Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Home Test

tehjrow

Recommended Posts

tehjrow Rookie
tehjrow
Posted

So I got my Celiac Home test two weeks ago. Since then I've been eating gluten everyday to prepare for the test. Since I've been miserably sick the past two weeks I think i'm ready to take it tonight.

Has anyone else used one of these?

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

How long were you gluten free before you started your challenge? It seems your body is giving you the answer since you have been so ill on the challenge. I didn't see any notes on the link that mentioned how long you have to challenge if you have been gluten free before you order the test. I could have missed it though. However with conventional blood tests and endos the time frame for a challenge is about 3 months.

tehjrow Rookie
tehjrow
Posted
  • Author

I was only gluten free for 1 week so i'm still not sure it's celiac. I have a DR appt in a month.

Skylark Collaborator
Skylark
Posted

I was only gluten free for 1 week so i'm still not sure it's celiac. I have a DR appt in a month.

Antibodies don't go away in only a week gluten-free. You should get a correct result with the test since you're back on wheat.

coffeetime Explorer
coffeetime
Posted

If your results are negative you might still want to do conventional testing. I ordered three of the kits to test my children with. Sadly I did not read the website well enough and didn't realize at the time that the test only looked at one marker.I found I was positive (through a celiac panel at my doctors office) after my brother was diagnosised and wanted to screen them without effecting their insurance options down the road. I wish there was a lab you could just go to and say my name is Micky Mouse, test me and release that information to me only.

So I got my Celiac Home test two weeks ago. Since then I've been eating gluten everyday to prepare for the test. Since I've been miserably sick the past two weeks I think i'm ready to take it tonight.

Has anyone else used one of these?

Open Original Shared Link

tehjrow Rookie
tehjrow
Posted
  • Author

It did test negative last night. Still have a DR appt in a month though. I've been dealing with this for almost 30 years, it's time to know for sure.

ravenwoodglass Mentor
ravenwoodglass
Posted

It did test negative last night. Still have a DR appt in a month though. I've been dealing with this for almost 30 years, it's time to know for sure.

Do be sure to stay on the gluten until all your testing is finished. As soon as the tests are done you can start on a dietary trial. You don't need to wait for the results.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nora-n Rookie
nora-n
Posted

We have a celiac home test here, and it is the IgA type ttg test.

So if the total IgA is low, it will be negative.

Someone on the forum in our country tested slightly positive (with lots of symptoms) and the hospital test was negative, so we know it is a bit more sensitive than the hospital test (different cutoffs probably)

The producer of the test answered that weakly positive still means positive.

One needs to consume a lot of gluten to test positive on the blood tests, the latest recommendation I have seen is at least 0,5 grams gluten per kg, which is 35 grams for someone weighing 70 kg, and that is a lot of slices of bread and pizza, and that is for at least six weeks, better three to six months.

The ttg test measures something that is made when lots of tissue is destroyed, you need tissue damage, and the run this forst so they have some kind of clue of who to biopsy. The gold standard test is a positive biopsy with damage to the villi, and some years ago they only diagosed them with lots of villi damage, or total loss of villi.

Still, 20% of those with total villous trophy hav negative blood tests, and half of those with patchy damage have negative blood tests.

hercules25 Apprentice
hercules25
Posted

Does this mean anything for celica? Or is it only for Chrons? I have read it indicates either or???

Test done by LabCorp

Saccharomyces Cerevisiae, IgG 34.9 (Positive over 25)

Saccharomyces Cerevisiae, IgA 48.5 (Positive over 25)

Skylark Collaborator
Skylark
Posted

Still, 20% of those with total villous trophy hav negative blood tests, and half of those with patchy damage have negative blood tests.

Wow! Do you happen to have the link for a reference to those numbers? Not doubting you at all, just really curious/interested.

hercules25 Apprentice
hercules25
Posted

Wow! Do you happen to have the link for a reference to those numbers? Not doubting you at all, just really curious/interested.

