Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Suspicious

K8ling

By K8ling
in Coping with Celiac Disease

Recommended Posts

K8ling Enthusiast
K8ling
Posted

So most of you know the trouble I have encountered with my MiL and the gluten-free/Celiac thing. We are going to their house this weekend and she called today...to tell me that she bought gluten-free bread and bagels for me. I almost fell out of my chair. A woman who asked if it was "my time of the month" because I was balled up on the floor from a glutening, and then purposely CC'd me to see my reaction...was being helpful. I don't know it she googled it, or what, but she was all too willing to be helpful, even going as far as to let me cook dinner Friday night when we get there.

Should I be cautiously optimistic? On guard? Concerned (is she going to poison me?! Put Gluten in my tea in the morning?!)???

I'm not entirely sure how to handle this!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lucia Enthusiast
lucia
Posted

Sounds like she's been testing you ... maybe you passed the test??? Yes, I really do get sick when I eat that stuff !

kareng Grand Master
kareng
Posted

Maybe FIL said something. Maybe she realized she might not see the grandbaby if she doesn't shape up. Maybe she just had fun going to Whole Foods and wants to try the stuff (similiar to my hub). If other family members think she is not a witch, then maybe, she's not. Maybe, she is just confused. I'm 20 years older than you and can say that for some my age and older, cooking for the family is the way we show love. Hopefully, she just needs to adjust.

So K8, I take back what I said about not going. Give her one more chance....but keep one eye open. :)

(oh yea, report back after)

sa1937 Community Regular
sa1937
Posted

I'd be cautiously optimistic, on guard, concerned and watch her carefully! (hopefully your FIL got to her)

precious831 Contributor
precious831
Posted

So most of you know the trouble I have encountered with my MiL and the gluten-free/Celiac thing. We are going to their house this weekend and she called today...to tell me that she bought gluten-free bread and bagels for me. I almost fell out of my chair. A woman who asked if it was "my time of the month" because I was balled up on the floor from a glutening, and then purposely CC'd me to see my reaction...was being helpful. I don't know it she googled it, or what, but she was all too willing to be helpful, even going as far as to let me cook dinner Friday night when we get there.

Should I be cautiously optimistic? On guard? Concerned (is she going to poison me?! Put Gluten in my tea in the morning?!)???

I'm not entirely sure how to handle this!

Sounds like something my MIL would do. I would be cautiously optimistic! I would just be very careful. She sounds like she is not looking out for your interest and would rather prove a point kwim? I can't stand people like that!

Ahorsesoul Enthusiast
Ahorsesoul
Posted

I just do not trust anyone. I see her buying gluten free bread and rolls, tossing them out and filling the bag with glutened stuff. lol I sure hope I'm wrong!

RideAllWays Enthusiast
RideAllWays
Posted

I just do not trust anyone. I see her buying gluten free bread and rolls, tossing them out and filling the bag with glutened stuff. lol I sure hope I'm wrong!

AHHH that's horrible!!! Has anything like this actually happened to anybody?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MagpieWrites Rookie
MagpieWrites
Posted

AHHH that's horrible!!! Has anything like this actually happened to anybody?

Gluten? Thus far not in my case. However, my mother-in-law got caught rubbing shellfish all over my plate one night while out at a restaurant (deathly allergic) "because she wanted to prove I was just trying to ruin her night out". So... yeah. I'm sure there could be some evil sons of biscuits out there who might try.

Just hoping no one here as any particularly evil family members.

torimuse Rookie
torimuse
Posted

Gluten? Thus far not in my case. However, my mother-in-law got caught rubbing shellfish all over my plate one night while out at a restaurant (deathly allergic) "because she wanted to prove I was just trying to ruin her night out". So... yeah. I'm sure there could be some evil sons of biscuits out there who might try.

Just hoping no one here as any particularly evil family members.

