Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free Diet Stops Working After A While?

Leeis2k

Recommended Posts

Leeis2k Newbie
Leeis2k
Posted

Hi, new to the forum and Celiac disease. I was never officially diagnosed with Celiac disease but i have all the symptoms, so i went on a gluten free diet and it was amazing how much better i felt but then slowly i started to revert back.

After 2 months or so after the diet stopped working started to eat normal foods again and i had a HUGE burst of energy and still felt a little off but much better then i had been feeling. Now im right back were i was before the diet. (horrible Brain fog,tired all the time,etc)

Is it normal to keep changing diets back and forth? Or was i missing something important while i was on the gluten free diet?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

There could have been something you were missing on the diet. It is more than just food, it is how it is prepared, what the foods are that you are eating, are they produced in the same plant as gluten foods, are they actually gluten free or 'gluten free by ingredients', eliminating gluten in the stuff you cook with, for example we can't share toasters, colanders and wooden utensils need to be replaced, drugs and supplements need to be checked etc. The diet isn't easy and it is easy for gluten to slip in from places you would not expect.

Since you are back on gluten stay on it for a couple of months then get to the doctor and get a celiac screening done. Then when all testing is over get back on the diet, strictly, and also eliminate dairy at first.

T.H. Community Regular
T.H.
Posted

Yeah, I'd say you were missing something, because I don't believe I've ever heard of the diet not working suddenly. Two things that might apply?

1. Many people who go off of gluten get more sensitized to it, so foods with no gluten but with gluten contamination might not bother you at first, but could start to bother you the longer you stay away from gluten.

2. You might have other food issues. I have had food allergies for quite a while that I never had a clue about. I only started having trouble with them AFTER I went gluten free (brain fog, exhaustion, dizziness, and aches and pains were my reactions to these foods I was allergic to). I had to cut lots of food from my diet and start a food journal recording my foods and my reactions for me to hunt down some of them, and an allergy test got some more.

Maybe one of those? Or...hmmm...parasites? Some parasites affect your digestion and are affected by what you eat in better and worse ways. I wonder if a parasite might adjust to changes in diet after a certain time period, which could explain why you started feeling bad again? I honestly have no idea, it just popped to mind as a 'way out in left field' possibility, ya know? :)

Hi, new to the forum and Celiac disease. I was never officially diagnosed with Celiac disease but i have all the symptoms, so i went on a gluten free diet and it was amazing how much better i felt but then slowly i started to revert back.

After 2 months or so after the diet stopped working started to eat normal foods again and i had a HUGE burst of energy and still felt a little off but much better then i had been feeling. Now im right back were i was before the diet. (horrible Brain fog,tired all the time,etc)

Is it normal to keep changing diets back and forth? Or was i missing something important while i was on the gluten free diet?

Skylark Collaborator
Skylark
Posted

You really need to work with a doctor and get celiac tests and a full medical workup for the chronic fatigue and GI trouble. Celiac is not the only thing that can cause bowel issues and there are some things like Crohn's that need to be ruled out.

Leeis2k Newbie
Leeis2k
Posted
  • Author

Well i was strictly on the gluten-free diet. I even got off all the allergy causing foods. I also made sure not use ANYTHING that could have been contaminated by gluten. It really seems like for some reason when i start the diet i feel great for a week or so then by body misses something that the gluten free diet isn't giving me. It feels like a vitamin deficiency that i somewhat get back eating normal foods but slowly lose on a gluten-free diet.

As far as getting checked out i have no insurance and all the moron doctors keep saying "you look healthy so it can only be depression" without running any tests i ask for. Without them getting paid they really could care less.

Leeis2k Newbie
Leeis2k
Posted
  • Author

You really need to work with a doctor and get celiac tests and a full medical workup for the chronic fatigue and GI trouble. Celiac is not the only thing that can cause bowel issues and there are some things like Crohn's that need to be ruled out.

I was thinking Chohn's too because my mother has it. The only problem is i have NO pain at all. That seems to be the main symptom of Chohn's.

