Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Endo And New Gi Dr


jknnej

Recommended Posts

jknnej Collaborator

Well, I went to a new GI dr today. He was awesome; very nice and he listened to everything I had to say and wasn't condescending. He took the time to explain the things he told me, too, which I liked and he didn't treat me like I knew nothing.

I have an endcoscopy scheduled for Monday, June 6.

Although I have been gluten-free since Jan. 1 he is still testing me for Celiac. I needed the test for reflux, anyway, so he said he'll test anyhow.

He thinks I do NOT have Celiac disease based on my bloodwork. He said that the main test that is the real indicator (something like the transglutamine)was not only normal, but in the low range. I told him I like the gluten-free diet, anyway, and he didn't try to tell me not to stay gluten-free, so that was good.

He thinks it could be thryoid, reflux, or h. pylori. He gave me some medicine for my irritible bowel, too, which dissolved under your tongue. He said his wife has IBS and she swears by it. It takes away diarrhea and cramping:) Thank you, lord.

I've been tested for thyroid but he still wants to see the results and read them himself.

I do have all the symptoms for reflux, so it could be that.

He didn't believe in the candida thing, as I expected. I asked him about the stool test and he said that if he examined everyone's stool he would find candida. He thinks taking an anti-fungal is not a good option right now. He says of course we can get yeast infections, thrush, etc. but he said if I really had a serious systematic problem I would be much more sick. Same with leaky gut. Now 2 doctors have told me this; they said if I had either of these I would not be walking around, going about my daily activities.

I don't know if I agree with this or not, but I am going to wait and see what he finds with the scope before I do anything else about the yeast.

I am happy that I am getting the test done! He said he would look at my vocal cords as well b/c of the problems I've been having with my voice.

I at least feel that I finally have found a good dr-thank GOD. And he is pretty knowledgeable about celiac disease, too, which is good. He recommended fiber and he of course said, it's gluten free. So at least he knows about celiac disease.

Now we'll just have to wait for results. I'm a little nervous about the test but he said don't worry; you'll be out and won't feel a thing. I knew this already but it was nice for the dr. to be reassuring.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest gfinnebraska

I'm glad you're on your way!!! Good luck!

julie5914 Contributor

Voice changes are very much linked to thyroid trouble, as you probably already know. I was treated for h. pylori, and I want to warn you - the first few days were rough - the antibiotics are very strong, but after about 4 days, I started feeling like a new person again. Unfortunately, about a week after I went off the antibiotics, I started feeling bad again (probably because I am not gluten-free), but not nearly as bad as I had before. My stools changed while I was on the h. pylori drugs, and then they changed back - it was very strange - something definitely changed and then changed again. Anyway, I really hope that you find answers most importantly.

jknnej Collaborator

Hopefully I don't have H. Pylori!

I am getting my thyroid checked next week. Last year it was normal but things can change in a year, so we'll see.

Hyperthyroidism would make the most sense with my symptoms:

weight loss, voice changes, tremors, nausea, etc.

I just want answers!

KaitiUSA Enthusiast

jknnej-Some of my symptoms are the same ones you have...weight loss, nausea.

I also have graves(hyperthyroid) Maybe your thyroid changed since then or maybe it is something different.Hopefully you get an answer soon :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

    2. - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

    3. - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

    4. - trents replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

    5. - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,875
    • Most Online (within 30 mins)
      7,748

    Charli.stoz09
    Newest Member
    Charli.stoz09
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
×
×
  • Create New...