Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac?


hercules25

Recommended Posts

hercules25 Apprentice

I have been suffering for about 13 yrs now gastric and multiple other symptoms. My blood work is usually normal. Recently My Saccharomyces cerevisiae IgG came back 34.9 (above 25 is positive) and IgA 48.5. I am also positive for eosinophil's. My gastro diagnosed me with Chrons cause of the IgG and IgA but is confused cause I am positive for Eosinophil (which is an allergy) I have been Entocort for 2 months. It worked for a month and now I am sick again. My WBC is always normal, dont run a fever, rarely diarrhea, mostly constipation, never vomit, have vision problems, and so on. My stomach is bubbling all the time. Could this be Celiac and not Chron's?? What should I do next. Had all test including the capsule camera that never left my stomach for 8 hours so no luck with that. All other test come back negative beside minor inflammation where small intestine and large meet. (1 out of 5 colonoscopies reveled that). MRI of brain Neg. CT Scan and MRI of abdom neg. What next?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Has your doctor run a celiac panel?

There are people with gluten intolerance who do not have positive tests for celiac disease. Also going off gluten seems to help some people with other bowel problems. There is also a gluten-free, lactose-free diet called the "Specific Carbohydrate Diet" (SCD) that some people around here swear by. Once you have the celiac testing done, you can try either gluten-free or SCD and see if it helps.

ravenwoodglass Mentor

You could also have both celiac and chrons. I would do as Skylark advised and try the gluten-free diet after you are done with celiac testing. You don't need to wait for the results as false negatives on celiac testing are unfortunately common. Being gluten free will only effect the testing for celiac. If there are other issues going on they can still be tested for.

hercules25 Apprentice

Weird thing is that I started a Gluten Free Diet and in the mist of moving 1500 miles this week I ate Gluten and woke up this morning fatigue as hell, cold sore in my mouth, and flu feeling. Per my primary dr the celiac panel was negative but I know that the test I took above can relate to Celiac and is specific for the small bowel. My gastro said from day one he thinks it from food allergy cause of the positive Esophinils but became confused after the positive blood test. I am a text book case. LOL. I am starting gluten free again today. Uuggg..

ravenwoodglass Mentor

Weird thing is that I started a Gluten Free Diet and in the mist of moving 1500 miles this week I ate Gluten and woke up this morning fatigue as hell, cold sore in my mouth, and flu feeling. Per my primary dr the celiac panel was negative but I know that the test I took above can relate to Celiac and is specific for the small bowel. My gastro said from day one he thinks it from food allergy cause of the positive Esophinils but became confused after the positive blood test. I am a text book case. LOL. I am starting gluten free again today. Uuggg..

Glad to hear your starting back on the diet again. Don't be surprised if your tied to the bathroom in a day or two.

I hope you are feeling better soon. Some sublingual B12 may help a bit with the fatigue.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,144
    • Most Online (within 30 mins)
      7,748

    twils
    Newest Member
    twils
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
    • Skg414228
      Correct. I’m doing both in the same go though. Thanks for clarifying before I confused someone. I’m doing a colonoscopy for something else and then they added the endoscopy after the test. 
    • trents
      It is a biopsy but it's not a colonoscopy, it's an endoscopy.
    • Skg414228
      Well I’m going on the gluten farewell tour so they are about to find out lol. I keep saying biopsy but yeah it’s a scope and stuff. I’m a dummy but luckily my doctor is not. 
    • trents
      The biopsy for celiac disease is done of the small bowel lining and in conjunction with an "upper GI" scoping called an endoscopy. A colonoscopy scopes the lower end of the intestines and can't reach up high enough to get to the small bowel. The endoscopy goes through the mouth, through the stomach and into the duodenum, which is at the upper end of the intestinal track. So, while they are scoping the duodenum, they take biopsies of the mucosal lining of that area to send off for microscopic analysis by a lab. If the damage to the mucosa is substantial, the doc doing the scoping can often see it during the scoping.
×
×
  • Create New...