Saccharomycas cerevisiae, IgG 34.9

Saccharomycas cerevisiae. IgA 48.5

Negative <20.0

Equicoval 20.1 - 24.9

Positive >or = 25.00

nora-n Rookie
nora-n
Posted

Skylark, about the references about negative blood tests, I have seen it several places, amongst them in one of the articles in The Lancet online full version that spelled it out.

Here at celaic.com there was an article where some scientists wanted to check how the celiac blood tests performed in real life. They split up blood samples from biopsy diagnosed celiacs and sent them to seveal commercial labs, and the best ones caught 80% of them, and the worst caught half of them.

And, probably those that only caught half are g´regarded to be better because they find fewer false positives....all in all, everyting is about NOT getting any false positives, to the expense of missing many, maybe half, of the celiacs.

I will have to find that one and bookmark it....but it was here on the main page. Anyone have the link?

Added: surfing The Lancet now, and there is a lot about gluten and neurology recently, interesting.

(We have free access with norwegian IP adresses)

Here is one that says 20%: Coeliac disease

The Lancet, Volume 362, Issue 9381, 2 August 2003, Pages 383-391

Peter HR Green, Bana Jabri

interesting about cutoffs for the tests:

Occupational flour exposure and screening for coeliac disease

The Lancet, Volume 346, Issue 8966, 1 July 1995, Pages 57-58

M.N. Kolopp-Sarda, M.C. Béné, B. Gobert, N. Massin, G.C. Faure

Skylark Collaborator
Skylark
Posted

Thanks, Nora. I'll check them out. I have access to Lancet.

  • 1 month later...
tehjrow Rookie
tehjrow
Posted
  • Author

Upper endoscopy results came back, i'm positive.

Skylark Collaborator
Skylark
Posted

Welcome to the gluten-free club. I hope whatever nagging health problems that got you looking for the diagnosis go away soon!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,550
    • Most Online (within 30 mins)
      7,748
    Mantooth
    Newest Member
    Mantooth
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mantooth
      Anyone Else Experiencing These Symptoms?

      By Mantooth · Posted

      Thanks for the kind words. It's hard to convince my doctor to investigate further because of a negative blood test and he only tested me for one marker. 🙃 I've come to the point where I need to take this into my own hands because the doctors are infuriating and it's not going anywhere. I've been gluten free for a week and feeling better but I was still consuming dairy and I think that's what's backing me up. Next week no dairy introduced. 
    • nanny marley
      Anyone Else Experiencing These Symptoms?

      By nanny marley · Posted

      Hello mantooth nice to meet you it's so uncanny what you wrote you sound just like me even the back issues are exactly the same and I'm new here too trying to find out if I have the same had I too have been struggling to find answers with my docters I don't have a diagnosis but I've been struggling like forever and was told ibs and health aniexty was my problem but on researching I've come to the conclusion it's probably more because i cut gluten and lactose out for 6 months and  it was a incredible change for me so although I can't help with diagnosis I can say your not alone in trying  to find answers 😊
    • nanny marley
      New here help needed

      By nanny marley · Posted

      I call it the fish because I can't spell the other word at times 🤣 don't want to make myself look silly but yes I have this symbol on many items so nice to see it today wen I'm needing help  gives me faith I'm on the right track 
    • nanny marley
      New here help needed

      By nanny marley · Posted

      Yes I have the fish symbol on my car and my ring 🙏 and yes I've been going for years to the docters but I got that feed up ov having to avoid eating out or even visiting people threw aniexty of needing the toilet or of gas or sickness I did some research of my own and I did the elimination diet and what a difference I've had my family think I'm nuts at times saying it's in my head it won't help until they now are doing it too because my daughter's are facing the same issues it's made me feel so ill at times it's so crazy how food can do this to you one night I was up 6 times to the point I had nothing left in my body I didn't go to the toilet for days after and I felt sick has a dog I'm so glad I found this forum I feel a little more human already 😄
    • trents
      How to keep water down?

      By trents · Posted

      Prolonged dehydration can cause kidney damage. How long has this been going on? Are you have diarrhea also? That's what the dyclomine is for I think.
×
×
  • Create New...