"Evil sons of biscuits" is starting to sound like a worse insult than the original line. :) Thank you for the unintentional amusement, Magpie.

frieze Community Regular
frieze
Posted

I just do not trust anyone. I see her buying gluten free bread and rolls, tossing them out and filling the bag with glutened stuff. lol I sure hope I'm wrong!

that is what i thought of, as well

debmidge Rising Star
debmidge
Posted

Can you ask her where she purchased them from? I wouldn't trust someone who played a trick the first time. It's too serious to trust to a "toxic" person.

Pretend you have a "gluten" indicator and tell her you're going to bring it along to test the items (I believe there is such a thing). Tell this to her face and see what facial reaction she has......otherwise, I would not trust her to do the right thing.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

So most of you know the trouble I have encountered with my MiL and the gluten-free/Celiac thing. We are going to their house this weekend and she called today...to tell me that she bought gluten-free bread and bagels for me. I almost fell out of my chair. A woman who asked if it was "my time of the month" because I was balled up on the floor from a glutening, and then purposely CC'd me to see my reaction...was being helpful. I don't know it she googled it, or what, but she was all too willing to be helpful, even going as far as to let me cook dinner Friday night when we get there.

Should I be cautiously optimistic? On guard? Concerned (is she going to poison me?! Put Gluten in my tea in the morning?!)???

I'm not entirely sure how to handle this!

Now I'm dying to know what happened? Were the gluten free bread and bagels legit? I would given her another chance if she sounds sincere. Just be cautious.

looking4help Apprentice
looking4help
Posted

Geeeezz! Such a hard call. The idea of the "gluten indicator" sounds really good! Having a back up supply of food in your suitcase also sounds good!

I know that some of those not so wonderful mother in laws can change after they realize you are the one in determining certain things she wants, such as visits with grandson, HER SON etc. That is how I worked my MIL.

Please do update us!

Magpie, seriously your MIL rubbed shellfish all over your plate? MAN! There are truly evil people in this world!

Now I'm dying to know what happened? Were the gluten free bread and bagels legit? I would given her another chance if she sounds sincere. Just be cautious.

kareng Grand Master
kareng
Posted

I'm hoping no news is good news. Or K8 is in jail for strangling her MIL. :)

looking4help Apprentice
looking4help
Posted

:blink: We should have set up an alibi story for her! :P

I'm hoping no news is good news. Or K8 is in jail for strangling her MIL. :)

K8ling Enthusiast
K8ling
Posted
  • Author

HAHA I love ALL of you! Yes, I am indeed, ALIVE AND KICKING! I think she finally got the point that if I keep getting sick around her, MY son will not see her. At all. My husband and I cooked all weekend to introduce her to gluten-free cooking, and she even went to Publix with me to get ingredients! We were coloring outside with the baby (sidewalk chalk) and she asked tons of questions. She set all my food away from the wheat stuff, across the kitchen, labeled my butter and PB, and made my munchkin PB and J with RICE BREAD!! When she did give the kid bites of Glutenous stuff she told me after, and washed his hands.

Oh and, the gluten-free stuff was LEGIT! She even used my pans and bought special plastic cooking spoons- plastic and whatnot- that will live in a special drawer. She raised the idea of getting a medic alert bracelet so people would take it more seriously.

Now, I am not saying that I trust her 100% HOWEVER this was a MUCH better weekend than I expected. She asked about alcohol, mixers...she even sent us out for dates both nights we were there (the reunion was cancelled and so we had down time). FiL said she felt terrible for making me so sick (although she maintains she did nothing WRONG, it was an accident). Things are looking decidedly up.

Thank you so much for the support everyone, I was dreading this and I made it through (and couldn't have done it without you guys!). The only tummy troubles I had were from drinking a tiny bit too much (LOL). I will still be nervous about Thanksgiving, but I am less worried than I was. And I think I AM going to get a bracelet because it'll help people take it seriously.

