school.  My parents passed from health problems associated with uncontrolled Celiac Disease (Abdominal Aortic Aneurysm and Glioblastoma brain tumor).  My sister still has her head buried in the sand.   I agree with @Rogol72, try the consequences of untreated celiac disease shock treatment.  Sometimes people are just scared of having to change their comfortable lifestyle.
×
×
  • Create New...