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angel-jd1

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travelthomas Apprentice

Hi Scott,

I

  • 2 months later...

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celiac3270 Collaborator

I never saw the old board until reading this post...is there any specific area that is of great value...I quickly scanned some of the information and liked this board better (probably since this is where I started). Somebody said something about copying recipes, is there any other area that is particularly valuable? Thanks.

flagbabyds Collaborator

I liked the old board but this board is much easier to use. you can actually still read posts from the old board on the link scott posted and so i can look at anything i think is interesting on either board. i was diagnosed at 20 months and i am almost! 14 so i have lived with it for my life, i know nothing else so if anyone has ?'s they can e-mail me

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    • trents
      knitty kitty makes a good point. Avocados are high in histamines. So are bananas. Both also trigger histamine production in the body when consumed so there's a double whammy with those two foods for those struggling with histamine intolerance/MCAS
    • knitty kitty
      @Sharke, The updated guidelines for a gluten challenge are to eat ten grams of gluten per day for two weeks minimum.  Lesser amounts of gluten (3 grams) don't provoke an immune response strong enough that the antibodies leave the gastrointestinal tract and get into the blood where they can be measured in tTg blood tests.   Have no doubt that the antibodies made in the small intestine are doing damage there, even if you don't suffer severe symptoms, yet. Did you react to barley prior to going gluten free? Have you been checked for chronic autoimmune gastritis which is another autoimmune disease that sometimes occurs with Celiac Disease? Have you been checked for nutritional deficiencies?  Thiamine deficiency (Gastrointestinal Beriberi) can cause constipation and/or diarrhea, abdominal pain, and weight loss.   Thiamine Deficiency Disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/  
    • knitty kitty
      @sillyyak52, Count another one in the same boat!  My family has always been in denial.  They said my tummy aches were a ploy to miss school.  My parents passed from health problems associated with uncontrolled Celiac Disease (Abdominal Aortic Aneurysm and Glioblastoma brain tumor).  My sister still has her head buried in the sand.   I agree with @Rogol72, try the consequences of untreated celiac disease shock treatment.  Sometimes people are just scared of having to change their comfortable lifestyle.
    • Lotte18
      I have never been tested for tTg 6 antibodies but I will certainly do that next time I'm at the doc's.  Maybe there's a home test kit for that?  I drink lactose free milk and seem to be ok so I'm probably not a casein case but...who knows?!
    • knitty kitty
      I take Life Extension brand Mega Benfotiamine, (250 mg with each of two meals) and Maxlife Natural TTFD-B1 Max Thiamine (100 mg).   I try to take my Benfotiamine and TTFD before four pm, otherwise I have so much energy, it can be hard to fall asleep.    
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