Wolicki Enthusiast
Wolicki
Posted

You need to stick with the diet strictly. You are very likely experiencing gluten withdrawal. It can be pretty severe. You have to just ride through it- the fatigue, brain fog, etc. It does go away! Good luck.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

If you are a celiac and have been having malabsorption problems, it is highly likely that you are deficient in many vitamins and minerals, and that your pancreas is not putting out enough digestive enzymes to digest your food properly. As others have said, you may also have other intolerances that only appear after the gluten is gone because the gluten tends to mask the other problems.

Do go to your doctor and have your vitamins and minerals checked and get on a gluten-eating program (2-3 months) to allow for the antibodies to build up in your body and render a positive test result (blood and biopsy). While you are going through this gluten-eating fest you might try taking some digestive enzymes to supplement what your pancreas is failing to do so that you do not suffer unduly.

Good luck with whatever route you decide to take. Doctors are notoriously ill-informed about celiac and many still believe it is a very rare disease :blink:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,173
    • Most Online (within 30 mins)
      7,748
    JOANN KEENAN
    Newest Member
    JOANN KEENAN
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By trents · Posted

      Gluten-like cross reactions to other foods are from the proteins that make them up. Dextrose is the sugar component found in corn.
    • Ryangf
      For people with celiac disease and corn intolerance from it: Is salt still okay for most people?

      By Ryangf · Posted

      I just found out a few days ago that some salt like table salt contains dextrose that’s derived from corn. I’ve been thinking about getting rid of using table salt and just using my own kosher or Himalayan salt, but tbh I’m reluctant to do it. I’ve cut out a lot of things and I don’t really want to cut out anything else that I’m not sure will effect me…in a super small amount that it might be added to salts to stabilize the iodine. I don’t want to be further alienated when I have to go to a restaurant with my friends. Also most of the items at my house that have salt in it canned food etc. are some of the few quick things I can eat- because I’m not the one paying for the food in my household and i can only ask for so much. I’m not in a place financially where I can get a lot of my specialized items- although my family tries their best to get items I Can actually stand. I get I can bring a my own salt with me at a restaurant and ask for no seasoning but it feels like a lot to me- cause I already check for cross contamination and ask if the food has like a high volume of corn in it like cornstarch etc. I’ve also heard most dextrose is not derived from the Zein (corn gluten) portion of it- so it might be safe- but idk if that’s true. I just wanna know if anyone actually responded to it negatively.
    • Scott Adams
      I’m so confused…

      By Scott Adams · Posted

      For my first couple of years after discovering my celiac disease I also had to avoid cow's milk/casein and eggs, as well as other things, but could tolerate duck eggs and sheep and goat's milk products. I'm not sure if you've tried those, but it could be worth testing them out.
    • knitty kitty
      I’m so confused…

      By knitty kitty · Posted

      Hello, @Kwinkle, How are you doing?   Have you tried adding a Magnesium supplement?   The B Complex vitamins need magnesium to work properly, especially thiamine vitamin B 1.   Magnesium deficiency symptoms and Thiamine deficiency symptoms both include gas and bloating.  Thiamine deficiency symptoms also include loss of appetite and fatigue.   My gas and bloating resolved rather quickly when I took Benfotiamine (a form of thiamine shown to promote intestinal healing) and Magnesium Glycinate in addition to my B 50 Complex (all twice a day plus the following...).   I found Magnesium L-Threonate or Magnesium Taurate are better when taken with a form of thiamine called TTFD (Tetrahydrofurfuryl dusulfide) because all of these cross the blood brain barrier easily, which corrects the loss of appetite, fatigue and anxiety.    Like @Celiacandme said, keeping a food/mood/poo'd journal is a big help in finding problematic foods, and for making sure your diet is not carbohydrate heavy.  If you're eating a lot if processed gluten free facsimile foods, be aware they do not have vitamins and minerals added to them like their gluten containing counterparts.  For every 1000 kcal of carbohydrates, we need an extra 500 mg of thiamine to turn them into energy and not store them as fat.   Let us know how you're doing!
    • Scott Adams
      Testing

      By Scott Adams · Posted

      Yes, if you had symptoms when eating gluten ruling out celiac disease won't necessarily mean you'll be able to eat gluten again, although it might mean that you may be able to be less strict with your gluten-free diet. 
×
×
  • Create New...