Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Publications/organizations/foundations!


Frances03

Recommended Posts

Frances03 Enthusiast

Can you all recommend some way for me to STAY INFORMED?? I went to the celiac disease foundation website and I was NOT impressed. I dont quit understand what I get with my $35 membership. Some "handbook" that is not explained at all, like I have no idea if it's a 4 page pamphlet or a 300 page notebook or what? What I'm wanting is some thing I can join or sign up for or something, that will keep me informed of news regarding celiac disease, and also products that are new, and products that were gluten free but are no longer, etc. Can anyone recommend something? I feel like I'm just out of the loop, as I have 3 children and am newly pregnant with our 4th (for the 4th time, 3 miscarriages before my diagnosis), and I want to make sure I'm doing the best I can for this pregnancy, etc. I know I'm rambling but I guess I'm feeling upset at the moment and overwhelmed, so I'm sorry about that. Thanks much for any help!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I know it's frustrating. One of the best places I have found to stay informed is right here. Scott is good about posting new articles in the publications and publicity section of the board as well as on the home page. I know this wasn't real helpful and hopefully some others will have some other ideas.

tictax707 Apprentice

The CDF website IS pretty lame. But they do send you a newsletter on a regular basis which I find useful, mainly for the ads. It's realy chock full of gluten free food ads. Some are the same old standards, but they are good about getting new product ads in too. As for the articles in the newsletter, I have found that it's hit or miss in terms of usefulness for me, but it seems like there is a lot of stuff dedicated to raising kids with celiac disease, which may be relevant to you. Hope this helps a bit! Sorry to hear you are so frustrated.

lucia Enthusiast

What about "Living Without" magazine? Is that any good?

sa1937 Community Regular

I have to agree with ravenwoodglass. This forum is the best place to learn about this disease. I've learned more here than anywhere else. Just ask a question and someone will respond who has already been there, done that.

Recently I subscribed to Living Without. Just got my second issue. Well worth the money and they have a lot of info and recipes on their website, too. I got an introductory rate of $19.95 for a year (don't recall if it was from their website or Facebook).

BethM55 Enthusiast

I enjoy the Living Without magazine and website, although the print magazine is kinda pricey. I signed up for emails from the website, and get recipes. The website is helpful, you might want to check it out. (livingwithout.com)

Ahorsesoul Enthusiast

I second staying here and going with the Living Without magazine.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Frances03 Enthusiast

Okay, thanks guys! I'll definitely check out the living without mag and website. I hadn't heard of it at all, so this is great info. Keep it coming if anyone has any more suggestions!

BethM55 Enthusiast

Okay, thanks guys! I'll definitely check out the living without mag and website. I hadn't heard of it at all, so this is great info. Keep it coming if anyone has any more suggestions!

I know this is off topic, but what is your picture? I remember that cartoon character, but can't remember from what! :lol:

Jestgar Rising Star

Is it a shmoo?

BethM55 Enthusiast

Yes, a shmoo! Thank you, you have a good memory.

"Drawn by Al Capp in his comic strip Li'l Abner in 1948. The Shmoo is a small lovable creature. It laid eggs, gave milk, and died of sheer extacy when looked at with hunger. The shmoo loved to be eaten and could taste like any food you desire. Shmoo hide, cut thin, made a fine leather. Even shmoo whiskers made excellent toothpicks. The shmoo had the power to supply the whole world with all of its' wants and needs. The shmoo reproduces asexually, and only requires air to stay alive." (urbandictionary.com)

Frances03 Enthusiast

Yep, it's the Shmoo!! My husband likes to go around driving me crazy by singing the song from the cartoon "The Incredible New Shmoo" and I like the Shmoo so I picked it. I would also like to be able to lay eggs and give milk, LOL (well I might be able to give milk in about 7 more months).

Yes, a shmoo! Thank you, you have a good memory.

"Drawn by Al Capp in his comic strip Li'l Abner in 1948. The Shmoo is a small lovable creature. It laid eggs, gave milk, and died of sheer extacy when looked at with hunger. The shmoo loved to be eaten and could taste like any food you desire. Shmoo hide, cut thin, made a fine leather. Even shmoo whiskers made excellent toothpicks. The shmoo had the power to supply the whole world with all of its' wants and needs. The shmoo reproduces asexually, and only requires air to stay alive." (urbandictionary.com)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,628
    • Most Online (within 30 mins)
      7,748

    Barbara Sch
    Newest Member
    Barbara Sch
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @JenFur! You must be relatively new to the celiac journey. I wish it were as simple as just having to cut out gluten and all our gut issues magically disappear. It is very common for those with celiac disease to develop intolerance/sensitivity to other foods. Often it is because the protein structure of some other foods resembles that of gluten. Sometimes it is because damage the damage done to the gut lining by celiac disease wipes out cells that produce enzymes needed to break down those foods. Sometimes it is because the "leaky gut syndrome" associated with celiac disease causes the immune system to incorrectly identify other food proteins as threats or invaders. The two most common non-gluten foods that cause trouble for a lot of celiacs are dairy and oats. But soy, eggs and corn are also on that list. Sometimes these non-gluten food intolerances disappear with time and the healing of the villous lining of the small bowel.
    • JenFur
      I love popcorn but it doesn't love me.  Right now my gut hurts and I am bloated and passing gas.  Am I just super sensitive. I thought popcorn was gluten free 🤔 
    • trents
      Welcome to the forum, @marinke! "Type 1a diabetes (DM1) is associated with an increased risk of celiac disease (celiac disease) (1)." from: https://diabetesjournals.org/care/article/35/10/2083/38503/IgA-Anti-transglutaminase-Autoantibodies-at-Type-1 "The prevalence of celiac disease (celiac disease) in children with type 1 diabetes (T1D) is 5.1%, and it is often asymptomatic (1)." from: https://diabetesjournals.org/care/article/48/2/e13/157637/Diagnostic-Outcomes-of-Elevated-Transglutaminase So, this is 5x the rate found in the general population.
    • Mari
      Hi James47, You are less than 2 years into your recovery from Celiacs.  Tell us more about the problems you are having. Do you just want to get rid of belly fat or are you still having symptoms like gas and bloating.    For symptoms you may need to change your diet and take various supplements that you cannot adsorb from the foods you eat because of the damage caused by the autoimmune reaction in your small intestine. 
    • marinke
      My daughter (4 years old) has type 1 diabetes since she was 1. Therefore, every year a screening is done. We live in the Netherlands. Every year the screening was fine. This year here ttg is positive, 14, >7 is positive. IGA was in range. Could the diabetes cause this positive result? Or the fact that she was sick the weeks before the brood test?
×
×
  • Create New...