OH, and she bought Tom's Toothpaste because she "read it was gluten-free and toothpaste matters, right?"

Cautiously optimistic- I NEVER let my guard down, but instead of walls lined with spikes they're just brick walls :P

kareng Grand Master
kareng
Posted

WOW

Great, K8! ;)

I would still keep an eye on her just because she doesn't do this all the time and might make an honest mistake or forget something. My Hub sometimes forgets because some things are a habit he will have to break. The best in my house has been my 14 year old son who isn't Celiac. He reminds me sometimes and double checks ingredients id he thinks something might be suspicious.

Ahorsesoul Enthusiast
Ahorsesoul
Posted

My hats off to your in-laws! Love her idea of the Med-ID bracelet.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

HAHA I love ALL of you! Yes, I am indeed, ALIVE AND KICKING! I think she finally got the point that if I keep getting sick around her, MY son will not see her. At all. My husband and I cooked all weekend to introduce her to gluten-free cooking, and she even went to Publix with me to get ingredients! We were coloring outside with the baby (sidewalk chalk) and she asked tons of questions. She set all my food away from the wheat stuff, across the kitchen, labeled my butter and PB, and made my munchkin PB and J with RICE BREAD!! When she did give the kid bites of Glutenous stuff she told me after, and washed his hands.

Oh and, the gluten-free stuff was LEGIT! She even used my pans and bought special plastic cooking spoons- plastic and whatnot- that will live in a special drawer. She raised the idea of getting a medic alert bracelet so people would take it more seriously.

Now, I am not saying that I trust her 100% HOWEVER this was a MUCH better weekend than I expected. She asked about alcohol, mixers...she even sent us out for dates both nights we were there (the reunion was cancelled and so we had down time). FiL said she felt terrible for making me so sick (although she maintains she did nothing WRONG, it was an accident). Things are looking decidedly up.

Thank you so much for the support everyone, I was dreading this and I made it through (and couldn't have done it without you guys!). The only tummy troubles I had were from drinking a tiny bit too much (LOL). I will still be nervous about Thanksgiving, but I am less worried than I was. And I think I AM going to get a bracelet because it'll help people take it seriously.

OH, and she bought Tom's Toothpaste because she "read it was gluten-free and toothpaste matters, right?"

Cautiously optimistic- I NEVER let my guard down, but instead of walls lined with spikes they're just brick walls :P

It's like a miracle! Wow, sounds like she really did do some research and figured out you are not just a hypochondriac. Of course you still need to be on your guard, but it appears she is going to be more cooperative in the future. That's half the battle won right there. :)

torimuse Rookie
torimuse
Posted

Congrats, K8!! That's amazing. :)

K8ling Enthusiast
K8ling
Posted
  • Author

well lets not get crazy now, I think she was more open HOWEVER once she has to handle the butt pain of cooking for me in a gluten kitchen, we may backslide a bit.

But yes, VAST improvements!!

looking4help Apprentice
looking4help
Posted

This is awesome! Remember MILs really do respond to the threat of not being able to see their own son much less their grandkids!

Ultimately, just put your good smile on and "sweet" her to death! Give her a call and tell her how very much you appreciate the extra care.

I find if I "sweet" my MIL enough she is in a place where if she does act like a B to me then everyone int he family gets on her case because after all I have been NOTHING but nice! HEEHEEHHEHEE

Keep up the guard! We're here girl!

well lets not get crazy now, I think she was more open HOWEVER once she has to handle the butt pain of cooking for me in a gluten kitchen, we may backslide a bit.

But yes, VAST improvements!!

K8ling Enthusiast
K8ling
Posted
  • Author

HAHAHA I am officially going to "sweet" her to death, I love that term!!! . I sent a Thank you card this morning. Husband just said I was "waging maternal warfare".

looking4help Apprentice
looking4help
Posted

Well, SHE may open the card and think WTF but I promise the rest of the family will smile and think things are all hunky dory again!

