Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Good Way To Get A Good Doctor


mushroom

Recommended Posts

mushroom Proficient

:rolleyes:

:unsure:

Get yourself admitted to the hospital where they have to call in specialists for consultation. I just got home from doing this (well, actually I was admitted kicking and screaming :lol: ).

I had already decided this summer to seek out a cardiologist, and the condition I was admitted for (atrial fibrillation) required the services of such a person. I was lucky that the hospital uses an association of cardiac physicians who take it in turns to cover the hospital consults. So I got to see four cardiologists during the course of my stay. Three of them were absolutely worthless, whilst the fourth (a woman :D ) is an absolute gem. I was watching baseball on TV and she came in wearing a baseball cap, and I liked her style. I talked to her about lectins and cardiac problems, prefacing my comments/questions with "You'll probably think I'm nuts, most doctors do, but..." and she said "No, I think there's very possibly a link. I would like to talk to you more about it." :wub: at first sight :) They are out there, but very hard to find. This way I got to find out about four of them without the appointments and one-hour consultations.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Oh no, Shroomie! Glad your plan worked! :)

Hope you are doing better. Did you have to go "down the hill" or were you able to stay in the area?

jerseyangel Proficient

Sorry about the kicking and screaming part, but wow--that doctor sounds like a real peach! I hope she can help you sort this all out :)

Skylark Collaborator

Atrial fib? Wow, shroomie. I'm scared for you. :o I'm awfully glad you came out of the hospital OK. I hope you got onto some meds that have your heart rhythm under control.

mushroom Proficient

Well, it all turned out guys, that it was a lack of potassium after all, which is what I told them going in there. I told them about my prior a-fib and low potassium, and how I had been trying to penetrate the voice mail to get an "urgent" appointment with my PCP for an appt. and a prescription for potassium. Grrrrr -- I think I am going to tell my PCP that as much as I love her I am going to change physicians if she doesn't fire her P.A. This is the fourth time she has screwed me over, and she even did it again after I left the hospital, but that's another story. I was eating bunches of bananas through Tuesday on the advice of local pharmacist, trying to keep up my potassium levels, but when I went for the appointment that I finally got scheduled, she did an immediate EKG after listening to my heart and said I was in a-fib (I had been feeling lousy that morning) and was admitted through ER to ICU for three nights :o so they could monitor me. They tried all the standard heart drugs to bring me back to normal sinus rhythm, but none of them worked. I kept telling them I neeeded potassium but they said my potassium was normal on admission. I said it was just all the bunches of bananas I had been eating and I needed supplements. (May not ever eat another banana.)

Well, waddya know, they started me on IV potassium, and normal sinus rhythm returned within four hours :P . Then we had this big hassle over gluten free potassium supplements, no one could guarantee that there was no gluten in their product. So I set Dh to work on the computer and phone, and finally to our local compounding pharmacy. The pharmacist said, Forevvins sake, why don't they give her the elixir. That's how we always used to do it. So that's what got me out of there and back home. So yes, I am back at the lake, with the use of an overnight oxygenation machine for the rest of my stay, duly delivered at 7:00 p.m. (after the P.A. had failed to place the order :blink: even though she called me in the hospital and said she was doing it.) I had to call the company at 4:45 p.m. and they said they had no order. I hate that incompetent beotch. Four days of hospitalization, a cellulitis infection at an IV site (that's another story altogether), a take-home presriprtion of Keflex and probiotics plus the potassium and another heart med, which the pharmacy called and said said they can't fill untl tomorrow because it has to come from Sacto (along wth my potasium) Grrrr x 10 Stupid pharmacy clerk could not say they didn't have the stuff in stock when we dropped off the prescriptions. So will stuff down another banana tonight :rolleyes: And here I thought New Zealand medicine sucked :ph34r:

Anyway, all's well that ends well, I guess, and I have found my cardiologist :D Pity it took four days of my life :unsure: and I sure hope my insurance covers the ICU bill.:ph34r:

Skylark Collaborator

That's a hair-raising story. I'd be mad as hell at that P.A., and you might have the makings of a lawsuit for the amount of money your insurance doesn't cover from the ICU bills. If you had gotten through to your Dr. you could have avoided the hospitalization.

I'm so glad you got supplements sorted out. I'm really glad you found a good cardiologist in the process, even if it was under such terrible circumstances. I hope you recover from the cellulitis easily and your potassium stays good and steady now!

kareng Grand Master

Well, sorry to see that the practice of medicine at the lake has only gotten slightly better since I worked in P'ville. Do let the PCP know about his assistant.

For future reference, if you can take the sugar, apple juice and grape juice have lots of potassium. My oldest was haveing some problems last summer with 3 - 5 hour football workouts outside and then working at a fireworks tent. Gatorade doesn't have much Potassium.

Feel better so you can enjoy the beautiful location.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Well, sorry to see that the practice of medicine at the lake has only gotten slightly better since I worked in P'ville. Do let the PCP know about his assistant.

