Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Opinion On My Daughter


scaredparent

Recommended Posts

scaredparent Apprentice

Hi I have a son who is 23 mo old and has been gluten-free since Febuary and is do well. We have not seen much weight gain but he doesn't have diahrea any more :D . My son had a postiive dietary change and negeitive test results on blood and biopsy. ( I think because he was to young for postitive result).

Here is my problem. I have 5 children and child number 2 and 5 are sick all the time. Number 5 is Braunson the 23 mo old and Brittani is number 2 and she is 7. She has a lot of medical problems like constipated all the time she can be on laxitive 3 times a day with no results. She gets sinus imfections all the time. She was dx with a immudificency problem at the age of 2. She has had 14 surgeries and close to 50 iv's for medications 3 picc line and 2 portacathiders. And to make a long story short she has had Igg panels ran at the age of 2 and I got a hold of them the other day and found out that she had an abnormal IgA level. It was not realllly bad but a bit abnormal.

Is one of the test for celiac disease the IgA test? If so what number indicates celiac disease? Did any one else of trouble with sinus infections and constipation and then get dx with celiac disease? I am debating on putting her through the biopsy and the rest of the blood work. She often looks bloated and pregant. She has never been under wieght. She weight 83 lbs and is 54 in tall and will be 8 in August. But she was anemic at age 1. Can celiac disease run from one extreme to the other in the same family? Any opinion on what I should do? Any ones opinion is welcomed and appeciated? Sorry for the long questions ? Thanks for the help in advance


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Please do not respond here. This is a duplicate post

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jordan Carlson replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Raw Meat Craving

    2. - knitty kitty replied to GardeningForHealth's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      82

      10 years later, my celiac is progressing

    3. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Raw Meat Craving

    4. - Blue Roan replied to Blue Roan's topic in Related Issues & Disorders
      4

      Lymph nodes in neck + thyroid issues

    5. - Scott Adams replied to Dawn R.'s topic in Related Issues & Disorders
      1

      Gluten Ataxia


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,916
    • Most Online (within 30 mins)
      7,748

    nonleadedmilk
    Newest Member
    nonleadedmilk
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jordan Carlson
      Hey there @knitty kitty! Thanks for checking in. Things are not really going as planned for myself unfortunately. As much as I feel better than I did while eating gluten, I still seem to be reacting to trace amounts of gluten in gluten free foods. I constantly break out in rashes or hives after eating. My dermatitis is constantly flaring up. I take every precaution possible to be as gluten free as I possibly can and have simplified my diet as much as I possibly can but still cant get past this point in my recovery. If this is the case, I believe it would be considered non-responsive Celiac Disease or Refractory Celiac Disease. The only time I have ate gluten purposely in the last year was for the 3 weeks leading up to my endoscopy for diagnosis. Aside from that, the last year has been a constant disappointing effort to be gluten free with the same result of getting stuck at this point. I have a appointment with my doctor next week to discuss some treatment options and what the next steps are in trying to get my body to push past this point.   I will keep you posted! 
    • knitty kitty
      @GardeningForHealth, How are things going for you?   I found another topic you might be interested in... To Be or Not to Be a Pathogen: Candida albicans and Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6906151/
    • knitty kitty
      @Jordan Carlson, How are you doing now?  Your post slipped by, but I had to let you know you weren't alone.  I've had cravings for raw meat my whole life.  It's due to being low or deficient B vitamins, specifically Thiamine.  Meat is a great source of B vitamins.  Cooking meat destroys some of the vitamins, so a craving for raw or rare meat shows up.   Thiamine and Niacin make digestive enzymes that will help you digest fats.  Thiamine will help improve gastroparesis, anxiety, vertigo, and heart palpitations.  Niacin will help Dermatitis Herpetiformis.  I get dermatitis herpetiformis blisters on the palms of my hands, too. Really active people (especially if outdoors in hot weather) need additional Thiamine.  If a high carbohydrate diet is eaten, additional Thiamine is needed, too.  I take Benfotiamine, a form of Thiamine that helps heal the digestive tract.  I also supplement magnesium because Thiamine and magnesium work together.   Hope you can update us on how you're doing.  
    • Blue Roan
      @RMJ@Scott Adams@knitty kitty, Thank you for all of your responses, tips, and suggestions. I'm very grateful that this website exists. It makes me feel a lot less alone in my celiac journey!  The endocrinologist had me do a neck ultrasound just to be safe. Thankfully, thyroid and lymph nodes came back normal. knitty kitty, my Vitamin D is on the higher end of normal, but I will definitely consider the dentist route next time I have my checkup if I'm still noticing issues. Thank you! Scott, thanks for suggesting the ENT. I may consider seeing one if things don't resolve on their own. I am thankfully feeling a bit better now, so hopefully, this is just some sort of residual celiac inflammation like you mentioned, Scott. After all of the numerous tests and clinical visits I've had all year, I'm going to give my body (and wallet) a break for a few months to rest and heal without the stress of doctor appts/labwork and whatnot. Perhaps the health anxiety is also contributing to some of my symptoms.  Thank you once again for sharing your stories.  
    • Scott Adams
      Welcome to the forum. A search for "ataxia" in our forum shows 718 results: https://www.celiac.com/search/?q=Ataxia&quick=1&type=forums_topic We also have an article category dedicated to summarizing research on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/ Do you have a specific question about it?
×
×
  • Create New...