Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Have This Symptom?

mommyto3

Recommended Posts

mommyto3 Contributor
mommyto3
Posted

Hi Everyone!

Wow, what a heat wave we have up here in Canada!

I'm wondering about gall bladder attacks. Now that I know I'm gluten sensitive so many of my past strange health problems are flying into my head as a possible symptom of Celiac....

For about 13 years I've had what I believe to be gall bladder attacks. Right side, right under the ribs and the pain is horrific. It lasts a few hours and the only relief I get is if I lie down flat and keep holding my breath. I haven't been able to tie it to a specific food except that fatty stuff seems to be a trigger. The last attack I had I finally went to the ER because it was so bad (never saw a doctor about it before, just lived with it). They ran tests, did an ultrasound of my gall bladder and NOTHING. No stones, no blockages, nothing. The doctor diagnosed me with "gall bladder spasms" (thanks buddy, I could have told you that) and gave me pills that I've never taken.

I have no idea why I would get this if my gall bladder is fine. Maybe a reaction to gluten? Just wondering if anybody has input on this.

Thanks!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GlutenFreeManna Rising Star
GlutenFreeManna
Posted

People with gluten issues often have gallbladder issues as well. I had mine out in an emergency procedure years before I knew I was gluten intolerant. What you are describing does sound like a gallbladder attack so be sure to monitor it. I have heard the gallbladder can stop working even if you have no stones or sludge in it. If you don't have anymore of these attacks when you are gluten free then you have your answer. But if you keep having them you might check with your doctor about getting a liver function test (which will tell them how well your gallbladder's working) or a HIDA Scan which tests how well your gallbladder is functioning.

bluebonnet Explorer
bluebonnet
Posted

my bf is going thru these attacks as well. she had a couple of tests that revealed no sludge or stones but her doctor said the tests are inconclusive and that her gall bladder may not be functioning properly. definitely try a strict gluten free diet and see if you notice improvement. my bf also for months went completely low fat/no fat and she was told that could wreak havoc on her gall bladder. so if you eat more of a no fat diet maybe adding some good fat in can help digest foods (if gluten is not your initial problem). anyway, that is basically what her doctor told her and it sounds like your descriptions of your attacks are similiar. hope you feel better! :)

Jancy773 Newbie
Jancy773
Posted

I had gall bladder attacks about 10 years before the DH showed up...extreme pain, right side under rib cage...felt like someone had stuck me with a knife and twisted it..went all the way thru to the back. I had the tests done at the hospital too and they told me that my gall bladder was not functioning properly and should be removed. My GP told me to cut out fried & greasy foods and dairy out of my diet and I could postpone the operation for a bit. So that's what I did and I've had no more problems with it. That's been 20 years ago. Nowadays I do fry something on rare occasions and I've been able to eat dairy although I don't make a habit of either one.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,983
    • Most Online (within 30 mins)
      7,748
    Kari Shover
    Newest Member
    Kari Shover
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      I am a male and had developed osteopenia by age 50 which is when I finally got dx with celiac disease. I am sure I had it for at least 13 years before that because it was then I developed idiopathic elevated liver enzymes. I now have a little scoliosis and pronounced kyphosis (upper spine curvature).  All of your symptoms scream of celiac disease, even if the testing you have had done does not. You may be an atypical celiac, meaning the disease is not manifesting itself in your gut but is attacking other body systems. There is such a thing as sero negative celiac disease. But you still have not given me a satisfactory answer to my question of why do you need a differential dx between celiac disease and NCGS when either one would call for complete abstinence from gluten, which you have already been practicing except for short periods when you were undergoing a gluten challenge. Why do you want to put a toxic substance into your body for weeks when, even if it did produce a positive test result for celiac disease, neither you or your doctors would do anything different? Regardless of what doctors are recommending to you, it is your body it is affecting not theirs and they don't seem to have given you any good justification for starting another gluten challenge. Where you live, are doctors kings or something?
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Sorry to put it clearly, at 15, infertility started (tried to word it nicely) meaning menstruation stopped. Which is in correlation to celiac I mean. Thank you. 
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Thank you for the reply! Doctors over the years have tested me for everything under the sun and tests are normal, except the decreasing bone density, high FSH (in regards to infertility), lower iron, and all the other celiac symptoms I experience. When I was 15 the infertility started (my whole life growing up I always ate gluten, and always had severe stomach problems, I’m an adult now and I still remember the stomach pain as a child) and then from here, they couldn’t figure out why. At the same time I was having all these celiac symptoms but nobody ever put two and two together.   Eventually in adulthood I went off gluten and dairy and felt better. Later in life, the topic was brought up by doctors, but they could never actually test for celiac because I was off gluten for years.   Just recently multiple doctors brought it up again, and said I should rule it out. So the ruling out of celiac, which is direct correlation with these symptoms, infertility at a younge age, on the edge and getting into osteopenia, etc. etc. is the concern. I was off of dairy for the same time as gluten because it made me sick. I did not surely have adequate calcium/D intake as well over these years.   The matter of concern is to once and for all get celiac ruled out for my own health, a gastro doctor recommended I get it done and other doctors to confirm yes or no to officially rule it out.  For these 6 weeks I have not been eating enough gluten then it seems, if 2-3 slices of bread a day is not really enough. I should increase my intake of gluten then and extend the test time?   Thank you very much for your help!! The test for Immunoglobulin IgA being a value of —> “1.25” shows it is in the normal range of 0.54-4.17 g/L on the test. 
    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      Welcome to the forum, @WildFlower1! The reason you are seeing conflicting results when you research the length of time recommended for doing the "gluten challenge" is that the guidelines have recently been under revision. So there are two components: 1. amount of daily gluten consumption and 2. duration of that amount of daily gluten consumption Recently, the guidelines have been under revision because the medical community was sensing the previous standards were too relaxed, particularly in the daily amount of recommended gluten consumption. The more recent guidelines seem to be calling for higher amounts of daily gluten consumption over (perhaps) as shorter period of time. So, it is becoming a daily minimum of 10g of gluten daily (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks. Personally, I would recommend that amount of consumption be extended from two weeks to four weeks to ensure valid testing. Your Immunoglobulin IgA at 1.25. Was that within normal range? If that one is low, you are IgA deficient and other IgA test results cannot be trusted. But regardless of whether or not you have celiac disease or NCGS (Non Celiac Gluten Sensitivity) the antidote is the same, namely, a gluten free diet. What would you do different if you had a more confident differential diagnosis? And there are other reasons for the development of osteopenia/osteoporosis that you probably should explore. Are you on any serious supplementation for D3 and magnesium?
×
×
  • Create New...