Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Migraines After Gluten Free


melblondin

Recommended Posts

melblondin Apprentice

Has anyone experienced migraines after going gluten-free? I've never had a migraine before in my life but was just hit with a terrible one last night complete with auras and everything. As far as I know I've been gluten free but maybe some sneaked in somewhere. The only thing I can think of is possibly my thyroid meds that I take everyday (Levothyroxine by Sandoz). I've tried looking into them, but haven't been able to get an answer yet. Does anyone else know about that company or experienced something similar?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

I had occasional migraines before I went gluten free, but they really started up a few years after I was gluten free - when I moved and changed jobs. It's not always a food thing (or certainly not always a gluten thing) and they can come on at any time. For me, I suspect it was a combination of stress affecting my brain chemistry and barometric pressure changes.

Coolclimates Collaborator

You are probably experiencing withdrawl symptoms. I also had lots of headaches the first few weeks of the gluten-free diet, as well as crying spells, anger and all kinds of emotions. The gluten-free diet is like quitting smoking or drugs cold turkey. Essentially, it's not much difference. If you're used to eating glutenous foods all your life and suddenly remove them and drastically change your diet, you will most likely experience withdrawl symptoms. They should improve, they were the worst for me the first couple of weeks. I hope your migranes improve soon.

T.H. Community Regular

For me, I only had one migraine in my life before going gluten free, and after I was gluten free for a while, suddenly I get migraines if I eat peanuts. :blink: No idea why, it doesn't test positive as an allergy, but if I eat it, I get a migraine. Even ingested it accidentally twice now, same reaction.

However, re: medicines! there is a great site that is kept up by a pharmacists that lists drugs by name that are gluten free. It's kept very up to date.

Open Original Shared Link

And according to it, I'd say you are right on the money with your worries. It lists Levothyroxine as gluten free if it is made by Lannett and Movak but no other companies were listed. So that could definitely be your culprit!

Has anyone experienced migraines after going gluten-free? I've never had a migraine before in my life but was just hit with a terrible one last night complete with auras and everything. As far as I know I've been gluten free but maybe some sneaked in somewhere. The only thing I can think of is possibly my thyroid meds that I take everyday (Levothyroxine by Sandoz). I've tried looking into them, but haven't been able to get an answer yet. Does anyone else know about that company or experienced something similar?

melblondin Apprentice

Thanks everyone for the responses and esp. for that website. I had tried contacting the company, but hadn't got very far, and then ended up just getting busy with other things and forgetting all about it. I will pursue that further for sure. I haven't had another migraine since Sunday and am praying things stay that way!!!

melblondin Apprentice

Just in case anyone else is wondering I talked to someone at Sandoz, the makers of the Levothyroxin 112 mcg that I'm taking and they said that while they can't certify that their products are gluten free because they don't test for it in their facilities, none of the actual ingredients in the medication contain gluten. Do you think it's safe to assume that the medication is okay then???

ravenwoodglass Mentor

Just in case anyone else is wondering I talked to someone at Sandoz, the makers of the Levothyroxin 112 mcg that I'm taking and they said that while they can't certify that their products are gluten free because they don't test for it in their facilities, none of the actual ingredients in the medication contain gluten. Do you think it's safe to assume that the medication is okay then???

I take a generic drug that Sandoz makes because the name brand isn't gluten free. I have had no issues with it. I can't of course say for sure that yours or any other they make wasn't CC'd somewhere down the line since they don't test but I would feel safe taking it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

For me, I only had one migraine in my life before going gluten free, and after I was gluten free for a while, suddenly I get migraines if I eat peanuts. :blink: No idea why, it doesn't test positive as an allergy, but if I eat it, I get a migraine. Even ingested it accidentally twice now, same reaction.

However, re: medicines! there is a great site that is kept up by a pharmacists that lists drugs by name that are gluten free. It's kept very up to date.

Open Original Shared Link

And according to it, I'd say you are right on the money with your worries. It lists Levothyroxine as gluten free if it is made by Lannett and Movak but no other companies were listed. So that could definitely be your culprit!

how soon after eating peanuts, do you get the migraine?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,640
    • Most Online (within 30 mins)
      7,748

    Lulummb
    Newest Member
    Lulummb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.6k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Probably NCGS then and there is also the possibility of an H. Pylori infection.
    • MCS
      Scott thank you. Finally found the oreos and they are a winner. 
    • Matt13
      Hi Scott and Knitty! Thanks for the answers! You are very kind! Let put it this way: 1.I am now confirmed seronegative celiac. My Last push gastroscopy concluded that there is no atrophy and everything is ok in that regard. 2. From diagnostics perspective so far i have done multiple intestinal TUS, Mr Enterography, Multiple wide spectrum blood tests, Normal gastroscopy, Push gastroscopy(duodenum and jejunum)., Multiple X rays,Swallow test barium....i mean the whole package... 3. from doctors perspective i am in touch with 2-3 gastroenterologist, immunology and rheumatology doctor and general physician...and with psychiatric doctor. My problem is that i am still feeling like "s$#&" EVERY DAY even now when i am on GFD and i am still losing weight with very little energy through day. When i lay down, i do not feel pain or discomfort but during the day i feel bloated, intermitten pain in abdomen(usually upper QD and around belly), discomfort throught whole abdomen and other parts of body and with very little energy. I am trying my  best to be 100 % GFD but i am on very light mediterian food diet. I am currently on gfd  13 months (with small mistakes) Currently i am on ppi 20mg in the morning, now drinking ensure plus because of muscle and weight loss. My diagnose procedure is now lasting almost 3 years and since then i have lost 13-15kg. Please but please i am currently losing my mind...is there anybody who is going through this kind of hell like me? What more can i do? Thanks in advance, Kind regards, Matt    
    • Mnofsinger
      I appreciate the input and that would make sense to irritation/mouth sores. I'm more asking directly to the taste of the food being too salty as opposed to being irritated by salt.
    • jjiillee
      I got her results in the app but waiting for call from her doctor. Not sure what it means but maybe not celiac since villi are normal??  FINAL DIAGNOSIS: Duodenal biopsy (#1): DUODENAL MUCOSA WITH NO SIGNIFICANT ABNORMALITY. NO SIGNIFICANT VILLUS BLUNTING NOR INCREASED INTRAEPITHELIAL LYMPHOCYTES. Duodenal bulb biopsy (#2): MILD ACUTE DUODENITIS WITH FOCAL FOVEOLAR METAPLASIA. NO SIGNIFICANT VILLUS BLUNTING NOR INCREASED INTRAEPITHELIAL LYMPHOCYTES Gastric antral biopsy (#3): MILD CHRONIC FOCALLY ACTIVE GASTRITIS. PENDING IMMUNOSTAIN FOR HELICOBACTER ORGANSIMS (TO BE REORTED IN AN ADDENDUM). Gastric body biopsy (#4): GASTRIC OXYNTIC MUCOSA WITH NO SIGNIFICANT ABNORMALITY. Esophageal biopsy, distal (#5): SQUAMOUS MUCOSA WITH NO SIGNIFICANT ABNORMALITY. Esophageal biopsy, mid (#6): SQUAMOUS MUCOSA WITH NO SIGNIFICANT ABNORMALITY
×
×
  • Create New...