Imagine this: MIL did NOT like me one bit. Horror stories I could tell you. THEN about 4 years into this I sent her roses for Mothers day. HAHAHHAHAHA! I had her there. Everyone was like ohhhh ohhhhh how sweet!! See she isn't bad at all!!

I am like HEHEHEHEHEEHE!!! Of course it was all the more sweet when I found out that noone had ever sent her roses before in all her years!! HAHAHA!! I promise I never ever forget to send that bouquet of flowers EVERY year!

HA!

If you need ideas how to "sweet" her let me know. I got a million of them by now!

HAHAHA I am officially going to "sweet" her to death, I love that term!!! . I sent a Thank you card this morning. Husband just said I was "waging maternal warfare".

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. MI-Hoosier
      - MI-Hoosier replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test uncertainty

      Thanks again. My mom was diagnosed over 50 years ago with celiac so grew up watching her deal with the challenges of food. I have been tested a few times prior due to this but these results have me a bit stunned. I have a liver disease that has advanced rapidly with no symptoms and an allergy that could be a contributing factor that had no symptoms. I guess...
    2. Heather Hill
      - Heather Hill replied to Heather Hill's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Does this definitely suggest Coeliac Disease?

      Many thanks for your responses, much appreciated. The tests did include tTg IgA and all the other markers mentioned. I also had sufficient total IgA so if I'm reading the Mayo clinic thing correctly, I didn't really need the anti-deaminated gliadin marker? So, if I am reading the information correctly do I conclude that as all the other markers including...
    3. trents
      - trents replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test uncertainty

      To put this in perspective, most recent pretest "gluten challenge" guidelines for those having already been eating reduced gluten or gluten free for a significant time period is the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks leading up to the day of testing (antibody or biopsy). And I would...
    4. MI-Hoosier
      - MI-Hoosier replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test uncertainty

      Thank you for the response and article. I was placed on the Mediterranean diet and been on that now for about 3 weeks. While not gluten free I am eating very little bread or anything with gluten ie a slice of whole wheat bread every couple days so assume that would cause issues now with a biopsy. With the condition my liver is in I am unsure moving back...
    5. trents
      - trents replied to MI-Hoosier's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Test uncertainty

      Welcome to the forum, @MI-Hoosier! You are operating on a misconception about your "mixed" test results. You only had two celiac disease diagnostic tests run out of six that could have been ordered if your doctor had opted for a complete celiac panel. It is perfectly normal to not test positive for all possible celiac disease diagnostic tests. That is...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,254
    • Most Online (within 30 mins)
      7,748
    brigette
    Newest Member
    brigette
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.8k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • MI-Hoosier
      Test uncertainty

      By MI-Hoosier · Posted

      Thanks again. My mom was diagnosed over 50 years ago with celiac so grew up watching her deal with the challenges of food. I have been tested a few times prior due to this but these results have me a bit stunned. I have a liver disease that has advanced rapidly with no symptoms and an allergy that could be a contributing factor that had no symptoms. I guess I’ll call it lucky my Dr ordered a rescreen of a liver ultrasound from 5 years ago that triggered this or I would likely have tripped into cirrhosis. It’s all pretty jarring.
    • Heather Hill
      Does this definitely suggest Coeliac Disease?

      By Heather Hill · Posted

      Many thanks for your responses, much appreciated.  The tests did include tTg IgA and all the other markers mentioned.  I also had sufficient total IgA so if I'm reading the Mayo clinic thing correctly, I didn't really need the anti-deaminated gliadin marker? So, if I am reading the information correctly do I conclude that as all the other markers including tTg IgA and DGP IgG and tTg IgG and EMA IgA are all negative, then the positive result for the immune response to gliadin, on it's own, is more likely to suggest some other problem in the gut rather than Coeliac disease? Until I have a view from the medics (NHS UK) then I think I will concentrate on trying to lower chronic inflammation and mend leaky gut, using L glutamine and maybe collagen powder. Thank you for your help so far.  I will get back in touch once I have a response, which sadly can take quite a long time.   Kindest Heather Hill 
    • trents
      Test uncertainty