For future reference, if you can take the sugar, apple juice and grape juice have lots of potassium. My oldest was haveing some problems last summer with 3 - 5 hour football workouts outside and then working at a fireworks tent. Gatorade doesn't have much Potassium.

Feel better so you can enjoy the beautiful location.

Well, Kareng, don't be too quick to give the lake an undeserved bad rep - this was in Reno, at Renown Regional Medical Center where my doc practises :rolleyes: The docs at Incline Hospital gave me potassium on the first occasion and I converted quite quickly, so they got it right. :D

Interesting about the apple juice - will get some until the pharmacy gets their supplies from Sacto sometime today :ph34r:

Jestgar Rising Star

try here shroomie:

Open Original Shared Link

mushroom Proficient

try here shroomie:

Open Original Shared Link

Good link, Jess; thanks! It's a pity I can't eat a lot of those high potassium foods, but most of the high ones that are on the list that I don't have to avoid are in my diet. I have been on a different diuretic for about a year and that seems to have thrown the potassium out of whack, although I think??? they have been checking it pretty regularly. Don't have those records with me :(

Jestgar Rising Star

No chard or spinach? I thought those, at least, were on your 'ok' list. :(

mushroom Proficient

No chard or spinach? I thought those, at least, were on your 'ok' list. :(

Yeah, I eat lots of chard, but I think it is the oxalates in spinach that do a number on me :(

Skylark Collaborator

Good link, Jess; thanks! It's a pity I can't eat a lot of those high potassium foods, but most of the high ones that are on the list that I don't have to avoid are in my diet. I have been on a different diuretic for about a year and that seems to have thrown the potassium out of whack, although I think??? they have been checking it pretty regularly. Don't have those records with me :(

Diuretics can absolutely throw your potassium out of whack. Hypokalemia is a classic side effect of hydrochlorothiazide. There are combinations of diuretics designed to spare potassium. You might want to talk to your new cardiologist about changing the drugs you're on a little.

mushroom Proficient

Diuretics can absolutely throw your potassium out of whack. Hypokalemia is a classic side effect of hydrochlorothiazide. There are combinations of diuretics designed to spare potassium. You might want to talk to your new cardiologist about changing the drugs you're on a little.

Yeah, well that's what I did with a nephrologist when I was here last year and ended up in the ER with BP of 198/100 :unsure:

Had another nephrology consult in New Zealand and they concluded that what I was taking was probably the best way to go, but I am trying to think back about my potassium monitoring. Will have to send an email to my doc's nurse - those nurses in our clinic are great by the way, you can call them up and talk to them any day with no fricking voicemail and they will come in on the weekend to dress a wound or take care of cuts; they even make housecalls :wub:

P.S. I just got my prescriptions filled, and I am NOT going to take one of them - amiodarone. The contraindications for me are multiple and the side effects are horrendous, and it did not affect my arrhythmia when I was given it IV. :blink::wacko::o I will discuss it with the new heart doc as soon as I can get an appt. (she did not prescribe it).

Skylark Collaborator

I don't blame you for scrapping the Amiodarone if you're sure you have the potassium under control for the moment. I thought that stuff was a last-resort sort of medicine?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Matt13 replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      29

      Can food allergies like milk and soy flatten villi?

    2. - Rogol72 replied to Richardo's topic in Dermatitis Herpetiformis
      4

      dermatitis herpetiformis with all grains

    3. - trents replied to Richardo's topic in Dermatitis Herpetiformis
      4

      dermatitis herpetiformis with all grains

    4. - Richardo replied to Richardo's topic in Dermatitis Herpetiformis
      4

      dermatitis herpetiformis with all grains

    5. - trents replied to Richardo's topic in Dermatitis Herpetiformis
      4

      dermatitis herpetiformis with all grains


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,335
    • Most Online (within 30 mins)
      7,748

    Morgan Tiernan
    Newest Member
    Morgan Tiernan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Matt13
      Hi knitty kitty, Scott and all, Thanks for kind words and asking!I will def. talk about histamine intolerance  on my next visit to gastro doc. My doc.gastro says that lactose or casein is very unlikely to create marsh 3b histology like gluten in adults in intestines. (that was previous question for Scott) Regarding my last EGD the villy was OK so refractory is out of the question based on my talk with dr. If Scott is right and there are so many intolerance in food for celiac what is left to eat?? And now histamine? I mean what should i eat? Maybe gastritis is doing all this trouble? Thanks Kind regard    
    • Rogol72
      @Richardo, I'm in the same boat as you! I can't handle certified gluten free oats at all. Quinoa is the worst, even when I soak it in water and then wash under the tap for 10 minutes ... I have a reaction. It must be an immune system reaction to the proteins in these gluten-free grains. 
    • trents
      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
    • trents
      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
×
×
  • Create New...