      By trents · Posted

      To put this in perspective, most recent pretest "gluten challenge" guidelines for those having already been eating reduced gluten or gluten free for a significant time period is the daily consumption of 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks leading up to the day of testing (antibody or biopsy). And I would certainly give it more than two weeks to ensure a valid test experience. Short answer: If it were me, yes, I would assume I have celiac disease and launch full bore into gluten-free eating. I think the tTG-IGA is reliable enough and your score is solid enough to make that a reasonable conclusion. Here is an article to help you get off to a good start. It's easy to achieve a reduced gluten free state but much more difficult to achieve consistency in truly gluten-free eating. Gluten is hidden in so many ways and found in so many food products where you would never expect to find it. For example, soy sauce and canned tomato soup (most canned soups, actually), pills, medications, health supplements. It can be disguised in terminology. And then there is the whole issue of cross contamination where foods that are naturally gluten free become contaminated with gluten incidentally in agricultural activities and manufacturing processes: Eating out at restaurants is a mine field for those with celiac disease because you don't know how food is handled back in the kitchen. Gluten free noodles boiled in the same water that was used for wheat noodles, eggs cooked on the same griddle that French toast was, etc.  
    • MI-Hoosier
      Test uncertainty

      By MI-Hoosier · Posted

      Thank you for the response and article. I was placed on the Mediterranean diet and been on that now for about 3 weeks. While not gluten free I am eating very little bread or anything with gluten ie a slice of whole wheat bread every couple days so assume that would cause issues now with a biopsy.  With the condition my liver is in I am unsure moving back to higher bread consumption is ideal.  In this scenario would my test results be enough to assume positive Celiac and just move forward gluten free?
    • trents
      Test uncertainty

      By trents · Posted

      Welcome to the forum, @MI-Hoosier! You are operating on a misconception about your "mixed" test results. You only had two celiac disease diagnostic tests run out of six that could have been ordered if your doctor had opted for a complete celiac panel. It is perfectly normal to not test positive for all possible celiac disease diagnostic tests. That is why there is more than one test option. It is the same way with other diagnostic testing procedures for many or most other diseases. Generally, when diagnosing a condition, a number of different tests are run and a diagnosis is arrived at by looking at the total body of evidence. The tTG-IGA test is the centerpiece of celiac disease blood antibody testing and the one most commonly ordered by doctors. You were strongly positive for that test. It was not an unequivocal result, IMO.  Having said that, it is standard procedure to confirm a positive celiac disease blood antibody test result with an endoscopy/biopsy which is still considered the gold standard of celiac disease diagnosis. Had your tTG-IGA been 150 or greater, your doctor many have opted out of the endoscopy/biopsy. The absence of GI distress in the celiac disease population is very common. We call them "silent celiacs". That can change as damage to the lining of the small bowel worsens. Elevated liver enzymes/liver stress is very common in the celiac population. About 18% of celiacs experience it. I was one of them. Persistently elevated liver enzymes over a period of years in the absence of other typical causes such as hepatitis and alcohol abuse was what eventually led to my celiac disease diagnosis. But it took thirteen years to get that figured out. Within three months of going gluten free my liver enzymes were back into normal range. Thank goodness, there is more awareness these days about the many long fingers of celiac disease that are not found in the classic category of GI distress. Today, there have been over 200 symptoms/medical conditions identified as connected to celiac disease. It is critical that you not begin a gluten free diet until your endoscopy/biopsy of the small bowel is over. Doing so before that procedure will invalidate it because it will allow healing of the small bowel lining to begin. Here is a link to an article covering celiac disease blood antibody testing:  
×
×
  • Create New...